Bone Infection ??? !!!! Suz Fisher - could this be happening to you?

[Guest guest]

Ohmygoodness! SuzFisher, I hope this is NOT happening to you but just in case

.... possibly this is something your doc could check too. Weird how we're

having these similar symptoms at same time.

Bizarro ... had lumbar spine MRI Fri. aftn. It was a really up-to-date

Tensilon 3 machine. The tech (?) gave me copies of the films at my request.

Reading the cover - it says " Index for Radiological Diagnoses and Illustration

On Back. " It LOOKS like the label says DXTX (diagnosis - treatment?) is 21.

On the back, under both " Skull and Contents " and " Spine and Contents " - .2

Inflammation - .21 Osteomyelitis.

Sounds to me like I have osteomyelitis ????? No WONDER I'm having this

apparent worsening of " arthritis. " Pain in my neck, lower back, under my left

arm (torso) hips, left pelvic bone just below waist, and knees and ankles. No

one is taking me very seriously. I've had frequent infections for YEARS but

assumed they were all in sinuses and lungs.

By the way, I seem to be better re asthma. Skipped Advair for 2 days and

didn't think it was my last breath. Possibly Xolair is starting to kick in a

little bit. This could be a good thing if other systems (of my body) are

appropriately monitored and treated. Hope Xolair doesn't have anything to do

w-it; suspect this has happened before (before Xolair) but not recognized. Temp

is normal but don't feel good. This is Sat. night. I'm trying to figure out

what to do.

BTW, the only oral steroid I've had in the last 10 months or more was a 4 day

course back in Feb. So, I KNOW my " arthritis " isn't caused by unveiling a

disease previously covered by steroid.

I had to push my pcp to run it - he didn't want to. The neurologist refused

to run the MRI - said nothing wrong there!!!

The only other odd thing recently was a pap test that showed very high

inflammation but no infection or anything else. Slightly concerned and

surprised by all this !

---------------------------------

Looking for a deal? Find great prices on flights and hotels with

FareChase.

[Guest guest]

I seriously doubt that what you saw on your MRI cover was the

radiologist's diagnoses. Most likely, the doc who ordered the MRI

gave inflammation and osteomyelitis as diagnoses he wanted to rule

out, i.e. what he wanted the radiologist to look for as possible

diagnoses to explain your symptoms. It would be highly unusual for

the cover to show the radiologist's diagnoses. These should be given

only in the resport sent to the ordering physician, which is who you

should contact for the MRI results.

Also, osteomyelitis is almost always an extremely localized

infection, e.g. in a single point on a single bone rather than

generalized over many bones. Inflammation, as in arthritis, can occur

in many places throughout the body or just one spot.

Best of luck to you in trying to figure out where your symptoms are

coming from.

Fran

--- In , SD Designer <instdesgn1@...>

wrote:

>

> Ohmygoodness! SuzFisher, I hope this is NOT happening to you but

just in case ... possibly this is something your doc could check

too. Weird how we're having these similar symptoms at same time.

>

> Bizarro ... had lumbar spine MRI Fri. aftn. It was a really up-

to-date Tensilon 3 machine. The tech (?) gave me copies of the films

at my request. Reading the cover - it says " Index for Radiological

Diagnoses and Illustration On Back. " It LOOKS like the label says

DXTX (diagnosis - treatment?) is 21. On the back, under both " Skull

and Contents " and " Spine and Contents " - .2 Inflammation - .21

Osteomyelitis.

>

> Sounds to me like I have osteomyelitis ????? No WONDER I'm

having this apparent worsening of " arthritis. " Pain in my neck,

lower back, under my left arm (torso) hips, left pelvic bone just

below waist, and knees and ankles. No one is taking me very

seriously. I've had frequent infections for YEARS but assumed they

were all in sinuses and lungs.

>

> By the way, I seem to be better re asthma. Skipped Advair for 2

days and didn't think it was my last breath. Possibly Xolair is

starting to kick in a little bit. This could be a good thing if

other systems (of my body) are appropriately monitored and treated.

Hope Xolair doesn't have anything to do w-it; suspect this has

happened before (before Xolair) but not recognized. Temp is normal

but don't feel good. This is Sat. night. I'm trying to figure out

what to do.

>

> BTW, the only oral steroid I've had in the last 10 months or more

was a 4 day course back in Feb. So, I KNOW my " arthritis " isn't

caused by unveiling a disease previously covered by steroid.

>

> I had to push my pcp to run it - he didn't want to. The

neurologist refused to run the MRI - said nothing wrong there!!!

>

> The only other odd thing recently was a pap test that showed very

high inflammation but no infection or anything else. Slightly

concerned and surprised by all this !

>

>

>

>

> ---------------------------------

> Looking for a deal? Find great prices on flights and hotels with

FareChase.

>

>

[Guest guest]

This is just my own experience. I had joint/bone aches the first few months on

xolair, but this last shot (#11) I had no aches anywhere--and the fatigue was

very mild--so mild it really didn't bother me, though I was conscious of being a

little tired. But that too passed quickly, although I did sleep a little longer

the night after my shot.

I should mention that I take one shot a month--150mg. I can't remember the

amount Suzi (?) is taking, but I'm wondering if the higher doses might produce

stronger side effects????Not a doctor, nor even anything close to the medical

profession.......Just a question.....

I agree that the doctor should be consulted--and the situation discussed

thoroughly with all of the options/side effects covered thoroughly.

Prayers for wisdom for you and your doctor in your treatments.

Adah

tiredofsteroids <sitesee@...> wrote:

I seriously doubt that what you saw on your MRI cover was the

radiologist's diagnoses. Most likely, the doc who ordered the MRI

gave inflammation and osteomyelitis as diagnoses he wanted to rule

out, i.e. what he wanted the radiologist to look for as possible

diagnoses to explain your symptoms. It would be highly unusual for

the cover to show the radiologist's diagnoses. These should be given

only in the resport sent to the ordering physician, which is who you

should contact for the MRI results.

Also, osteomyelitis is almost always an extremely localized

infection, e.g. in a single point on a single bone rather than

generalized over many bones. Inflammation, as in arthritis, can occur

in many places throughout the body or just one spot.

Best of luck to you in trying to figure out where your symptoms are

coming from.

Fran

--- In , SD Designer <instdesgn1@...>

wrote:

>

> Ohmygoodness! SuzFisher, I hope this is NOT happening to you but

just in case ... possibly this is something your doc could check

too. Weird how we're having these similar symptoms at same time.

