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I am very blessed when it comes to family understanding. My 82 year

old mother in law lives with us and she is asthmatic too. Well....

sort of. She has an attack about 15 times a year, takes 2 puffs of

Combivient and she is ok for another weeks. Must be nice!

Also, I just came home from visiting family at Christmas, I always go

see my sister and her family about 180 miles away. I have 4 nieces and

2 of them work as pharmaceutical reps. One for UGO and one for Eli

Lilly. One of them is asthmatic too (mild of course...takes a few

puffs of albuterol once or twice a year)

The only thing I hate when visiting them is that there is no room for

the wife and I to stay at my sisters house with all the nieces and

grand nieces there. We always have to stay in a motel. (No room in the

inn LOL)

Oh, the motels are very nice but they are always lung traps for bad

asthmatics even in non smoking rooms. I come armed with all my asthma

drugs. My CPAP machine is portable and a wonderful help when I sleep

because I breathe in CLEAN, humidified, dust free air all night long.

Happy holidays friends. Thanks for making this the #1 asthma

health group. We are now up to 507 members and growing every day.

Also, I want to thank my co owner Addy and moderators and

for their great work to keep this group going and growing :)

Doug

Group founder

on Xolair since September 2007

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I am glad to read people out there do have supportive families. I am now on two

more drugs because of this ordeal.

My sister and I are distant from each other but we have to interact for the

sake of my nephews (her sons). I had to pick up my nephews, she does not give

them up easily, so I had to go to the house. She is not the cleanest of souls. I

walked in and the stench from dog, the smell from her not cleaning and the

horrid candle scent was a set back. She said this was not our mothers house so I

should not have a reaction. (Like THAT makes sense).

When I got the boys back to my parents we all had to shower to rid the smell.

(All who are reading and are familiar with my posts know that this created an

argument).

It does get very frustrating because so many people are unaware. I even had to

have a student removed from my class. She wore a perfume too strong. Her mom

said she bought it for her daughter because she (the mom) was dying of cancer. I

explained I understood and gave my sympathies but also had to say I can't teach

because I can't breathe. She said it was not her problem and I had to figure it

out. So, I had the kid removed from my class. She wrote a letter to the

principal goin on how I don't understand, how uncaring, unsympathetic, etc.

teacher I am. The principal said don't worry about it because they see how I

suffer. UNBELIEVABLE!! The principal also said the school social worker had

proof the mother does not have cancer. She says it so she gets what she wants.

(Now that is down right low!).

I wish I could say the people who live with families with this ailment

understand the ordeal but it is not true and my familiy is a prime example.

As always, I am grateful to be in this group. So many understand in my

immediate world, I feel so alone.

Thanks

:)

uca79iii <bme1979@...> wrote:

I am very blessed when it comes to family understanding. My 82 year

old mother in law lives with us and she is asthmatic too. Well....

sort of. She has an attack about 15 times a year, takes 2 puffs of

Combivient and she is ok for another weeks. Must be nice!

Also, I just came home from visiting family at Christmas, I always go

see my sister and her family about 180 miles away. I have 4 nieces and

2 of them work as pharmaceutical reps. One for UGO and one for Eli

Lilly. One of them is asthmatic too (mild of course...takes a few

puffs of albuterol once or twice a year)

The only thing I hate when visiting them is that there is no room for

the wife and I to stay at my sisters house with all the nieces and

grand nieces there. We always have to stay in a motel. (No room in the

inn LOL)

Oh, the motels are very nice but they are always lung traps for bad

asthmatics even in non smoking rooms. I come armed with all my asthma

drugs. My CPAP machine is portable and a wonderful help when I sleep

because I breathe in CLEAN, humidified, dust free air all night long.

Happy holidays friends. Thanks for making this the #1 asthma

health group. We are now up to 507 members and growing every day.

Also, I want to thank my co owner Addy and moderators and

for their great work to keep this group going and growing :)

Doug

Group founder

on Xolair since September 2007

---------------------------------

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

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>

> As always, I am grateful to be in this group. So many understand

in my immediate world, I feel so alone.

