Back from National Jewish Hospital

[Guest guest]

I have returned from my trip to National Jewish Hospital. I had

offered to ask questions about Xolair. Unfortunately, I did not

have the opportunity to do so because they determined immediately

that I should no longer recieve Xolair so I had no opportunity to

discuss the ramifications of taking it.

I recieved excellent care and am finally on my way to getting

better. I look forward to that happy day in 7 weeks when I am

finally off steroids for good. Going to NJC was very very

difficult. It was a huge sacrifice for my family. But it was so

worth it. If anyone has the opportunity to go there or one of the

other excellent specialty hospitals I would encourage you to do it.

If you are really sick and have had it, I would encourage you to

make an opportunity to go. It was enormously helpful to have a

broad spectrum of specialists working together and combining all the

information to focus on why I couldn't breathe.

Since I am no longer on Xolair, I am also leaving this group. You

are an amazing group of people providing a wonderful service to one

another. I have only struggled badly for this last year. I know

many of you have fought this for many years. I am sorry for your

stuggles and am inspired by the strength and good humor so many of

you have shown. I wish you all well. I hope that Xolair gives you

the lives you deserve.