Guest guest Posted December 3, 2001 Report Share Posted December 3, 2001 Hi, I am new to the group. My Sammy (4) has autism and is on the Body bio stuff (I know, but it has helped him). He is also gfcf. My question is - when I start the enzymes will that eliminate the need for Nystatin? Since he will be digesting better, will there be no need for it? Any help is appreciated. Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2001 Report Share Posted December 3, 2001 Hi Amy Welcome to the group. MY son has been on the enzymes for 2 months after 10 months of GFCFand phenol-limited. He now eats almost everything except still some phenol problems. I have just started a course of Nystatin for in the last three days. The group has advised me that the enzymes can HELP an anti-yeast treatment work better, but I don't think it can REPLACE it if the problem is severe enough. We figure has a yeast problem because he showed moderate die-off symptoms for over 10 days on probiotics, which we discontinued at that point and decided to go for combo Nystatin and probiotics later. The thing about Nystatin is if the child does not have a problem with yeast, they will show no effect from the course of treatment and since the Nystatin is never absorbed, just goes right through the body, it doesn't hurt to try it and see according to my pediatrician. Negative reaction signals yeast problem and need for continuing treatment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2001 Report Share Posted December 4, 2001 Hi and welcome, too. is right in that enzymes can HELP an anti-yeast treatment work better, but not REPLACE it. You might get away with it if it is extremely mild. A good probiotic such as Culturelle helps this as well. My younger son had a very bad bacteria overgrowth as it turned out that we did not know of for years. We knew he had a gut problem, but my doc thought testing wasn't necessary (he will grow out of it). So we had him on Peptizyde and Zyme Prime for several months at a therapeutic dose (7-9 capsules/day) and 3 Culturelle capsules A DAY for at least 5 months. This combination took away the smell and basically controlled the bacteria, but it didn't knock it out. Each time I tried easing up on the dose of either the enzymes or probiotic, the stench and bm problems returned. Eventually I used an anti-biotic (colloidal silver) for 10 days and this really wiped it out. I have since cut the enzymes to about 4 a day and the probiotics to 1 capsule and all has been very good for at least a month. So, this seems to indicate that the consistent use of enzymes plus probiotics helps manage it well, but doesn't " cure " the problem. I think those to things really made it possible for us to only have to do one round of antibiotics instead of 3-4 like I routinely hear other people having to do. They made the bacteria treatment much more effective. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2001 Report Share Posted December 4, 2001 In a message dated 12/4/01 5:37:59 PM Eastern Standard Time, kjorn@... writes: > . Eventually I used an > anti-biotic (colloidal silver) for 10 days and this really wiped it > - what brand of colloidal silver did you use? Thanks - Celia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2001 Report Share Posted December 22, 2001 My son weighs 40 bls and he get 500,000 UI 4x a day indefinitely. It seems to control his yeast overgrow well. Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2001 Report Share Posted December 22, 2001 --Kathy, My son is 27 pounds and the dosage given to me was 1/2 tsp. 4 times a day. However we did not start at this amount as we were told that starting out in smaller doses helps with die off. Even at the lower dose we are seeing severe die off. It is getting better slowly each day though. I don't know if Nystatin dosing would increase with weight. I guess I didn't help much huh. Patti - In @y..., " krs111 " <krs111@t...> wrote: > Anyone know the usual dosage of nystatin liquid for a 55 lb child? > Thanks, > Kathy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2001 Report Share Posted December 22, 2001 Patti, Thanks for helping me figure this out. I read your other posts last night and they were helpful too. My son had a bad reaction yesterday after only one dose of nystatin. I gave him about 3/4 tsp but he calmed down after I gave him some charcoal. I'll go more slowly now. Kathy [ ] Re: nystatin --Kathy, My son is 27 pounds and the dosage given to me was 1/2 tsp. 4 times a day. However we did not start at this amount as we were told that starting out in smaller doses helps with die off. Even at the lower dose we are seeing severe die off. It is getting better slowly each day though. I don't know if Nystatin dosing would increase with weight. I guess I didn't help much huh. Patti - In @y..., " krs111 " <krs111@t...