Re: Re: trying to decide whether to stay on xolair or not: need help before Friday.

[Guest guest]

I have been taking Xolair for about 2 years now and have not had any

reactions of any kind with this drug. If you decide to continue the

drug therapy, which I suggest you do without worrying too much. Keep in

mind, a reaction is possible but according to the many persons that have

responded to this concern in the past the probabilty of a reaction is

very low is very low. Check out www.webmd.com and check out what it

says about Xolair on this site.

I feel it his helped me considerably. As long as I see inprovement in my

health, I will continue to take the shots. I do have available a EPI

Pen just because my doctor recommends it. In any case, I wish you the

best of health in the future.

Steve Zimmerman

Have a Good Day

785-296-6947

________________________________

From: [mailto: ]

On Behalf Of uca79iii

Sent: Wednesday, July 18, 2007 6:50 AM

Subject: [ ] Re: trying to decide whether to stay on xolair

or not: need help before Friday.

--- In

<mailto: %40> , " haroldbrenda "

<haroldbrenda@...>

wrote:

>

> I need help from anyone who has advice. I have severe allergies and

> asthma. About 50 allergies, a lot are environmental and pets, dust,

etc.

> I am even allergic to the laundry soap some people have in their

> clothes. I started xolair about 6 months ago. It hasn't been any magic

> cure, however, it has helped me go from taking a ventolin nebulizer

> every 3-4 hours, to every 5-8 hours. It has also helped with my nasal

> allergies, etc. I feel like I can breathe some better. But, if I get

> around anything I am allergic to I will still get sick. But it seems

> to help in that area some.

> But, I have almost decided to stop xolair, because I had read that the

> amount of anaphaltic reactions doubled from 1% to 2% and that even

> though I have to stay at the doctors for two hours after the

> injections( I get the maximum dose every two weeks), that I am still

> in danger for up to 24 hours. Now they say it is up to 4 days after

> the shots.

> I live where I have to travel distances between each town, and if I

were

> to have a reaction I wouldn't be just around the corner to a hospital.

> I do have an epi-pen however, I was told that the epi-pen will only

> last 2-5 minutes, and I would need a second epi-pen and to get help

> right away. But, I do have cardiac arrhythmias, and should be in a

> hospital if any thing like this ever occurred.

> I have had no problems taking xolair so far, but occasionally I will

> get a small localized reaction at the injection sites, a red, round

> hive about the size of a silver dollar, about 24 hours after the

> injections, then it goes away. Has anyone else experienced this?

> The other major thing for me is that I am allergic to hamsters. And

> xolair has ovary cells from a chinese hamster. The doctor told me that

> it shouldn't be a problem. But, when I started xolair I had a class 1

> allergy to hamsters, since the xolair treatment, I now have a class 4

> allergy to hamsters. My specialist, nor my regular doctor have any

> idea whether or not it is because of the xolair. Also, they have no

> idea whether the rast testing is any longer a good indicator for

> allergies after you start xolair. Does anyone know if RAST testing is

> messed up at all by taking xolair. Noone seems to know.

> It seems to me that if I am allergic to hamsters that I could be in

> danger of anaphalaxis, on the info. sheet for xolair it says not to

> take if allergic to any of the ingredients. But the doctor thinks it's

> ok,. I don't know what to do, because if I don't take xolair I will be

> a lot worse, but if I have a reaction, I could be in significant

> danger as I have severe persistant asthma. Over the past three years

> my allergies have gotten worse, and more different allergies than I

> have ever had in my life, the doctors think that I will continue to

> get worse. I was already to stop xolair. The stress from worrying

> about a reaction seems worse than being sick sometimes, but then I had

> an allergic reaction today, to someone who had a certain laundry

> detergent in their clothing. I pretty much can't go anywhere or do

> anything. Also, does anyone know if taking xolair can make allergies

> worse later on, especially after you stop treatment.

> I only have until Friday to decide what to do with the xolair. Today

> is Wed. I have no idea what to do, I already cancelled last week's

> shots and rescheduled this week for Friday. I was going to stop the

> shots, now I just don't know what to do. The doctor's don't seem to

> either. One thinks I should continue the xolair until I have a

> reaction. But, I think I am high risk for a reaction. Does any one

> have any information that could help me? Thanks.

>

I am so sorry you are having such problems.

