Excema, hives and Xolair

[Guest guest]

Well I just got back from a Doctors appt with my friend with allergic

excema. He ran an IGE blood test and we will know in a week what her

level is. He said that Xolair wasn't FDA approved for excema- so a big

thankyou for all your comments on my last post about that. We took all

the info we found and gave it to him. He is going to research it and

she has another appt in two weeks. I did see a picture of her when she

had hives all over too. For now the prednisone is keeping those

somewhat at bay. Her eyelids where even puffed out. WOW. I noticed

people commenting about hives here too. I pray that something comes

from this to help her. She has been on allergy shots for a year also

and he basically said those are worthless. Sooo many mixed messages

from different doctors. I soooo appreciate that I found this group.

Xolair I truly believe saved my life!!! Thanks to all.

Connie

[Guest guest]

--- In , " tresses77 " <tresses77@...>

wrote:

>

> Well I just got back from a Doctors appt with my friend with

allergic

> excema. He ran an IGE blood test and we will know in a week what

her

> level is. He said that Xolair wasn't FDA approved for excema- so a

big

> thankyou for all your comments on my last post about that. We took

all

> the info we found and gave it to him...

Connie: It's the eczema Queen; Marie. Like I've posted before (sorry

gang), my highest IgE level was 45,000, and the average over the last

three years was between 20,000 and 29,000. Are you all ready for

this?

I saw my Dematologist Thursday and saw the results of blood work that

was drawn the week before. Now, I know that there are false highs if

one tests their IgE levels when taking Xolair, but...and this is the

unreal part...my IgE level was down to a mere 2,076! Anyone want to

take a shot at that??? I was thrilled, but cautious, because it

belies the reports of other test results. Hmmm...Food for thought-But

X has DEFINATELY made a difference in my case. So much so that I

realized the other day I had actually made plans to attend a family

get together weeks before. I've haven't done that in 8 years, because

my chronic condition, and, not know when severe flares would occur.

So tell you friend there's finally HOPE:-)

Marie

[Guest guest]

> >

> > Well I just got back from a Doctors appt with my friend with

> allergic

> > excema. He ran an IGE blood test and we will know in a week what

> her

> > level is. He said that Xolair wasn't FDA approved for excema- so a

> big

> > thankyou for all your comments on my last post about that. We took

> all

> > the info we found and gave it to him...

>

> Connie: It's the eczema Queen; Marie. Like I've posted before (sorry

> gang), my highest IgE level was 45,000, and the average over the last

> three years was between 20,000 and 29,000. Are you all ready for

> this?

>

> I saw my Dematologist Thursday and saw the results of blood work that

> was drawn the week before. Now, I know that there are false highs if

> one tests their IgE levels when taking Xolair, but...and this is the

> unreal part...my IgE level was down to a mere 2,076! Anyone want to

> take a shot at that??? I was thrilled, but cautious, because it

> belies the reports of other test results. Hmmm...Food for thought-But

> X has DEFINATELY made a difference in my case. So much so that I

> realized the other day I had actually made plans to attend a family

> get together weeks before. I've haven't done that in 8 years, because

> my chronic condition, and, not know when severe flares would occur.

> So tell you friend there's finally HOPE:-)

> Marie

>

It is too bad that Xolair does not work for people with Psoriasis.

I have had it for several years especially on my scalp. It is always

itching, scratching and snowing where I live (GRIN)

I have been on Xolair for over 3 years and it hasn't helped or

made my skin worse but it sure did help my asthma and allergies )

I wish that Xolair helped auto immune diseases like Psoriasis. My

Dermatologist wanted me to start on Enbrel but it is also a systemic

medication he is afraid of the side effects and I do not have any

signs of Arthritis. I do have weak bones after all those years on evil

candy.

For the Psoriasis, all I can do is use Taclonex cream 2x a day for the

skin and Clobex shampoo for my snowy scalp.

Doug

Group founder

[Guest guest]

>

> It is too bad that Xolair does not work for people with Psoriasis.

