Re. Joint pain and fatigue

[Guest guest]

With regards to KK's response, I was not on steroids much pre-Xolair, yet I also

have joint pain and fatigue. No other med or lifestyle changes either. So i am

a believer that this is a side-effect of Xolair until proven otherwise....

Still curious WHY this would be a side-effect,

Mark

" Man is not valuable because he loves God; Man is valuable because God loves

him. "

[Guest guest]

I can attest to serious joint pain. Xolair shot number 1 left me in

bed for 2 days, knees, hips, foot pain when walking. It was bad enough

that I wondered whether breathing was worth it. Each shot of my first

4 or 5 had a different reaction. However, the pain was not like

arthritis, more like nerve inflammation.

My physician at UNC was part of the clinical trials, and was not

surprised. See: http://www.rxlist.com/cgi/generic/xolair_ad.htm. I'm

at 8 months, and my hips may never be quite the same, but, the rest

has subsided.

>

> With regards to KK's response, I was not on steroids much

pre-Xolair, yet I also have joint pain and fatigue. No other med or

lifestyle changes either. So i am a believer that this is a

side-effect of Xolair until proven otherwise....

>

> Still curious WHY this would be a side-effect,

>

> Mark

>

> " Man is not valuable because he loves God; Man is valuable because

God loves him. "

>

[Guest guest]

For me there just isn't an option of quitting Xolair. The dr. was doing

everything he could to keep me alive before he could get me on Xolair. I have

very severe asthma - my lungs are brittle and fragile. I have been on very

high doses of Solimedrol/Depomedrol/Predisone before Xolair. My peak flow on

good days hovered around 150. I had to have home health care for a while just

so I could get Solimedrol.

I have two doctors working on trying to figure out what is wrong with me.

One of the doctors contacted Nova-Factor to see what they could come up with.

What I am praying for is something to relieve the pain. If it is a

side-effect of Xolair then I hope there is some type of solution the doctors

can do

to allow me to cope with the pain.

Suzanne

************************************** See what's free at http://www.aol.com.

[Guest guest]

Bless your hearts. I am so sorry you are having such a rough time with

joint pain.

If it was me, I would have a long talk with my doctor about taking me

off Xolair and putting me back on Prednisone. I would be able to

breathe and the Prednisone would care of my joint pain.

I would then however, have to live with the other serious side effects

and consequences of taking Presnisone....... Diabetes, cataracts, bone

loss, massive weight gain, irritability, deep depression,

hyperactivity etc... From taking years of prednisone, I have had 3

cataract surgeries, 2 cervical disk fusion surgeries and am type II

Diabetic just to mention a few things.

I know the choices we asthmatics have to make just to be able to

breathe are hard. Sometimes, we have to outweigh the good with the bad.

This is just my case and opinion and I am NOT a doctor. I am just

someone who has been on Prednisone most of his life till liberated

from it by Xolair.

Thank you for posting. It is my prayer that xolair will also be the

miracle drug for you that it was for me and 99% of the others in this

group. )

PLEASE talk to your doctor before making ANY changes in your own

healthcare.

Doug

Group founder