>

> Bizarro ... had lumbar spine MRI Fri. aftn. It was a really up-

to-date Tensilon 3 machine. The tech (?) gave me copies of the films

at my request. Reading the cover - it says " Index for Radiological

Diagnoses and Illustration On Back. " It LOOKS like the label says

DXTX (diagnosis - treatment?) is 21. On the back, under both " Skull

and Contents " and " Spine and Contents " - .2 Inflammation - .21

Osteomyelitis.

>

> Sounds to me like I have osteomyelitis ????? No WONDER I'm

having this apparent worsening of " arthritis. " Pain in my neck,

lower back, under my left arm (torso) hips, left pelvic bone just

below waist, and knees and ankles. No one is taking me very

seriously. I've had frequent infections for YEARS but assumed they

were all in sinuses and lungs.

>

> By the way, I seem to be better re asthma. Skipped Advair for 2

days and didn't think it was my last breath. Possibly Xolair is

starting to kick in a little bit. This could be a good thing if

other systems (of my body) are appropriately monitored and treated.

Hope Xolair doesn't have anything to do w-it; suspect this has

happened before (before Xolair) but not recognized. Temp is normal

but don't feel good. This is Sat. night. I'm trying to figure out

what to do.

>

> BTW, the only oral steroid I've had in the last 10 months or more

was a 4 day course back in Feb. So, I KNOW my " arthritis " isn't

caused by unveiling a disease previously covered by steroid.

>

> I had to push my pcp to run it - he didn't want to. The

neurologist refused to run the MRI - said nothing wrong there!!!

>

> The only other odd thing recently was a pap test that showed very

high inflammation but no infection or anything else. Slightly

concerned and surprised by all this !

>

>

>

>

> ---------------------------------

> Looking for a deal? Find great prices on flights and hotels with

FareChase.

>

>

[Guest guest]

I'm not a radiologist, but my husband is an aging athlete and he has

had any number of x-rays. I agree with Fran that normally the cover

indicates what's to be ruled out so that the radiologist knows what

direction the doc who ordered the x-rays is thinking. My husband's

cases are more straight forward tho - usually multiple views of the

same broken bone(s) so they can decide what kind of contraption to

put them back together with....

Addy

Group co-owner

Baseball widow

> >

> > Ohmygoodness! SuzFisher, I hope this is NOT happening to you

but

> just in case ... possibly this is something your doc could check

> too. Weird how we're having these similar symptoms at same

time.

> >

> > Bizarro ... had lumbar spine MRI Fri. aftn. It was a really

up-

> to-date Tensilon 3 machine. The tech (?) gave me copies of the

films

> at my request. Reading the cover - it says " Index for

Radiological

> Diagnoses and Illustration On Back. " It LOOKS like the label

says

> DXTX (diagnosis - treatment?) is 21. On the back, under

both " Skull

> and Contents " and " Spine and Contents " - .2 Inflammation - .21

> Osteomyelitis.

> >

> > Sounds to me like I have osteomyelitis ????? No WONDER I'm

> having this apparent worsening of " arthritis. " Pain in my neck,

> lower back, under my left arm (torso) hips, left pelvic bone just

> below waist, and knees and ankles. No one is taking me very

> seriously. I've had frequent infections for YEARS but assumed

they

> were all in sinuses and lungs.

> >

> > By the way, I seem to be better re asthma. Skipped Advair for

2

> days and didn't think it was my last breath. Possibly Xolair is

> starting to kick in a little bit. This could be a good thing if

> other systems (of my body) are appropriately monitored and

treated.

> Hope Xolair doesn't have anything to do w-it; suspect this has

> happened before (before Xolair) but not recognized. Temp is

normal

> but don't feel good. This is Sat. night. I'm trying to figure

out

> what to do.

> >

> > BTW, the only oral steroid I've had in the last 10 months or

more

> was a 4 day course back in Feb. So, I KNOW my " arthritis " isn't

> caused by unveiling a disease previously covered by steroid.

> >

> > I had to push my pcp to run it - he didn't want to. The

> neurologist refused to run the MRI - said nothing wrong there!!!

> >

> > The only other odd thing recently was a pap test that showed

very

> high inflammation but no infection or anything else. Slightly

> concerned and surprised by all this !

> >

> >

> >

> >

> > ---------------------------------

> > Looking for a deal? Find great prices on flights and hotels with

> FareChase.

> >

> >

[Guest guest]

I am curious, I have began to experience hip pain. I have been reading

many readers saying their pain is because of XOLAIR which I have been

taking a little over a year now. I most recently noticed the pain when

participating in a softball game with my 18 year old son. I found that

I could barely run because my hip became painful and a little cumbersome

to put pressure on when running. Could this be caused by XOLAIR?

I also believe I read recently that prednisone and Nexium (the purple

pill) could also cause the bones I our bodies to deteroriate and/or

weakening and pain in bones and joints. What has anyone else heard

about this?

Steve Zimmerman

Have a Good Day

785-296-6947

-----Original Message-----

From: [mailto: ]

On Behalf Of Adah Voigt

Sent: Sunday, June 24, 2007 9:56 PM

Subject: Re: [ ] Re: Bone Infection ??? !!!! Suz Fisher -

could this be happening to you?

This is just my own experience. I had joint/bone aches the first few

months on xolair, but this last shot (#11) I had no aches anywhere--and

the fatigue was very mild--so mild it really didn't bother me, though I

was conscious of being a little tired. But that too passed quickly,

although I did sleep a little longer the night after my shot.

I should mention that I take one shot a month--150mg. I can't

remember the amount Suzi (?) is taking, but I'm wondering if the higher

doses might produce stronger side effects????Not a doctor, nor even

anything close to the medical profession.......Just a question.....

I agree that the doctor should be consulted--and the situation

discussed thoroughly with all of the options/side effects covered

thoroughly.

Prayers for wisdom for you and your doctor in your treatments.

Adah

tiredofsteroids <sitesee@...> wrote:

I seriously doubt that what you saw on your MRI cover was the

radiologist's diagnoses. Most likely, the doc who ordered the MRI gave

inflammation and osteomyelitis as diagnoses he wanted to rule out, i.e.

what he wanted the radiologist to look for as possible diagnoses to

explain your symptoms. It would be highly unusual for the cover to show

the radiologist's diagnoses. These should be given only in the resport

sent to the ordering physician, which is who you should contact for the

MRI results.

Also, osteomyelitis is almost always an extremely localized infection,

e.g. in a single point on a single bone rather than generalized over

many bones. Inflammation, as in arthritis, can occur in many places

throughout the body or just one spot.

Best of luck to you in trying to figure out where your symptoms are

coming from.

Fran

--- In , SD Designer <instdesgn1@...>

wrote:

>

> Ohmygoodness! SuzFisher, I hope this is NOT happening to you but

just in case ... possibly this is something your doc could check too.

Weird how we're having these similar symptoms at same time.

