RE: It's beginning to look a lot like X-mas:Tis the season to be sneezing (wheezing)

[Guest guest]

You are a better person than me. That would be the last holiday I'd spend with

toxic people, who go out of their way to belittle and humilate a chronically ill

person. I doubt they would treat a person with cancer that way. I was feeling

sorry for myself because the IL & s demanded visiting an Asian restaurant for

Xmass eve dinner. I'm ana to soy, shellfish, fish and msg. So I got to watch

everyone eat for 3 hours, while I drank club soda. Never again. And they do know

about my 10+ ER food allergy ana reactions. Your family even tops that. Life is

too short to deal with clueless relatives. Hugs Nan

meencantador wrote:

> Hello

> Hope everyone had a good Christmas for those who celebrated it. Merry

> Christmas

> 12/26....next Xolair shot. I hope it helps.

> Here, as my subject line reads: Tis the season to be wheezing

> (sneezing).

> I am home for the holidays. Things would not be normal if the

> following did not occur:

> scented candles, specific tree purchased after stating I am allergic,

> scented plug ins, scented potpourri, a gift set of scented soap,

> shampoo/conditioner in the shower that does not help matters.

> Cleaning supplies Mr. Bubbles bathroom cleaner, Pledge lemon scented

> oil dusting spray,the hamsper, and the heat to remain on 60

> degrees.

> (By the way at 3:45 AM, it's 65 degrees where I reside permanently.

> It is warmer outside than it is in the house here, where my family

> is). I know oil is pricey but there are only so many sweatshirts I

> can put on. It's 26 degrees in NY right now.

> Getting the picture? Now, think how lovely the ER was.(Not!). And

> this was the picture of Christmas Eve.

> They explained to her again about my condition. ...I feel like a

> child...she questioned them if this was really in my head or was I

> blowing this out of proportion. She did not like their response

> because it echoed mine. Now, my mom puts on her fascade of being a

> caring mom. The RRT spoke to her about my peak flows. My mom chimes

> in. Why such a difference in number? She has no clue, I have

> explained over and over again. But I gave up. Yet when my dad's blood

> sugar goes off 20 points either direction... .STOP THE PRESS!!!!. Ay!!!

> Before going to the ER, I called my dr. He said he'd meet me. He

> spoke to mom again. Big deal, I could have spoken to the wall and

> gotten more of a response. He explained the Xolair (which I am

> getting while up here in NY, but my mom has no clue. She told him I

> should be off all these meds and go the natural route. He gently

> reminded her that she did not have a medical license.

> The dr did want to speak to me in private. My mom said " why, what is

> there to hide " . Oh boy. I am 32 and this is how I am treated.

> I did feel it was necessary to thank her for taking me. (I did not

> want to because she made matters worse but I felt she needed that

> acknowledgment) . She was all over that one. She was grateful but was

> relentless reminding me how much was backed up because we had to

> spend time in the ER. (I am sitting here still trying to reach down

> and pull the dagger out of my back that she stabbed me with). I wish

> she would take thank you nicely without adding a zinger in there.. Oh

> well. I'll put that on my Christmas list for next year. LOL

> Christmas day:

> Family goes to church. We have to sit in the front row. (WHY?!).

> Ahhh........ the lovely smell of pine trees, the altar looks like a

> forest. The pointsettas, what a lovely display. Oh wait, I am sorry,

> this is all lovely if YOU DON " T HAVE ALLERGIES AND NOT AN

> ASTHMATIC!!! ! Being prepared for all this, I pull out my own meds

> before church. That did not help. Opening song: O Come Emmanuel.

> Wait, I start sneezing, my dad say " O come on! " I Tell him no, wrong

> song. Ok, I won't go into every detail, just the last song at the end

> of mass " we wish you a merry christmas " , which for me sounded much

> like " We wish-a-choo a merry christmas " .

> Of course we had to stay to greet the priest, etc. Ah.......what a

> Kodak/Hallmark moment. My mom said " pardon my daughter, she had to

> make a point to remind us she was allergic " . (Gotta love families at

> Christmas, sometimes I think they make the Gotti family look like the

> Ingalls from Little house on the Prarie).

> We have moved on from church and to the home. I was asked to water

> the tree. Trying not to get into an argument, I asked one of my

> nephews (that was a wrong move). I did come prepared with a mask as

> my dr suggested. Boy, was I mocked and told to take it off and not be

> so much drama.

> Moving on....the relatives arrive. The dinner table on Christmas was

> a punching bag time at me. It wouldn't be Christmas without snide

> remarks how I ruined Christmas eve in the ER. " ...and that machine of

> hers, it's so loud and it did not work, so we had to stop everything

> and still had to go to the ER " . (Even though, I said I'd take myself,

> my mom insisted on coming). She makes me worse but her uppity ways.

> They shared the scenario of all the various meds I am on. Especially

> the calcium. My mom said at her age, she does not need this. I just

> said she was fortunate. I chose not to react, rather, eat quickly and

> start cleaning up. I love washing dishes. No one bothers me.

> The logical question might be: Why go home and face this? The answer

> is because of my nephews. I miss them a lot and something major is

> going on.. I have learned to have patience and deal with their

> intolerance, or at least try to as much as I can. I do suffer and

> bring all the necessary meds and such with me. But my folks are hard

> core that even with that, it is not enough and I suffer.

> Is it worth it? Well, I don't want to spend Christmas alone over 1000

> miles away. I have no family there.. Also my friends: My one friend

> has 5 cats, the other has a cat and a german shepard, It is not worht

> it.

> However, tt is worth seeing my two nephews who believe in Santa and

> the magic of Christmas. Nothing can ever replace that. I have 2

> friends who call to speak to them on Christmas ever. They are elves

> and another friend who calls and says he's Santa. Words cannot

> express the joy it is to see how happy they are on Christmas Eve and

> the magic of Christmas morning.

> So, I am reminded of the theme song from the TV show The Facts of

> life: You take the good, you take the bad and there you have the

> facts of life "

> Cross your fingers they go away for a couple of days though. As much

> as I love them, a few days away will help. If not, I plan on seeing

> friends and family and if need be, I will stay over a night. Where my

> parents are is in no man's land. It's dead in the winter. Their

> second home is even worse. So when we are together, quality is spent

> within the first 2-4 hours. Then it's time for something new. LOL

> Thanks for reading. Writing does help and I know there are people out

> there who can relate.

> Breathe well, I am still waiting for relief from the heavy chest and

> that tight feeling around it. The rescue inhaler is not doing the

> trick and I sure don't want to go back to the ER. I have Xopanex for

> the neb but that gets me hyper followed by the shakes and a headache.

>

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