Re: clarification of posting policies

July 30, 2007

I am apprehensive, reticent, and cautious to connect with any forum

for the exact reasons Addy lays out.

I believe the moderators of this group do an excellent job. There are

times when I have said to myself, why haven't they done something

about this thread or why have they done something about this thread!

All and all the moderators have been consistent and preserved the

integrity of this group (I would like to talk about what my Rice

Crispies tell me to do, LOL, but will find another forum to address

that in). I keep coming back here because of the subject it deals

with and the policies it adheres to. I thank the moderators for,

well, moderating.

Ron

On Jul 30, 2007, at 1:38 PM, pyle456 wrote:

> This is in response to questions I've gotten about the pet posting

> policy.

>

> Two years ago, Doug instituted the requirement that all posts be

> approved by one of the moderators. There are three reasons for this:

>

> 1) We get a lot of attempts to posts ads for products that are not

> legitimate. We don't want those kinds of posts or spam posts coming

> into the group.

>

> 2) The primary purpose of the group is to share information about

> Xolair and to provide support for folks with SERIOUS allergic asthma.

> No " Lightweights " here.

>

> 3) To avoid the kind of drama that some of us have seen in posts on

> the WebMd board. We want a group that is supportive of other group

> members, without any " flame " messages or any of that kind of thing.

>

> Practically speaking, we moderators cannot moderate discussions about

> all areas of the allergic world. We don't have that kind of time. So

> we have to prioritize issues the best we can. For instance, the

> discussion on vacuum cleaners was a short one that led to a couple of

> people posting info about allergy supply companies. That's helpful;

> it make sense. However, if we started getting a bunch of posts about

> which pillow protectors we all use, I really think that would send us

> screaming. (Terry, don't even think about it.)

>

> We have also ended the black box warning discussions (at least, until

> there is an update) and invited new members who've been posting

> questions about this to read the past posts on the subject.

>

> I agree that it would behoove many of you to have a discussion about

> non-allergic pets. Feel free to email each other or for someone to

> start a post on the webmd allergy or asthma support board - those are

> unmoderated and the way that they work allows folks to not even look

> at posts they don't want to read. Many of our members get an

> individual email for posts from this board and therefore can't opt out

> of participation without taking time to look at each post.

>

> So, please share your love for your pets, reptile, feline, canine,

> equine, bovine, or otherwise with each other by email or through

> webmd. Just not here.

>

> Thank you for your understanding,

>

> Addy

> Group co-owner

>

July 30, 2007

Thank you, Addy.

I will get my 12th shot next week of xolair--been on one shot a month for a

year now. I have just been through four weeks of rain, heavy mold and this past

weekend a very stressful time with my sister. I can say that I have had a time

or two of shortness of breath and reached for my inhaler, but have NOT used it

on a regular basis at all this month! In fact I have gone some days without it

at all. Praise God for people in research who came up with xolair!

The other thing I would like to mention is that this week I one day of

sneezing and stuffy, runny nose. In the past this meant that by the next day I

would have the beginnings of a full blown sinus and upper repiratory infection.

This session of sneezing and stuffines came and went with no further

complications! I cannot remember a time when I had a session like that that I

did not end up on a strong antibiotic and prednisone to help me breath. I also

have not had to have prednisone for a year and eight months!

I still feel tired at times, but still have the energy to do everything I need

to do..........Thanks for xolair!

Hope all have a great week and breathe easy!

Adah

pyle456 <coachmac@...> wrote:

This is in response to questions I've gotten about the pet posting

policy.

Two years ago, Doug instituted the requirement that all posts be

approved by one of the moderators. There are three reasons for this:

1) We get a lot of attempts to posts ads for products that are not

legitimate. We don't want those kinds of posts or spam posts coming

into the group.

2) The primary purpose of the group is to share information about

Xolair and to provide support for folks with SERIOUS allergic asthma.

No " Lightweights " here.

3) To avoid the kind of drama that some of us have seen in posts on

the WebMd board. We want a group that is supportive of other group

members, without any " flame " messages or any of that kind of thing.

Practically speaking, we moderators cannot moderate discussions about

all areas of the allergic world. We don't have that kind of time. So

we have to prioritize issues the best we can. For instance, the

discussion on vacuum cleaners was a short one that led to a couple of

people posting info about allergy supply companies. That's helpful;

it make sense. However, if we started getting a bunch of posts about

which pillow protectors we all use, I really think that would send us

screaming. (Terry, don't even think about it.)

We have also ended the black box warning discussions (at least, until

there is an update) and invited new members who've been posting

questions about this to read the past posts on the subject.

I agree that it would behoove many of you to have a discussion about

non-allergic pets. Feel free to email each other or for someone to

start a post on the webmd allergy or asthma support board - those are

unmoderated and the way that they work allows folks to not even look

at posts they don't want to read. Many of our members get an

individual email for posts from this board and therefore can't opt out

of participation without taking time to look at each post.

So, please share your love for your pets, reptile, feline, canine,

equine, bovine, or otherwise with each other by email or through

webmd. Just not here.

Thank you for your understanding,

Addy

Group co-owner

---------------------------------

Need a vacation? Get great deals to amazing places on Travel.

August 2, 2007

Hi Addy:

Please, please can anyone help me? I am 65yrs old, female, I've had asthma

for 54yrs., and of course I get allergy shots, and take four medications for

asthma, as well as sinus meds. I've been getting Xolair injections for three and

half yrs. 375mg. three shots every two weeks.

When the weather is hot and humid my lungs hurt so much, it's like going into

a room that has fumes and has I inhale it hurts. Well this is how I feel all

the time when it's hot and humid. This is what I want to know, IS THERE ANYONE

ELSE OUT THERE THAT HAS THIS PROBLEM? I've had this now for about ten yrs. and

the doctors don't understand why.They found dark shadows on both lungs in May

and I'm taking another CAT Scan tomorrow to make sure it's not the C work, they

think it's scare tissue from past infections.

Please let me know if there is anyone else out there with this problem.Thank

you for your time and trouble.

Kathy