Guest guest Posted July 12, 2007 Report Share Posted July 12, 2007 How long have some of you been taking the shots? Has Xoliar helped you to improve your lung capacity? Has it also helped with sinus problems, which for me are harder to control than my asthma symptoms. Thanks again for taking the time to answer my questions. ________________________________ From: [mailto: ] On Behalf Of Becker, Sent: Wednesday, July 11, 2007 5:15 PM Subject: [ ] New to xolair I am getting my first shot next week. The potential for anaphylaxis is very scary. Does this tend to happen with people that had that kind of reaction to regular allergy shots or other allergens? Moderators welcome and note: ) Thank you for joining and posting. We are glad to have you aboard. ) This has been a very well covered and exhaustive discussion on our board for several months now and just a few days ago, we decided to stop posting about the subject. My co/owner will be posting a FAQ file about the subject in a few days for everyone to read. In the mean time, I highly suggest that you read the MANY previous posts about the subject and most especially TALK TO YOUR DOCTOR if you are having any doubts whatsoever. Thank you so much and once again, thanks for joining us. You are among friends who understand here ) Doug Group Founder ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2007 Report Share Posted July 12, 2007 > > How long have some of you been taking the shots? Has Xoliar helped you > to improve your lung capacity? Has it also helped with sinus problems, > which for me are harder to control than my asthma symptoms. > > Thanks again for taking the time to answer my questions. > > > , Once again, WELCOME I have been on Xolair since September 2003 and just got my 104th and 105th shots last Friday. I have never had ANY problems whatsoever!! The only thing that has happened is that I have gotten COMPLETELY OFF OF PREDNISONE and my asthma is almost gone. It took me over a year to see any results but it was WELL worth the wait. As for sinus, some of our people have seen improvement even though Xolair was not created for that purpose. For more information, please read the FAQ that was emailed to you when you joined or click on " files " at the left of your screen. Doug Group founder Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2007 Report Share Posted September 17, 2007 My 14 year old daughter will soon be starting Xolair shots and I would be interested in hearing about the side effects other people may have experienced. I am particularly concerned about anaphalaxis. She has suffered with asthma her whole life with one particularly bad bout last year that required epinephrine administered in the ambulance followed by 5 days in the pediatric ICU. I am worried sick and praying this will make an improvement in her symptoms. Thank you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2007 Report Share Posted September 17, 2007 > > My 14 year old daughter will soon be starting Xolair shots and I would be interested in > hearing about the side effects other people may have experienced. I am particularly > concerned about anaphalaxis. She has suffered with asthma her whole life with one > particularly bad bout last year that required epinephrine administered in the ambulance > followed by 5 days in the pediatric ICU. I am worried sick and praying this will make an > improvement in her symptoms. Thank you! We are glad to have you aboard )) WELCOME!!!!!!! I don't blame you one bit for your concern. We are here to help The anaphalaxis topic has been extremely covered several times in this group. Go to " messages " and type in the word anaphalaxis or reaction. You will find several posts dealing with the subject. Did your daughter have a reaction to a regular allergy shot? In my doctor's office they have had many reactions to regular allergy shots over the past 4 years but never one to xolair. As someone who has been on Xoliar for over 4 years now, my best advice to you is to TRUST YOUR DOCTOR! If you are not comfortable with his/her judgment,then get a 2nd opinion. Once again, WELCOME!!!! You are now among friends who are going through the same things. I highly suggest that you read the success stories too. There are MANY of them. For many of us, Xolair has been a very effective weapon in our fight to breathe. Doug Group founder On xolair since September 2003 Breathing GREAT!!!! NEVER had any reactions ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2007 Report Share Posted September 19, 2007 I suggest that you also search on " side effects " which should bring up past discussions of possible side effects other than