Guest guest Posted September 16, 2007 Report Share Posted September 16, 2007 When your child is dying, you will try anything. Our eleven year old son at the time was desperately trying to live in a world that he was allergic to. This contributed to chronic hives, vomiting, and severe asthma. We spent countless times in the emergency rooms and doctor's office. He was taking 13 different medications to stay alive, nebbing several times a day, and getting a shot of Decadron. In one day, we had to go back to get another shot. His doctor told us of the new IGE therapy drug (Xolair)...we just had to wait until it was FDA approved and get our insurance to approve an eleven year old. The answer finally came when we desperately needed it...we had to take another ambulance trip to the hospital with medics tyring to keep him breathing. Approval and 20% of the cost of Xolair saved our son's life. After the first shot, the hives that covered his body for years DISAPPEARED. After a year, he was able to tolerate smells, fumes, and smoke. Four years later, he does not take any medications for his asthma other than allergy shots and Xolair. The expense and risk have been worth the life that has been given our son for the last four years. uca79iii <bme1979@...> wrote: I am sure there are more out there. Keep them coming gang Doug --------------------------------- Tonight's top picks. What will you watch tonight? Preview the hottest shows on TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2007 Report Share Posted September 16, 2007 BJ, I just love it when you post. It makes me so happy to hear how your son is doing and to know that many severe allergic asthmatic children DO NOT have to suffer like I did, and like your son was, before Xolair. Addy Group co-owner > I am sure there are more out there. > Keep them coming gang > > Doug > > > > > > > --------------------------------- > Tonight's top picks. What will you watch tonight? Preview the hottest shows on TV. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2007 Report Share Posted September 16, 2007 Dear : 60 years ago, my sister struggled to breathe and stay alive. She did live to 1985, but I feel certain she would be alive today had xolair been discovered 25 or 30 years ago. So my heart understood your angst--while my sister's asthma was very bad as a child, it was never as bad as your son's. So I say " Let's celebrate the breakthrough in asthma treatment with the discovery and approval of xolair! " What a great success story. Here I am an older lady, happy to be on xolair, and with the majority of my life behind me, but here is your son who now has a future ahead of him because of xolair! Thank God for researchers who were willing to keep on until they found something that would really benefit the majority of asthmatics! And how wonderful that your son was allowed to have this life-saving drug when he probably needed it the very most! He should be a poster child for xolair! I know that we have other mother's whose children are on xolair, also. Hope we hear from them, too. Thanks so much for sharing this wonderful story. Adah brenda williams <bjwilliams03@...> wrote: When your child is dying, you will try anything. Our eleven year old son at the time was desperately trying to live in a world that he was allergic to. This contributed to chronic hives, vomiting, and severe asthma. We spent countless times in the emergency rooms and doctor's office. He was taking 13 different medications to stay alive, nebbing several times a day, and getting a shot of Decadron. In one day, we had to go back to get another shot. His doctor told us of the new IGE therapy drug (Xolair)...we just had to wait until it was FDA approved and get our insurance to approve an eleven year old. The answer finally came when we desperately needed it...we had to take another ambulance trip to the hospital with medics tyring to keep him breathing. Approval and 20% of the cost of Xolair saved our son's life. After the first shot, the hives that covered his body for years DISAPPEARED. After a year, he was able to tolerate smells, fumes, and smoke. Four years later, he does not take any medications for his asthma other than allergy shots and Xolair. The expense and risk have been worth the life that has been given our son for the last four years. uca79iii <bme1979@...> wrote: I am sure there are more out there. Keep them coming gang Doug --------------------------------- Tonight's top picks. What will you watch tonight? Preview the hottest shows on TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2007 Report Share Posted September 19, 2007 Thanks! I just hope others can be relieved as well. pyle456 <coachmac@...> wrote: BJ, I just love it when you post. It makes me so happy to hear how your son is doing and to know that many severe allergic asthmatic children DO NOT have to suffer like I did, and like your son was, before Xolair. Addy Group co-owner > I am sure there are more out there. > Keep them coming gang > > Doug > > > > > > > --------------------------------- > Tonight's top picks. What will you watch tonight? Preview the hottest shows on TV. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2007 Report Share Posted September 19, 2007 It is certainly a time to celebrate! I pray that others can breathe easier with Xolair. Adah Voigt <asthmatic50@...> wrote: Dear : 60 years ago, my sister struggled to breathe and stay alive. She did live to 1985, but I feel certain she would be alive today had xolair been discovered 25 or 30 years ago. So my heart understood your angst--while my sister's asthma was very bad as a child, it was never as bad as your son's. So I say " Let's celebrate the breakthrough in asthma treatment with the discovery and approval of xolair! " What a great success story. Here I am an older lady, happy to be on xolair, and with the majority of my life behind me, but here is your son who now has a future ahead of him because of xolair! Thank God for researchers who were willing to keep on until they found something that would really benefit the majority of asthmatics! And how wonderful that your son was allowed to have this life-saving drug when he probably needed it the very most! He should be a poster child for xolair! I know that we have other mother's whose children are on xolair, also. Hope we hear from them, too. Thanks so much for sharing this wonderful story. Adah brenda williams <bjwilliams03@...> wrote: When your child is dying, you will try anything. Our eleven year old son at the time was desperately trying to live in a world that he was allergic to. This contributed to chronic hives, vomiting, and severe asthma. We spent countless times in the emergency rooms and doctor's office. He was taking 13 different medications to stay alive, nebbing several times a day, and getting a shot of Decadron. In one day, we had to go back to get another shot. His doctor told us of the new IGE therapy drug (Xolair)...we just had to wait until it was FDA approved and get our insurance to approve an eleven year old. The answer finally came when we desperately needed it...we had to take another ambulance trip to the hospital with medics tyring to keep him breathing. Approval and 20% of the cost of Xolair saved our son's life. After the first shot, the hives that covered his body for years DISAPPEARED. After a year, he was able to tolerate smells, fumes, and smoke. Four years later, he does not take any medications for his asthma other than allergy shots and Xolair. The expense and risk have been worth the life that has been given our son for the last four years. uca79iii <bme1979@...> wrote: I am sure there are more out there. Keep them coming gang Doug --------------------------------- Tonight's top picks. What will you watch tonight? Preview the hottest shows on TV. Quote Link to comment Share on other sites More sharing options...
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