> I have had it for several years especially on my scalp. It is always

> itching, scratching and snowing where I live (GRIN)

>

> I have been on Xolair for over 3 years and it hasn't helped or

> made my skin worse but it sure did help my asthma and allergies )

>

> I wish that Xolair helped auto immune diseases like Psoriasis. My

> Dermatologist wanted me to start on Enbrel but it is also a systemic

> medication he is afraid of the side effects and I do not have any

> signs of Arthritis. I do have weak bones after all those years on

evil

> candy.

>

> For the Psoriasis, all I can do is use Taclonex cream 2x a day for

the

> skin and Clobex shampoo for my snowy scalp.

>

> Doug

> Group founder

>

Hi Doug:

Do I know what you mean about your scalp! I won't go into the gorey

(sp?) details, but the eczema affected my scalp, too. It was

abosolutely disgusting (an oozing head, ugh, yuck!!!). I did mention

I tried the Enbrel for my eczema. It makes sense that it didn't work

for eczema because its genesis (although autoimmune) differs from

that of Eczema (Ige's & allergies, baby). For what it's worth, I

didn't have any side effects while I was on E. It might be worth a

try, if X & E are compatable (bet Insurance won't cover both).

For the record, I've also been on Interferon (Intron A) (injectable

pens, easy), because my Eosinophils were so high. Didn't help my

skin:-( But I knew by research and finding this site that X would

help me. For all these 8 years I've told doctors, " The severe,

intense itch and inflammatinon is coming from within! It's not an

external problem! " Anyhow, hurray for X. Now I wish we could get off

all the other meds. Bet sooner than we think...

Regards,

Marie

[Guest guest]

> Hi Doug:

>

> Do I know what you mean about your scalp! I won't go into the gorey

> (sp?) details, but the eczema affected my scalp, too. It was

> abosolutely disgusting (an oozing head, ugh, yuck!!!). I did mention

> I tried the Enbrel for my eczema. It makes sense that it didn't work

> for eczema because its genesis (although autoimmune) differs from

> that of Eczema (Ige's & allergies, baby). For what it's worth, I

> didn't have any side effects while I was on E. It might be worth a

> try, if X & E are compatable (bet Insurance won't cover both).

>

> For the record, I've also been on Interferon (Intron A) (injectable

> pens, easy), because my Eosinophils were so high. Didn't help my

> skin:-( But I knew by research and finding this site that X would

> help me. For all these 8 years I've told doctors, " The severe,

> intense itch and inflammatinon is coming from within! It's not an

> external problem! " Anyhow, hurray for X. Now I wish we could get off

> all the other meds. Bet sooner than we think...

>

> Regards,

> Marie

About 14 years ago, the dermatologist was using came up with a

concoction that contained nivea and coal tar oil. I put that goop on

my head with a shower cap and slept with it on there all night.

Needless to say, it STUNK, didn't help my psoriasis very much AND the

it leaked all over my pillow and bed.

The steroid medications I take for Psoriasis are not taken internally,

therefore, they do not cause the evil side effects or oral ones like

pred and decadron.

Thank God for Xolair. It got me off of those evil oral medications

Doug

Group founder

[Guest guest]

Hi Marie,

I joined this group because I am trying to decide about using xolair

for my allergic asthma.

I saw your post and it struck a cord wwith me. My IgE is only 39

but because I tested positive to so many things(outdoor environment)

and my asthma isn't controled my doctor put into my ins. for approval

of xolair. To my surprise it has been approved. My daughter(16) also

has asthma but under control right now. She has atopic derm(allergic

eczema), hives, broke out and itchy all the time, and Ige of almost

6,000. Our insurance won't approve her because her asthma is under

control. I have heard from a few people that it does help allergic

eczema, but not approved by FDA for it. Doesn't xolair stop the same

mast cells in asthma and eczema? I don't get why it is approved for

one but not the other. I almost feel guilty that I got the ok for it

but my daughter has been suffering for years(hives, itching, rash) and

they say no.

I am glad xolair has helped bring your IgE down. I hope your eczema

is better from its use.

Sorry about the vent but it is so frustrating. jean

> >

> > Well I just got back from a Doctors appt with my friend with

> allergic

> > excema. He ran an IGE blood test and we will know in a week what

> her

> > level is. He said that Xolair wasn't FDA approved for excema- so a

> big

> > thankyou for all your comments on my last post about that. We took

> all

> > the info we found and gave it to him...