>

> Bizarro ... had lumbar spine MRI Fri. aftn. It was a really up-

to-date Tensilon 3 machine. The tech (?) gave me copies of the films at

my request. Reading the cover - it says " Index for Radiological

Diagnoses and Illustration On Back. " It LOOKS like the label says DXTX

(diagnosis - treatment?) is 21. On the back, under both " Skull and

Contents " and " Spine and Contents " - .2 Inflammation - .21

Osteomyelitis.

>

> Sounds to me like I have osteomyelitis ????? No WONDER I'm

having this apparent worsening of " arthritis. " Pain in my neck, lower

back, under my left arm (torso) hips, left pelvic bone just below waist,

and knees and ankles. No one is taking me very seriously. I've had

frequent infections for YEARS but assumed they were all in sinuses and

lungs.

>

> By the way, I seem to be better re asthma. Skipped Advair for 2

days and didn't think it was my last breath. Possibly Xolair is starting

to kick in a little bit. This could be a good thing if other systems (of

my body) are appropriately monitored and treated.

Hope Xolair doesn't have anything to do w-it; suspect this has happened

before (before Xolair) but not recognized. Temp is normal but don't feel

good. This is Sat. night. I'm trying to figure out what to do.

>

> BTW, the only oral steroid I've had in the last 10 months or more

was a 4 day course back in Feb. So, I KNOW my " arthritis " isn't caused

by unveiling a disease previously covered by steroid.

>

> I had to push my pcp to run it - he didn't want to. The

neurologist refused to run the MRI - said nothing wrong there!!!

>

> The only other odd thing recently was a pap test that showed very

high inflammation but no infection or anything else. Slightly concerned

and surprised by all this !

>

>

>

>

> ---------------------------------

> Looking for a deal? Find great prices on flights and hotels with

FareChase.

>

>

[Guest guest]

Frequent or regular oral steroid use is a risk factor for bone loss

(as well as diabetes, cataracts and a slough of nasty things). I

don't know about nexium.

Addy

Group co-owner

Too afraid to go back for a second dexa scan 'cuz the first one was

bad enough. Bought handweights at the used sporting goods store for

$2 a piece.

> >

> > Ohmygoodness! SuzFisher, I hope this is NOT happening to you but

> just in case ... possibly this is something your doc could check too.

> Weird how we're having these similar symptoms at same time.

> >

> > Bizarro ... had lumbar spine MRI Fri. aftn. It was a really up-

> to-date Tensilon 3 machine. The tech (?) gave me copies of the films at

> my request. Reading the cover - it says " Index for Radiological

> Diagnoses and Illustration On Back. " It LOOKS like the label says DXTX

> (diagnosis - treatment?) is 21. On the back, under both " Skull and

> Contents " and " Spine and Contents " - .2 Inflammation - .21

> Osteomyelitis.

> >

> > Sounds to me like I have osteomyelitis ????? No WONDER I'm

> having this apparent worsening of " arthritis. " Pain in my neck, lower

> back, under my left arm (torso) hips, left pelvic bone just below waist,

> and knees and ankles. No one is taking me very seriously. I've had

> frequent infections for YEARS but assumed they were all in sinuses and

> lungs.

> >

> > By the way, I seem to be better re asthma. Skipped Advair for 2

> days and didn't think it was my last breath. Possibly Xolair is starting

> to kick in a little bit. This could be a good thing if other systems (of

> my body) are appropriately monitored and treated.

> Hope Xolair doesn't have anything to do w-it; suspect this has happened

> before (before Xolair) but not recognized. Temp is normal but don't feel

> good. This is Sat. night. I'm trying to figure out what to do.

> >

> > BTW, the only oral steroid I've had in the last 10 months or more

> was a 4 day course back in Feb. So, I KNOW my " arthritis " isn't caused

> by unveiling a disease previously covered by steroid.

> >

> > I had to push my pcp to run it - he didn't want to. The

> neurologist refused to run the MRI - said nothing wrong there!!!

> >

> > The only other odd thing recently was a pap test that showed very

> high inflammation but no infection or anything else. Slightly concerned

> and surprised by all this !

> >

> >

> >

> >

> > ---------------------------------

> > Looking for a deal? Find great prices on flights and hotels with

> FareChase.

> >

> >

[Guest guest]

I am an example of what pred can do to bones. I'm osteopenic with

hip pain. It started BEFORE the xolair. I have also had surgery

because about an inch of radial bone in my arm dissolved. the

surgeon was more than a little surprised when he touched it during

surgery and it continued to crumble. my last bouts of pred and

INHALED steroids have caused one of my teeth to crumble as well. My

dentist told me my teeth were very soft because the calcium had been

leeched from them.Thank you steroids. What I'm trying to say is that

all steroids can cause bone/joint damage to some degree. My drs put

me on xolair so I would quit dissolving! I don't think you can blame

xolair for the damage. Most asthmatics have long, involved steroid

histories; not all of the side effects show up right away. I also

had aspergillis osteomylitis caused by IV steroids. It is very rare

and not an easy diagnosis. I'm 2 " shorter(4'9 " ), but after 6 mos of

IV meds, have almost full mobility. It is a trade off everyone must

decide: which is worse- the disease or the cure.

becki

> >

> > Ohmygoodness! SuzFisher, I hope this is NOT happening to you but

> just in case ... possibly this is something your doc could check

too.

> Weird how we're having these similar symptoms at same time.

> >

> > Bizarro ... had lumbar spine MRI Fri. aftn. It was a really up-

> to-date Tensilon 3 machine. The tech (?) gave me copies of the

films at

> my request. Reading the cover - it says " Index for Radiological

> Diagnoses and Illustration On Back. " It LOOKS like the label says

DXTX

> (diagnosis - treatment?) is 21. On the back, under both " Skull and

> Contents " and " Spine and Contents " - .2 Inflammation - .21

> Osteomyelitis.

> >

> > Sounds to me like I have osteomyelitis ????? No WONDER I'm

> having this apparent worsening of " arthritis. " Pain in my neck,

lower

> back, under my left arm (torso) hips, left pelvic bone just below

waist,

> and knees and ankles. No one is taking me very seriously. I've had

> frequent infections for YEARS but assumed they were all in sinuses

and

> lungs.

> >

> > By the way, I seem to be better re asthma. Skipped Advair for 2

> days and didn't think it was my last breath. Possibly Xolair is

starting

> to kick in a little bit. This could be a good thing if other

systems (of

> my body) are appropriately monitored and treated.

> Hope Xolair doesn't have anything to do w-it; suspect this has

happened

> before (before Xolair) but not recognized. Temp is normal but

don't feel

> good. This is Sat. night. I'm trying to figure out what to do.