> wrote: > Anyone know the usual dosage of nystatin liquid for a 55 lb child? > Thanks, > Kathy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2002 Report Share Posted March 18, 2002 Nystatin does not enter the bloodstream and is only absorbed in the gut, therefore it is a very safe product. Also, I think it may be Germany that offers Nystatin as an OTC product because it is so safe. Apparently its safety would explain why my son has " 99 " refills listed on the bottle. Lori > Hello listmates. I have not been here in a while. My new list name > is Colken2.. It was kencol. Well, i have been chelating my son for > the past six weeks. I have had great results. These results include > patience and a decrease in temper tantrums. (agb2gd) However, the > doctor has prescribed two courses of antibiotics for my son. I would > like to know if is it safe to give him nystatin the week we are not > chelating. will this be ok for his liver? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2002 Report Share Posted March 19, 2002 Sorry this is two days later, but I am catching up. Why is the doctor prescribing antibiotics? My advice is to skip them and concentrate on supplementing with vitamins (especially C). I made this mistake with my daughter, and have been regretting it ever since. We had to do three rounds of Diflucan back-to-back things got so bad. She is still having a tough time with constipation, and I am trying to get this resolved in order to chelate her. I told the doctor that she would have to be on death's door to get antibiotics again. [ ] nystatin Hello listmates. I have not been here in a while. My new list name is Colken2.. It was kencol. Well, i have been chelating my son for the past six weeks. I have had great results. These results include patience and a decrease in temper tantrums. (agb2gd) However, the doctor has prescribed two courses of antibiotics for my son. I would like to know if is it safe to give him nystatin the week we are not chelating. will this be ok for his liver? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2002 Report Share Posted April 18, 2002 Hi, Try to experiment with different kinds of drink. From my experience, I can mix Valtrex with juice without any problems but not with Dairy-Free (it makes it very bitter). Contrary, Nizoral is completely tasteless with Dairy-Free and very bitter with any juice. Hope it helps Regina nystatin my 3 year old is taking nystatin powder. we tried all kind sof juice to disguise the taste bu tno luck. any suggestions? thank sjeff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2002 Report Share Posted April 29, 2002 -We had the same script for our son at christmas time and he went nuts on a tsp. 5 times a day. Really bad die off. Life was awful!!! We of course posted here as to what was going on and immediately were told that 1 tsp. 4 times a day was way too much. We decreased it to 1/8 of a tsp. 4 times a day and then back up slowly to 1/4 . We still had major behavioral issues while using nystatin and after a month we had to stop. THe luquid has a lot of sugar in it and that kind of defeats the effectiveness of it I think. We had to go with holistic methods to get rid of our yeast and bacteria (it was REALLY bad, we had an OAT test done) I would just start out with a smaller dose and work up even if you have to go over the 10 day period. Just an opinion. Good luck, Patti -- In @y..., and Eileen Rice <eileenrice@j...> wrote: > My son's pediatrician just gave me a script for Nystatin (1 tsp 4x/day > for 10 days) to help treat the yeast issue. Has anyone else done this? > I'm wondering if it's best to treat with No-Fenol or with the Nystatin. > I've already cut the sugar content of my son's diet even lower than it > already was. Any thoughts would be appreciated. Thanks, Eileen > > P.S. My son is just on 1/4 cap of Pep at meals now. I think he may be > doing better than when he was on both the Pep and the Zyme but I need > more time to evaluate. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2002 Report Share Posted April 29, 2002 Patti, How is your son now? And how are his yeast issues? What were some of the holistic things you used for treating the yeast? I really appreciate you sharing your experience. I'm not sure what I'm going to do with this script yet. Eileen From: " tiredmamma18042 " <CFRITCH@...