>

> Connie: It's the eczema Queen; Marie. Like I've posted before (sorry

> gang), my highest IgE level was 45,000, and the average over the last

> three years was between 20,000 and 29,000. Are you all ready for

> this?

>

> I saw my Dematologist Thursday and saw the results of blood work that

> was drawn the week before. Now, I know that there are false highs if

> one tests their IgE levels when taking Xolair, but...and this is the

> unreal part...my IgE level was down to a mere 2,076! Anyone want to

> take a shot at that??? I was thrilled, but cautious, because it

> belies the reports of other test results. Hmmm...Food for thought-But

> X has DEFINATELY made a difference in my case. So much so that I

> realized the other day I had actually made plans to attend a family

> get together weeks before. I've haven't done that in 8 years, because

> my chronic condition, and, not know when severe flares would occur.

> So tell you friend there's finally HOPE:-)

> Marie

>

[Guest guest]

--- In , " gigles_1955 " <fgigles55@...>

wrote:

>

> Hi Marie,

> I joined this group because I am trying to decide about using

xolair

> for my allergic asthma.

> I saw your post and it struck a cord wwith me. My IgE is only 39

> but because I tested positive to so many things(outdoor environment)

> and my asthma isn't controled my doctor put into my ins. for

approval

> of xolair. To my surprise it has been approved. My daughter(16)

also

> has asthma but under control right now. She has atopic derm

(allergic

> eczema), hives, broke out and itchy all the time, and Ige of almost

> 6,000. Our insurance won't approve her because her asthma is under

> control. I have heard from a few people that it does help allergic

> eczema, but not approved by FDA for it. Doesn't xolair stop the

same

> mast cells in asthma and eczema? I don't get why it is approved for

> one but not the other. I almost feel guilty that I got the ok for

it

> but my daughter has been suffering for years(hives, itching, rash)

and

> they say no.

> I am glad xolair has helped bring your IgE down. I hope your

eczema

> is better from its use.

> Sorry about the vent but it is so frustrating. jean

>

> Hi Jean!

We can all appreciate your frustration. I had felt the same way. I

figured as you did; if it helps with Athsma, it's gotta help with the

Eczema. The priority with athsma, obviously, is that it could be life

threatening. With eczema, it's quality of life and suffering

(although the meds could have serious side effects). I'm sure it will

be approved one day, but when, who knows? Like I said, thank God my

GP got it for me (I do have asthma, but Eczema was worse). Now, I

wish the maximum dose would be increased. I bet most of us could

discontinue our other medications. When I look back only 8 months

ago... there were days...I never thought I would make it. Even now, I

still itch, but nothing like before (plus, the oozing, crusting,

painful lesions)! For the first time in over 8 years, I actually make

plans to go out. Before, either I looked like a monster, or, I'd

never know when a bad flair would happen. (And wearing street clothes

was unbearable!)

What is you daughter on. Any meds.? Keep in touch...

Marie

[Guest guest]

Marie: What is the maximum dosage? I met a woman the other day who is on 450

mg every other week. (I think that's what it was--somewhere in the back of my

mind I want to say she told me it was 475, but I'm not sure of that). I

remember thinking that was very high dosage....maybe not. She had only been on

xolair for about two months but said she could already tell the difference.

Adah

marieruffolo <marieruffolo@...> wrote:

--- In , " gigles_1955 " <fgigles55@...>

wrote:

>

> Hi Marie,

> I joined this group because I am trying to decide about using

xolair

> for my allergic asthma.

> I saw your post and it struck a cord wwith me. My IgE is only 39

> but because I tested positive to so many things(outdoor environment)

> and my asthma isn't controled my doctor put into my ins. for

approval

> of xolair. To my surprise it has been approved. My daughter(16)

also

> has asthma but under control right now. She has atopic derm

(allergic

> eczema), hives, broke out and itchy all the time, and Ige of almost

> 6,000. Our insurance won't approve her because her asthma is under

> control. I have heard from a few people that it does help allergic

> eczema, but not approved by FDA for it. Doesn't xolair stop the

same

> mast cells in asthma and eczema? I don't get why it is approved for

> one but not the other. I almost feel guilty that I got the ok for

it

> but my daughter has been suffering for years(hives, itching, rash)

and

> they say no.