> >

> > BTW, the only oral steroid I've had in the last 10 months or more

> was a 4 day course back in Feb. So, I KNOW my " arthritis " isn't

caused

> by unveiling a disease previously covered by steroid.

> >

> > I had to push my pcp to run it - he didn't want to. The

> neurologist refused to run the MRI - said nothing wrong there!!!

> >

> > The only other odd thing recently was a pap test that showed very

> high inflammation but no infection or anything else. Slightly

concerned

> and surprised by all this !

> >

> >

> >

> >

> > ---------------------------------

> > Looking for a deal? Find great prices on flights and hotels with

> FareChase.

> >

> >

[Guest guest]

Maybe I am missing something here, but then I am not medically trained, and had

a rough time with chemistry (not biology, however.)

I was on high doses of prednisone (the highest was 60 mg for two days,

tapering off from there) off and on for over five years. The very first time my

allergist put me on prednisone for asthma, he instructed me to do two things.

1. Start taking calcium every day; 2. go to my pcp for complete bloodwork

every six months to make sure that the levels of calcium, potassium, etc. were

not declining. He also told me to drink ginger ale when I was on prednisone as

it helped the body to retain potassium. (I still can't figure that one out, but

I enjoyed the ginger ale, anyway and diet ginger ale was available.)

When I had my first and only bone scan for osteoporosis (last summer), my

doctor doubled the calcium I was taking, but told me the scan only showed I

could be a candidate for osteoporosis. The up side to having taken calcium for

so long is that the dentist told me the bones in my jaws were like those of a 14

year old. (I'm not sure he knew what he was talking about, but it sounded good

to me!) By the way, I was never allergic to dairy products and drank lots of

milk until I was in my late 40's. Now I use it on my cereal and that is about

all. But I take 1200 mg of calcium each day. And I do try to eat foods rich in

calcium.

That's my experience anyway. Doctor's know best and it is always best to

discuss the issues thoroughly with your doctor(s).

To the many of you who have had serious bone problems as a result of

prednisone, my sympathy goes out to you. I realize how very good I have had it

in so many ways, and I am very glad for xolair. No pred for over a year now!

Adah

asperqu <asperqu@...> wrote:

I am an example of what pred can do to bones. I'm osteopenic with

hip pain. It started BEFORE the xolair. I have also had surgery

because about an inch of radial bone in my arm dissolved. the

surgeon was more than a little surprised when he touched it during

surgery and it continued to crumble. my last bouts of pred and

INHALED steroids have caused one of my teeth to crumble as well. My

dentist told me my teeth were very soft because the calcium had been

leeched from them.Thank you steroids. What I'm trying to say is that

all steroids can cause bone/joint damage to some degree. My drs put

me on xolair so I would quit dissolving! I don't think you can blame

xolair for the damage. Most asthmatics have long, involved steroid

histories; not all of the side effects show up right away. I also

had aspergillis osteomylitis caused by IV steroids. It is very rare

and not an easy diagnosis. I'm 2 " shorter(4'9 " ), but after 6 mos of

IV meds, have almost full mobility. It is a trade off everyone must

decide: which is worse- the disease or the cure.

becki

> >

> > Ohmygoodness! SuzFisher, I hope this is NOT happening to you but

> just in case ... possibly this is something your doc could check

too.

> Weird how we're having these similar symptoms at same time.

> >

> > Bizarro ... had lumbar spine MRI Fri. aftn. It was a really up-

> to-date Tensilon 3 machine. The tech (?) gave me copies of the

films at

> my request. Reading the cover - it says " Index for Radiological

> Diagnoses and Illustration On Back. " It LOOKS like the label says

DXTX

> (diagnosis - treatment?) is 21. On the back, under both " Skull and

> Contents " and " Spine and Contents " - .2 Inflammation - .21

> Osteomyelitis.

> >

> > Sounds to me like I have osteomyelitis ????? No WONDER I'm

> having this apparent worsening of " arthritis. " Pain in my neck,

lower

> back, under my left arm (torso) hips, left pelvic bone just below

waist,

> and knees and ankles. No one is taking me very seriously. I've had

> frequent infections for YEARS but assumed they were all in sinuses

and

> lungs.

> >

> > By the way, I seem to be better re asthma. Skipped Advair for 2

> days and didn't think it was my last breath. Possibly Xolair is

starting

> to kick in a little bit. This could be a good thing if other

systems (of

> my body) are appropriately monitored and treated.

> Hope Xolair doesn't have anything to do w-it; suspect this has

happened

> before (before Xolair) but not recognized. Temp is normal but

don't feel

> good. This is Sat. night. I'm trying to figure out what to do.

> >

> > BTW, the only oral steroid I've had in the last 10 months or more

> was a 4 day course back in Feb. So, I KNOW my " arthritis " isn't

caused

> by unveiling a disease previously covered by steroid.

> >

> > I had to push my pcp to run it - he didn't want to. The

> neurologist refused to run the MRI - said nothing wrong there!!!

> >

> > The only other odd thing recently was a pap test that showed very

> high inflammation but no infection or anything else. Slightly

concerned

> and surprised by all this !

> >

> >

> >

> >

> > ---------------------------------

> > Looking for a deal? Find great prices on flights and hotels with

> FareChase.

> >

> >

[Guest guest]

I looked up Nexium and it is rare, but it does effect the bones in some people.

It might help for you to look it up on Internet and read the possible side

effects and the contraindications. I do take Nexium and zantac at bedtime for

gerd.

asperqu <asperqu@...> wrote: I am an example of what pred can do

to bones. I'm osteopenic with

hip pain. It started BEFORE the xolair. I have also had surgery

because about an inch of radial bone in my arm dissolved. the

surgeon was more than a little surprised when he touched it during

surgery and it continued to crumble. my last bouts of pred and

INHALED steroids have caused one of my teeth to crumble as well. My

dentist told me my teeth were very soft because the calcium had been

leeched from them.Thank you steroids. What I'm trying to say is that

all steroids can cause bone/joint damage to some degree. My drs put

me on xolair so I would quit dissolving! I don't think you can blame

xolair for the damage. Most asthmatics have long, involved steroid

histories; not all of the side effects show up right away. I also

had aspergillis osteomylitis caused by IV steroids. It is very rare

and not an easy diagnosis. I'm 2 " shorter(4'9 " ), but after 6 mos of

IV meds, have almost full mobility. It is a trade off everyone must

decide: which is worse- the disease or the cure.

becki

> >

> > Ohmygoodness! SuzFisher, I hope this is NOT happening to you but

> just in case ... possibly this is something your doc could check

too.

> Weird how we're having these similar symptoms at same time.

