Re: Re: replies to various posts, etc.

[Guest guest]

That's a GREAT suggestion Addy!

AND..I just happen to have one of their business

cards in my purse!!! I aquired it when some of us

Xolair Patients in here,went to Albq. NM back in

March. Fusco- gave a short talk to us!!

THe website address for Mothers of Asthmatics' Allergy

& Asthma Network is: Www.breatherville.org

I think, but I am not 100% sure. that their offices

are in , NJ.

--- pyle456 <coachmac@...> wrote:

> I had been really worried about you and wondered if

> you'd had a bad

> attack being around people who don't respect your

> needs and all that

> negativity. Thanks for checking in. You might see

> if Mothers of

> Asthamtics (I don't remember the website but you can

> google it) can

> send pamphlets and stuff if you think they'll read

> them if you

> ask.... What ignorant, selfish people.

>

> Take care,

> Addy

>

>

>

>

> >

> > I spent the past week in the hospital for the

> asthma. Dr was also

> > concerned about the level of depression b/w the

> chronic illness

> and

> > folks not understanding.

> >

> > He spoke to them. I don't think it sank into their

> thick heads.

> Now

> > they seem to be making it out like I am over

> dramatizing. I

> > hear " don't cut the grass, an asthma attack will

> start, don't burn

> > the scented candles, unplug the glade plug ins,

> anything else we

> can

> > do for you honey, we don't want to tip the

> scales " . E-mail does

> not

> > give justice to the tone in which it is said. Now

> my folks think I

> am

> > hypersensitive on everything. Whatever. I just do

> what I need to

> do

> >

> > I am glad they don't suffer from this disease and

> truly know what

> it

> > is like to feel like I feel.

> >

> > I mentioned to the dr I am on this site, he

> thought that was

> > wonderful. I offered him to read some of the posts

> but he said his

> > time was limited. He suggested my parents read and

> they

> > feel.....well.....let's just say they don't have

> reading posts on

> > their to do list any time soon.

> >

> > I have been reading the posts on bones and it is

> scary. One post

> in

> > particular. Side note: I have been told by my

> chiro, after an x-

> ray,

> > that my upper neck, the soft tissue is extremely

> tender and

> > deteriorating. That sounds like fun . I no

> longer use a pillow

> but

> > a rolled up towel for my neck and it does wonders.

>

> >

> > I have been on some form of prednisone since I was

> 7. That's 25

> > years, a quarter of a century. HOly sokes, I am

> old! :-O. LOL. The

> > dr's still give high marks on the xolair and feel

> without it I

> would

> > be much worse.

> >

> > I do experience pain bw the arthritis and other

> joints, so again,

> > reading here, I feel I am not alone. Even if my

> family isolates me

> on

> > this one. I try to walk but the hips hurt. I do

> know sitting

> around

> > does not help. I feel worse, so I try to stay

> mobile.

> >

> > There were e-mails replied to me about contacting

> a particular dr.

> I

> > did. I called that dr and the response was more or

> less, in a nut

> > shell, why I would want to see the dr when my dr

> is also top of

> the

> > line, why would I want to seek elsewhere and

> travel. I mentioned

> it

> > to my dr, he knew the dr recommended here on this

> site as well. I

> did

> > look at the websites; the dr offers a lot of

> helpful info.

> Insurance

> > will be a problem

> >

> > I am still recovering from the hospital stay. I am

> catching up on

> all

> > the posts.

> >

> > One last note, to the one who posted about

> traveling with asthma.

> > What an awesome idea, especially the yellow paper.

> And if you

> were

> > the same one or it was another that had a binder,

> kudos. I keep a

> log

> > on my peak flows, meds but not as much detail as

> you. I should

> start

> > doing that. Thanks for the idea.

> >

> > Take care everyone. Enjoy the weekend.

> >

>

>

>

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