Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 You are a brave fighter....keep it up. My prayers are with you and your family. [ ] New Group Member I am really very glad I found this group. My name is and I was diagnosed with PA about eleven months ago. However, I have struggled with the symptoms of PA for eight to ten years. I am now twenty-seven years old. I have been told over the years that I have " chronic sprained ankles " , " sprained knees " , wrists that were merely " stressed " and been wrapped in braces, splints and tape. I've been tested for narcolepsy, for depression, and diagnosed by one especialy bright psychaitrist with ADDHD. Needless to say, after so many doctors and so many different answers I became very discouraged. After one especially helpful visit a doctor in NC told me that he didn't appreciate me wasting his time with my " non-existant " problem. For three years after that I visited a doctor only once. For years my condition became slowly more and more severe until finally, in late 2001 after much pressuring from my wife; I went to a local physician recomended me by my boss, a ROCOR Priest. Finally I had found a doctor who cared. My particular situation is complicated more by the fact that I have Hemophillia (Factor VIII)- which means that I may not take asprin, nor NSAIDS, or any other drug that could effect platelet function or that may increase the risk of bleeding of any kind. As you can imagine my life is extremely complicated. Many doctors don't want to deal with me, and few dentists will even see me. So, to find a doctor who was willing to do more than just a " take these " for me is incredible. After a few weeks and a couple of tests, he refered me to my present reumatologist, who is an incredible doctor and whithin 4 hours did what six other doctors could not. I must say, I was relieved to finally know what was causing my problems, but I was not ready to face having another life-long affliction. After that first visit I went home with some pain medication that actually worked for once, and looked on the internet for all I could find about PA. I read clinical description, cold facts, and definitions, but after reading more into this group I not only had a better feeling for the human face of this disorder, but I came away feeling better knowing that other people had exactly the same symptoms and diagnosis that I did. However, I received more than just information that night, I was also given hope. So many people here are fighting this nightmare and are still so positive. I decided to follow their example, and now, after taking Embrel for 7 weeks I am seeing a difference. I was able to slip my wedding ring on and off! I was even afraid it would fall off on one day. I have quit taking prednisone for 3 weeks now, but, the pain is still mostly there. Though muted as it is by the pharmaceuticals, I look forward to not having to take such strong medicine for the pain in the near future. Keep fighting everyone. Chris PS if anyone else has Hemophillia & PA please contact me. Please visit our Psoriatic Arthritis Group's informational web page at: http://www.wpunj.edu/pa/ -- created and edited by list member aka(raharris@...). In August 2001 list member Jack aka(Cornishpro@...) began to conduct extensive research which he publishes as the Psoriatic Arthritic Research Newsletter monthly in our emails and digest format. Many thanks to Jack. Back issues of the newsletter are stored on our PA webpage. Also remember that the list archives comprise a tremendous amount of information (Over two years of messages and answers).Feel free to browse them at your convenience. Let's hear from some of you lurkers out there! If you have a comment or question chances are there is a person who has been around a while who can help you out with an educated guess for an answer. If not we can at least steer you in the right direction with a good website to go to for the answers. Blessings and Peace, Atwood-Stack, Founder Alan , Web & List Editor Jack , Newsletter Editor Pat Bias, List Editor Ron Dotson, List Editor and many others who help moderate (thank you!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 My story doesn't compare with yours, but my PA was not diagnosed properly either at first. 15 years ago I had my first flare up in one finger. An Orthopedic Surgeon wanted to operate! ( " To do what " , I asked? " To take a look at it " , he said.). Five years latter I had a number of symptoms. A number of different specialists couldn't figure it out. All had ideas, but couldn't satisfy me as to why they thought what they did. I finally ended up at a rheumatologist who figured it out in about 5 minutes. She was able to explain specifically why she thought I had PA. I had classic symptoms, if you know what to look for. From what I hear in this group, misdiagnosis for a long period of time seems common. I've been treated for PA for the last 10 years, generally with good results. I'm active, exercise, and ski and play sports with my kids, although I can't complete with them. Getting the correct diagnoses is ½ the battle. > I am really very glad I found this group. My name is and > I was diagnosed with PA about eleven months ago. However, I have > struggled with the symptoms of PA for eight to ten years. I am now > twenty-seven years old. I have been told over the years that I have > " chronic sprained ankles " , " sprained knees " , wrists that were merely > " stressed " and been wrapped in braces, splints and tape. I've been > tested for narcolepsy, for depression, and diagnosed by one > especialy bright psychaitrist with ADDHD. Needless to say, after so > many doctors and so many different answers I became very discouraged. > After one especially helpful visit a doctor in NC told me that he > didn't appreciate me wasting his time with my " non-existant " problem. > For three years after that I visited a doctor only once. For years > my condition became slowly more and more severe until finally, in > late 2001 after much pressuring from my wife; I went to a local > physician recomended me by my boss, a ROCOR Priest. Finally I had > found a doctor who cared. My particular situation is complicated > more by the fact that I have Hemophillia (Factor VIII)- which means > that I may not take asprin, nor NSAIDS, or any other drug that could > effect platelet function or that may increase the risk of bleeding of > any kind. As you can imagine my life is extremely complicated. Many > doctors don't want to deal with me, and few dentists will even see > me. So, to find a doctor who was willing to do more than just a > " take these " for me is incredible. After a few weeks and a couple of > tests, he refered me to my present reumatologist, who is an > incredible doctor and whithin 4 hours did what six other doctors > could not. I must say, I was relieved to finally know what was > causing my problems, but I was not ready to face having another > life-long affliction. After that first visit I went home with some > pain medication that actually worked for once, and looked on the > internet for all I could find about PA. I read clinical description, > cold facts, and definitions, but after reading more into this group I > not only had a better feeling for the human face of this disorder, > but I came away feeling better knowing that other people had exactly > the same symptoms and diagnosis that I did. However, I received more > than just information that night, I was also given hope. So many > people here are fighting this nightmare and are still so positive. I > decided to follow their example, and now, after taking Embrel for 7 > weeks I am seeing a difference. I was able to slip my wedding ring > on and off! I was even afraid it would fall off on one day. I have > quit taking prednisone for 3 weeks now, but, the pain is still mostly > there. Though muted as it is by the pharmaceuticals, I look forward > to not having to take such strong medicine for the pain in the near > future. Keep fighting everyone. Chris > PS if anyone else has Hemophillia & PA please contact me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 Hey there, What are you using to " treat " the PA? In a message dated 1/23/03 2:09:57 PM Eastern Standard Time, fred.hurwitz@... writes: > I've been treated for PA for the last 10 years, generally with good > results. I'm active, exercise, and ski and play sports with my kids, > although I can't complete with them. > > Getting the correct diagnoses is ½ the battle. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2003 Report Share Posted January 24, 2003 I take Celebrex as the NSID and Plaquenil for DMAR. I take a warm bath every morning and then do to stretching and exercise about every other day. > Hey there, > > What are you using to " treat " the PA? > > > > In a message dated 1/23/03 2:09:57 PM Eastern Standard Time, > fred.hurwitz@v... writes: > > > I've been treated for PA for the last 10 years, generally with good > > results. I'm active, exercise, and ski and play sports with my kids, > > although I can't complete with them. > > > > Getting the correct diagnoses is ½ the battle. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 Hi Pam Hello. I just joined this group today. I have a 6 year old son that has autism. We are thinking about chelation and are not educated on any of this. >>You and the rest of when we started out! We have an appointment with our son's doctor in January and are in hopes of learning the lingo if you will so we are able to understand what is being said to us. >>You can do that in the files section here. Try to learn the lingo and the content, Drs don't know everything and many of them have weird (and potentially dangerous) ideas about chelation! We have not done the heavy metal test, but I suspect that it will come back with high mercury. >>Most ASD kids tested will come back with little or zero Mercury. This doesn;t mean they aren't toxic, it is more likely to mean they are! You can test him yourself now with an Elemental Hiar test from Doctors Data lab and check him against the 'Counting Rules' which are all explained in the files section. Nothing is definative but this will give you his 'probablity' of being Mercury toxic. Not all ASD kids are, just most of them Can any of you help with understanding the different chelating agents, if they are oral, vs IV (I know that much) and can you offer any literature that compares them? >>The most commonly used agents are called DMSA, ALA or DMPS and are used orally mostly. You can read about them in the files or on Moria's site here is the link - look under the how to test hair files first, get one done and post here for advice. When you've assessed your lads 'probablity' you can get down to learning in the ins and outs _http://home.earthlink.net/~moriam/_ (http://home.earthlink.net/~moriam/) HTH Mandi in UK Mum to Sam 7.5 years Autism, 47XYY and Heavy Metal Toxicity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2004 Report Share Posted November 18, 2004 Welcome to the list. When you say " the heavy metal test " do you mean the DDI hair analysis which includes essential elements as well as toxic metals, or do you mean any of the many other tests usually ordered by mainstream docs? Provoked urine test is contraindicated and won't tell you what you want to know. Blood test won't tell you anything except current exposure. S <tt> <BR> Hello. I just joined this group today. I have a 6 year old son that <BR> has autism. We are thinking about chelation and are not educated on <BR> any of this. We have an appointment with our son's doctor in January <BR> and are in hopes of learning the lingo if you will so we are able to <BR> understand what is being said to us.<BR> <BR> We have not done the heavy metal test, but I suspect that it will <BR> come back with high mercury. Can any of you help with understanding <BR> the different chelating agents, if they are oral, vs IV (I know that <BR> much) and can you offer any literature that compares them?<BR> <BR> I appreciate your help in advance.<BR> <BR> Pam Hackler<BR> Phoenix<BR> <BR> <BR> <BR> </tt> <br><br> <tt> =======================================================<BR> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2006 Report Share Posted April 17, 2006 I don't think your doctor should have given you prednisone. That in inself can have some nasty side effects in people. Do you know what prednisone does? It works by suppressing the immune system when people's bodies are attacking themselves. I feel that was an irresponsible thing for your doctor to do. Prednisone is nothing to play with. I had heart symptoms when I was getting sick from my implants. I had a 24 ekg and it showed a heart rate as high as 135bpm when I was walking around the mall shopping. It also showed I had over 400 pvc's in one day. After I got my saline implants out, my heart gradually returned to normal. My obgyn was most impressed as he told me that my heart was so much better after explant when I went in for my annual checkup. Your doctor is sorta right when he says that the body can reject the implants. But it can happen at any time...many women start getting symptoms virtually right away. Others take years. The body is reacting to the silicone shell. Also, the silicone shell can degrade and tiny fibers can come off the shell. Implants can also become contaminated through faulty design and many women find the saline has become contaminated with pathogens when they are analysed after removal. I would suggest that you get the salines out. They, like the silicone filled ones, can make you sick. It is a shame that your PS put implants back in after the others made you sick. If you are reacting to the implants, and I believe that you are, the symptoms will only continue to increase. We have alot of good information on our site about how to choose an explanting surgeon and what is important that they do in order to give you the best chance to heal. Welcome to our group and we are here to help you in any way we can. Hugs, Kathy > > Hello, > > This is all very new to me and I am not sure how to navigate this site > properly, but I feel I need to just write as a starting point. I had > silicone implants implanted in 1983 with the reassurance that they > would last a lifetime, I always wondered what lifetime that was. In > reviewing the messages here I saw one from Kathy in Fairfax, > GMCLady98. I am in Falls Church and would like to hear from you if > you would consider it. > > I never really had any problems that I knew to be problems and was > very happy. Last Spring (23 years later) while driving, I had a > terrible sharp pain in the side of my breast, then a clammy, cold > feeling with the impression that I was going to pass out. When I got > home I took my blood pressure as I was sure I had had a heart attack. > It was elevated, but in hindsight I think that was due to the stress > of what had happened and worrying all the way home. > > These pains came and went for several days, with my blood pressure > steadily climbing. I made 2 trips to the emergency room, the second > trip in an ambulance at 3:30 in the morning with blood pressure of > 190/111. The cardiologist assigned to me performed every test > possible, right down to a heart cathiterzation and found nothing wrong > with my heart. He put me on blood pressure meds, I was sent home and > told to pursue the symptoms with my primary care physician. > > Almost immediately