Guest guest Posted June 12, 2007 Report Share Posted June 12, 2007 - Welcome Ginger You are in good company here. Most of us are going through the same things. I suggest that you read through previous posts and through our file section for more info. I have been asthmatic all my life and on xolair since 1993, Thanks to Xolair, I am now only on Xopenex and then only once or twice a day. I actually have a life again!!! I am sure you will get responses from a lot of us. Most of us have had great success with xolair with one or two who haven't. Xolair was developed for people 12 and over but I suggest that you trust your doctor's judgement. I have heard of kids under 12 having great success too. Once again, welcome. You have found the support you need here Doug Group founder Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2007 Report Share Posted June 13, 2007 Hi, Ginger, My name is Sr. Volz. I have been told in the doctor's office, which is a pulmonary speciallist. I am one of two patience of hers that are having good luck on Xolair and the other is a person under 12. I would trust your doctor because there are a lot of people young and old that have benifited from Xolair. This group is a very supportive group and we are from many different professions. I will say and extra prayer for you and your family that you make and feel confident about your decision. Breathe well, Sr. Volz, C.R. momto4wild1s <Momto4wild1s@...> wrote: Hi all..My name is Ginger..I am married with 4 kids. Brittany is 18, is 11, Jordon is 7 and Zachary is 4. My son has had severe asthma and severe allergies since he was roughly 3 months old. At that time it started out as sleep apnea and by the time he was 15 months old we were doing albuteral neb treatments. From about age 5 he started on the inhaler and singulair. He has always had to use his inhaler for any physical activites esp while in public school or when ill. At least once a month he was in the ER and admitted to the hospital for a flare up with his Asthma. Many times he was put on IV or oral steroids to help. Over the course of the years we have tried Advair and other allergy and asthma meds with no help. And if they did help he had bad reactions to them! almost 4 years ago I pulled him out of public school, and quit my nursing job so I could homeschool him to keep him away from the sick kids at school and to protect him from gym and recess they would force him to do that he couldn't handle! We are at the peds at least once a month trying to get meds changed that will help my son but nothing so far has worked. We seen an allergist some years ago to determine what his allergies are..He has multiple ones. His severe ones are to milk protein, trees, grass and dust mites! Three weeks ago I woke up to hearing a loud thump and squealing sound. I got up to find my son barely breathing, blue and passed out in the hallway of our home. I called 911 and started a nebulizer treatment immediately. Luckily my son is a strong person and pulled through. He was in grave condition that morning. Since then, we have been to a lung specialist whos ran a bunch of tests on my son. He has also put him on xopenex Inh and nebs, pulmocort, and prednisone 10mg every other day! He also is still on the singulair! He did the PFT test and my son only has 52% lung function. After a neb treatment and while on oxygen his lung function is only at 68%. He also suffers from sleep apnea still and will have a more thorough sleep study done on the 19th~ He also suffers from SVT (Supraventricular tachycardia) which the doctors now believe is as a results of long term constant use of albuteral~ My son is in poor condition. his physical activities are very limited because he cannot breath. The lung specialist is now talking about putting him on Xolair which I have mixed feelings about. He is also wanting to send him to The Allergy Associates of La Crosse in hopes to desensitize him to the allergies triggering his asthma problems! I am now questioning him being able to do both the xolair and desensitizing to his allergies at the same time. His IgG level was 698. More than enough to qualify for the Xolair. I guess I am looking for support. I love the pulmonologist he is seeing and so far he seems to be moving us in the right direction and doing so quickly! They are waiting on approval from the insurance company for the Xolair and are trying to figure out who they will get the xolair from! Most of his doctors patients are now getting them at home! So far they are thinking that he will be able to begin the xolair next week! Anyway I tried to make this a brief into. We have gone through so much and done so much as far as his Asthma is concerned but I didn't want my into to sound like I was a motormouth! Thanks for having us and letting us become a part of your group! Sincerely, Ginger --------------------------------- Don't be flakey. Get for Mobile and always stay connected to friends. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2007 Report Share Posted June 13, 2007 wow, sounds like you've been through the wringer lately. your son's history is very similar to mine as a kid. fortunately, things are very different for me now! for me, i started with diff. breathing as a toddler, but wasn't diagnosed until i was about 4 or 5. i won't bore you with details - but all i can say is i've been on xolair for over 3 years, and i am the healthiest i've been in, um, forever!! we're a pretty friendly group of people here. anytime you need a shoulder, we'll be around. hugs to you heather > > > Hi all..My name is Ginger..I am married with 4 kids. Brittany is 18, > is 11, Jordon is 7 and Zachary is 4. My son has had severe > asthma and severe allergies since he was roughly 3 months old. At > that time it started out as sleep apnea and by the time he was 15 > months old we were doing albuteral neb treatments. From about age 5 > he started on the inhaler and singulair. He has always had to use > his inhaler for any physical activites esp while in public school or > when ill. At least once a month he was in the ER and admitted to the > hospital for a flare up with his Asthma. Many times he was put on IV > or oral steroids to help. Over the course of the years we have tried > Advair and other allergy and asthma meds with no help. And if they > did help he had bad reactions to them! almost 4 years ago I pulled > him out of public school, and quit my nursing job so I could > homeschool him to keep him away from the sick kids at school and to > protect him from gym and recess they would force him to do that he > couldn't handle! We are at the peds at least once a month trying to > get meds changed that will help my son but nothing so far has > worked. We seen an allergist some years ago to determine what his > allergies are..He has multiple ones. His severe ones are to milk > protein, trees, grass and dust mites! Three weeks ago I woke up to > hearing a loud thump and squealing sound. I got up to find my son > barely breathing, blue and passed out in the hallway of our home. I > called 911 and started a nebulizer treatment immediately. Luckily my > son is a strong person and pulled through. He was in grave condition > that morning. Since then, we have been to a lung specialist whos ran > a bunch of tests on my son. He has also put him on xopenex Inh and > nebs, pulmocort, and prednisone 10mg every other day! He also is > still on the singulair! He did the PFT test and my son only has 52% > lung function. After a neb treatment and while on oxygen his lung > function is only at 68%. He also suffers from sleep apnea still and > will have a more thorough sleep study done on the 19th~ He also > suffers from SVT (Supraventricular tachycardia) which the doctors now > believe is as a results of long term constant use of albuteral~ > > My son is in poor condition. his physical activities are very limited > because he cannot breath. The lung specialist is now talking about > putting him on Xolair which I have mixed feelings about. He is also > wanting to send him to The Allergy Associates of La Crosse in hopes > to desensitize him to the allergies triggering his asthma > problems! I am now questioning him being able to do both the > xolair and desensitizing to his allergies at the same time. His IgG > level was 698. More than enough to qualify for the Xolair. I guess I > am looking for support. I love the pulmonologist he is seeing and so > far he seems to be moving us in the right direction and doing so > quickly! They are waiting on approval from the insurance company for > the Xolair and are trying to figure out who they will get the xolair > from! Most of his doctors patients are now getting them at home! So > far they are thinking that he will be able to begin the xolair next > week! > > Anyway I tried to make this a brief into. We have gone through so > much and done so much as far as his Asthma is concerned but I didn't > want my into to sound like I was a motormouth! > > Thanks for having us and letting us become a part of your group! > > Sincerely, > Ginger > Quote Link to comment Share on other sites More sharing options...
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