>

> Thanks

>

You are most welcome and are among friends :)

Doug

Group founder

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Well, you already know my thoughts about your family situation from

our previous communications on this board and by email. I'm just so

sorry that the beat goes on as it does. You do sound like you're

getting so much stronger in how you cope but I also know that the pain

just goes on. There is a great book called Toxic Parents that was

first published about 15-20 years ago. I'm not sure if it's still in

print but it would be another great source of support and insight for

you if you can track down a copy. May you have a much happier and

healthier New Year - Fran

> I am very blessed when it comes to family understanding.

My 82 year

> old mother in law lives with us and she is asthmatic too. Well....

> sort of. She has an attack about 15 times a year, takes 2 puffs of

> Combivient and she is ok for another weeks. Must be nice!

>

> Also, I just came home from visiting family at Christmas, I always go

> see my sister and her family about 180 miles away. I have 4 nieces and

> 2 of them work as pharmaceutical reps. One for UGO and one for Eli

> Lilly. One of them is asthmatic too (mild of course...takes a few

> puffs of albuterol once or twice a year)

>

> The only thing I hate when visiting them is that there is no room for

> the wife and I to stay at my sisters house with all the nieces and

> grand nieces there. We always have to stay in a motel. (No room in the

> inn LOL)

>

> Oh, the motels are very nice but they are always lung traps for bad

> asthmatics even in non smoking rooms. I come armed with all my asthma

> drugs. My CPAP machine is portable and a wonderful help when I sleep

> because I breathe in CLEAN, humidified, dust free air all night long.

>

> Happy holidays friends. Thanks for making this the #1 asthma

> health group. We are now up to 507 members and growing every day.

>

> Also, I want to thank my co owner Addy and moderators and

> for their great work to keep this group going and growing :)

>

> Doug

> Group founder

> on Xolair since September 2007

>

>

>

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Mobile.

Try it now.

>

>

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-

<< There is a great book called Toxic Parents that was

> first published about 15-20 years ago. I'm not sure if it's still in

> print but it would be another great source of support and insight for

> you if you can track down a copy.>>

I tracked down a copy on amazon.com

http://www.amazon.com/Toxic-Parents-Overcoming-Hurtful-Reclaiming/dp/0553381407/\

ref=pd_sim_b_title_1/104-9332936-0489505

Thanks Fran for all your professional advice. You are a Godsend to

this group.

Doug

Group founder

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  • 2 weeks later...

>

> As for your mother not understanding asthma, I say join the crowd.

> Everyone looks at you and you're not turning blue and you're not

> falling on floor and you don't have big tumors popping out of your

> ears so they think you must be fine. Just like the old ladies that

> dump a bottle of perfume on them heading into church, they don't

> understand and probably won't understand so don't hold their

> ignorance against them.

>

> My wife thinks my asthma is all a big fake and the doctors are just

> milking my insurance company. After all I'm not laying on the floor

> holding my throat. But when she hears me gasping for breath and

> wheezing she does begin to take notice. That's not often since

> thanks to modern medicine and good doctors my asthma is under

> control most of time..

, " meencantador "

I wish there were some way to let these people experience an asthma

attack just once in their lives. Maybe just once they would get the

picture. But alas.........some people are so stubborn they still would

not get it.

Some people are healthy all their lives, do not understand and really

do not want to. It is called NO COMPASSION! I have run into a few who

suddenly got sick and their minds were changed dramatically.

One boss was really mean when I was diagnosed with ruptured disks in

my neck. He laughed at the soft collar and said I was faking. After

he had disk trouble of his own, he apologized profusely, especially

after hearing I had to have fusion surgery not once but twice.

When I had to hit the ER with asthma his wife really told him off

good. She was the charge nurse at that ER LOL!

Doug

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It is so hard for anyone to have what I call an invisible illness. Meaning we

are not in a wheelchair or appear to be physically impaired. MY family members

understand and really give mea of support. my parents are in FL for the winter I

am in upstate NY the week before Christmas I had pneumonia. Yes I have had the

darn shot twice. . I was having a really hard time I think I was at the drug

store to long getting prescriptions and with my latex allergy . I could not talk

well or breathe. my in-laws stopped by they wanted me to cook them dinner. They

told me I had better not disturb there son at work . I was so darn irritated. My

husband already knew was coming home to help me. Needless to say husband walks

in door . Says to his parents thanks for coming to watch the kids I need to take

my wife to the ER. They actually got into there car and left. Thank god for my

nieghbor to take my kids.