I went to my plastic surgeon as I finally figured > out where the problems were coming from, my left implant was > collapsing. I had the silicone implants removed and replaced with > saline. All my symptoms disappeared, even the allergies I have had > for years. > > It is now 1 year later and my symptoms are creeping back. I went to > my plastic surgeon last week and told him what I was feeling. It was > implied that if you get an infection, say from dental problems, that > the infection will go to the implants as the weakest point of the > body. Since I have a cracked tooth, soon to be repaired, I thought > this made sense. I was given a prescription for a hefty dose of > Prednisone which I find is not necessarily for treating infections so > much as preventing rejection of the implants. I was told that the > older one gets the more likely it is for the body to not tolerate the > implant anymore (I am 60). > > I am experiencing lightheadedness, shakiness, shortness of breath, > palpitations, and am in a very nervous state. My blood pressure is > fine unless I get myself too agitated which isn't too difficult right > now. > > I just had a physical, and a checkup with my cardiologist and all is > fine. Since there are no distinct tests that I am aware of to point > in the direction of the implants how do you really know what is going > on and what kind of doctor do you go to? My husband travels a lot and > I am very concerned at the thought of being alone and having a problem > with no idea of what direction to turn. If I should have to go to the > emergency room they will continue to treat for the heart. > > Thank you for your time, it was good to write this. > > Respectfully, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2006 Report Share Posted April 17, 2006 Patty, I don't understand why I don't get any answers from all of you I have been writing and nothing. Please let me know why is this happening. I need your help with all of my questions to finally understand what is going on and why. Thank you. Regards, Roxanamikat828 <mikat828@...> wrote: I don't think your doctor should have given you prednisone. That in inself can have some nasty side effects in people. Do you know what prednisone does? It works by suppressing the immune system when people's bodies are attacking themselves. I feel that was an irresponsible thing for your doctor to do. Prednisone is nothing to play with. I had heart symptoms when I was getting sick from my implants. I had a 24 ekg and it showed a heart rate as high as 135bpm when I was walking around the mall shopping. It also showed I had over 400 pvc's in one day. After I got my saline implants out, my heart gradually returned to normal. My obgyn was most impressed as he told me that my heart was so much better after explant when I went in for my annual checkup. Your doctor is sorta right when he says that the body can reject the implants. But it can happen at any time...many women start getting symptoms virtually right away. Others take years. The body is reacting to the silicone shell. Also, the silicone shell can degrade and tiny fibers can come off the shell. Implants can also become contaminated through faulty design and many women find the saline has become contaminated with pathogens when they are analysed after removal. I would suggest that you get the salines out. They, like the silicone filled ones, can make you sick. It is a shame that your PS put implants back in after the others made you sick. If you are reacting to the implants, and I believe that you are, the symptoms will only continue to increase. We have alot of good information on our site about how to choose an explanting surgeon and what is important that they do in order to give you the best chance to heal. Welcome to our group and we are here to help you in any way we can.Hugs, Kathy>> Hello,> > This is all very new to me and I am not sure how to navigate this site> properly, but I feel I need to just write as a starting point. I had> silicone implants implanted in 1983 with the reassurance that they> would last a lifetime, I always wondered what lifetime that was. In> reviewing the messages here I saw one from Kathy in Fairfax,> GMCLady98. I am in Falls Church and would like to hear from you if> you would consider it. > > I never really had any problems that I knew to be problems and was> very happy. Last Spring (23 years later) while driving, I had a> terrible sharp pain in the side of my breast, then a clammy, cold> feeling with the impression that I was going to pass out. When I got> home I took my blood pressure as I was sure I had had a heart attack.> It was elevated, but in hindsight I think that was due to the stress> of what had happened and worrying all the way home. > > These pains came and went for several days, with my blood pressure> steadily climbing. I made 2 trips to the emergency room, the second> trip in an ambulance at 3:30 in the morning with blood pressure of> 190/111. The cardiologist assigned to me performed every test> possible, right down to a heart cathiterzation and found nothing wrong> with my heart. He put me on blood pressure meds, I was sent home and> told to pursue the symptoms with my primary care physician. > > Almost immediately I went to my plastic surgeon as I finally figured> out where the problems were coming from, my left implant was> collapsing. I had the silicone implants removed and replaced with> saline. All my symptoms disappeared, even the allergies I have had> for years. > > It is now 1 year later and my symptoms are creeping back. I went to> my plastic surgeon last week and told him what I was feeling. It was> implied that if you get an infection, say from dental problems, that> the infection will go to the implants as the weakest point of the> body. Since I have a cracked tooth, soon to be repaired, I thought> this made sense. I was given a prescription for a hefty dose of> Prednisone which I find is not necessarily for treating infections so> much as preventing rejection of the implants. I was told that the> older one gets the more likely it is for the body to not tolerate the> implant anymore (I am 60).> > I am experiencing lightheadedness, shakiness, shortness of breath,> palpitations, and am in a very nervous state. My blood pressure is> fine unless I get myself too agitated which isn't too difficult right> now. > > I just had a physical, and a checkup with my cardiologist and all is> fine. Since there are no distinct tests that I am aware of to point> in the direction of the implants how do you really know what is going> on and what kind of doctor do you go to? My husband travels a lot and> I am very concerned at the thought of being alone and having a problem> with no idea of what direction to turn. If I should have to go to the> emergency room they will continue to treat for the heart. > > Thank you for your time, it was good to write this.