Re: replies to various posts, etc.

[Guest guest]

I had been really worried about you and wondered if you'd had a bad

attack being around people who don't respect your needs and all that

negativity. Thanks for checking in. You might see if Mothers of

Asthamtics (I don't remember the website but you can google it) can

send pamphlets and stuff if you think they'll read them if you

ask.... What ignorant, selfish people.

Take care,

Addy

>

> I spent the past week in the hospital for the asthma. Dr was also

> concerned about the level of depression b/w the chronic illness

and

> folks not understanding.

>

> He spoke to them. I don't think it sank into their thick heads.

Now

> they seem to be making it out like I am over dramatizing. I

> hear " don't cut the grass, an asthma attack will start, don't burn

> the scented candles, unplug the glade plug ins, anything else we

can

> do for you honey, we don't want to tip the scales " . E-mail does

not

> give justice to the tone in which it is said. Now my folks think I

am

> hypersensitive on everything. Whatever. I just do what I need to

do

>

> I am glad they don't suffer from this disease and truly know what

it

> is like to feel like I feel.

>

> I mentioned to the dr I am on this site, he thought that was

> wonderful. I offered him to read some of the posts but he said his

> time was limited. He suggested my parents read and they

> feel.....well.....let's just say they don't have reading posts on

> their to do list any time soon.

>

> I have been reading the posts on bones and it is scary. One post

in

> particular. Side note: I have been told by my chiro, after an x-

ray,

> that my upper neck, the soft tissue is extremely tender and

> deteriorating. That sounds like fun . I no longer use a pillow

but

> a rolled up towel for my neck and it does wonders.

>

> I have been on some form of prednisone since I was 7. That's 25

> years, a quarter of a century. HOly sokes, I am old! :-O. LOL. The

> dr's still give high marks on the xolair and feel without it I

would

> be much worse.

>

> I do experience pain bw the arthritis and other joints, so again,

> reading here, I feel I am not alone. Even if my family isolates me

on

> this one. I try to walk but the hips hurt. I do know sitting

around

> does not help. I feel worse, so I try to stay mobile.

>

> There were e-mails replied to me about contacting a particular dr.

I

> did. I called that dr and the response was more or less, in a nut

> shell, why I would want to see the dr when my dr is also top of

the

> line, why would I want to seek elsewhere and travel. I mentioned

it

> to my dr, he knew the dr recommended here on this site as well. I

did

> look at the websites; the dr offers a lot of helpful info.

Insurance

> will be a problem

>

> I am still recovering from the hospital stay. I am catching up on

all

> the posts.

>

> One last note, to the one who posted about traveling with asthma.

> What an awesome idea, especially the yellow paper. And if you

were

> the same one or it was another that had a binder, kudos. I keep a

log

> on my peak flows, meds but not as much detail as you. I should

start

> doing that. Thanks for the idea.

>

> Take care everyone. Enjoy the weekend.

>

[Guest guest]

I'm so sorry you ended up in the hospital and that your family is

still so...well, I'll just say insensitive but that's a very mild

word for what I'm thinking. I hope you'll seriously consider my

earlier post about seeking family counseling and, if they refuse,

individual counseling to help you cope. It's so important to keep in

mind that your feelings of isolation and depression are very NORMAL

responses to a very abnormal experience that includes both the

severity of your asthma and the horrible behavior of your family.

Counseling can truly make a huge difference for you, I promise.

Please, please, please think about it.

Sending a hug,

Fran

>

> I spent the past week in the hospital for the asthma. Dr was also

> concerned about the level of depression b/w the chronic illness and

> folks not understanding.

>

> He spoke to them. I don't think it sank into their thick heads. Now

> they seem to be making it out like I am over dramatizing. I

> hear " don't cut the grass, an asthma attack will start, don't burn

> the scented candles, unplug the glade plug ins, anything else we

can

> do for you honey, we don't want to tip the scales " . E-mail does not

> give justice to the tone in which it is said. Now my folks think I

am

> hypersensitive on everything. Whatever. I just do what I need to do

>

> I am glad they don't suffer from this disease and truly know what

it

> is like to feel like I feel.

>

> I mentioned to the dr I am on this site, he thought that was

> wonderful. I offered him to read some of the posts but he said his

> time was limited. He suggested my parents read and they

> feel.....well.....let's just say they don't have reading posts on

> their to do list any time soon.

