Re: Allergy/Asthma meds not working any longer

[Guest guest]

I was on pred. every day, rushed to the emergency room about 6 times a year

hospitalized about 2 or 3 times a year and still couldn't breathe well on

tons of medications. I am off prednisone and can breathe wonderful in all kinds

of weather. I can sleep with windows open and can be around grass being cut.

I cannot believe how well I am doing. I see people with allergies without

asthma and I am doing better than they are. I have a life now. I like being

able to go out side without having to rush going back inside . I have not used

my inhaler or nebulizer machine in months. I can take normal and deep

breaths without wheezing.Xolair has been a miracle to me. It took nine months

of

xolair to get off pred. I thought I was doomed before. I like being able to

breathe! I cannot say enough wonderful things about this drug. I was very bad

off but there are people here worse off than I was, who also have been able

to reclaim their lives back due to xolair. Read the previous posts. There are

alot of success stories there.... Sharon who has found life again

************************************** See what's free at http://www.aol.com.

[Guest guest]

Feel free to read some of the files where we have FAQs and quotes

from some of the members (see " files " at the left). Also, if you do

a search of past postings under " son " or " daughter, " that should

bring up past postings by parents of children on Xolair.

Have you tried taking the carpet out of your daughter's room?

Addy

Group co-owner

>

> Hi everyone,

> I have a 16yo daughter who has allergy/asthma and has had it all of

> her life, currently she has been on Symbicort, Ventolin, Nasonex,

> Zyrtec, Singulair and Losec because the specialist believes that she

> gets chest pains from reflux( I think its because every time she

> breathes deeply she gets chest pain) well anyway we are at a point

> that her medications are no longer working, she has had a week dose

of

> Prednislone every 2 weeks for the last 3 months, but not discounting

> the allergy side of her asthma I have cleaned the carpets (only

> carpets are in bedrooms and are cleaned every 3 months anyway)I have

> also bought special bedding for allergy/house dustmite, all the

house

> is completely dusted and pets are kept outside.

> I have read alot about Xolair and I seem to think its a good drug

but

> I cant seem to find much information about it here in Australia or

> weather its actually use here yet and I wont really know that until

I

> see her specialist in 3 weeks time but I would still like to hear

what

> everyone else has to say about Xolair good and bad, especially from

> young people.

> Many Thanks,

> Simone

>

[Guest guest]

Simone,

I would strongly suggest you get your daughter started on Xolair if you can.

It changed the lives of many, many people including my own. It is not a cure

but it is an extremely effective treatment.

In addition to starting Xolair I would suggest you remove all of the carpeting

in your house, including the carpeting in your bedrooms. A few years ago -

before starting Xolair - I removed every shred of carpeting in my house and

replaced it with Pergo flooring. It made a huge, HUGE difference. I noticed

the difference the same day the carpeting was removed. We were living on

plywood and concrete until I had a chance to put the laminate down and the

difference was just amazing.

I bought expensive bedding that was supposed to be dust mite proof for my

mattress and it didn't work. Instead I went to Walmart and bought a $3 vinyl

mattress cover - the ones you use for kids who wet the bed - and it worked

great. Tear down all the curtains and drapes if you have them. Switch to

radiant heat if you can. Put up vertical blinds and vacuum every day.

I did all these, except the radiant heat, and it made a big difference. Also,

your daughter may want to try Mucinex and a lot water. It really helps thin out

the mucus. I drink about 100 oz. of water per day and it makes a big

difference.

Good luck!

P.S. I installed an electro-static air filter on my furnace along with

filters for all my air vents and it really helps keep the dust to a minimum. I

also get my vents cleaned every year. Us asthmatics have to go to great lengths

to keep our condition under control but it's worth every breathe!

Simone <miss.sam@...> wrote:

Hi everyone,

I have a 16yo daughter who has allergy/asthma and has had it all of

her life, currently she has been on Symbicort, Ventolin, Nasonex,

Zyrtec, Singulair and Losec because the specialist believes that she

gets chest pains from reflux( I think its because every time she

breathes deeply she gets chest pain) well anyway we are at a point

that her medications are no longer working, she has had a week dose of

Prednislone every 2 weeks for the last 3 months, but not discounting

the allergy side of her asthma I have cleaned the carpets (only

carpets are in bedrooms and are cleaned every 3 months anyway)I have

also bought special bedding for allergy/house dustmite, all the house

is completely dusted and pets are kept outside.

