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A Great big Congratulations! I was so excited when I found out April I was

expecting, ahhhh my first NT baby! LOL. Unfortunaltly we lost this one :o( , but

I'm busy scouting out good food in prep for next time. Have fun NTing for 2!!!

Mrs. Siemens

Wife to (6 years)

Mommy to Zachary (4), Lydia (1), and Jordan (in Jesus' arms)

field Christian Fellowship

" As arrows are in the hands of a mighty man, so are

children of the youth. Happy is the man who hath his

quiver full of them, " -Psalm 127:4-5a-

---------------------------------

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Dear ,

I'm so sorry to hear about your loss.

Thanks for the congratulations and take care,

On 5/12/05, Siemens <amandasiemens@...> wrote:

> A Great big Congratulations! I was so excited when I found out April I was

> expecting, ahhhh my first NT baby! LOL. Unfortunaltly we lost this one :o( ,

> but I'm busy scouting out good food in prep for next time. Have fun NTing

> for 2!!!

>

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  • 1 year later...
Guest guest

Congratulations ! There is a decorating folder in the files section. It has a lot of great tips and advise.

Jen and Luli (16mo)

Left Tort - Right Plagio - Hanger Band Grad - CA

tallulah jayne

http://www.babiesonline.com/babies/j/jens5th/

It's Official

Payton was casted today for her DOC Band. The insurance is covering it

100%. I have to take her in on the 11th to be fitted and then every

week to re-adjust it. They did new measurements and it hasn't gotten

better, not a whole lot worse though(from last month). I was pleased

to hear that. So my child will be wearing a super spifey helmet while

she learns to walk, I can't complain!

Oh the best part...my little angel hardly cried. The tech said she was

a rare find and that even with the little fussing she did it was no

where near what most babies do. She only cried out three times and

when we put water on her pacifier she was fine again.

Can someone tell me how to decorate the band? I plan to paint it, so

do I need special paint for that?

~~

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I have a question...

A friend of mine is getting her son banded soon too. She was told

yesterday that his lymph nodes are swollen. He has Brac, not Plagio.

Is there something linked between the lymph nodes and Brac?

Thanks.

>

> i am so glad insurance is covering it!!!!!!!!!!!!!!! Please let us

know how the fitting goes.

>

> Angie and Jenna

> It's Official

>

>

> Payton was casted today for her DOC Band. The insurance is covering it

> 100%. I have to take her in on the 11th to be fitted and then every

> week to re-adjust it. They did new measurements and it hasn't gotten

> better, not a whole lot worse though(from last month). I was pleased

> to hear that. So my child will be wearing a super spifey helmet while

> she learns to walk, I can't complain!

>

> Oh the best part...my little angel hardly cried. The tech said she was

> a rare find and that even with the little fussing she did it was no

> where near what most babies do. She only cried out three times and

> when we put water on her pacifier she was fine again.

>

> Can someone tell me how to decorate the band? I plan to paint it, so

> do I need special paint for that?

>

> ~~

>

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i am so glad insurance is covering it!!!!!!!!!!!!!!! Please let us know how the fitting goes.

Angie and Jenna

It's Official

Payton was casted today for her DOC Band. The insurance is covering it100%. I have to take her in on the 11th to be fitted and then everyweek to re-adjust it. They did new measurements and it hasn't gottenbetter, not a whole lot worse though(from last month). I was pleasedto hear that. So my child will be wearing a super spifey helmet whileshe learns to walk, I can't complain!Oh the best part...my little angel hardly cried. The tech said she wasa rare find and that even with the little fussing she did it was nowhere near what most babies do. She only cried out three times andwhen we put water on her pacifier she was fine again.Can someone tell me how to decorate the band? I plan to paint it, sodo I need special paint for that?~~

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  • 8 months later...

I just got back from getting my shots. They told me that my new

insurance plan had no problems covering my xolair and my newest

shipment is on the way. Also, with this new plan, I have NO COPY!

Yes, I have BCBS but a different group policy. This is what makes all

the difference. It is all in the type and kind of policy and group

you have

My employer group uses Highmark BCBS out of Pennsylvania. We have to

re-enroll every year. This year, they offered us several plans to

choose from. I chose the new high deductible, lower premium plan

offered for the first time. After the deductible is met, it pays 100%.

I met it fast by having all my asthma and other medications filled the

first 3 weeks in January. (I am also on a few other expensive things

other than asthma meds.)

They used Walgreens Specialty Pharmacy. With my old plan (Same

BCBS) they used Medco Specialty Pharmacy and I had a 120.00 copay

every 3 months.

Doug

Group founder

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  • 2 years later...
Guest guest

Hi Barbara,

How old is your child? My daughter (8) was diagnosed in May and we completed a

504 plan since she did not qualify for an IEP. Still learning the " lingo "

myself, but not sure if this is better or not, but it is what the school gave

her before the end of the year. Now unfortunately, we have moved to another

state and I am not sure how things will go. I hope all is easy for you!

Good luck with everything!

Kerri

recent transplant to VA from IL

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hi Kerri. Liz is 13. She is entering 8th grade. I expect cooperation from the school because they were the ones who encouraged us to have her tested in the first place. Good luck with your new plan!

From: kerri_bak@...Date: Sun, 8 Aug 2010 14:01:47 +0000Subject: ( ) Re: It's official

Hi Barbara,How old is your child? My daughter (8) was diagnosed in May and we completed a 504 plan since she did not qualify for an IEP. Still learning the "lingo" myself, but not sure if this is better or not, but it is what the school gave her before the end of the year. Now unfortunately, we have moved to another state and I am not sure how things will go. I hope all is easy for you!Good luck with everything! Kerrirecent transplant to VA from IL

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Thank you that is a good idea. I believe the school will be supportive, as the guidance counseler and school pyschologist were the ones to put us on this path to begin with.

From: @...Date: Sun, 8 Aug 2010 15:21:03 +0000Subject: ( ) Re: It's official

Hi Barbara, how has school been in the past? Wondering if you feel the school will be helpful or difficult. My only thought right now is to have in mind what you feel she needs to succeed in school that you want in her IEP. Since it'll be a new grade/new teachers this year, they may not be familiar with her. If she had some nice teachers last year, you might ask them to please jot down a few things that they think will be helpful for her IEP or just notes in general that they feel will be helpful to this year's teachers and include those at the IEP meeting.Good luck and do keep us updated. >> > Hi everyone. I have been something of a fly on the wall here for the past few months because my daughter, Liz, was still going through the diagnosis process. Well, it is now official that she has AS. I was not surprised. Reading some of your posts was like reading about my family. Now we will begin the process with the school. She starts 8th grade in about a month.> > I will look through the archives here for advice on IEPs, but if anyone has any advice they want to share, feel free! And thank you in advance.> > Barbara>

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Welcome to the family, Barbara! My favorite place to get advice about IEPs is http://www.wrightslaw.com

Roxanna

Whenever I feel blue, I start breathing again.

( ) It's official

Hi everyone. I have been something of a fly on the wall here for the past few months because my daughter, Liz, was still going through the diagnosis process. Well, it is now official that she has AS. I was not surprised. Reading some of your posts was like reading about my family. Now we will begin the process with the school. She starts 8th grade in about a month.

I will look through the archives here for advice on IEPs, but if anyone has any advice they want to share, feel free! And thank you in advance.

Barbara

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