Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 Note: I posted this for Kathe so I could send it out as a " special notice " Doug ------------------------------- Hi ALL!! After seeing all the number of people in this group who are having or have had problems getting approved for their Xolair, not getting shipments, being on Xolair and then being told they can no longer get it etc... I've been doing some serious thinking here. I personally think it would be AWESOME if we could get someone in here who will specifically point us all in the right direction. Like say a SPOC/Xpansions liaison or a Xolair Advocate for the group. It would also be great if Addy and Doug could come up with a poll so we can see who has encountered any or all of those problems. That way " whoever " ends up being the liaison can say to Genentec and Novartis " hey...look at all these people who are having/had problems but didn't know where to turn. " Seriously, with everything I've read in here, it makes me wonder how many people are out there who DON'T belong to this group, but are on Xolair, and are having problems like we are seeing in here!! Kathe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2008 Report Share Posted January 25, 2008 Even though I have had no problems yet, that doesn't guarantee I won't in the future. I think this is an idea worthy of following through on. Thanks, Kathe. uca79iii <bme1979@...> wrote: Note: I posted this for Kathe so I could send it out as a " special notice " Doug ------------------------------- Hi ALL!! After seeing all the number of people in this group who are having or have had problems getting approved for their Xolair, not getting shipments, being on Xolair and then being told they can no longer get it etc... I've been doing some serious thinking here. I personally think it would be AWESOME if we could get someone in here who will specifically point us all in the right direction. Like say a SPOC/Xpansions liaison or a Xolair Advocate for the group. It would also be great if Addy and Doug could come up with a poll so we can see who has encountered any or all of those problems. That way " whoever " ends up being the liaison can say to Genentec and Novartis " hey...look at all these people who are having/had problems but didn't know where to turn. " Seriously, with everything I've read in here, it makes me wonder how many people are out there who DON'T belong to this group, but are on Xolair, and are having problems like we are seeing in here!! Kathe --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
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