> -We had the same script for our son at christmas time and he went nuts on a tsp. 5 times a day. Really bad die off. Life was awful!!! We of course posted here as to what was going on and immediately were told that 1 tsp. 4 times a day was way too much. We decreased it to 1/8 of a tsp. 4 times a day and then back up slowly to 1/4 . We still had major behavioral issues while using nystatin and after a month we had to stop. THe luquid has a lot of sugar in it and that kind of defeats the effectiveness of it I think. We had to go with holistic methods to get rid of our yeast and bacteria (it was REALLY bad, we had an OAT test done) I would just start out with a smaller dose and work up even if you have to go over the 10 day period. Just an opinion. Good luck, Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2002 Report Share Posted April 29, 2002 Eileen We did Nystantin a couple of months ago and let me tell you - it is no picnic. Within a couple of days my son had a clear runny nose. His behavior became uncontrollable and he started sleeping more than usual. By day 10 he had started to run high fevers and vomiting. We went to the emergency room at one point and they did a blood test which indicated that he had the flu. I am not so sure though. I have heard that symptons of yeast die off can look like flu symptons. We also had some real bad poops in the first few days. About a week into treatment, the poops started to look alot better. Within a couple of days off Nystantin he returned to his sunny self. We did 1 tsp in the morning and 1 tsp at nite for 14 days. You can use activated charcoal to help with the yeast die off but make sure to give it at a separate time from other supps because it will absorb those too in addition to the toxins that are being released in the body from the yeast. Good luck. It seems like this is one of those things that get worse before they get better. ( Is'nt everything like that?) Stacey [ ] Nystatin My son's pediatrician just gave me a script for Nystatin (1 tsp 4x/day for 10 days) to help treat the yeast issue. Has anyone else done this? I'm wondering if it's best to treat with No-Fenol or with the Nystatin. I've already cut the sugar content of my son's diet even lower than it already was. Any thoughts would be appreciated. Thanks, Eileen P.S. My son is just on 1/4 cap of Pep at meals now. I think he may be doing better than when he was on both the Pep and the Zyme but I need more time to evaluate. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2002 Report Share Posted April 29, 2002 ---We started him on Custom brand pro-biotics (2 three times a day) and Pro-bio gold (1 two times a day) and sacchromyces Boullardii ( a good yeast)2 three times a day. THen after a month we added grapefruit seed extract and something called biocidin. Biocidin has all kinds of things in it and I will give you a link to the company at the end of my post so you can read the ingredients. The biocidin had to be ramped up slowly to about 6 drops 3 times a day for 2 months and then off a week and then on for another 2 months and then off a week. We are not sure how long he will need to be on this as he is on heavy anti-biotics right for lyme disease and we cannot take any chances. We dropped the sacchromyces boullardii after 2 months but still have him on all the other stuff for maint. He had a terrible red ring around his anus that itched and frothy bm's and they were light in color and stank really bad. THey are much better now and actually have darkened up consistently since treating the lyme. This was an intense program for yeast and bacteria (biocidin works on bacteria and fungus and parasites as well as yeast) and I really think it helped. Here is the link to the biocidin:http://www.biobotanicalresearch.com/index2.html Hope this helped, Patti In @y..., and Eileen Rice <eileenrice@j...> wrote: > Patti, > > How is your son now? And how are his yeast issues? What were some of > the holistic things you used for treating the yeast? I really appreciate > you sharing your experience. I'm not sure what I'm going to do with this > script yet. > > Eileen > > From: " tiredmamma18042 " <CFRITCH@R...> > > -We had the same script for our son at christmas time and he went nuts > on a tsp. 5 times a day. Really bad die off. Life was awful!!! We of > course posted here as to what was going on and immediately were told > that 1 tsp. 4 times a day was way too much. We decreased it to 1/8 of > a tsp. 4 times a day and then back up slowly to 1/4 . We still had > major behavioral issues while using nystatin and after a month we had > to stop. THe luquid has a lot of sugar in it and that kind of defeats > the effectiveness of it I think. We had to go with holistic methods to > get rid of our yeast and bacteria (it was REALLY bad, we had an OAT > test done) I would just start out with a smaller dose and work up even > if you have to go over the 10 day period. Just an opinion. > Good luck, Patti > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2002 Report Share Posted April 30, 2002 Kill the weeds before growing the grass. Work up to the Nystatin dose slowly!!! And use probiotics. Yeast is nasty - you must be agressive. Read SuperImmunity for Kids by Dr. Leo Galland. Best book I ever read for all kids not just special needs. Holly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2002 Report Share Posted April 30, 2002 , How did nystatin compare with GSE, in your experience? Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 We have used Nystatin with our son and didn't see any negative reaction other than some constipation. We didn't really see any measurable improvements either though- like we did with Diflucan- but I think Diflucan is a stronger antifungal. Hope this helps a little! Sherri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 We've used Nystatin on-and-off for 2+ years with no adverse effects. Currently, we're using is in conjunction with Lauricidin and seeing good results (decreased yeast, normal stools). We started out using a compounded liquid (sweetened with stevia--from The Apothecary <A HREF= " http://www.the-apothecary.com/custom.htm " > http://www.the-apothecary.com/custom.htm</A>) and then switched to tablets after my son learned how to swallow pills. FWIW, our regular pediatrician had me and both of my children on Nystatin when they were infants due to recurrent thrush (lasted 7 months with my daughter--unfortunately the doc never bothered to try to figure out WHY we couldn't get rid of the thrush and that was just before I found out about mercury poisoning, so I had no idea). Nystatin is very benign and is considered safe even for preemie infants and side-effects are rare. - Becky B. (Indiana) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 My son did a few rounds of nystatin years ago with some positive results. However, since nystatin only works in the gut, if your child has a true yeast overgrowth problem affecting his ability to function, he'll need one of the anti-yeast meds or remedies that are systemic. A lot of docs rotate nystatin with the systemic meds to hit all areas. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 > We are thinking of putting our son on Nystatin. Has anyone had > experiences - good or bad - with this drug? My older boy was 7 and my younger boy was 2 the first time they got Nystatin. After some unpleasant die-off (feeling unwell, more tantrums than usual) we saw improvement. My older boy became less hyperactive and more attentive. My younger boy made 8 months progress in language in 2 months, and was discharged from speech therapy shortly after that. Someone else mentioned getting bismuth poisoning from Nystatin. Was this in some sort of flavored base? We got powdered nystatin from a compounding pharmacy. Bismuth wasn't high on either boy's hair test. If you're using Nystatin, Diflucan or any other antifungal, it's important to give probiotics at the same time. Kat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 My son was on it for about 6 months. I did not notice any problems with it. About 6 weeks into using it, he started labeling things and talking more (not conversational, but more for him). [ ] Nystatin We are thinking of putting our son on Nystatin. Has anyone had experiences - good or bad - with this drug? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 My son was on it for 3 months this past fall. He regressed, his stimming increased & all bad behaviors came back ( & haven't gone away yet). He was also very volitile with many violent tantrums, screaming & yelling. That was with using activated charcoal to mitigate the bad effects. It was compounded in a stevia base. He made no progression. He's off it now & I won't go back to it; I just don't think he can tolerate it. Michele In a message dated 1/20/03 9:16:55 PM Eastern Standard Time, dhooten@... writes: << We are thinking of putting our son on Nystatin. Has anyone had experiences - good or bad - with this drug? >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 it's not good for Candida - or at least it didn't do anything for us. Karyn > > From: " steve_rotherham <srotherham@...> " <srotherham@...> > Date: 2003/01/20 Mon PM 07:56:15 EST > > Subject: [ ] Nystatin > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 We finished a three month course of Nystatin on our son in mid- December after a DDI test (comprehensive stool analysis) showed candida albicans. I had already suspected he had it because of his occasional giddiness and spontaneous laughter, especially in the middle of the night. The Nystatin cleared up these symptoms with no adverse side effects. A subsequent stool yeast culture (which I don't really believe because of the high rate of false negatives, but they are much le$$ expensive) failed to find candida after the end of the three months. Max in VA > We are thinking of putting our son on Nystatin. Has anyone had > experiences - good or bad - with this drug? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2003 Report Share Posted February 4, 2003 In a message dated 04/02/2003 15:49:27 GMT Standard Time, dhooten@... writes: > We use unflavored, unadulterated nystatin powder. It is yellow... > and tastes awful:) Us too....... Mx Quote Link to comment Share on other sites More sharing options...
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