THey just so not get it . I hate to admit sometimes I wish they would get sick

and people would treat them like crap

----- Original Message -----

From: uca79iii

Sent: Monday, January 07, 2008 8:15 AM

Subject: [ ] Re: It's beginning to look a lot like X-mas:Tis the

season to be sneezing (wheez

>

> As for your mother not understanding asthma, I say join the crowd.

> Everyone looks at you and you're not turning blue and you're not

> falling on floor and you don't have big tumors popping out of your

> ears so they think you must be fine. Just like the old ladies that

> dump a bottle of perfume on them heading into church, they don't

> understand and probably won't understand so don't hold their

> ignorance against them.

>

> My wife thinks my asthma is all a big fake and the doctors are just

> milking my insurance company. After all I'm not laying on the floor

> holding my throat. But when she hears me gasping for breath and

> wheezing she does begin to take notice. That's not often since

> thanks to modern medicine and good doctors my asthma is under

> control most of time..

, " meencantador "

I wish there were some way to let these people experience an asthma

attack just once in their lives. Maybe just once they would get the

picture. But alas.........some people are so stubborn they still would

not get it.

Some people are healthy all their lives, do not understand and really

do not want to. It is called NO COMPASSION! I have run into a few who

suddenly got sick and their minds were changed dramatically.

One boss was really mean when I was diagnosed with ruptured disks in

my neck. He laughed at the soft collar and said I was faking. After

he had disk trouble of his own, he apologized profusely, especially

after hearing I had to have fusion surgery not once but twice.

When I had to hit the ER with asthma his wife really told him off

good. She was the charge nurse at that ER LOL!

Doug

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Hi, I am new to this group...I have had asthma since I was 5 or 6, now

I'm 57. I am disability, and just started Xolair. My IgE level is

379. I have had the discrimination from people who didn't understand

what having asthma is all about. An older clerk at the grocery store

brought out my cart, saw my Handicapped parking permit, and was

shocked. He said " You don't seem like you're disabled! " He was

supposed to go back and get a bag of salt for the water softener, but

just disappeared. If people only knew about the inability to walk

upstairs, the gasping, the meds, the whole package, what a difference

it would make. What I am concerned about is that I have been on

prednisone at varying doses for a long time. I am 5'4 " and weigh 220.

I take diuretics, but we know what it does to our appetites and our

bodies. I was criticized constantly by my family for the weight. My

younger brother told me recently " We've never had a fat person in our

family before... " I reminded him again about prednisone and that

exercising is really tough for me. He later apologized. Has anyone

else had this kind of response? I am finally off prednisone and have

taken Xolair, 2 injections twice a month, and I'll take it again

today. I went today to have blood drawn for cholesterol, thyroid,

etc. Thanks for " listening " . Barb

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________________________________

>

> From: barbala304@...

> Date: Tue, 8 Jan 2008 16:49:24 +0000

> Subject: [ ] Re: It's beginning to look a lot like X-mas:Tis the

season to be sneezing (wheez

>

>

> Hi, I am new to this group...I have had asthma since I was 5 or 6, now

> I'm 57. I am disability, and just started Xolair. My IgE level is

> 379. I have had the discrimination from people who didn't understand

> what having asthma is all about. An older clerk at the grocery store

> brought out my cart, saw my Handicapped parking permit, and was

> shocked. He said " You don't seem like you're disabled! " He was

> supposed to go back and get a bag of salt for the water softener, but

> just disappeared. If people only knew about the inability to walk

> upstairs, the gasping, the meds, the whole package, what a difference

> it would make. What I am concerned about is that I have been on

> prednisone at varying doses for a long time. I am 5'4 " and weigh 220.