> >

> > Bizarro ... had lumbar spine MRI Fri. aftn. It was a really up-

> to-date Tensilon 3 machine. The tech (?) gave me copies of the

films at

> my request. Reading the cover - it says " Index for Radiological

> Diagnoses and Illustration On Back. " It LOOKS like the label says

DXTX

> (diagnosis - treatment?) is 21. On the back, under both " Skull and

> Contents " and " Spine and Contents " - .2 Inflammation - .21

> Osteomyelitis.

> >

> > Sounds to me like I have osteomyelitis ????? No WONDER I'm

> having this apparent worsening of " arthritis. " Pain in my neck,

lower

> back, under my left arm (torso) hips, left pelvic bone just below

waist,

> and knees and ankles. No one is taking me very seriously. I've had

> frequent infections for YEARS but assumed they were all in sinuses

and

> lungs.

> >

> > By the way, I seem to be better re asthma. Skipped Advair for 2

> days and didn't think it was my last breath. Possibly Xolair is

starting

> to kick in a little bit. This could be a good thing if other

systems (of

> my body) are appropriately monitored and treated.

> Hope Xolair doesn't have anything to do w-it; suspect this has

happened

> before (before Xolair) but not recognized. Temp is normal but

don't feel

> good. This is Sat. night. I'm trying to figure out what to do.

> >

> > BTW, the only oral steroid I've had in the last 10 months or more

> was a 4 day course back in Feb. So, I KNOW my " arthritis " isn't

caused

> by unveiling a disease previously covered by steroid.

> >

> > I had to push my pcp to run it - he didn't want to. The

> neurologist refused to run the MRI - said nothing wrong there!!!

> >

> > The only other odd thing recently was a pap test that showed very

> high inflammation but no infection or anything else. Slightly

concerned

> and surprised by all this !

> >

> >

> >

> >

> > ---------------------------------

> > Looking for a deal? Find great prices on flights and hotels with

> FareChase.

> >

> >

[Guest guest]

> > >

> > > Ohmygoodness! SuzFisher, I hope this is NOT happening to you

but

> > just in case ... possibly this is something your doc could check

> too.

> > Weird how we're having these similar symptoms at same time.

> > >

> > > Bizarro ... had lumbar spine MRI Fri. aftn. It was a really up-

> > to-date Tensilon 3 machine. The tech (?) gave me copies of the

> films at

> > my request. Reading the cover - it says " Index for Radiological

> > Diagnoses and Illustration On Back. " It LOOKS like the label

says

> DXTX

> > (diagnosis - treatment?) is 21. On the back, under both " Skull

and

> > Contents " and " Spine and Contents " - .2 Inflammation - .21

> > Osteomyelitis.

> > >

> > > Sounds to me like I have osteomyelitis ????? No WONDER I'm

> > having this apparent worsening of " arthritis. " Pain in my neck,

> lower

> > back, under my left arm (torso) hips, left pelvic bone just

below

> waist,

> > and knees and ankles. No one is taking me very seriously. I've

had

> > frequent infections for YEARS but assumed they were all in

sinuses

> and

> > lungs.

> > >

> > > By the way, I seem to be better re asthma. Skipped Advair for 2

> > days and didn't think it was my last breath. Possibly Xolair is

> starting

> > to kick in a little bit. This could be a good thing if other

> systems (of

> > my body) are appropriately monitored and treated.

> > Hope Xolair doesn't have anything to do w-it; suspect this has

> happened

> > before (before Xolair) but not recognized. Temp is normal but

> don't feel

> > good. This is Sat. night. I'm trying to figure out what to do.

> > >

> > > BTW, the only oral steroid I've had in the last 10 months or

more

> > was a 4 day course back in Feb. So, I KNOW my " arthritis " isn't

> caused

> > by unveiling a disease previously covered by steroid.

> > >

> > > I had to push my pcp to run it - he didn't want to. The

> > neurologist refused to run the MRI - said nothing wrong there!!!

> > >

> > > The only other odd thing recently was a pap test that showed

very

> > high inflammation but no infection or anything else. Slightly

> concerned

> > and surprised by all this !

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Looking for a deal? Find great prices on flights and hotels

with

> > FareChase.

> > >

> > >

[Guest guest]

I can't remember anyone else mentioning calcium. I can't imagine having to go

through what you have gone through in your life, but I imagine that you love

life and are more appreciative of life than some of us who have stuggled but not

like you have! God's blessings be on you.

I know Doug and several others have suffered bone loss and diseases from too

much prednisone. I am humbled by the pain and suffering many of you have gone

through. I thought my 60 mg was a lot and it did cause me some pain in my arms

and hands. I did have several cortisone shots to get it into my system

quickly, but I never had to stay in the hospital, although I did make some ER

visits in the early days when asthma reared it's ugly head in my life. My

nebulizer at home kept me out of the hospital, many times, though.

I am very glad that the xolair is helping you.

Adah

asperqu <asperqu@...> wrote:

> > >

> > > Ohmygoodness! SuzFisher, I hope this is NOT happening to you

but

> > just in case ... possibly this is something your doc could check

> too.

> > Weird how we're having these similar symptoms at same time.

> > >

> > > Bizarro ... had lumbar spine MRI Fri. aftn. It was a really up-

> > to-date Tensilon 3 machine. The tech (?) gave me copies of the

> films at

> > my request. Reading the cover - it says " Index for Radiological

> > Diagnoses and Illustration On Back. " It LOOKS like the label

says

> DXTX

> > (diagnosis - treatment?) is 21. On the back, under both " Skull

and

> > Contents " and " Spine and Contents " - .2 Inflammation - .21

> > Osteomyelitis.

> > >

> > > Sounds to me like I have osteomyelitis ????? No WONDER I'm

> > having this apparent worsening of " arthritis. " Pain in my neck,

> lower

> > back, under my left arm (torso) hips, left pelvic bone just

below

> waist,

> > and knees and ankles. No one is taking me very seriously. I've

had

> > frequent infections for YEARS but assumed they were all in

sinuses

> and

> > lungs.

> > >

> > > By the way, I seem to be better re asthma. Skipped Advair for 2

> > days and didn't think it was my last breath. Possibly Xolair is

> starting

> > to kick in a little bit. This could be a good thing if other

> systems (of

> > my body) are appropriately monitored and treated.

> > Hope Xolair doesn't have anything to do w-it; suspect this has

> happened

> > before (before Xolair) but not recognized. Temp is normal but

> don't feel

> > good. This is Sat. night. I'm trying to figure out what to do.

> > >

> > > BTW, the only oral steroid I've had in the last 10 months or

more

> > was a 4 day course back in Feb. So, I KNOW my " arthritis " isn't

> caused

> > by unveiling a disease previously covered by steroid.