> I am glad xolair has helped bring your IgE down. I hope your

eczema

> is better from its use.

> Sorry about the vent but it is so frustrating. jean

>

> Hi Jean!

We can all appreciate your frustration. I had felt the same way. I

figured as you did; if it helps with Athsma, it's gotta help with the

Eczema. The priority with athsma, obviously, is that it could be life

threatening. With eczema, it's quality of life and suffering

(although the meds could have serious side effects). I'm sure it will

be approved one day, but when, who knows? Like I said, thank God my

GP got it for me (I do have asthma, but Eczema was worse). Now, I

wish the maximum dose would be increased. I bet most of us could

discontinue our other medications. When I look back only 8 months

ago... there were days...I never thought I would make it. Even now, I

still itch, but nothing like before (plus, the oozing, crusting,

painful lesions)! For the first time in over 8 years, I actually make

plans to go out. Before, either I looked like a monster, or, I'd

never know when a bad flair would happen. (And wearing street clothes

was unbearable!)

What is you daughter on. Any meds.? Keep in touch...

Marie

---------------------------------

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[Guest guest]

-Hi Marie,

I am so happy you are going out. People without Eczema don't get

how a simple thing like going out is. I ended up taking my daughter

out of school this year because she was breaking out all over in hives

and on a lot of meds. that make her tired and also being picked on by

a group of pears. The school wouldn't help so I saw it as my only

alternative for this year. Right now she is taking zyflo, xyzal,

aterax(hydroyxine) doxepin(antidepresant but used for itching with

hives) as well as her asthma meds. albuterol and advair discus. She

was diag. wtih hypothyroid this past Jan. so she is on synthroid as

well. With all these meds you think her skin would be clear and itch

free but its not. The good thing is her hives are gone(pop up now and

then but not as bad).

Have fun on your outing. I will let you know what I decide to do.

Right now I am 90% sure I am going to go with xolair. I do fear a

reaction. My shots have to be done in the drs. office per my

insurance co. but they give me an epi pen just in case I have a

reaction later at home.

Take care of yourself and thank you again(and this group for all

your help. I am so happy I found you,. Jean

> >

> > Hi Marie,

> > I joined this group because I am trying to decide about using

> xolair

> > for my allergic asthma.

> > I saw your post and it struck a cord wwith me. My IgE is only 39

> > but because I tested positive to so many things(outdoor environment)

> > and my asthma isn't controled my doctor put into my ins. for

> approval

> > of xolair. To my surprise it has been approved. My daughter(16)

> also

> > has asthma but under control right now. She has atopic derm

> (allergic

> > eczema), hives, broke out and itchy all the time, and Ige of almost

> > 6,000. Our insurance won't approve her because her asthma is under

> > control. I have heard from a few people that it does help allergic

> > eczema, but not approved by FDA for it. Doesn't xolair stop the

> same

> > mast cells in asthma and eczema? I don't get why it is approved for

> > one but not the other. I almost feel guilty that I got the ok for

> it

> > but my daughter has been suffering for years(hives, itching, rash)

> and

> > they say no.

> > I am glad xolair has helped bring your IgE down. I hope your

> eczema

> > is better from its use.

> > Sorry about the vent but it is so frustrating. jean

> >

> > Hi Jean!

> We can all appreciate your frustration. I had felt the same way. I

> figured as you did; if it helps with Athsma, it's gotta help with the

> Eczema. The priority with athsma, obviously, is that it could be life

> threatening. With eczema, it's quality of life and suffering

> (although the meds could have serious side effects). I'm sure it will

> be approved one day, but when, who knows? Like I said, thank God my

> GP got it for me (I do have asthma, but Eczema was worse). Now, I

> wish the maximum dose would be increased. I bet most of us could

> discontinue our other medications. When I look back only 8 months

> ago... there were days...I never thought I would make it. Even now, I

> still itch, but nothing like before (plus, the oozing, crusting,

> painful lesions)! For the first time in over 8 years, I actually make

> plans to go out. Before, either I looked like a monster, or, I'd

> never know when a bad flair would happen. (And wearing street clothes

> was unbearable!)

