Re:No posts in a week

[Guest guest]

Well, I've got news - I am reconsidering the

effectiveness of Xolair. I had my fifth shot on Nov

15th, I committed to doing six months and making a

decision.

I got a flu shot on Nov. 8th, I had to be off steroids

at least five days before. How I dreaded that. In the

middle of Oct. I started with this new spray called

Symbicort, come first weekend in November I stop

taking the steroids - first time in two years. Had the

flu shot, then the Xolair a weeklater. Ran out of

symbicort but figured this would be a good test to see

if the Xolair was kicking in.

Come the day before thanksgivin I start having

problems breathing (and I have been doing no shopping,

just going to my sisters for dinner and her house is

allergy minimal due to her daughter). Friday my

breathing is still compromised, I call the

pulmonologist who puts me back on 30 mg prednisone.

Come the next day I am starting to be distressed so I

jump it up to 60 on Saturday. It's Monday and I am

still wheezy, I can now walk from room to room but I'm

back as I was for the past two years - on a high dose

of steroids and still having trouble.

I will do the last Xolair shot next month as I

committed to, but I will go back on the symbicort and

see if I get off the steroids again before my sixth

shot.

I am spending $100 for Xolair serum plus the cost to

have the dr. inject it.

Symbicort is not covered under my presciption plan, it

will cost me $140 out of pocket for two sprays for a

month.

I really thought the four shots of Xolair (started in

JULY) and the symbicort combination was why I was able

to easily get off the evil candy (I've been using

advair for years but never saw much benefit). Using

up the symbicort sample around the time of my fifth

Xolair injection and the problems I had a week

later... hmmm maybe I'm better off discontinuing the

shots and spending a little extra for this spray.

We will have to see how I do after I resume the

symbicort, gotta have the pharmacy order it. Will let

you know.

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[Guest guest]

Joy,

It took me 1.5 YEARS to see any objective or subjective difference on xolair.

After I started, my doctor took me off my symbicort and all bronchodilators in

hospital for a trial while on 40 mg of evil candy. I lasted 1.5 days before my

lung function tanked and he was stuffing the albuterol into me.

Maybe you need to take a medication like symbicort or advair or such all the

time and the xolair will just spare you some pred (that is all it is doing for

me...which is considered a massive success by the way). Many of the stories here

of people stopping most of their meds and being " cured " by xolair are not

typical. In fact, many pulmos and allergists believe xolair to be " expensive

crap " since it's effectiveness may not warrant the price tag.

Just presenting both sides of the coin.....

Still on the evil pred for 4.5 years and counting.....

----- Original Message ----

From: Joy VanSleet <jclutterbuster@...>

Sent: Monday, November 26, 2007 2:05:38 PM

Subject: [ ] Re:No posts in a week

Well, I've got news - I am reconsidering the

effectiveness of Xolair. I had my fifth shot on Nov

15th, I committed to doing six months and making a

decision.

I got a flu shot on Nov. 8th, I had to be off steroids

at least five days before. How I dreaded that. In the

middle of Oct. I started with this new spray called

Symbicort, come first weekend in November I stop

taking the steroids - first time in two years. Had the

flu shot, then the Xolair a weeklater. Ran out of

symbicort but figured this would be a good test to see

if the Xolair was kicking in.

Come the day before thanksgivin I start having

problems breathing (and I have been doing no shopping,

just going to my sisters for dinner and her house is

allergy minimal due to her daughter). Friday my

breathing is still compromised, I call the

pulmonologist who puts me back on 30 mg prednisone.

Come the next day I am starting to be distressed so I

jump it up to 60 on Saturday. It's Monday and I am

still wheezy, I can now walk from room to room but I'm

back as I was for the past two years - on a high dose

of steroids and still having trouble.

I will do the last Xolair shot next month as I

committed to, but I will go back on the symbicort and

see if I get off the steroids again before my sixth

shot.

I am spending $100 for Xolair serum plus the cost to

have the dr. inject it.

Symbicort is not covered under my presciption plan, it

will cost me $140 out of pocket for two sprays for a

month.