I have read alot about Xolair and I seem to think its a good drug but

I cant seem to find much information about it here in Australia or

weather its actually use here yet and I wont really know that until I

see her specialist in 3 weeks time but I would still like to hear what

everyone else has to say about Xolair good and bad, especially from

young people.

Many Thanks,

Simone

---------------------------------

Boardwalk for $500? In 2007? Ha!

Play Monopoly Here and Now (it's updated for today's economy) at Games.

[Guest guest]

Hi:

Young people can take Xolair, but I think you have to do a better job with

your daughters allergies. Get rid of the carpeting, and anything else she's

allergic to.,

Kathy

Simone <miss.sam@...> wrote:

Hi everyone,

I have a 16yo daughter who has allergy/asthma and has had it all of

her life, currently she has been on Symbicort, Ventolin, Nasonex,

Zyrtec, Singulair and Losec because the specialist believes that she

gets chest pains from reflux( I think its because every time she

breathes deeply she gets chest pain) well anyway we are at a point

that her medications are no longer working, she has had a week dose of

Prednislone every 2 weeks for the last 3 months, but not discounting

the allergy side of her asthma I have cleaned the carpets (only

carpets are in bedrooms and are cleaned every 3 months anyway)I have

also bought special bedding for allergy/house dustmite, all the house

is completely dusted and pets are kept outside.

I have read alot about Xolair and I seem to think its a good drug but

I cant seem to find much information about it here in Australia or

weather its actually use here yet and I wont really know that until I

see her specialist in 3 weeks time but I would still like to hear what

everyone else has to say about Xolair good and bad, especially from

young people.

Many Thanks,

Simone

---------------------------------

Moody friends. Drama queens. Your life? Nope! - their life, your story.

Play Sims Stories at Games.

[Guest guest]

Just remember that Simone, the initial poster of this

message, lives in Australia. So what we know of

here in " the states " may not stand true there. There

are so many environmental issues that they have that

are different from here. Housing construction

materials have different standards. Different molds,

different species and varieties of plants.

ALSO: Xolair may not be approved by their NHS, like it

is in Canada and in the UK. I think the only thing

that us " Americans " can really suggest is that Simone

contacts Genentec or Novartist to find out who in her

area is doing study groups for Xolair, which is

exactly what that one poster who is an Australian

living in the states did. I think a major kudos in

necessary for replying to her message!!!!

My suggestion is to go to the SPOC link at

www.xpansions.com and ask oneof the online support

Nurses for help finding out who can help in

Australia. I CAN NOT stress how important that

Xpansions link should be to anyone who is on Xolair or

who is thinking about going on it!!!!

--- kathy eisen <kathyh1942@...> wrote:

> Hi:

>

> Young people can take Xolair, but I think you have

> to do a better job with your daughters allergies.

> Get rid of the carpeting, and anything else she's

> allergic to.,

>

> Kathy

>

> Simone <miss.sam@...> wrote:

> Hi everyone,

> I have a 16yo daughter who has allergy/asthma and

> has had it all of

> her life, currently she has been on Symbicort,

> Ventolin, Nasonex,

> Zyrtec, Singulair and Losec because the specialist

> believes that she

> gets chest pains from reflux( I think its because

> every time she

> breathes deeply she gets chest pain) well anyway we

> are at a point

> that her medications are no longer working, she has

> had a week dose of

> Prednislone every 2 weeks for the last 3 months, but

> not discounting

> the allergy side of her asthma I have cleaned the

> carpets (only

> carpets are in bedrooms and are cleaned every 3

> months anyway)I have

> also bought special bedding for allergy/house

> dustmite, all the house

> is completely dusted and pets are kept outside.

> I have read alot about Xolair and I seem to think

> its a good drug but

> I cant seem to find much information about it here

> in Australia or

> weather its actually use here yet and I wont really

> know that until I

> see her specialist in 3 weeks time but I would still

> like to hear what

> everyone else has to say about Xolair good and bad,

> especially from

> young people.