>

> What is you daughter on. Any meds.? Keep in touch...

> Marie

>

[Guest guest]

--- In , " gigles_1955 " <fgigles55@...>

wrote:

>I am delighted that others are experiencing excema relief from

Xolair injections. I too have less excema iussues after 2 years of

injections. Off label treatments are common. Pepto bismal applied to

herpes breakout is an off label treatment that few know about. Xolair

will change your life. If you can control your asthma without it ,

terrific. Whatever it takes.

> -Hi Marie,

> I am so happy you are going out. People without Eczema don't get

> how a simple thing like going out is. I ended up taking my daughter

> out of school this year because she was breaking out all over in

hives

> and on a lot of meds. that make her tired and also being picked on

by

> a group of pears. The school wouldn't help so I saw it as my only

> alternative for this year. Right now she is taking zyflo, xyzal,

> aterax(hydroyxine) doxepin(antidepresant but used for itching with

> hives) as well as her asthma meds. albuterol and advair discus. She

> was diag. wtih hypothyroid this past Jan. so she is on synthroid as

> well. With all these meds you think her skin would be clear and

itch

> free but its not. The good thing is her hives are gone(pop up now

and

> then but not as bad).

> Have fun on your outing. I will let you know what I decide to

do.

> Right now I am 90% sure I am going to go with xolair. I do fear a

> reaction. My shots have to be done in the drs. office per my

> insurance co. but they give me an epi pen just in case I have a

> reaction later at home.

> Take care of yourself and thank you again(and this group for all

> your help. I am so happy I found you,. Jean

> > >

> > > Hi Marie,

> > > I joined this group because I am trying to decide about using

> > xolair

> > > for my allergic asthma.

> > > I saw your post and it struck a cord wwith me. My IgE is

only 39

> > > but because I tested positive to so many things(outdoor

environment)

> > > and my asthma isn't controled my doctor put into my ins. for

> > approval

> > > of xolair. To my surprise it has been approved. My daughter

(16)

> > also

> > > has asthma but under control right now. She has atopic derm

> > (allergic

> > > eczema), hives, broke out and itchy all the time, and Ige of

almost

> > > 6,000. Our insurance won't approve her because her asthma is

under

> > > control. I have heard from a few people that it does help

allergic

> > > eczema, but not approved by FDA for it. Doesn't xolair stop

the

> > same

> > > mast cells in asthma and eczema? I don't get why it is

approved for

> > > one but not the other. I almost feel guilty that I got the ok

for

> > it

> > > but my daughter has been suffering for years(hives, itching,

rash)

> > and

> > > they say no.

> > > I am glad xolair has helped bring your IgE down. I hope your

> > eczema

> > > is better from its use.

> > > Sorry about the vent but it is so frustrating. jean

> > >

> > > Hi Jean!

> > We can all appreciate your frustration. I had felt the same way.

I

> > figured as you did; if it helps with Athsma, it's gotta help with

the

> > Eczema. The priority with athsma, obviously, is that it could be

life

> > threatening. With eczema, it's quality of life and suffering

> > (although the meds could have serious side effects). I'm sure it

will

> > be approved one day, but when, who knows? Like I said, thank God

my

> > GP got it for me (I do have asthma, but Eczema was worse). Now, I

> > wish the maximum dose would be increased. I bet most of us could

> > discontinue our other medications. When I look back only 8 months

> > ago... there were days...I never thought I would make it. Even

now, I

> > still itch, but nothing like before (plus, the oozing, crusting,

> > painful lesions)! For the first time in over 8 years, I actually

make

> > plans to go out. Before, either I looked like a monster, or, I'd

> > never know when a bad flair would happen. (And wearing street

clothes

> > was unbearable!)

> >

> > What is you daughter on. Any meds.? Keep in touch...

> > Marie

> >

>

[Guest guest]

--- In , Adah Voigt <asthmatic50@...>

wrote:

>

> Marie: What is the maximum dosage? I met a woman the other day

who

is on 450 mg every other week. (I think that's what it was--

somewhere

in the back of my mind I want to say she told me it was 475, but I'm

not sure of that). I remember thinking that was very high

dosage....maybe not. She had only been on xolair for about two

months

but said she could already tell the difference.

