Possible Problems with Xolair

February 28, 2008

This is my first time posting.

I have been on Xolair since June 2007 with a dosage of 225mg every 2

weeks.

Prior to Xolair, my asthma was steroid-dependent in one form or

another for the last 26 years. It took awhile, but my breathing is

much improved. I don't need to use any form of steroids, or rescue

inhaler, or nebulizer.

However, here are some of the things I have been experiencing that I

am not sure whether they are due to Xolair or not:

... Constant URI's (Upper Respiratory Infectiions

... Constant Swollen gland (lymph nodes in my neck/throat area)

... Sore throats

... sinusitis

... Weight gain

Because of all these symptoms, I have ended up being on more

antibiotics than I have been in these past 26 years. I am not getting

any information from my doctor (that is another issue but I am taking

measures to deal with that).

In the meantime ...

I have called Genentech several times and also spoke with the nurse at

my mail order pharmacy (Medco). I am not getting any confirmation as

to whether these symptoms are from the Xolair, or how I should proceed.

I am seriously considering taking a 'drug holiday' from Xolair to see

if I can determine whether these symptoms would go away. I am so

afraid to take the chance of worsening my breathing.

It wouldn't be a problem if the symptoms were mild, but they are

extremely disabling.

I would appreciate hearing if others had experienced any of these and

how they proceeded. Also, would like to hear if anyone has stopped

Xolair and how it affected them once they stopped.

Thank you.

lottawood

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