I really thought the four shots of Xolair (started in

JULY) and the symbicort combination was why I was able

to easily get off the evil candy (I've been using

advair for years but never saw much benefit). Using

up the symbicort sample around the time of my fifth

Xolair injection and the problems I had a week

later... hmmm maybe I'm better off discontinuing the

shots and spending a little extra for this spray.

We will have to see how I do after I resume the

symbicort, gotta have the pharmacy order it. Will let

you know.

____________ _________ _________ _________ _________ _________ _

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[Guest guest]

I am sorry but 5 shots of xolair is not enough medicine or time for the xolair

to be evaluated. Some of us have seen dramatic results before a year. Some of us

have gotten completely off of pred. after a year of xolair. Please give the

xolair a chance. I totally understand that it is your decision ,I just don't

think 5 shots are enough to see any dramatic results of xolair. I began taking

xolair in Feb. 2006. I got off steroids in Nov. 2006. I have been steroid free

for a year now. I was able to go outside this spring and summer and sleep with

my windows open. People would cut grass and I could breathe. You might want to

give xolair more time to work. If it can get peolple off of steroids who took 60

mgs. a day, it just might help you. I hope it will. Sharon

-----Original Message-----

From: Joy VanSleet <jclutterbuster@...>

Sent: Mon, 26 Nov 2007 2:05 pm

Subject: [ ] Re:No posts in a week

Well, I've got news - I am reconsidering the

effectiveness of Xolair. I had my fifth shot on Nov

15th, I committed to doing six months and making a

decision.

I got a flu shot on Nov. 8th, I had to be off steroids

at least five days before. How I dreaded that. In the

middle of Oct. I started with this new spray called

Symbicort, come first weekend in November I stop

taking the steroids - first time in two years. Had the

flu shot, then the Xolair a weeklater. Ran out of

symbicort but figured this would be a good test to see

if the Xolair was kicking in.

Come the day before thanksgivin I start having

problems breathing (and I have been doing no shopping,

just going to my sisters for dinner and her house is

allergy minimal due to her daughter). Friday my

breathing is still compromised, I call the

pulmonologist who puts me back on 30 mg prednisone.

Come the next day I am starting to be distressed so I

jump it up to 60 on Saturday. It's Monday and I am

still wheezy, I can now walk from room to room but I'm

back as I was for the past two years - on a high dose

of steroids and still having trouble.

I will do the last Xolair shot next month as I

committed to, but I will go back on the symbicort and

see if I get off the steroids again before my sixth

shot.

I am spending $100 for Xolair serum plus the cost to

have the dr. inject it.

Symbicort is not covered under my presciption plan, it

will cost me $140 out of pocket for two sprays for a

month.

I really thought the four shots of Xolair (started in

JULY) and the symbicort combination was why I was able

to easily get off the evil candy (I've been using

advair for years but never saw much benefit). Using

up the symbicort sample around the time of my fifth

Xolair injection and the problems I had a week

later... hmmm maybe I'm better off discontinuing the

shots and spending a little extra for this spray.

We will have to see how I do after I resume the

symbicort, gotta have the pharmacy order it. Will let

you know.

__________________________________________________________

Be a better sports nut! Let your teams follow you

with Mobile. Try it now.

http://mobile./sports;_ylt=At9_qDKvtAbMuh1G1SQtBI7ntAcJ

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[Guest guest]

>

> I am sorry but 5 shots of xolair is not enough medicine or time for

the xolair to be evaluated. Some of us have seen dramatic results

before a year. Some of us have gotten completely off of pred. after a

year of xolair. Please give the xolair a chance. I totally understand

that it is your decision ,I just don't think 5 shots are enough to see

any dramatic results of xolair. I began taking xolair in Feb. 2006. I

got off steroids in Nov. 2006. I have been steroid free for a year

now. I was able to go outside this spring and summer and sleep with my

windows open. People would cut grass and I could breathe. You might

want to give xolair more time to work. If it can get peolple off of

steroids who took 60 mgs. a day, it just might help you. I hope it

will. Sharon

> -----Original Message-----

>

I sure am glad I listened to my doctor and stayed the course. I myself

wanted to quit after 6 months. After a year, wellllllllllll, you know

the rest of the story

Doug

Group founder

On Xolair 3+ years and pred feeeeeeeeeeeeee