Re: In honor our group's 4th birthday Sept 15

September 9, 2007

Hi,

I began receiving Xolair in 5/05, and am seeing REALLY

unbelieveable results. I get 3 shots (375mg/2wks) and I don't go to my

pulmo for the shots so I see my pulmo every couple months. I go to my

PCP's office for the shots and it's pretty funny, my PCP is in a

practice with 4 other doctors, and my doctor is the one who gives me

the shots like 90% of the time but it's not at all unusual to have at

least 1 other doctor besides my PCP in the room just watching because

I'm the only patient in their very large practice on Xolair.

Before Xolair and even a year or so after I started receiving it

(my pulmo says it is b/c my IgE was so high, 1,100) I had 4 lengthy

hospitalizations and 3 ER visits (now that doesn't seem like a lot but

it is considering that I'm only 20 and all of those happened within 7

months). I was and still am steroid-dependent (10mg Prednisone every

other day) and was virtually attached to my nebulizer. Now, the reults

are AMAZING! When I saw my pulmo this past friday he was in shock

because the spirometry I do in his office had me at 100% of predicted

(granted it was a prednisone day and we have low-standards for me - but

thats huge - I'd never done taht before). I also sounded great

according to my dr, and I'm now at q2-3hrs with just atrovent in my

neb, which is still very frequent but it's so much better than doing

them continuously. I'll always be on Xolair and probably at this dose,

but while it certainly hasn't 'cured' me, it's given me a life.

Meagan

>

> In honor, lets celebrate by having members share their success

stories.

> This is the main reason I started this group. It will encourage many

> members.

>

> Doug

> Group founder

>

September 9, 2007

CONGRATULATIONS on your big improvement! I, too, am at that dose and

expect to be until the next generation of immunomodulators (e.g.,

Xolair) come along. I hope they come in pre-made vials!

Addy

Group co-owner

Xolair forever!

> >

> > In honor, lets celebrate by having members share their success

> stories.

> > This is the main reason I started this group. It will encourage

many

> > members.

> >

> > Doug

> > Group founder

> >

>

September 10, 2007

In May of 2005 I was in such bad shape from Adult-On-Set asthma that

walking from the couch to the kitchen made me have to rest as I would

be breathing hard gasping for breath. I had to rest 1/2 through

shaving. I was passing out from coughing so hard (lots of bruising

there). I did not know what was going on, as I did not have asthma as

a child, that I knew of, so this was all new to me. I had to retire

early due to asthma, and my Primary Care Physician quit the medical

practice (hope I didn't have anything to do with it, LOL). My Pulomo

took me on as a PCP since, " 95% of my problems were asthma and asthma

related " . He put me on Xolair and it took a year to get progressively

" better " . I now am dragged to WalMart by my wife to accompany her

shopping, I am limited by activity but am able to live a life removed

from the living room chair. I still take all the medications I took

in 2005, but my quality of life is so much better, I am so grateful

to Xolair, everything is relative.

If for some reason I was required to stop taking Xolair, the

devastation to my life would be unmeasurable.

I am also grateful to this group, it is my rock when it comes to asthma.

Ron

On Sep 9, 2007, at 7:14 AM, uca79iii wrote:

> In honor, lets celebrate by having members share their success

> stories.

> This is the main reason I started this group. It will encourage many

> members.

>

> Doug

> Group founder

>

September 10, 2007

Thanks! It took a LONG time for me to see results from Xolair but it

just got to the point where I was like " What can Xolair hurt? " I am

so glad I stuck with it. The way I think of asthma as a whole is like

a cliff, and when I was REALLY bad I was at the bottom, Xolair makes

it so that I am much closer to the top though not cured, I have a

LONG way to fall before I get to the bottom. I hope for all of us who

have seen what wonders Xolair can work that none of us reaches the

bottom EVER again.

Meagan

> > >

> > > In honor, lets celebrate by having members share their success

> > stories.

> > > This is the main reason I started this group. It will encourage

> many

> > > members.

> > >

> > > Doug

> > > Group founder

> > >

> >

>

September 10, 2007

Doug

Thanks so much for starting this group!!! AND thanks

so much for telling us all about it at the Xolair

Speaker Summit!!! I think most of us who belong to

this group will agree that it is very comforting to

know that as an individual user, one feels more at

ease knowing about others who are going through the

same things as they are! Nice to not feel alone

anymore!!! Nice to know that everyone else in here has

had to deal with those darn Asthnostics.