> > >

> > > I had to push my pcp to run it - he didn't want to. The

> > neurologist refused to run the MRI - said nothing wrong there!!!

> > >

> > > The only other odd thing recently was a pap test that showed

very

> > high inflammation but no infection or anything else. Slightly

> concerned

> > and surprised by all this !

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Looking for a deal? Find great prices on flights and hotels

with

> > FareChase.

> > >

> > >

[Guest guest]

Anybody on frequent or chronic steroids should have periodic bone

scans to check for osteoporosis. Adah, I think you said you had a

bone scan with a worrisome result. It's important that you have a

follow-up scan after a year to see where you stand. Treatment for

osteoporosis or osteopenia (thinning bones that are not yet

osteoporotic) should include daily 1200-1500 mg calcium with vitamin

D as well as Fosamax or Boniva. The latter meds slow down and can

even reverse bone loss.

I developed osteoporosis in my 30s after only 3months of 40mg daily

prednisone. It definitely can happen even with just inhaled steroids,

although a lot of docs don't seem to realize that. If you're taking

high-dose inhaled steroids, enough can be absorbed systemically to

cause any or all of the common side effects of prednisone. For

example, for 6 years I was on baseline doses of Advair 500/50 twice

daily plus Flovent 220, 2 puffs twice daily. The amount of

fluticasone (the steroid in both Advair and Flovent) absorbed by the

body (not just the lungs) at that dosing is equivalent to 25 mg

prednisone daily. I'm extremely steroid-sensitive and that was enough

to worsen my osteoporosis, cause a 40-pound weight gain, worsen my

high blood pressure, cause suppression of my adrenal glands and

produce the bruising and susceptibility to skin tears that oral and

IV steroids can produce. In children, inhaled steroids alone can

cause suppression of growth.

I don't say all this to frighten anyone, since there's no question

that steroids are life-savers for many of us, but it's important to

be aware that even inhaled steroids can cause serious side effects.

A big one that should be checked for because it is treatable is

osteoporosis - please, please get your bone scans!

Fran

So...bottom line is please get your bone scans!

> > > >

> > > > Ohmygoodness! SuzFisher, I hope this is NOT happening to you

> but

> > > just in case ... possibly this is something your doc could

check

> > too.

> > > Weird how we're having these similar symptoms at same time.

> > > >

> > > > Bizarro ... had lumbar spine MRI Fri. aftn. It was a really

up-

> > > to-date Tensilon 3 machine. The tech (?) gave me copies of the

> > films at

> > > my request. Reading the cover - it says " Index for Radiological

> > > Diagnoses and Illustration On Back. " It LOOKS like the label

> says

> > DXTX

> > > (diagnosis - treatment?) is 21. On the back, under both " Skull

> and

> > > Contents " and " Spine and Contents " - .2 Inflammation - .21

> > > Osteomyelitis.

> > > >

> > > > Sounds to me like I have osteomyelitis ????? No WONDER I'm

> > > having this apparent worsening of " arthritis. " Pain in my neck,

> > lower

> > > back, under my left arm (torso) hips, left pelvic bone just

> below

> > waist,

> > > and knees and ankles. No one is taking me very seriously. I've

> had

> > > frequent infections for YEARS but assumed they were all in

> sinuses

> > and

> > > lungs.

> > > >

> > > > By the way, I seem to be better re asthma. Skipped Advair for

2

> > > days and didn't think it was my last breath. Possibly Xolair is

> > starting

> > > to kick in a little bit. This could be a good thing if other

> > systems (of

> > > my body) are appropriately monitored and treated.

> > > Hope Xolair doesn't have anything to do w-it; suspect this has

> > happened

> > > before (before Xolair) but not recognized. Temp is normal but

> > don't feel

> > > good. This is Sat. night. I'm trying to figure out what to do.

> > > >

> > > > BTW, the only oral steroid I've had in the last 10 months or

> more

> > > was a 4 day course back in Feb. So, I KNOW my " arthritis " isn't

> > caused

> > > by unveiling a disease previously covered by steroid.

> > > >

> > > > I had to push my pcp to run it - he didn't want to. The

> > > neurologist refused to run the MRI - said nothing wrong

there!!!

> > > >

> > > > The only other odd thing recently was a pap test that showed

> very

> > > high inflammation but no infection or anything else. Slightly

> > concerned

> > > and surprised by all this !

> > > >

> > > >

> > > >

> > > >

> > > > ---------------------------------

> > > > Looking for a deal? Find great prices on flights and hotels

> with

> > > FareChase.

> > > >

> > > >

[Guest guest]

My doctor never prescribed a bone density test until a year ago. It didn't show

that I had any problems right now, but merely that I could if I didn't do

something right now, which is when he prescribed the extra calcium--I did ask

him what I should do about it. So far my pcp has not prescribed boniva or any

other supplement. He is very good at watching out for my overall health and I

feel certain that if he thought I needed the extra calcium he would have

prescribed it for me.

Another very important fact that jumped out again is that EVERY ONE OF US HAS

AN INDIVIDUAL CHEMICAL MAKEUP AND RESPOND TO ALL MEDICATIONS AND STIMULI SUCH AS

ALLERGENS IN VARIOUS WAYS. (Our DNA?) I did have some bruising while on

prednisone, but made sure I took vitamin C (I think I read that somewhere) and

it seemed to help some. I take Advair 500 and Spiriva (which I understand has

some steroid in it--I didn't think it did...) But other than the Advair, I don't

even use a steroid nasal spray anymore. I do know that after a while, even

inhaled steroids can filter into the system.

You are right, though, in insisting on checking on our bones. I just am a

believer in checking with my doctors about every thing. Not only did I have the

bone scan, but I had an MRI on my spine because of pain I was having in my legs

at night. Nothing.

In reading of all you and the others have gone through, I am sitting here very

grateful that while I have had great difficulty breathing, working with my

allergist, my asthma, for the most part has been rather under control for about

the last ten years, with bouts about two or three times a year which required

prednisone. But even those bouts have not showed up in the year that I have

been on xolair. So maybe someday soon I can stop the ADVAIR.

Fran, I really respect your knowledge, advice and feel for you in what you

have had to go through. I know that you will always straighten us out when we

don't have some of our facts straight, and you always do it in a very kind,

gentle way. I, for one, appreciate you and the fact that you are a very

important part of this group. You are also a great encourager!

Adah

tiredofsteroids <sitesee@...> wrote:

Anybody on frequent or chronic steroids should have periodic bone

scans to check for osteoporosis. Adah, I think you said you had a

bone scan with a worrisome result. It's important that you have a

follow-up scan after a year to see where you stand. Treatment for

osteoporosis or osteopenia (thinning bones that are not yet

osteoporotic) should include daily 1200-1500 mg calcium with vitamin

D as well as Fosamax or Boniva. The latter meds slow down and can

even reverse bone loss.

