Re: Re: No more self injection at home???

[Guest guest]

I do not want to beat a dead horse here, but the warning states you

can go into shock 24 hours or longer after the shots. I'm not

impressed with their percentage of " shock victims " and the " 24 hours

or longer " , therefore you need to stay in the Dr.'s office for 2

hours. This is somewhat of an insult to my intelligence. 2 hours in

the Dr.'s office neither addresses or fixes anything in this warning.

EpiPens and warnings/advising are good but for those of us that are

allowed to inject at home should still be allowed too. The percentage

of failure on medical devices and adverse reactions on numerous

medications may instill shock and awe in the patient community but

the medical community states the benefits far outweigh the negatives,

so it is allowed. The benefits of Xolair far out weigh their

" findings " so why the push here?

Guess I did beat a dead horse, LOL

Ron

On Sep 1, 2007, at 10:47 AM, uca79iii wrote:

>

> >

> > I also got a letter at home but it said that it is recommending

> shots be given at a doctor's office because of the real risk of

> anaphylaxis. My doctor wouldn't let his patients self-administer

> anyway, so it wasn't a change for me. But the doctor now requires

> that all his patients have an EpiPen or Twinjet.

> > Carol

>

> My former and current doctor have always required me to get the shots

> in the office and wait 30 minutes afterwards. It's only a 10 mile

> drive across town and all interstate. I have been doing this

> since 2003 and I don't mind at all.

>

> Since the black box warning, he has stiffened his rules somewhat and

> required me to carry 2 epi-pen's with me for the rest of the day. When

> those expire, he wants me to carry a Twinjet.

>

> I am not worried? Naaaaaaaa, I have had over 100 Xolair injections now

> without any problems whatsoever.

>

> Oh, and BTW, after over 100 shots one finally stung A LITTLE when she

> gave it yesterday. She said " oops, I'm sorry. I must have pushed it in

> a little fast. " I was shocked LOL!

>

> Doug

> Group founder

>

>

>

[Guest guest]

Okay, I have to add my 2cents worth here. My doctor requires that I take the

shots in his office and the nurse now sets a timer to make sure all of the

xolair patients wait the entire 30 minutes since they found out some of the

patients were leaving right away after the shots! When Jo Ann gives me my shot

she gives it very gently and very slowly. When she does that , not even my

family can tell where I have had the shot and I do not even have a sore arm.

I don't even feel it when she gives me the shot if she does it right. The

clinic where I go has not had one anaphylactic reaction among its xolair

patients and they have between 90 and 100 (at least that was the number the last

time I asked. It may have increased since then.) The patients range from 11

years old to at least my age (69) although they may have someone older.

Now I have a question---JUST A QUESTION---I am wondering what all of the

dynamics could be that causes the anapylactic reaction to the xolair--not having

taken the other asthma meds before the shot, the shot not being given slowly

enough---Of course I am aware that there are probably some reactions that will

happen no matter what precautions were taken. And have I missed something

somewhere--have the anaphylactic reations to xolair increased in this last year

over the study? (It could be my memory!)

One last comment--I have to carry one epi-pen with me all the time and I have

never had an anaphylactic reaction at any time, even when my allergist tried to

give me allergy shots.

And I have not gotten a letter about not giving myself the xolair. It could

be because I am under medicare.

Adah

uca79iii <bme1979@...> wrote:

--- In , " Carol Corley " <mybouvs@...>

wrote:

>

> I also got a letter at home but it said that it is recommending

shots be given at a doctor's office because of the real risk of

anaphylaxis. My doctor wouldn't let his patients self-administer

anyway, so it wasn't a change for me. But the doctor now requires

that all his patients have an EpiPen or Twinjet.

> Carol

My former and current doctor have always required me to get the shots

in the office and wait 30 minutes afterwards. It's only a 10 mile

drive across town and all interstate. I have been doing this

since 2003 and I don't mind at all.

Since the black box warning, he has stiffened his rules somewhat and

required me to carry 2 epi-pen's with me for the rest of the day. When

those expire, he wants me to carry a Twinjet.

I am not worried? Naaaaaaaa, I have had over 100 Xolair injections now

without any problems whatsoever.

Oh, and BTW, after over 100 shots one finally stung A LITTLE when she

gave it yesterday. She said " oops, I'm sorry. I must have pushed it in

a little fast. " I was shocked LOL!

Doug

Group founder

---------------------------------

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[Guest guest]

Let us all know if you wake up transformed! :-) It would be nice wouldn't it?

But I'll take all the slow improvements I've experienced and glad for them.

Glad you have seen some improvement.

Adah

instdesgn1 <instdesgn1@...> wrote:

Oh, goodness, I hope the Genentech Reps are NOT going to be allowed

to determine who gets self injection and who has to go to the

office. They're not even doctors. Before I ever got Xolair one of

them hassled me and claimed I had to go to a clinic. I never did go

to a clinic. Still injecting at home. Have any patients here dealt

w/reps? Or just their docs?

Just got back from a 5 day trip to upper Midwest and never did take

any pseudoephedrine while I was gone - that's new! Down here it's

most every day! Also, saw what I thought was ragweed blooming

(bright yellow) (my mom claims it's mustard) and was surprised that

w/my extreme allergy to ragweed I didn't sneeze my head off (forgot

my allegra). I did have to use Advair 500/50 once every day. Have

been on Xolair for nearly 6 months. Improvement was very slow and

barely noticable but apparently has happened. Still would like to

wake up a " transformed " person !!!! <grin>

> >

> > When I got my shots today, my xolair nurse told me that the

> specialty

> > pharmacy's who dispense xolair along with Novartis are going to

> > require all doctors to give xolair in their office. Thus, no more

> self

> > injection at home.

> >

> > She said that individual doctors could still let their patients

self

> > inject but that since the drug company, specialty pharmacies and

the

> > FDA have given this strong warning, that their malpractice

insurance

> > would probably go up.

> >

> > This is just what she told me.

> >

> > Anyone else have any info on this?

> >

> >

> > Doug

> > Group founder

> > NEVER self injected Xolair but

> > self injected REGULAR allergy shots for 20 years

> >

>

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