Before Xolair I was a total and utter mess!! But I

hadn't always been a severe asthmatic. I'm now 40 but

have had " lung issues " since day one. I had pneumonia

twice as an infant. I was diagnosed with asthma when

I was 10. Growing up I never had any pets, because of

my asthma and allergies. Funny thing is, I had always

been athletic- swam, ran track, played high school

basketball,was a cheerleader in both high school and

college ( We beat Temple over the weekend! GO

BULLS!!! LOL!!) I also sang both my church and

school choirs. Was an All county & all state rep for

my school and belonged to the " University Coral " , when

I was in college. I think my over active use of my

lungs/diaphragm helped in controlling my asthma,

because it strengthened my lungs, plus helped me

naturally remove mucus from my lungs.

But..then I got old......since 2001 I had well over

40 trips to the ER for my asthma. I've been admitted

half of those times and twice I suffered Respiratory

Failure-Nov 18, 2004 and May 4, 2005. I've been on 300

mg of Xolair every two weeks since July 5th 2005. I

have surpassed the 100 injection mark( just did #110

on Sunday!!!). I've cut my meds down to 3 ( from 10

different kinds per day!) Besides Xolair, I use a

rescue inhaler " as needed " , and am on Advair 250/50

ONCE per day as a " maintenance drug " as per my

Allergist, who I may add is AWESOME! I also see a

Pulmonologist-he's the one who initially put me on

Xolair. (sadly he's missed the boat on a few things

with me.)

Xolair has given me back my life and then some. As I

said before, I was never " allowed " to have pets.

Since 2006 my family of five humans has added 3

retired racing greyhounds. SO..Xolair has not only

improve the quality of life for me, it's also given a

" forever home " to three awesome dogs!!!!! PLUS...my

husband and three kids don't have to worry about

mommy and her asthma like they used to!

I will tell you that my asthma has had a very profound

effect on my eldest, who is in 6th grade. When he was

in 4th grade, his teacher made the kids write about

something that had had a big impact on them. He wrote

about " the night my mommy had an asthma attack and

turned blue!! " His paper had such a HUGE impact on

his teacher,to the point that he called me up

CRYING!!!

--- uca79iii <bme1979@...> wrote:

> In honor, lets celebrate by having members share

> their success stories.

> This is the main reason I started this group. It

> will encourage many

> members.

>

> Doug

> Group founder

>

________________________________________________________________________________\

____

Pinpoint customers who are looking for what you sell.

http://searchmarketing./

September 10, 2007

I forgot to mention one little benefit from Xolair.

In the year period prior to Xolair I was hospitalized numerous times,

once the Dr said I was not going to make it. In the last year and one

half I have not been hospitalized once, Thanks Xolair and happy

birthday!

Ron

On Sep 10, 2007, at 8:38 AM, Carpenter wrote:

> In May of 2005 I was in such bad shape from Adult-On-Set asthma that

> walking from the couch to the kitchen made me have to rest as I would

> be breathing hard gasping for breath. I had to rest 1/2 through

> shaving. I was passing out from coughing so hard (lots of bruising

> there). I did not know what was going on, as I did not have asthma as

> a child, that I knew of, so this was all new to me. I had to retire

> early due to asthma, and my Primary Care Physician quit the medical

> practice (hope I didn't have anything to do with it, LOL). My Pulomo

> took me on as a PCP since, " 95% of my problems were asthma and asthma

> related " . He put me on Xolair and it took a year to get progressively

> " better " . I now am dragged to WalMart by my wife to accompany her

> shopping, I am limited by activity but am able to live a life removed

> from the living room chair. I still take all the medications I took

> in 2005, but my quality of life is so much better, I am so grateful

> to Xolair, everything is relative.

>

> If for some reason I was required to stop taking Xolair, the

> devastation to my life would be unmeasurable.

>

> I am also grateful to this group, it is my rock when it comes to

> asthma.

>

> Ron

>

> On Sep 9, 2007, at 7:14 AM, uca79iii wrote:

>

> > In honor, lets celebrate by having members share their success

> > stories.

> > This is the main reason I started this group. It will encourage many

> > members.

> >

> > Doug

> > Group founder

> >

>

September 26, 2007

Meagan,

Thanks for your uplifting story! These are the kind of posts that make me

smile. I hope in time you will gradually be able to kick the pred! So glad you

are no longer in and out of the ER. Congratulations on your awesome " spiro "

results! Meagan you have a great spirit its tough to have 'hardcore " asthma at

this time of your life. Here is hoping the doctors continue to marvel at you!

Take care,

Laurie

meagainbenny <bennetme@...> wrote: