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Hi,

I am new to the group. My Sammy (4) has autism and is on the Body bio stuff

(I know, but it has helped him). He is also gfcf. My question is - when I

start the enzymes will that eliminate the need for Nystatin? Since he will

be digesting better, will there be no need for it?

Any help is appreciated.

Amy

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Hi Amy Welcome to the group. MY son has been on the enzymes

for 2 months after 10 months of GFCFand phenol-limited. He now eats

almost everything except still some phenol problems. I have just

started a course of Nystatin for in the last three days.

The group has advised me that the enzymes can HELP an anti-yeast

treatment work better, but I don't think it can REPLACE it if the

problem is severe enough. We figure has a yeast problem

because he showed moderate die-off symptoms for over 10 days on

probiotics, which we discontinued at that point and decided to go for

combo Nystatin and probiotics later. The thing about Nystatin is if

the child does not have a problem with yeast, they will show no

effect from the course of treatment and since the Nystatin is never

absorbed, just goes right through the body, it doesn't hurt to try it

and see according to my pediatrician. Negative reaction signals

yeast problem and need for continuing treatment.

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Hi and welcome, too. :)

is right in that enzymes can HELP an anti-yeast treatment work

better, but not REPLACE it. You might get away with it if it is

extremely mild. A good probiotic such as Culturelle helps this as

well.

My younger son had a very bad bacteria overgrowth as it turned out

that we did not know of for years. We knew he had a gut problem, but

my doc thought testing wasn't necessary (he will grow out of it). So

we had him on Peptizyde and Zyme Prime for several months at a

therapeutic dose (7-9 capsules/day) and 3 Culturelle capsules A DAY

for at least 5 months. This combination took away the smell and

basically controlled the bacteria, but it didn't knock it out. Each

time I tried easing up on the dose of either the enzymes or

probiotic, the stench and bm problems returned. Eventually I used an

anti-biotic (colloidal silver) for 10 days and this really wiped it

out. I have since cut the enzymes to about 4 a day and the

probiotics to 1 capsule and all has been very good for at least a

month. So, this seems to indicate that the consistent use of enzymes

plus probiotics helps manage it well, but doesn't " cure " the

problem. I think those to things really made it possible for us to

only have to do one round of antibiotics instead of 3-4 like I

routinely hear other people having to do. They made the bacteria

treatment much more effective.

.

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In a message dated 12/4/01 5:37:59 PM Eastern Standard Time,

kjorn@... writes:

> . Eventually I used an

> anti-biotic (colloidal silver) for 10 days and this really wiped it

>

- what brand of colloidal silver did you use?

Thanks -

Celia

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  • 3 weeks later...

--Kathy,

My son is 27 pounds and the dosage given to me was 1/2 tsp. 4 times a

day. However we did not start at this amount as we were told that

starting out in smaller doses helps with die off. Even at the lower

dose we are seeing severe die off. It is getting better slowly each

day though. I don't know if Nystatin dosing would increase with

weight. I guess I didn't help much huh.

Patti

- In @y..., " krs111 " <krs111@t...> wrote:

> Anyone know the usual dosage of nystatin liquid for a 55 lb child?

> Thanks,

> Kathy

>

>

>

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Patti,

Thanks for helping me figure this out. I read your other posts last night and

they were helpful too. My son had a bad reaction yesterday after only one dose

of nystatin. I gave him about 3/4 tsp but he calmed down after I gave him some

charcoal. I'll go more slowly now.

Kathy

[ ] Re: nystatin

--Kathy,

My son is 27 pounds and the dosage given to me was 1/2 tsp. 4 times a

day. However we did not start at this amount as we were told that

starting out in smaller doses helps with die off. Even at the lower

dose we are seeing severe die off. It is getting better slowly each

day though. I don't know if Nystatin dosing would increase with

weight. I guess I didn't help much huh.

Patti

- In @y..., " krs111 " <krs111@t...> wrote:

> Anyone know the usual dosage of nystatin liquid for a 55 lb child?

> Thanks,

> Kathy

>

>

>

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  • 2 months later...
Guest guest

Nystatin does not enter the bloodstream and is only absorbed in the

gut, therefore it is a very safe product. Also, I think it may be

Germany that offers Nystatin as an OTC product because it is so

safe. Apparently its safety would explain why my son has " 99 "

refills listed on the bottle.

Lori

> Hello listmates. I have not been here in a while. My new list

name

> is Colken2.. It was kencol. Well, i have been chelating my son

for

> the past six weeks. I have had great results. These results

include

> patience and a decrease in temper tantrums. (agb2gd) However, the

> doctor has prescribed two courses of antibiotics for my son. I

would

> like to know if is it safe to give him nystatin the week we are

not

> chelating. will this be ok for his liver?

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Guest guest

Sorry this is two days later, but I am catching up.

Why is the doctor prescribing antibiotics? My advice is to skip them and

concentrate on supplementing with vitamins (especially C).

I made this mistake with my daughter, and have been regretting it ever since.

We had to do three rounds of Diflucan back-to-back things got so bad. She is

still having a tough time with constipation, and I am trying to get this

resolved in order to chelate her. I told the doctor that she would have to be

on death's door to get antibiotics again.

[ ] nystatin

Hello listmates. I have not been here in a while. My new list name

is Colken2.. It was kencol. Well, i have been chelating my son for

the past six weeks. I have had great results. These results include

patience and a decrease in temper tantrums. (agb2gd) However, the

doctor has prescribed two courses of antibiotics for my son. I would

like to know if is it safe to give him nystatin the week we are not

chelating. will this be ok for his liver?

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  • 5 weeks later...
Guest guest

Hi,

Try to experiment with different kinds of drink.

From my experience, I can mix Valtrex with juice without any problems but

not with Dairy-Free (it makes it very bitter). Contrary, Nizoral is

completely tasteless with Dairy-Free and very bitter with any juice.

Hope it helps

Regina

nystatin

my 3 year old is taking nystatin powder. we tried all kind sof juice

to disguise the taste bu tno luck. any suggestions? thank sjeff

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  • 2 weeks later...
Guest guest

-We had the same script for our son at christmas time and he went nuts

on a tsp. 5 times a day. Really bad die off. Life was awful!!! We of

course posted here as to what was going on and immediately were told

that 1 tsp. 4 times a day was way too much. We decreased it to 1/8 of

a tsp. 4 times a day and then back up slowly to 1/4 . We still had

major behavioral issues while using nystatin and after a month we had

to stop. THe luquid has a lot of sugar in it and that kind of defeats

the effectiveness of it I think. We had to go with holistic methods to

get rid of our yeast and bacteria (it was REALLY bad, we had an OAT

test done) I would just start out with a smaller dose and work up even

if you have to go over the 10 day period. Just an opinion.

Good luck, Patti

-- In @y..., and Eileen Rice <eileenrice@j...> wrote:

> My son's pediatrician just gave me a script for Nystatin (1 tsp 4x/day

> for 10 days) to help treat the yeast issue. Has anyone else done this?

> I'm wondering if it's best to treat with No-Fenol or with the Nystatin.

> I've already cut the sugar content of my son's diet even lower than it

> already was. Any thoughts would be appreciated. Thanks, Eileen

>

> P.S. My son is just on 1/4 cap of Pep at meals now. I think he may be

> doing better than when he was on both the Pep and the Zyme but I need

> more time to evaluate.

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Guest guest

Patti,

How is your son now? And how are his yeast issues? What were some of

the holistic things you used for treating the yeast? I really appreciate

you sharing your experience. I'm not sure what I'm going to do with this

script yet.

Eileen

From: " tiredmamma18042 " <CFRITCH@...>

-We had the same script for our son at christmas time and he went nuts

on a tsp. 5 times a day. Really bad die off. Life was awful!!! We of

course posted here as to what was going on and immediately were told

that 1 tsp. 4 times a day was way too much. We decreased it to 1/8 of

a tsp. 4 times a day and then back up slowly to 1/4 . We still had

major behavioral issues while using nystatin and after a month we had

to stop. THe luquid has a lot of sugar in it and that kind of defeats

the effectiveness of it I think. We had to go with holistic methods to

get rid of our yeast and bacteria (it was REALLY bad, we had an OAT

test done) I would just start out with a smaller dose and work up even

if you have to go over the 10 day period. Just an opinion.

Good luck, Patti

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Guest guest

Eileen

We did Nystantin a couple of months ago and let me tell you - it is no picnic.

Within a couple of days my son had a clear runny nose. His behavior became

uncontrollable and he started sleeping more than usual. By day 10 he had

started to run high fevers and vomiting. We went to the emergency room at one

point and they did a blood test which indicated that he had the flu. I am not

so sure though. I have heard that symptons of yeast die off can look like flu

symptons. We also had some real bad poops in the first few days. About a week

into treatment, the poops started to look alot better. Within a couple of days

off Nystantin he returned to his sunny self. We did 1 tsp in the morning and 1

tsp at nite for 14 days. You can use activated charcoal to help with the yeast

die off but make sure to give it at a separate time from other supps because it

will absorb those too in addition to the toxins that are being released in the

body from the yeast.

Good luck. It seems like this is one of those things that get worse before they

get better. ( Is'nt everything like that?)

Stacey

[ ] Nystatin

My son's pediatrician just gave me a script for Nystatin (1 tsp 4x/day

for 10 days) to help treat the yeast issue. Has anyone else done this?

I'm wondering if it's best to treat with No-Fenol or with the Nystatin.

I've already cut the sugar content of my son's diet even lower than it

already was. Any thoughts would be appreciated. Thanks, Eileen

P.S. My son is just on 1/4 cap of Pep at meals now. I think he may be

doing better than when he was on both the Pep and the Zyme but I need

more time to evaluate.

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Guest guest

---We started him on Custom brand pro-biotics (2 three times a day)

and Pro-bio gold (1 two times a day) and sacchromyces Boullardii ( a

good yeast)2 three times a day. THen after a month we added grapefruit

seed extract and something called biocidin. Biocidin has all kinds of

things in it and I will give you a link to the company at the end of

my post so you can read the ingredients. The biocidin had to be ramped

up slowly to about 6 drops 3 times a day for 2 months and then off a

week and then on for another 2 months and then off a week. We are not

sure how long he will need to be on this as he is on heavy

anti-biotics right for lyme disease and we cannot take any chances. We

dropped the sacchromyces boullardii after 2 months but still have him

on all the other stuff for maint. He had a terrible red ring around

his anus that itched and frothy bm's and they were light in color and

stank really bad. THey are much better now and actually have darkened

up consistently since treating the lyme. This was an intense program

for yeast and bacteria (biocidin works on bacteria and fungus and

parasites as well as yeast) and I really think it helped. Here is the

link to the biocidin:http://www.biobotanicalresearch.com/index2.html

Hope this helped, Patti

In @y..., and Eileen Rice <eileenrice@j...> wrote:

> Patti,

>

> How is your son now? And how are his yeast issues? What were some of

> the holistic things you used for treating the yeast? I really

appreciate

> you sharing your experience. I'm not sure what I'm going to do with

this

> script yet.

>

> Eileen

>

> From: " tiredmamma18042 " <CFRITCH@R...>

>

> -We had the same script for our son at christmas time and he went nuts

> on a tsp. 5 times a day. Really bad die off. Life was awful!!! We of

> course posted here as to what was going on and immediately were told

> that 1 tsp. 4 times a day was way too much. We decreased it to 1/8 of

> a tsp. 4 times a day and then back up slowly to 1/4 . We still had

> major behavioral issues while using nystatin and after a month we had

> to stop. THe luquid has a lot of sugar in it and that kind of defeats

> the effectiveness of it I think. We had to go with holistic methods to

> get rid of our yeast and bacteria (it was REALLY bad, we had an OAT

> test done) I would just start out with a smaller dose and work up even

> if you have to go over the 10 day period. Just an opinion.

> Good luck, Patti

>

>

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Guest guest

Kill the weeds before growing the grass. Work up to the Nystatin dose

slowly!!! And use probiotics. Yeast is nasty - you must be agressive. Read

SuperImmunity for Kids by Dr. Leo Galland. Best book I ever read for all

kids not just special needs.

Holly

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  • 8 months later...

We have used Nystatin with our son and didn't see any negative reaction other

than some constipation. We didn't really see any measurable improvements

either though- like we did with Diflucan- but I think Diflucan is a stronger

antifungal. Hope this helps a little!

Sherri

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We've used Nystatin on-and-off for 2+ years with no adverse effects.

Currently, we're using is in conjunction with Lauricidin and seeing good

results (decreased yeast, normal stools). We started out using a compounded

liquid (sweetened with stevia--from The Apothecary <A

HREF= " http://www.the-apothecary.com/custom.htm " >

http://www.the-apothecary.com/custom.htm</A>) and then switched to tablets after

my son learned how to swallow pills.

FWIW, our regular pediatrician had me and both of my children on Nystatin

when they were infants due to recurrent thrush (lasted 7 months with my

daughter--unfortunately the doc never bothered to try to figure out WHY we

couldn't get rid of the thrush and that was just before I found out about

mercury poisoning, so I had no idea). Nystatin is very benign and is

considered safe even for preemie infants and side-effects are rare.

- Becky B. (Indiana)

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My son did a few rounds of nystatin years ago with some positive results.

However, since nystatin only works in the gut, if your child has a true yeast

overgrowth problem affecting his ability to function, he'll need one of the

anti-yeast meds or remedies that are systemic. A lot of docs rotate nystatin

with the systemic meds to hit all areas.

Gaylen

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> We are thinking of putting our son on Nystatin. Has anyone had

> experiences - good or bad - with this drug?

My older boy was 7 and my younger boy was 2 the first time they got

Nystatin. After some unpleasant die-off (feeling unwell, more

tantrums than usual) we saw improvement. My older boy became less

hyperactive and more attentive. My younger boy made 8 months progress

in language in 2 months, and was discharged from speech therapy

shortly after that.

Someone else mentioned getting bismuth poisoning from Nystatin. Was

this in some sort of flavored base? We got powdered nystatin from a

compounding pharmacy. Bismuth wasn't high on either boy's hair test.

If you're using Nystatin, Diflucan or any other antifungal, it's

important to give probiotics at the same time.

Kat

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My son was on it for about 6 months. I did not notice any problems with

it. About 6 weeks into using it, he started labeling things and talking more

(not conversational, but more for him).

[ ] Nystatin

We are thinking of putting our son on Nystatin. Has anyone had

experiences - good or bad - with this drug?

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My son was on it for 3 months this past fall. He regressed, his stimming

increased & all bad behaviors came back ( & haven't gone away yet). He was

also very volitile with many violent tantrums, screaming & yelling. That was

with using activated charcoal to mitigate the bad effects. It was compounded

in a stevia base. He made no progression. He's off it now & I won't go back

to it; I just don't think he can tolerate it.

Michele

In a message dated 1/20/03 9:16:55 PM Eastern Standard Time,

dhooten@... writes:

<< We are thinking of putting our son on Nystatin. Has anyone had

experiences - good or bad - with this drug?

>>

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it's not good for Candida - or at least it didn't do anything for us.

Karyn

>

> From: " steve_rotherham <srotherham@...> " <srotherham@...>

> Date: 2003/01/20 Mon PM 07:56:15 EST

>

> Subject: [ ] Nystatin

>

>

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We finished a three month course of Nystatin on our son in mid-

December after a DDI test (comprehensive stool analysis) showed

candida albicans. I had already suspected he had it because of his

occasional giddiness and spontaneous laughter, especially in the

middle of the night. The Nystatin cleared up these symptoms with no

adverse side effects. A subsequent stool yeast culture (which I

don't really believe because of the high rate of false negatives, but

they are much le$$ expensive) failed to find candida after the end of

the three months.

Max in VA

> We are thinking of putting our son on Nystatin. Has anyone had

> experiences - good or bad - with this drug?

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  • 2 weeks later...

In a message dated 04/02/2003 15:49:27 GMT Standard Time,

dhooten@... writes:

> We use unflavored, unadulterated nystatin powder. It is yellow...

>

and tastes awful:) Us too.......

Mx

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