> > Respectfully, > > >Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)See our photos website! Enter "implants" for access at this link:http://.shutterfly.com/action/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2006 Report Share Posted April 17, 2006 , Welcome to Saline Support. As long as you've had your implants leaves no doubt in my mind that it's your implants causing your problems. .. . They sound typical of many women we've seen here. The good news is that there's little reason to worry about your heart . . . You've been checked out and found to be OK . . . You should be find (however miserable) by yourself. . . We seldom see women with heart problems that need crtical care. I'd suggest locating a doctor, then learning about healthy eating and detoxing. . . If you get started before explant, your healing should come easier. Please feel free to ask whatever you want to know. We have a lot in the archives, as well in old messages. The good news is that you can get better . . . It will probably take time, discipline and patience, but we see women get better on a regular basis! You can too! Hugs and prayers, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2006 Report Share Posted April 17, 2006 Hi Roxana, I've been traveling - and right now everything is a blur . . . however, I believe I replied to you! . . . Sometimes messages get lost among all the other messages. I'll see if I can find the message I sent to you and resend it. Hugs and prayers, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2006 Report Share Posted April 17, 2006 Roxana, I've replied to you several times...once also to your personal address...be sure you are looking on the group for your answers, and not just in your inbox. If you did not choose to receive individual messages for your delivery option, you won't get any replies to your inbox...they will only show up on the group, so check there! I'll copy this to your email address so you will get it in your inbox. Pattyroxana mora <roxmora2000@...> wrote: Patty, I don't understand why I don't get any answers from all of you I have been writing and nothing. Please let me know why is this happening. I need your help with all of my questions to finally understand what is going on and why. Thank you. Regards, Roxanamikat828 <mikat828@...> wrote: I don't think your doctor should have given you prednisone. That in inself can have some nasty side effects in people. Do you know what prednisone does? It works by suppressing the immune system when people's bodies are attacking themselves. I feel that was an irresponsible thing for your doctor to do. Prednisone is nothing to play with. I had heart symptoms when I was getting sick from my implants. I had a 24 ekg and it showed a heart rate as high as 135bpm when I was walking around the mall shopping. It also showed I had over 400 pvc's in one day. After I got my saline implants out, my heart gradually returned to normal. My obgyn was most impressed as he told me that my heart was so much better after explant when I went in for my annual checkup. Your doctor is sorta right when he says that the body can reject the implants. But it can happen at any time...many women start getting symptoms virtually right away. Others take years. The body is reacting to the silicone shell. Also, the silicone shell can degrade and tiny fibers can come off the shell. Implants can also become contaminated through faulty design and many women find the saline has become contaminated with pathogens when they are analysed after removal. I would suggest that you get the salines out. They, like the silicone filled ones, can make you sick. It is a shame that your PS put implants back in after the others made you sick. If you are reacting to the implants, and I believe that you are, the symptoms will only continue to increase. We have alot of good information on our site about how to choose an explanting surgeon and what is important that they do in order to give you the best chance to heal. Welcome to our group and we are here to help you in any way we can.Hugs, Kathy>> Hello,> > This is all very new to me and I am not sure how to navigate this site> properly, but I feel I need to just write as a starting point. I had> silicone implants implanted in 1983 with the reassurance that they> would last a lifetime, I always wondered what lifetime that was. In> reviewing the messages here I saw one from Kathy in Fairfax,> GMCLady98. I am in Falls Church and would like to hear from you if> you would consider it. > > I never really had any problems that I knew to be problems and was> very happy. Last Spring (23 years later) while driving, I had a> terrible sharp pain in the side of my breast, then a clammy, cold> feeling with the impression that I was going to pass out. When I got> home I took my blood pressure as I was sure I had had a heart attack.> It was elevated, but in hindsight I think that was due to the stress> of what had happened and worrying all the way home. > > These pains came and went for several days, with my blood pressure> steadily climbing. I made 2 trips to the emergency room, the second> trip in an ambulance at 3:30 in the morning with blood pressure of> 190/111. The cardiologist assigned to me performed every test> possible, right down to a heart cathiterzation and found nothing wrong> with my heart. He put me on blood pressure meds, I was sent home and> told to pursue the symptoms with my primary care physician. > > Almost immediately I went to my plastic surgeon as I finally figured> out where the problems were coming from, my left implant was> collapsing. I had the silicone implants removed and replaced with> saline. All my symptoms disappeared, even the allergies I have had> for years. > > It is now 1 year later and my symptoms are creeping back. I went to> my plastic surgeon last week and told him what I was feeling. It was> implied that if you get an infection, say from dental problems, that> the infection will go to the implants as the weakest point of the> body. Since I have a cracked tooth, soon to be repaired, I thought> this made sense. I was given a prescription for a hefty dose of> Prednisone which I find is not necessarily for treating infections so> much as preventing rejection of the implants. I was told that the> older one gets the more likely it is for the body to not tolerate the> implant anymore (I am 60).> > I am experiencing lightheadedness, shakiness, shortness of breath,> palpitations, and am in a very nervous state. My blood pressure is> fine unless I get myself too agitated which isn't too difficult right> now. > > I just had a physical, and a checkup with my cardiologist and all is> fine. Since there are no distinct tests that I am aware of to point> in the direction of the implants how do you really know what is going> on and what kind of doctor do you go to? My husband travels a lot and> I am very concerned at the thought of being alone and having a problem> with no idea of what direction to turn. If I should have to go to the> emergency room they will continue to treat for the heart. > > Thank you for your time, it was good to write this.> > Respectfully, > > >Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)See our photos website! Enter "implants" for access at this link:http://.shutterfly.com/action/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 --- Hi, I'm relatively new to the site, a couple of months now. I answer random questions, comments as my time is limited. I missed your name completely. Sorry about that! Howzit goin'?? I just got a surgery date today for Explant (after 20 yrs. of poisoning) and I am totally thrilled!!! I'll look back on the older messages and try to find your story. love & Peace, Sunny In , roxana mora <roxmora2000@...> wrote: > > Patty, > I don't understand why I don't get any answers from all of you I have been writing and nothing. > Please let me know why is this happening. > I need your help with all of my questions to finally understand what is going on and why. > Thank you. > Regards, > Roxana > > mikat828 <mikat828@...