>

> I have been reading the posts on bones and it is scary. One post in

> particular. Side note: I have been told by my chiro, after an x-

ray,

> that my upper neck, the soft tissue is extremely tender and

> deteriorating. That sounds like fun . I no longer use a pillow

but

> a rolled up towel for my neck and it does wonders.

>

> I have been on some form of prednisone since I was 7. That's 25

> years, a quarter of a century. HOly sokes, I am old! :-O. LOL. The

> dr's still give high marks on the xolair and feel without it I

would

> be much worse.

>

> I do experience pain bw the arthritis and other joints, so again,

> reading here, I feel I am not alone. Even if my family isolates me

on

> this one. I try to walk but the hips hurt. I do know sitting around

> does not help. I feel worse, so I try to stay mobile.

>

> There were e-mails replied to me about contacting a particular dr.

I

> did. I called that dr and the response was more or less, in a nut

> shell, why I would want to see the dr when my dr is also top of the

> line, why would I want to seek elsewhere and travel. I mentioned it

> to my dr, he knew the dr recommended here on this site as well. I

did

> look at the websites; the dr offers a lot of helpful info.

Insurance

> will be a problem

>

> I am still recovering from the hospital stay. I am catching up on

all

> the posts.

>

> One last note, to the one who posted about traveling with asthma.

> What an awesome idea, especially the yellow paper. And if you were

> the same one or it was another that had a binder, kudos. I keep a

log

> on my peak flows, meds but not as much detail as you. I should

start

> doing that. Thanks for the idea.

>

> Take care everyone. Enjoy the weekend.

>

[Guest guest]

its good to hear from you -- i was thinking about you.

i cannot imagine how frustrating and angering (is that a word?) it

must be to live with people who do not understand, and more so, mock

your asthma. i know its not the same as family support, but we're

all here for ya!

i'm glad you're out of the hospital, and hopefully you're feeling

better!

hugs,

heather

>

> I spent the past week in the hospital for the asthma. Dr was also

> concerned about the level of depression b/w the chronic illness

and

> folks not understanding.

>

> He spoke to them. I don't think it sank into their thick heads.

Now

> they seem to be making it out like I am over dramatizing. I

> hear " don't cut the grass, an asthma attack will start, don't burn

> the scented candles, unplug the glade plug ins, anything else we

can

> do for you honey, we don't want to tip the scales " . E-mail does

not

> give justice to the tone in which it is said. Now my folks think I

am

> hypersensitive on everything. Whatever. I just do what I need to

do

>

> I am glad they don't suffer from this disease and truly know what

it

> is like to feel like I feel.

>

> I mentioned to the dr I am on this site, he thought that was

> wonderful. I offered him to read some of the posts but he said his

> time was limited. He suggested my parents read and they

> feel.....well.....let's just say they don't have reading posts on

> their to do list any time soon.

>

> I have been reading the posts on bones and it is scary. One post

in

> particular. Side note: I have been told by my chiro, after an x-

ray,

> that my upper neck, the soft tissue is extremely tender and

> deteriorating. That sounds like fun . I no longer use a pillow

but

> a rolled up towel for my neck and it does wonders.

>

> I have been on some form of prednisone since I was 7. That's 25

> years, a quarter of a century. HOly sokes, I am old! :-O. LOL. The

> dr's still give high marks on the xolair and feel without it I

would

> be much worse.

>

> I do experience pain bw the arthritis and other joints, so again,

> reading here, I feel I am not alone. Even if my family isolates me

on

> this one. I try to walk but the hips hurt. I do know sitting

around

> does not help. I feel worse, so I try to stay mobile.

>

> There were e-mails replied to me about contacting a particular dr.

I

> did. I called that dr and the response was more or less, in a nut

> shell, why I would want to see the dr when my dr is also top of

the

> line, why would I want to seek elsewhere and travel. I mentioned

it

> to my dr, he knew the dr recommended here on this site as well. I

did

> look at the websites; the dr offers a lot of helpful info.

Insurance

> will be a problem

>

> I am still recovering from the hospital stay. I am catching up on

all

> the posts.

>

> One last note, to the one who posted about traveling with asthma.

> What an awesome idea, especially the yellow paper. And if you

were

> the same one or it was another that had a binder, kudos. I keep a

log

> on my peak flows, meds but not as much detail as you. I should

start

> doing that. Thanks for the idea.

>

> Take care everyone. Enjoy the weekend.

>