> I take diuretics, but we know what it does to our appetites and our

> bodies. I was criticized constantly by my family for the weight. My

> younger brother told me recently " We've never had a fat person in our

> family before... " I reminded him again about prednisone and that

> exercising is really tough for me. He later apologized. Has anyone

> else had this kind of response? I am finally off prednisone and have

> taken Xolair, 2 injections twice a month, and I'll take it again

> today. I went today to have blood drawn for cholesterol, thyroid,

> etc. Thanks for " listening " . Barb

>

>

>

I am new to the group also, so welcome, I am very sorry you had to expierience

the cruelty of people who have ABSOLUTELY NO CLUE what we deal with, I am a 48

year old previously active mother of three, we love to travel, I love to garden,

and I havent been able to due ANYTHING since October 24th when this whole

nightmare started. People really need to use their brains before they open

their mouths, and realize just because a disability isnt visible does not mean

it doesnt exist, I am being weened of the prednisone, finally, so maybe I can

actually put my wedding ring back on my finger instead of around my neck on a

chain, how pathetic, I started inhal yesterday, and actually felt better this

morning, but now right back where I started from, anyway, you hang in there,

good luck to you, I will be praying for you and all my other fellow sufferers in

the group, stay strong, continued good health Kathy

_________________________________________________________________

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About 8 years ago I was going to graduate school at a local university which was

surrounded by juniper (mountain cedar). I had to park a great distance from any

of the buildings and this was at a time when I was on prednisone at least three

or four times a year, and always during the mountain cedar season. When my

allergists found out I was walking such a great distance in the mountain cedar

air, he immediately gave me the letter to get a handicapped tag. He doesn't

even want me walking too far when the air is extremely cold.

In all fairness, even before xolair, and even off of prednisone, there were

days when I had no symptoms of asthma. But the next day, I could not do very

much without having to sit down, or would use my albuterol more. The day I had

to go in to the Highway Department office to get my handicapped tag renewed (I

had let it expire), the girl who was issuing them looked at me and said " Who is

this for? " When I said " Me " she looked at me in total disbelief. Then I told

her I only had 30% lung capacity (which is true--lung damage from years of

untreated/treated asthma), she backed down a little. But her reaction was

" You've got to be kidding--you don't look handicapped in any way! " I am sure

people with heart problems that have hand. tags get very much the same response!

I must add that one day recently, I had shortness of breath while I was

shopping, and got out my inhaler (while leaning on the shopping cart) and I

actually had a young man stop and ask me if I was okay or if I needed help. We

talked for a bit and it turns out he was an asthmatic also! But I appreciated

his stopping to ask if I was okay. He is the first one who has ever asked that,

besides my wonderful family who do not hover, but are sensitive to my needs when

they know I am having difficulty (which has been much less often since xolair!

I do still have a bad coughing spell occasionally.)

Prednisone and fat......I gained 30 pounds over the years I was almost

constantly on prednisone, gained another 20 pounds over the times I had to go

back on it. I lost 25 of those pounds, but have had difficulty losing the

other. I was stick thin when I was in high school, and was rather thin before

my asthma kicked in big time. Several in my family have not been grossly

overweight, but have been overweight and have had to fight to keep the weight

off. So my family is very accepting of who I am and what I am. It's people I

have worked with that have made it hard to carry some of the weight. And most

of it is in my abdomen! But I continually have blood work done--I am not

diabetic (my brother is, however), I have very low cholesterol and my

triglycerides are low.

So bless you.......Just smile (if you can in between catching your breath!)

Adah

barbala304 <barbala304@...> wrote:

Hi, I am new to this group...I have had asthma since I was 5 or 6, now

I'm 57. I am disability, and just started Xolair. My IgE level is

379. I have had the discrimination from people who didn't understand

what having asthma is all about. An older clerk at the grocery store

brought out my cart, saw my Handicapped parking permit, and was

shocked. He said " You don't seem like you're disabled! " He was

supposed to go back and get a bag of salt for the water softener, but

just disappeared. If people only knew about the inability to walk

upstairs, the gasping, the meds, the whole package, what a difference

it would make. What I am concerned about is that I have been on

prednisone at varying doses for a long time. I am 5'4 " and weigh 220.

I take diuretics, but we know what it does to our appetites and our

bodies. I was criticized constantly by my family for the weight. My

younger brother told me recently " We've never had a fat person in our

family before... " I reminded him again about prednisone and that

exercising is really tough for me. He later apologized. Has anyone

else had this kind of response? I am finally off prednisone and have

taken Xolair, 2 injections twice a month, and I'll take it again

today. I went today to have blood drawn for cholesterol, thyroid,

etc. Thanks for " listening " . Barb

---------------------------------

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