> wrote: > > > > I don't think your doctor should have given you prednisone. That in > inself can have some nasty side effects in people. Do you know what > prednisone does? It works by suppressing the immune system when > people's bodies are attacking themselves. I feel that was an > irresponsible thing for your doctor to do. Prednisone is nothing to > play with. I had heart symptoms when I was getting sick from my > implants. I had a 24 ekg and it showed a heart rate as high as > 135bpm when I was walking around the mall shopping. It also showed > I had over 400 pvc's in one day. After I got my saline implants > out, my heart gradually returned to normal. My obgyn was most > impressed as he told me that my heart was so much better after > explant when I went in for my annual checkup. > Your doctor is sorta right when he says that the body can reject the > implants. But it can happen at any time...many women start getting > symptoms virtually right away. Others take years. The body is > reacting to the silicone shell. Also, the silicone shell can degrade > and tiny fibers can come off the shell. Implants can also become > contaminated through faulty design and many women find the saline > has become contaminated with pathogens when they are analysed after > removal. > I would suggest that you get the salines out. They, like the > silicone filled ones, can make you sick. It is a shame that your PS > put implants back in after the others made you sick. If you are > reacting to the implants, and I believe that you are, the symptoms > will only continue to increase. We have alot of good information on > our site about how to choose an explanting surgeon and what is > important that they do in order to give you the best chance to > heal. Welcome to our group and we are here to help you in any way > we can. > Hugs, Kathy > > > > > > > > > > Hello, > > > > This is all very new to me and I am not sure how to navigate this > site > > properly, but I feel I need to just write as a starting point. I > had > > silicone implants implanted in 1983 with the reassurance that they > > would last a lifetime, I always wondered what lifetime that was. > In > > reviewing the messages here I saw one from Kathy in Fairfax, > > GMCLady98. I am in Falls Church and would like to hear from you if > > you would consider it. > > > > I never really had any problems that I knew to be problems and was > > very happy. Last Spring (23 years later) while driving, I had a > > terrible sharp pain in the side of my breast, then a clammy, cold > > feeling with the impression that I was going to pass out. When I > got > > home I took my blood pressure as I was sure I had had a heart > attack. > > It was elevated, but in hindsight I think that was due to the > stress > > of what had happened and worrying all the way home. > > > > These pains came and went for several days, with my blood pressure > > steadily climbing. I made 2 trips to the emergency room, the > second > > trip in an ambulance at 3:30 in the morning with blood pressure of > > 190/111. The cardiologist assigned to me performed every test > > possible, right down to a heart cathiterzation and found nothing > wrong > > with my heart. He put me on blood pressure meds, I was sent home > and > > told to pursue the symptoms with my primary care physician. > > > > Almost immediately I went to my plastic surgeon as I finally > figured > > out where the problems were coming from, my left implant was > > collapsing. I had the silicone implants removed and replaced with > > saline. All my symptoms disappeared, even the allergies I have had > > for years. > > > > It is now 1 year later and my symptoms are creeping back. I went > to > > my plastic surgeon last week and told him what I was feeling. It > was > > implied that if you get an infection, say from dental problems, > that > > the infection will go to the implants as the weakest point of the > > body. Since I have a cracked tooth, soon to be repaired, I thought > > this made sense. I was given a prescription for a hefty dose of > > Prednisone which I find is not necessarily for treating infections > so > > much as preventing rejection of the implants. I was told that the > > older one gets the more likely it is for the body to not tolerate > the > > implant anymore (I am 60). > > > > I am experiencing lightheadedness, shakiness, shortness of breath, > > palpitations, and am in a very nervous state. My blood pressure is > > fine unless I get myself too agitated which isn't too difficult > right > > now. > > > > I just had a physical, and a checkup with my cardiologist and all > is > > fine. Since there are no distinct tests that I am aware of to > point > > in the direction of the implants how do you really know what is > going > > on and what kind of doctor do you go to? My husband travels a lot > and > > I am very concerned at the thought of being alone and having a > problem > > with no idea of what direction to turn. If I should have to go to > the > > emergency room they will continue to treat for the heart. > > > > Thank you for your time, it was good to write this. > > > > Respectfully, > > > > > > > > > > > > > > Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. > > " Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world. " - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace) > > See our photos website! Enter " implants " for access at this link: > http://.shutterfly.com/action/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 Hi , I had saline implants for six months, and I got sick within a few weeks of getting them - they are not safe no matter what you have heard. The shell is made of silicone, plus they often serve as a breeding ground for bacteria and other pathogens, and unfortunately they are also manufactured with chemicals that could cause us to get sick. Some people don't react right away from the implants. One of my symptoms was that I went from normal blood pressure to high blood pressure (145/98). Since explant, my blood pressure has returned to normal. Ever so slowly I'm seeing small improvements, and I'm cautiously optomistic. I'm even working full-time and trying to complete four college classes - and while I am pretty tired from burning the candle at both ends, I'm not going to spend one day in bed unless I have to. There are many who aren't as lucky as me, who haven't been able to return to work, who have no choice but to remain in bed, and I am thankful that I got sick right away and knew for sure the implants were causing these strange new symptoms. You are not alone as long as you are posting here, we will help you as much as we possibly can. Sis --- In , " eqlizre " <eqlizre@...> wrote: > > Hello, > > This is all very new to me and I am not sure how to navigate this site > properly, but I feel I need to just write as a starting point. I had > silicone implants implanted in 1983 with the reassurance that they > would last a lifetime, I always wondered what lifetime that was. In > reviewing the messages here I saw one from Kathy in Fairfax, > GMCLady98. I am in Falls Church and would like to hear from you if > you would consider it. > > I never really had any problems that I knew to be problems and was > very happy. Last Spring (23 years later) while driving, I had a > terrible sharp pain in the side of my breast, then a clammy, cold > feeling with the impression that I was going to pass out. When I got > home I took my blood pressure as I was sure I had had a heart attack. > It was elevated, but in hindsight I think that was due to the stress > of what had happened and worrying all the way home. > > These pains came and went for several days, with my blood pressure > steadily climbing. I made 2 trips to the emergency room, the second > trip in an ambulance at 3:30 in the morning with blood pressure of > 190/111. The cardiologist assigned to me performed every test > possible, right down to a heart cathiterzation and found nothing wrong > with my heart. He put me on blood pressure meds, I was sent home and > told to pursue the symptoms with my primary care physician. > > Almost immediately I went to my plastic surgeon as I finally figured > out where the problems were coming