My advice is to trust your doctor. If you still have any fears about

taking Xolair, talk to him/her about it. If you still have fears, you

have every right to refuse to take it and go back to taking a drug

like Prednisone.

Doug

Group founder

[Guest guest]

I get the small localized raised rash and itching too.

It goes away in few days.

Jeannie

--- uca79iii <bme1979@...> wrote:

>

> >

> > I need help from anyone who has advice. I have

> severe allergies and

> > asthma. About 50 allergies, a lot are

> environmental and pets, dust, etc.

> > I am even allergic to the laundry soap some people

> have in their

> > clothes. I started xolair about 6 months ago. It

> hasn't been any magic

> > cure, however, it has helped me go from taking a

> ventolin nebulizer

> > every 3-4 hours, to every 5-8 hours. It has also

> helped with my nasal

> > allergies, etc. I feel like I can breathe some

> better. But, if I get

> > around anything I am allergic to I will still get

> sick. But it seems

> > to help in that area some.

> > But, I have almost decided to stop xolair, because

> I had read that the

> > amount of anaphaltic reactions doubled from 1% to

> 2% and that even

> > though I have to stay at the doctors for two hours

> after the

> > injections( I get the maximum dose every two

> weeks), that I am still

> > in danger for up to 24 hours. Now they say it is

> up to 4 days after

> > the shots.

> > I live where I have to travel distances between

> each town, and if I

> were

> > to have a reaction I wouldn't be just around the

> corner to a hospital.

> > I do have an epi-pen however, I was told that the

> epi-pen will only

> > last 2-5 minutes, and I would need a second

> epi-pen and to get help

> > right away. But, I do have cardiac arrhythmias,

> and should be in a

> > hospital if any thing like this ever occurred.

> > I have had no problems taking xolair so far, but

> occasionally I will

> > get a small localized reaction at the injection

> sites, a red, round

> > hive about the size of a silver dollar, about 24

> hours after the

> > injections, then it goes away. Has anyone else

> experienced this?

> > The other major thing for me is that I am allergic

> to hamsters. And

> > xolair has ovary cells from a chinese hamster. The

> doctor told me that

> > it shouldn't be a problem. But, when I started

> xolair I had a class 1

> > allergy to hamsters, since the xolair treatment, I

> now have a class 4

> > allergy to hamsters. My specialist, nor my regular

> doctor have any

> > idea whether or not it is because of the xolair.

> Also, they have no

> > idea whether the rast testing is any longer a good

> indicator for

> > allergies after you start xolair. Does anyone know

> if RAST testing is

> > messed up at all by taking xolair. Noone seems to

> know.

> > It seems to me that if I am allergic to hamsters

> that I could be in

> > danger of anaphalaxis, on the info. sheet for

> xolair it says not to

> > take if allergic to any of the ingredients. But

> the doctor thinks it's

> > ok,. I don't know what to do, because if I don't

> take xolair I will be

> > a lot worse, but if I have a reaction, I could be

> in significant

> > danger as I have severe persistant asthma. Over

> the past three years

> > my allergies have gotten worse, and more different

> allergies than I

> > have ever had in my life, the doctors think that

> I will continue to

> > get worse. I was already to stop xolair. The

> stress from worrying

> > about a reaction seems worse than being sick

> sometimes, but then I had

> > an allergic reaction today, to someone who had a

> certain laundry

> > detergent in their clothing. I pretty much can't

> go anywhere or do

> > anything. Also, does anyone know if taking xolair

> can make allergies

> > worse later on, especially after you stop

> treatment.

> > I only have until Friday to decide what to do

> with the xolair. Today

> > is Wed. I have no idea what to do, I already

> cancelled last week's

> > shots and rescheduled this week for Friday. I was

> going to stop the

> > shots, now I just don't know what to do. The

> doctor's don't seem to

> > either. One thinks I should continue the xolair

> until I have a

> > reaction. But, I think I am high risk for a

> reaction. Does any one

> > have any information that could help me? Thanks.

> >

>

>

> I am so sorry you are having such problems.

>

> My advice is to trust your doctor. If you still have

> any fears about

> taking Xolair, talk to him/her about it. If you

> still have fears, you

> have every right to refuse to take it and go back to

> taking a drug

> like Prednisone.

>

> Doug

> Group founder

>

>

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