I developed osteoporosis in my 30s after only 3months of 40mg daily

prednisone. It definitely can happen even with just inhaled steroids,

although a lot of docs don't seem to realize that. If you're taking

high-dose inhaled steroids, enough can be absorbed systemically to

cause any or all of the common side effects of prednisone. For

example, for 6 years I was on baseline doses of Advair 500/50 twice

daily plus Flovent 220, 2 puffs twice daily. The amount of

fluticasone (the steroid in both Advair and Flovent) absorbed by the

body (not just the lungs) at that dosing is equivalent to 25 mg

prednisone daily. I'm extremely steroid-sensitive and that was enough

to worsen my osteoporosis, cause a 40-pound weight gain, worsen my

high blood pressure, cause suppression of my adrenal glands and

produce the bruising and susceptibility to skin tears that oral and

IV steroids can produce. In children, inhaled steroids alone can

cause suppression of growth.

I don't say all this to frighten anyone, since there's no question

that steroids are life-savers for many of us, but it's important to

be aware that even inhaled steroids can cause serious side effects.

A big one that should be checked for because it is treatable is

osteoporosis - please, please get your bone scans!

Fran

So...bottom line is please get your bone scans!

> > > >

> > > > Ohmygoodness! SuzFisher, I hope this is NOT happening to you

> but

> > > just in case ... possibly this is something your doc could

check

> > too.

> > > Weird how we're having these similar symptoms at same time.

> > > >

> > > > Bizarro ... had lumbar spine MRI Fri. aftn. It was a really

up-

> > > to-date Tensilon 3 machine. The tech (?) gave me copies of the

> > films at

> > > my request. Reading the cover - it says " Index for Radiological

> > > Diagnoses and Illustration On Back. " It LOOKS like the label

> says

> > DXTX

> > > (diagnosis - treatment?) is 21. On the back, under both " Skull

> and

> > > Contents " and " Spine and Contents " - .2 Inflammation - .21

> > > Osteomyelitis.

> > > >

> > > > Sounds to me like I have osteomyelitis ????? No WONDER I'm

> > > having this apparent worsening of " arthritis. " Pain in my neck,

> > lower

> > > back, under my left arm (torso) hips, left pelvic bone just

> below

> > waist,

> > > and knees and ankles. No one is taking me very seriously. I've

> had

> > > frequent infections for YEARS but assumed they were all in

> sinuses

> > and

> > > lungs.

> > > >

> > > > By the way, I seem to be better re asthma. Skipped Advair for

2

> > > days and didn't think it was my last breath. Possibly Xolair is

> > starting

> > > to kick in a little bit. This could be a good thing if other

> > systems (of

> > > my body) are appropriately monitored and treated.

> > > Hope Xolair doesn't have anything to do w-it; suspect this has

> > happened

> > > before (before Xolair) but not recognized. Temp is normal but

> > don't feel

> > > good. This is Sat. night. I'm trying to figure out what to do.

> > > >

> > > > BTW, the only oral steroid I've had in the last 10 months or

> more

> > > was a 4 day course back in Feb. So, I KNOW my " arthritis " isn't

> > caused

> > > by unveiling a disease previously covered by steroid.

> > > >

> > > > I had to push my pcp to run it - he didn't want to. The

> > > neurologist refused to run the MRI - said nothing wrong

there!!!

> > > >

> > > > The only other odd thing recently was a pap test that showed

> very

> > > high inflammation but no infection or anything else. Slightly

> > concerned

> > > and surprised by all this !

> > > >

> > > >

> > > >

> > > >

> > > > ---------------------------------

> > > > Looking for a deal? Find great prices on flights and hotels

> with

> > > FareChase.

> > > >

> > > >

[Guest guest]

Adah, thank you so much for you kind remarks!

Fran

> > > > >

> > > > > Ohmygoodness! SuzFisher, I hope this is NOT happening to

you

> > but

> > > > just in case ... possibly this is something your doc could

> check

> > > too.

> > > > Weird how we're having these similar symptoms at same time.

> > > > >

> > > > > Bizarro ... had lumbar spine MRI Fri. aftn. It was a really

> up-

> > > > to-date Tensilon 3 machine. The tech (?) gave me copies of

the

> > > films at

> > > > my request. Reading the cover - it says " Index for

Radiological

> > > > Diagnoses and Illustration On Back. " It LOOKS like the label

> > says

> > > DXTX

> > > > (diagnosis - treatment?) is 21. On the back, under

both " Skull

> > and

> > > > Contents " and " Spine and Contents " - .2 Inflammation - .21

> > > > Osteomyelitis.

> > > > >

> > > > > Sounds to me like I have osteomyelitis ????? No WONDER I'm

> > > > having this apparent worsening of " arthritis. " Pain in my

neck,

> > > lower

> > > > back, under my left arm (torso) hips, left pelvic bone just

> > below

> > > waist,

> > > > and knees and ankles. No one is taking me very seriously.

I've

> > had

> > > > frequent infections for YEARS but assumed they were all in

> > sinuses

> > > and

> > > > lungs.

> > > > >

> > > > > By the way, I seem to be better re asthma. Skipped Advair

for

> 2

> > > > days and didn't think it was my last breath. Possibly Xolair

is

> > > starting

> > > > to kick in a little bit. This could be a good thing if other

> > > systems (of

> > > > my body) are appropriately monitored and treated.

> > > > Hope Xolair doesn't have anything to do w-it; suspect this

has

> > > happened

> > > > before (before Xolair) but not recognized. Temp is normal but

> > > don't feel

> > > > good. This is Sat. night. I'm trying to figure out what to

do.

> > > > >

> > > > > BTW, the only oral steroid I've had in the last 10 months

or

> > more

> > > > was a 4 day course back in Feb. So, I KNOW my " arthritis "

isn't

> > > caused

> > > > by unveiling a disease previously covered by steroid.

> > > > >

> > > > > I had to push my pcp to run it - he didn't want to. The

> > > > neurologist refused to run the MRI - said nothing wrong

> there!!!

> > > > >

> > > > > The only other odd thing recently was a pap test that

showed

> > very

> > > > high inflammation but no infection or anything else. Slightly

> > > concerned

> > > > and surprised by all this !

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ---------------------------------

> > > > > Looking for a deal? Find great prices on flights and hotels

> > with

> > > > FareChase.