from, my left implant was > collapsing. I had the silicone implants removed and replaced with > saline. All my symptoms disappeared, even the allergies I have had > for years. > > It is now 1 year later and my symptoms are creeping back. I went to > my plastic surgeon last week and told him what I was feeling. It was > implied that if you get an infection, say from dental problems, that > the infection will go to the implants as the weakest point of the > body. Since I have a cracked tooth, soon to be repaired, I thought > this made sense. I was given a prescription for a hefty dose of > Prednisone which I find is not necessarily for treating infections so > much as preventing rejection of the implants. I was told that the > older one gets the more likely it is for the body to not tolerate the > implant anymore (I am 60). > > I am experiencing lightheadedness, shakiness, shortness of breath, > palpitations, and am in a very nervous state. My blood pressure is > fine unless I get myself too agitated which isn't too difficult right > now. > > I just had a physical, and a checkup with my cardiologist and all is > fine. Since there are no distinct tests that I am aware of to point > in the direction of the implants how do you really know what is going > on and what kind of doctor do you go to? My husband travels a lot and > I am very concerned at the thought of being alone and having a problem > with no idea of what direction to turn. If I should have to go to the > emergency room they will continue to treat for the heart. > > Thank you for your time, it was good to write this. > > Respectfully, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 Sunny . . . I'm thrilled to hear you've got a surgery date too! . .. . Congradulations! I know you're happy to see an end in sight! Hugs and prayers, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2006 Report Share Posted April 19, 2006 Hi , Thanks you for your input. I have been getting quite an education reading all the different issues that the ladies are having, obviously not all are identical but the common denominator seems to be the same. Do you happen to know how the implants cause heart palpitations, what do you think they are affecting to trigger these? You are right about the inconsistency of how you feel on a daily basis, I had a bad day Monday, Tuesday was better, and today is great. My primary symptoms are dizziness, shortness of breath, occasional palpitations, but no pain in joints or burning. Re: Re: New Group Member EVEYLN said: I just had a physical, and a checkup with my cardiologist and all is > fine. Since there are no distinct tests that I am aware of to point > in the direction of the implants how do you really know what is going > on and what kind of doctor do you go to? Hi , I just wanted to jump in here and say that I don't have many extreme symptoms, my tests all look normal and medications do help me to feel better. The medications mask the symptoms...but if you look at me, I LOOK so unhealthy even though I FEEL better. Some days are worse than other days and that can play tricks on my mind b/c I want to believe so badly that it isn't my implants making me sick. But, if you stick around here for a while and read some of the posts from these wonderful ladies, it becomes increasingly clear that breast implants, even saline, have the potential to make someone VERY ill, it is just a question of WHEN. In my case, even though I am not " sick " I am going to be pro-active and have my implants taken out before it is too late and I become " sick " . I wouldn't wish any of the aches and pains and struggles I have read about here..on anyone. God Bless. ~ Re: New Group Member Hi , I had saline implants for six months, and I got sick within a few weeks of getting them - they are not safe no matter what you have heard. The shell is made of silicone, plus they often serve as a breeding ground for bacteria and other pathogens, and unfortunately they are also manufactured with chemicals that could cause us to get sick. Some people don't react right away from the implants. One of my symptoms was that I went from normal blood pressure to high blood pressure (145/98). Since explant, my blood pressure has returned to normal. Ever so slowly I'm seeing small improvements, and I'm cautiously optomistic. I'm even working full-time and trying to complete four college classes - and while I am pretty tired from burning the candle at both ends, I'm not going to spend one day in bed unless I have to. There are many who aren't as lucky as me, who haven't been able to return to work, who have no choice but to remain in bed, and I am thankful that I got sick right away and knew for sure the implants were causing these strange new symptoms. You are not alone as long as you are posting here, we will help you as much as we possibly can. Sis > > Hello, > > This is all very new to me and I am not sure how to navigate this site > properly, but I feel I need to just write as a starting point. I had > silicone implants implanted in 1983 with the reassurance that they > would last a lifetime, I always wondered what lifetime that was. In > reviewing the messages here I saw one from Kathy in Fairfax, > GMCLady98. I am in Falls Church and would like to hear from you if > you would consider it. > > I never really had any problems that I knew to be problems and was > very happy. Last Spring (23 years later) while driving, I had a > terrible sharp pain in the side of my breast, then a clammy, cold > feeling with the impression that I was going to pass out. When I got > home I took my blood pressure as I was sure I had had a heart attack. > It was elevated, but in hindsight I think that was due to the stress > of what had happened and worrying all the way home. > > These pains came and went for several days, with my blood pressure > steadily climbing. I made 2 trips to the emergency room, the second > trip in an ambulance at 3:30 in the morning with blood pressure of > 190/111. The cardiologist assigned to me performed every test > possible, right down to a heart cathiterzation and found nothing wrong > with my heart. He put me on blood pressure meds, I was sent home and > told to pursue the symptoms with my primary care physician. > > Almost immediately I went to my plastic surgeon as I finally figured > out where the problems were coming from, my left implant was > collapsing. I had the silicone implants removed and replaced with > saline. All my symptoms disappeared, even the allergies I have had > for years. > > It is now 1 year later and my symptoms are creeping back. I went to > my plastic surgeon last week and told him what I was feeling. It was > implied that if you get an infection, say from dental problems, that > the infection will go to the implants as the weakest point of the > body. Since I have a cracked tooth, soon to be repaired, I thought > this made sense. I was given a prescription for a hefty dose of > Prednisone which I find is not necessarily for treating infections so > much as preventing rejection of the implants. I was told that the > older one gets the more likely it is for the body to not tolerate the > implant anymore (I am 60). > > I am experiencing lightheadedness, shakiness, shortness of breath, > palpitations, and am in a very nervous state. My blood pressure is > fine unless I get myself too agitated which isn't too difficult right > now. > > I just had a physical, and a checkup with my cardiologist and all is > fine. Since there are no distinct tests that I am aware of to point > in the direction of the implants how do you really know what is going > on and what kind of doctor do you go to? My husband travels a lot and > I am very concerned at the thought of being