>

> Adah

>

> Adah:

I'm under the impression Xolair allows up to 375 mgs. every two

weeks.

I could be wrong. If I am, I want a mega dose:-) (OK. I'm confessing.

I NEVER throw away the 75mg. So, I really take a 450 dose, but I

haven't told my Doc yet.)

And, I have had NO side effects from Xolair. Sometimes the

shots hurt a little, sometimes not. Depends on " the angle " . After a

while, it's not a " big deal " . Definately worth it for you And your

daughter (I don't know how young Xolair patients are). Like I said, I

still itch, but nowhere as near as before (would like to someday be

itch free). My asthma is also definately better. Hardly use the

albuterol anymore.

Oh, typical, the last time I went for shots, I thought I was due to

be pickup more (delivered to Doc's). Just as I was ready to check

into it, I got a notice from Curascript (who's been excellent), that

my insurance company (Oxford) needed doctor's notes and a plan before

sending me more! I hope the insurance company moves quickly (ha, ha).

I'm due in 3 days for shots and no Xolair thus far. I want to

scream!!!

Marie

[Guest guest]

There is/are a very small number of people on a dosage higher than

the recognized maximum of 375mg every two weeks. It's my

understanding that these folks have either very extreme high IgE

levels - way off the radar - and/or are very obese. We had a couple

of postings in the first year from a couple of folks in this category.

Addy

Group co-owner

> >

> > Marie: What is the maximum dosage? I met a woman the other day

> who

> is on 450 mg every other week. (I think that's what it was--

> somewhere

> in the back of my mind I want to say she told me it was 475, but

I'm

> not sure of that). I remember thinking that was very high

> dosage....maybe not. She had only been on xolair for about two

> months

> but said she could already tell the difference.

> >

> > Adah

> >

> > Adah:

>

> I'm under the impression Xolair allows up to 375 mgs. every two

> weeks.

> I could be wrong. If I am, I want a mega dose:-) (OK. I'm

confessing.

> I NEVER throw away the 75mg. So, I really take a 450 dose, but I

> haven't told my Doc yet.)

>

> And, I have had NO side effects from Xolair. Sometimes the

> shots hurt a little, sometimes not. Depends on " the angle " . After a

> while, it's not a " big deal " . Definately worth it for you And your

> daughter (I don't know how young Xolair patients are). Like I said,

I

> still itch, but nowhere as near as before (would like to someday be

> itch free). My asthma is also definately better. Hardly use the

> albuterol anymore.

>

> Oh, typical, the last time I went for shots, I thought I was due to

> be pickup more (delivered to Doc's). Just as I was ready to check

> into it, I got a notice from Curascript (who's been excellent),

that

> my insurance company (Oxford) needed doctor's notes and a plan

before

> sending me more! I hope the insurance company moves quickly (ha,

ha).

> I'm due in 3 days for shots and no Xolair thus far. I want to

> scream!!!

> Marie

>

[Guest guest]

Hi, I am on 450 mg every two weeks. My IgE levels were around 6,000 when I

started

Xolair a year and one month ago. I am seeing a specialist at Yale and he said

my dose was

in the experimental range - that two shots (150 mg each) every two weeks was

the high

end recommended by Novartis. It has taken a number of months being on Xolair to

get

significant relief from my asthma - but thank god its working. Hope this answer

helps. I

also understood that I might be able to reduce my dosage at some point but the

Dr. Says I

will probably be on this dose for the rest of my life.

Anne

> >

> > Marie: What is the maximum dosage? I met a woman the other day

> who

> is on 450 mg every other week. (I think that's what it was--

> somewhere

> in the back of my mind I want to say she told me it was 475, but I'm

> not sure of that). I remember thinking that was very high

> dosage....maybe not. She had only been on xolair for about two

> months

> but said she could already tell the difference.

> >

> > Adah

> >

> > Adah:

>

> I'm under the impression Xolair allows up to 375 mgs. every two

> weeks.

> I could be wrong. If I am, I want a mega dose:-) (OK. I'm confessing.

> I NEVER throw away the 75mg. So, I really take a 450 dose, but I

> haven't told my Doc yet.)