anaphylaxis. Fran > > --- In , " slamdash36 " <crashdash@> wrote: > > > > My 14 year old daughter will soon be starting Xolair shots and I > would be interested in > > hearing about the side effects other people may have experienced. I > am particularly > > concerned about anaphalaxis. She has suffered with asthma her whole > life with one > > particularly bad bout last year that required epinephrine > administered in the ambulance > > followed by 5 days in the pediatric ICU. I am worried sick and > praying this will make an > > improvement in her symptoms. Thank you! > > > > We are glad to have you aboard )) WELCOME!!!!!!! > > I don't blame you one bit for your concern. We are here to help > > The anaphalaxis topic has been extremely covered several times in this > group. Go to " messages " and type in the word anaphalaxis or reaction. > You will find several posts dealing with the subject. > > Did your daughter have a reaction to a regular allergy shot? In my > doctor's office they have had many reactions to regular allergy shots > over the past 4 years but never one to xolair. > > As someone who has been on Xoliar for over 4 years now, my best advice > to you is to TRUST YOUR DOCTOR! If you are not comfortable with > his/her judgment,then get a 2nd opinion. > > Once again, WELCOME!!!! You are now among friends who are going > through the same things. I highly suggest that you read the success > stories too. There are MANY of them. For many of us, Xolair has been a > very effective weapon in our fight to breathe. > > Doug > Group founder > On xolair since September 2003 > Breathing GREAT!!!! > NEVER had any reactions ) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2009 Report Share Posted May 2, 2009 Welcome. Re: Prednisone They call Prednisone " evil candy " for a reason. " I have Cushings and 0 cortisol when tested. It is a nightmare. LMA ________________________________ From: andyandkarink <andyandkarink@...> Sent: Saturday, May 2, 2009 12:17:18 PM Subject: [ ] New to Xolair My Pulmo says that Xolair may be in my near future. I took the IgE (?) blood test yesterday and am being sent for lung x-rays and liver tests. My Advair isn't quite doing the trick anymore and I have been on Prednisone more than not over the last 2 years. Dealt with Cushing effects and then Secondary Adrenal Insuff. issues and was finally able to wean off with help of an Endo...only to find myself back on repeatedly. I'm sure you are aware of that cycle. Just looking to educate myself about Xolair. Would be happy to share any of my experiences along the way if I am indeed put on the treatment. I'm very excited about the possibility. And very thankful to have found such an informative page. Karin Green Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2009 Report Share Posted May 3, 2009 When I was taking so much prednisone, I have to say that the only good thing about it was that I got so much work at home done, and that after putting in a full day of teaching high schoolers! So glad for the xolair. I feel better, still don't have that artificial energy, but do have more energy and without the prednisone! From: andyandkarink <andyandkarink@...> Subject: [ ] Re: New to Xolair Date: Saturday, May 2, 2009, 9:58 PM Yep, I'm on yet another burst of that evil candy right now. With 40 mgs in my system I have cleaned my entire house today...my hubby's favorite side effect Just want to thank everyone for the warm welcome. Have a feeling I'm gonna feel right at home here. Karin --- In , Leigh McCall-Alton <mccallalton@ ...> wrote: > > Welcome. > Re: Prednisone > They call Prednisone " evil candy " for a reason. " I have Cushings and 0 cortisol when tested. It is a nightmare. > LMA > > > > > ____________ _________ _________ __ > From: andyandkarink <andyandkarink@ ...> > > Sent: Saturday, May 2, 2009 12:17:18 PM > Subject: [ ] New to Xolair > > > > > > My Pulmo says that Xolair may be in my near future. I took the IgE (?) > blood test yesterday and am being sent for lung x-rays and liver tests. My Advair isn't quite doing the trick anymore and I have been on Prednisone more than not over the last 2 years. Dealt with Cushing effects and then Secondary Adrenal Insuff. issues and was finally able to wean off with help of an Endo...only to find myself back on repeatedly. I'm sure you are aware of that cycle. > > Just looking to educate myself about Xolair. Would be happy to share any of my experiences along the way if I am indeed put on the treatment. I'm very excited about the possibility. And very thankful to have found such an informative page. Karin Green > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.