alone and having a problem > with no idea of what direction to turn. If I should have to go to the > emergency room they will continue to treat for the heart. > > Thank you for your time, it was good to write this. > > Respectfully, > > > Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. " Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world. " - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace) See our photos website! Enter " implants " for access at this link: http://.shutterfly.com/action/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2006 Report Share Posted April 19, 2006 Hi , I had heart palpitations and I believe mine were due to the thyroid condition I developed after getting implants. I didn't have them right away, but they developed over a period of time, and I was diagnosed with Hashimoto's autoimmune thyroid disease 4 years post explant. Many, many women develop thyroid conditions as a result of implants. My guess is that palpitations are a symptom of that at least part of the time. I know there are other heart conditions that develop as well, but in my case, the palpitations disappeared after thyroid treatment. Patty eqlizre@... wrote: Hi , Thanks you for your input. I have been getting quite an education reading all the different issues that the ladies are having, obviously not all are identical but the common denominator seems to be the same. Do you happen to know how the implants cause heart palpitations, what do you think they are affecting to trigger these? You are right about the inconsistency of how you feel on a daily basis, I had a bad day Monday, Tuesday was better, and today is great. My primary symptoms are dizziness, shortness of breath, occasional palpitations, but no pain in joints or burning. Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2006 Report Share Posted April 19, 2006 EVEYLN said: I just had a physical, and a checkup with my cardiologist and all is> fine. Since there are no distinct tests that I am aware of to point> in the direction of the implants how do you really know what is going> on and what kind of doctor do you go to? Hi , I just wanted to jump in here and say that I don't have many extreme symptoms, my tests all look normal and medications do help me to feel better. The medications mask the symptoms...but if you look at me, I LOOK so unhealthy even though I FEEL better. Some days are worse than other days and that can play tricks on my mind b/c I want to believe so badly that it isn't my implants making me sick. But, if you stick around here for a while and read some of the posts from these wonderful ladies, it becomes increasingly clear that breast implants, even saline, have the potential to make someone VERY ill, it is just a question of WHEN. In my case, even though I am not "sick" I am going to be pro-active and have my implants taken out before it is too late and I become "sick". I wouldn't wish any of the aches and pains and struggles I have read about here..on anyone. God Bless. ~ Re: New Group Member Hi ,I had saline implants for six months, and I got sick within a few weeks of getting them - they are not safe no matter what you have heard. The shell is made of silicone, plus they often serve as a breeding ground for bacteria and other pathogens, and unfortunately they are also manufactured with chemicals that could cause us to get sick. Some people don't react right away from the implants. One of my symptoms was that I went from normal blood pressure to high blood pressure (145/98). Since explant, my blood pressure has returned to normal. Ever so slowly I'm seeing small improvements, and I'm cautiously optomistic. I'm even working full-time and trying to complete four college classes - and while I am pretty tired from burning the candle at both ends, I'm not going to spend one day in bed unless I have to. There are many who aren't as lucky as me, who haven't been able to return to work, who have no choice but to remain in bed, and I am thankful that I got sick right away and knew for sure the implants were causing these strange new symptoms. You are not alone as long as you are posting here, we will help you as much as we possibly can.Sis >> Hello,> > This is all very new to me and I am not sure how to navigate this site> properly, but I feel I need to just write as a starting point. I had> silicone implants implanted in 1983 with the reassurance that they> would last a lifetime, I always wondered what lifetime that was. In> reviewing the messages here I saw one from Kathy in Fairfax,> GMCLady98. I am in Falls Church and would like to hear from you if> you would consider it. > > I never really had any problems that I knew to be problems and was> very happy. Last Spring (23 years later) while driving, I had a> terrible sharp pain in the side of my breast, then a clammy, cold> feeling with the impression that I was going to pass out. When I got> home I took my blood pressure as I was sure I had had a heart attack.> It was elevated, but in hindsight I think that was due to the stress> of what had happened and worrying all the way home. > > These pains came and went for several days, with my blood pressure> steadily climbing. I made 2 trips to the emergency room, the second> trip in an ambulance at 3:30 in the morning with blood pressure of> 190/111. The cardiologist assigned to me performed every test> possible, right down to a heart cathiterzation and found nothing wrong> with my heart. He put me on blood pressure meds, I was sent home and> told to pursue the symptoms with my primary care physician. > > Almost immediately I went to my plastic surgeon as I finally figured> out where the problems were coming from, my left implant was> collapsing. I had the silicone implants removed and replaced with> saline. All my symptoms disappeared, even the allergies I have had> for years. > > It is now 1 year later and my symptoms are creeping back. I went to> my plastic surgeon last week and told him what I was feeling. It was> implied that if you get an infection, say from dental problems, that> the infection will go to the implants as the weakest point of the> body. Since I have a cracked tooth, soon to be repaired, I thought> this made sense. I was given a prescription for a hefty dose of> Prednisone which I find is not necessarily for treating infections so> much as preventing rejection of the implants. I was told that the> older one gets the more likely it is for the body to not tolerate the> implant anymore (I am 60).> > I am experiencing lightheadedness, shakiness, shortness of breath,> palpitations, and am in a very nervous state. My blood pressure is> fine unless I get myself too agitated which isn't too difficult right> now. > > I just had a physical, and a checkup with my cardiologist and all is> fine. Since there are no distinct tests that I am aware of to point> in the direction of the implants how do you really know what is going> on and what kind of doctor do you go to? My husband travels a lot and> I am very concerned at the thought of being alone and having a problem> with no idea of what direction to turn. If I should have to go to the> emergency room they will continue to treat for the heart. > > Thank you for your time, it was good to write this.