replies to various posts, etc.

[Guest guest]

I spent the past week in the hospital for the asthma. Dr was also

concerned about the level of depression b/w the chronic illness and

folks not understanding.

He spoke to them. I don't think it sank into their thick heads. Now

they seem to be making it out like I am over dramatizing. I

hear " don't cut the grass, an asthma attack will start, don't burn

the scented candles, unplug the glade plug ins, anything else we can

do for you honey, we don't want to tip the scales " . E-mail does not

give justice to the tone in which it is said. Now my folks think I am

hypersensitive on everything. Whatever. I just do what I need to do

I am glad they don't suffer from this disease and truly know what it

is like to feel like I feel.

I mentioned to the dr I am on this site, he thought that was

wonderful. I offered him to read some of the posts but he said his

time was limited. He suggested my parents read and they

feel.....well.....let's just say they don't have reading posts on

their to do list any time soon.

I have been reading the posts on bones and it is scary. One post in

particular. Side note: I have been told by my chiro, after an x-ray,

that my upper neck, the soft tissue is extremely tender and

deteriorating. That sounds like fun . I no longer use a pillow but

a rolled up towel for my neck and it does wonders.

I have been on some form of prednisone since I was 7. That's 25

years, a quarter of a century. HOly sokes, I am old! :-O. LOL. The

dr's still give high marks on the xolair and feel without it I would

be much worse.

I do experience pain bw the arthritis and other joints, so again,

reading here, I feel I am not alone. Even if my family isolates me on

this one. I try to walk but the hips hurt. I do know sitting around

does not help. I feel worse, so I try to stay mobile.

There were e-mails replied to me about contacting a particular dr. I

did. I called that dr and the response was more or less, in a nut

shell, why I would want to see the dr when my dr is also top of the

line, why would I want to seek elsewhere and travel. I mentioned it

to my dr, he knew the dr recommended here on this site as well. I did

look at the websites; the dr offers a lot of helpful info. Insurance

will be a problem

I am still recovering from the hospital stay. I am catching up on all

the posts.

One last note, to the one who posted about traveling with asthma.

What an awesome idea, especially the yellow paper. And if you were

the same one or it was another that had a binder, kudos. I keep a log

on my peak flows, meds but not as much detail as you. I should start

doing that. Thanks for the idea.

Take care everyone. Enjoy the weekend.