> Many Thanks,

> Simone

>

>

>

>

>

>

> ---------------------------------

> Moody friends. Drama queens. Your life? Nope! -

> their life, your story.

> Play Sims Stories at Games.

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

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Take the Internet to Go: Go puts the Internet in your pocket: mail, news,

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[Guest guest]

I think I would definitely get rid of the carpet in your daughter's bedroom at

the least. I have not had carpet in my bedroom since my asthma started, and

we are getting ready to get rid of the carpet in the den and l. r.

kathy eisen <kathyh1942@...> wrote: Hi:

Young people can take Xolair, but I think you have to do a better job with your

daughters allergies. Get rid of the carpeting, and anything else she's allergic

to.,

Kathy

Simone <miss.sam@...> wrote:

Hi everyone,

I have a 16yo daughter who has allergy/asthma and has had it all of

her life, currently she has been on Symbicort, Ventolin, Nasonex,

Zyrtec, Singulair and Losec because the specialist believes that she

gets chest pains from reflux( I think its because every time she

breathes deeply she gets chest pain) well anyway we are at a point

that her medications are no longer working, she has had a week dose of

Prednislone every 2 weeks for the last 3 months, but not discounting

the allergy side of her asthma I have cleaned the carpets (only

carpets are in bedrooms and are cleaned every 3 months anyway)I have

also bought special bedding for allergy/house dustmite, all the house

is completely dusted and pets are kept outside.

I have read alot about Xolair and I seem to think its a good drug but

I cant seem to find much information about it here in Australia or

weather its actually use here yet and I wont really know that until I

see her specialist in 3 weeks time but I would still like to hear what

everyone else has to say about Xolair good and bad, especially from

young people.

Many Thanks,

Simone

---------------------------------

Moody friends. Drama queens. Your life? Nope! - their life, your story.

Play Sims Stories at Games.

[Guest guest]

Simone, I agree that it's worth considering Xolair, at least down the

road if it's affordable in your country or if not, if you can get

help from Genentech. But I also strongly agree with a previous post

that, first and foremost, if your daughter is allergic to dust mites

it's essential that you get rid of the carpeting at least in your

daughter's bedroom. Dust mites are dust mites all over the world, big

troublemakers, and even cleaning the carpets and vacuuming them

frequently cannot keep them from being a major trigger in someone

allergic to them. Also there should be no window treatments in the

room that cannot be wiped everytime you dust, i.e. no curtains or

drapes. There are many other steps you must take diligently if she is

allergic to dust mites and your allergist can give you detailed

information about this if you don't already have it.

While Xolair has brought many of us a huge amount of relief, it does

have some side effects in some patients, like any other drug. As Addy

has already pointed out, you'll get a good feel for the good and the

occasional bad by reading through many of the previous posts from

this e-group.

Wishing you only the best for your daughter,

Fran

> > Hi everyone,

> > I have a 16yo daughter who has allergy/asthma and

> > has had it all of

> > her life, currently she has been on Symbicort,

> > Ventolin, Nasonex,

> > Zyrtec, Singulair and Losec because the specialist

> > believes that she

> > gets chest pains from reflux( I think its because

> > every time she

> > breathes deeply she gets chest pain) well anyway we

> > are at a point

> > that her medications are no longer working, she has

> > had a week dose of

> > Prednislone every 2 weeks for the last 3 months, but

> > not discounting

> > the allergy side of her asthma I have cleaned the

> > carpets (only

> > carpets are in bedrooms and are cleaned every 3

> > months anyway)I have

> > also bought special bedding for allergy/house

> > dustmite, all the house

> > is completely dusted and pets are kept outside.

> > I have read alot about Xolair and I seem to think

> > its a good drug but

> > I cant seem to find much information about it here

> > in Australia or

> > weather its actually use here yet and I wont really

> > know that until I

> > see her specialist in 3 weeks time but I would still

> > like to hear what

> > everyone else has to say about Xolair good and bad,

> > especially from

> > young people.

> > Many Thanks,

> > Simone

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Moody friends. Drama queens. Your life? Nope! -

> > their life, your story.

> > Play Sims Stories at Games.

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

>

>

>

______________________________________________________________________

______________

> Take the Internet to Go: Go puts the Internet in your pocket:

mail, news, photos & more.

> http://mobile./go?refer=1GNXIC

>