> > Respectfully, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2007 Report Share Posted March 16, 2007 , Sorry to hear about your situation. You could definately get an 'anxiety type dermatitis' from mold as it affects your nerves and your skin. You can enroll in blogger.com, put pictures and notes there and link to it in email. Some people use photobucket but you can show a series of pictures on blogger.com but only one for each link at photobucket (I believe). http://www.blogger.com/start > > Hello, > > My name is Young and I live in the San Joaquin Valley of > California. I have recently been diagnosed with anxiety-related > neurodermatitis but I have also been exposed to black mold > (stachybotrys) at work. I came down with shallowed breathing, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2007 Report Share Posted March 18, 2007 , You may want to get a second opinion from another doctor - maybe a doctor who is more aware of occupational medicine. Maybe it's contact dermatitis from contact with the mold. Does it go away when you leave the area with the mold? An allergist may be able to help you also. Ask your employer if there is another area that you can work in, but still keep the same job. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2007 Report Share Posted March 21, 2007 Hi , There are similar problems at my job. One person has found it helpful to have an air cleaner blowing directly at her while she is at her desk. She also has a fan blowing at her from the other direction - it seems to envelope her in a curtain of clean air. I don't know if that would work for you at your job. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2007 Report Share Posted October 27, 2007 Welcome to the group. 80% of what I know about asthma, Xolair, etc I learned from this site and people with experience on this site (long story, LOL). Good people around here with a desire to share. Ron On Oct 26, 2007, at 9:08 PM, LeBlanc wrote: > > Hello Everyone, > > Glad to find this group, and thanks so much to you > moderators and contributors. I'll tell my whole story > soon, but for now let me say my allergist wants to > begin Xolair treatments for my Asthma/COPD/Allergies. > I'm weaning myself off albuterol after 20 years so I > can have the skin test first. I was intubated twice > this summer for seven days(my first hospital visit > ever for breathing difficulties)and reticent to begin > xolair until I am convinced I need it. I'm on Advair > 500/50- 2x, Spiriva 18mcg., Singulair 10mg,Albuterol > as needed. Today I hiked to 7,000 feet with no > albuterol. > My IgE was in the 300's when hospitalized and recently > was in the mid 100's. My peak flows are in the 200's > up from a low of 50. I've weaned myself off prednisone > and my numbers improved. > > I'm going to read the old posts and catch up. I was an > EMT in Mountain Rescues and managed a large medical > practice in the past so I have some knowledge to > contribute. > > Thanks all, > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2007 Report Share Posted October 27, 2007 Hi - welcome to the site! I'm wondering why you're " weaning myself off the albuterol after 20 years so I can have the skin test first. " Did your doctor ask you to do that? It is a bronchodilator, not an antihistamine. Normally you only have to be off antihistamines for satisfactory skin testing because they reduce or prevent the formation of the skin reaction (wheal) that indicates allergy to an injected substance. Albuterol would not affect that. I guess I'm worried that you would not have something in your arsenal that you might need given your extremely worrisome history. Although, having said that, it sounds like your other meds are doing their job at the moment if you were able to handle hiking in a higher altitude - congratulations on that! Just curious...Fran > > > > > Hello Everyone, > > > > Glad to find this group, and thanks so much to you > > moderators and contributors. I'll tell my whole story > > soon, but for now let me say my allergist wants to > > begin Xolair treatments for my Asthma/COPD/Allergies. > > I'm weaning myself off albuterol after 20 years so I > > can have the skin test first. I was intubated twice > > this summer for seven days(my first hospital visit > > ever for breathing difficulties)and reticent to begin > > xolair until I am convinced I need it. I'm on Advair > > 500/50- 2x, Spiriva 18mcg., Singulair 10mg,Albuterol > > as needed. Today I hiked to 7,000 feet with no > > albuterol. > > My IgE was in the 300's when hospitalized and recently > > was in the mid 100's. My peak flows are in the 200's > > up from a low of 50. I've weaned myself off prednisone > > and my numbers improved. > > > > I'm going to read the old posts and catch up. I was an > > EMT in Mountain Rescues and managed a large medical > > practice in the past so I have some knowledge to > > contribute. > > > > Thanks all, > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 Hi , I am new to the group also. Welcome. I started Xolair in September...I've had two doses so far. The injections have gone well. I get them at the hospital where I work. They don't even make me stay in the department after the injection. My office is in the middle of the ICU. The nurse said " You'll be better off upstairs. " I've not had any injection site reactions either. I am taking Xoliar off label for food allergy and allergies in general. So far, I have noticed a difference. I can miss my zytrec and not break out in hives or have an asthma attack. I've also stopped getting hives after touching my dogs....that is huge for me. Any how, It's been worth it. Are you in Colorado? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 Thanks so much Addy, Fran, , and Ron for the nice greetings and questions. I'll explain my whole story soon. I just flew to Massachusetts from Arizona and am heading to Chicago this weekend so my time is tight. My allergist wants me on Xoliar without the skin test, my pulmonoligist who was also my doctor for my second intubation prefers a more conservative approach and she also weaned me off Prednisone. And me, well, sometimes I listen to them, and most of the time I make my own decisions. Almost dying twice this summer scared me immensely and I am determined to heal my lungs as well as I can. My slow hike to 7,000ft. was humbling as I could hike to double that with a pack without stopping a few years ago. The last three years my breathing became progressively worse and I crashed in May, Lifeflighted unconscious for a week(no I.D on me)dumb for a EMT. First time I was ever on the inside of a gurney. Crashed again in July. Intubated 4 days. My ER doctor and my primary care saved me and stick to me like glue. Hearing all of your stories is humbling as well. You are all corageous. I have much to learn from you all. " He who cannot reveal his disease cannot be cured " Ethiopian proverb Hope I can help here as well. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2008 Report Share Posted March 27, 2008 Hi julyette. I'm not very familiar with unithroid, but I'm guessing it is synthetic T4 replacement. Having dry eyes and mouth are hypo symptoms as well. Are you on 100 mg or mcg? I'm guessing 100mcg. If so, that isn't enough especially for having no thyroid. I suggest you visit www stopthethyroidmadness.com so you can learn about Armour thyroid. It has T1, T2, T3, T4 and calcitonin which a normal thyroid produces. I hope you can get some of your symptoms taken care of! Switching meds may help with the fibro as well. cw -- New Group Member Hello All - I'm Julyette and I had a subtotal thyroidectomy in 1979 due to Graves Disease. I've had hypothyroidism ever since and fibromyalgia. I am 46 years old and married for four years. I live on the east coast. I take 100 mg. of Unithroid everyday. After 15 years, I have stopped taking Cytomel. I was recently diagnosed with Sjorgren's Syndrome - severe dry eyes and mouth among other things. I just wanted to introduce myself and say hello. I look forward to sharing information and tips to have a better quality of life. Quote Link to comment Share on other sites More sharing options...
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