> > > > >

> > > > >

[Guest guest]

They were from the heart. And you are right about exercise. I don't do it

regularly enough, but I do housework--bending over putting the dishes in the

dishwasher, bending and moving putting clothes in the washer and then

transfering them to the dryer, lots of arm movement folding sheets, towels,

etc.; when I have to shop, I walk the perimeter of the store (we have very large

supermarkets as well as large Walmarts), sometimes I not only walk the

perimeter, but I'll walk up and down every aisle--stretching to reach cans on

the top, bending to get the cereal from the bottom shelf. And up until this

last semester I kept my granddaughter from the time she was born--two or three

days a week, depending on when her Mother had college classes, so I also did

some weight training--lifting her--still do sometimes, and running after her

from the time she learned to crawl--fun, but exercise! So I haven't been

sitting on my duff.

But I really do feel better when I go to the gym and walk at a consistent

speed for 30 minutes! And my pcp really encourages me to do that, too.

tiredofsteroids <sitesee@...> wrote:

Adah, thank you so much for you kind remarks!

Fran

> > > > >

> > > > > Ohmygoodness! SuzFisher, I hope this is NOT happening to

you

> > but

> > > > just in case ... possibly this is something your doc could

> check

> > > too.

> > > > Weird how we're having these similar symptoms at same time.

> > > > >

> > > > > Bizarro ... had lumbar spine MRI Fri. aftn. It was a really

> up-

> > > > to-date Tensilon 3 machine. The tech (?) gave me copies of

the

> > > films at

> > > > my request. Reading the cover - it says " Index for

Radiological

> > > > Diagnoses and Illustration On Back. " It LOOKS like the label

> > says

> > > DXTX

> > > > (diagnosis - treatment?) is 21. On the back, under

both " Skull

> > and

> > > > Contents " and " Spine and Contents " - .2 Inflammation - .21

> > > > Osteomyelitis.

> > > > >

> > > > > Sounds to me like I have osteomyelitis ????? No WONDER I'm

> > > > having this apparent worsening of " arthritis. " Pain in my

neck,

> > > lower

> > > > back, under my left arm (torso) hips, left pelvic bone just

> > below

> > > waist,

> > > > and knees and ankles. No one is taking me very seriously.

I've

> > had

> > > > frequent infections for YEARS but assumed they were all in

> > sinuses

> > > and

> > > > lungs.

> > > > >

> > > > > By the way, I seem to be better re asthma. Skipped Advair

for

> 2

> > > > days and didn't think it was my last breath. Possibly Xolair

is

> > > starting

> > > > to kick in a little bit. This could be a good thing if other

> > > systems (of

> > > > my body) are appropriately monitored and treated.

> > > > Hope Xolair doesn't have anything to do w-it; suspect this

has

> > > happened

> > > > before (before Xolair) but not recognized. Temp is normal but

> > > don't feel

> > > > good. This is Sat. night. I'm trying to figure out what to

do.

> > > > >

> > > > > BTW, the only oral steroid I've had in the last 10 months

or

> > more

> > > > was a 4 day course back in Feb. So, I KNOW my " arthritis "

isn't

> > > caused

> > > > by unveiling a disease previously covered by steroid.

> > > > >

> > > > > I had to push my pcp to run it - he didn't want to. The

> > > > neurologist refused to run the MRI - said nothing wrong

> there!!!

> > > > >

> > > > > The only other odd thing recently was a pap test that

showed

> > very

> > > > high inflammation but no infection or anything else. Slightly

> > > concerned

> > > > and surprised by all this !

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ---------------------------------

> > > > > Looking for a deal? Find great prices on flights and hotels

> > with

> > > > FareChase.

> > > > >

> > > > >

[Guest guest]

Hi Adah:

I can't find the name of the original person who sent the e-mail about bone

infection. Bone lose was mentioned, there are products on the market to stop

the bone lose one of them is Actonel.

Kathy

Adah Voigt <asthmatic50@...> wrote:

I can't remember anyone else mentioning calcium. I can't imagine

having to go through what you have gone through in your life, but I imagine that

you love life and are more appreciative of life than some of us who have

stuggled but not like you have! God's blessings be on you.

I know Doug and several others have suffered bone loss and diseases from too

much prednisone. I am humbled by the pain and suffering many of you have gone

through. I thought my 60 mg was a lot and it did cause me some pain in my arms

and hands. I did have several cortisone shots to get it into my system quickly,

but I never had to stay in the hospital, although I did make some ER visits in

the early days when asthma reared it's ugly head in my life. My nebulizer at

home kept me out of the hospital, many times, though.

I am very glad that the xolair is helping you.

Adah

asperqu <asperqu@...> wrote:

> > >

> > > Ohmygoodness! SuzFisher, I hope this is NOT happening to you

but

> > just in case ... possibly this is something your doc could check

> too.

> > Weird how we're having these similar symptoms at same time.

> > >

> > > Bizarro ... had lumbar spine MRI Fri. aftn. It was a really up-

> > to-date Tensilon 3 machine. The tech (?) gave me copies of the

> films at

> > my request. Reading the cover - it says " Index for Radiological

> > Diagnoses and Illustration On Back. " It LOOKS like the label

says

> DXTX

> > (diagnosis - treatment?) is 21. On the back, under both " Skull

and

> > Contents " and " Spine and Contents " - .2 Inflammation - .21

> > Osteomyelitis.

> > >

> > > Sounds to me like I have osteomyelitis ????? No WONDER I'm

> > having this apparent worsening of " arthritis. " Pain in my neck,

> lower

> > back, under my left arm (torso) hips, left pelvic bone just

below

> waist,

> > and knees and ankles. No one is taking me very seriously. I've

had

> > frequent infections for YEARS but assumed they were all in

sinuses

> and

> > lungs.

> > >

> > > By the way, I seem to be better re asthma. Skipped Advair for 2

> > days and didn't think it was my last breath. Possibly Xolair is

> starting

> > to kick in a little bit. This could be a good thing if other

> systems (of

> > my body) are appropriately monitored and treated.

> > Hope Xolair doesn't have anything to do w-it; suspect this has

> happened

> > before (before Xolair) but not recognized. Temp is normal but

> don't feel

> > good. This is Sat. night. I'm trying to figure out what to do.

> > >

> > > BTW, the only oral steroid I've had in the last 10 months or

more

> > was a 4 day course back in Feb. So, I KNOW my " arthritis " isn't

> caused

> > by unveiling a disease previously covered by steroid.

> > >

> > > I had to push my pcp to run it - he didn't want to. The

> > neurologist refused to run the MRI - said nothing wrong there!!!

> > >

> > > The only other odd thing recently was a pap test that showed

very

> > high inflammation but no infection or anything else. Slightly

> concerned

> > and surprised by all this !

> > >

> > >

> > >

> > >

> > > ---------------------------------

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> > >

> > >