>

> And, I have had NO side effects from Xolair. Sometimes the

> shots hurt a little, sometimes not. Depends on " the angle " . After a

> while, it's not a " big deal " . Definately worth it for you And your

> daughter (I don't know how young Xolair patients are). Like I said, I

> still itch, but nowhere as near as before (would like to someday be

> itch free). My asthma is also definately better. Hardly use the

> albuterol anymore.

>

> Oh, typical, the last time I went for shots, I thought I was due to

> be pickup more (delivered to Doc's). Just as I was ready to check

> into it, I got a notice from Curascript (who's been excellent), that

> my insurance company (Oxford) needed doctor's notes and a plan before

> sending me more! I hope the insurance company moves quickly (ha, ha).

> I'm due in 3 days for shots and no Xolair thus far. I want to

> scream!!!

> Marie

>

[Guest guest]

I wrote earlier that my doctor has not reduced my dosage, but has extended the

time in between shots to one every six weeks. I have been doing very well, but

my Ige was barely above the minimum required for getting the xolair. Mine has

been fairly well under control unless I developed a respiratory infection and

then the asthma would flair up as well. Occasionally I would have an episode

where I would just have asthma--no infection, not even sinus rhinitus and would

have to take prednisone. I have not had to take prednisone nor antibiotics

since Jan. of 2006, nor have I had sinus rhinitus that resulted in an infection

since January of 2006. So the xolair has definitely helped, even though I have

been on the lowest dose and every four weeks.

I'm glad you have seen results from the xolair! I hope it keeps on working for

you and that you can reduce it sometime in the future. Oh-one other thing...for

the first time since I have been on xolair the doc has suggested to my regular

allergist that my advair also be reduced just to see how I will do. Because of

earlier lung damage I will always have to take some asthma medicine.

From: magnuson.mary <magnuson.mary@...>

Subject: [ ] Re: Excema, hives and Xolair

Date: Sunday, March 23, 2008, 4:11 PM

Hi, I am on 450 mg every two weeks. My IgE levels were around 6,000 when I

started

Xolair a year and one month ago. I am seeing a specialist at Yale and he said my

dose was

in the experimental range - that two shots (150 mg each) every two weeks was the

high

end recommended by Novartis. It has taken a number of months being on Xolair to

get

significant relief from my asthma - but thank god its working. Hope this answer

helps. I

also understood that I might be able to reduce my dosage at some point but the

Dr. Says I

will probably be on this dose for the rest of my life.

Anne

> >

> > Marie: What is the maximum dosage? I met a woman the other day

> who

> is on 450 mg every other week. (I think that's what it was--

> somewhere

> in the back of my mind I want to say she told me it was 475, but I'm

> not sure of that). I remember thinking that was very high

> dosage....maybe not. She had only been on xolair for about two

> months

> but said she could already tell the difference.

> >

> > Adah

> >

> > Adah:

>

> I'm under the impression Xolair allows up to 375 mgs. every two

> weeks.

> I could be wrong. If I am, I want a mega dose:-) (OK. I'm confessing.

> I NEVER throw away the 75mg. So, I really take a 450 dose, but I

> haven't told my Doc yet.)

>

> And, I have had NO side effects from Xolair. Sometimes the

> shots hurt a little, sometimes not. Depends on " the angle " . After a

> while, it's not a " big deal " . Definately worth it for you And your

> daughter (I don't know how young Xolair patients are). Like I said, I

> still itch, but nowhere as near as before (would like to someday be

> itch free). My asthma is also definately better. Hardly use the

> albuterol anymore.

>

> Oh, typical, the last time I went for shots, I thought I was due to

> be pickup more (delivered to Doc's). Just as I was ready to check

> into it, I got a notice from Curascript (who's been excellent), that

> my insurance company (Oxford) needed doctor's notes and a plan before

> sending me more! I hope the insurance company moves quickly (ha, ha).

> I'm due in 3 days for shots and no Xolair thus far. I want to

> scream!!!

> Marie

>

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[Guest guest]

Doug and I each get 375mg every two weeks, which is the high

recommended dosage. We've had a couple of other folks like on

450mg. , we're glad you're starting to see improvement.

My doc also says I'm stuck with this until the next big thing comes

along.

Take care,

Addy

Group co-owner

> > >

> > > Marie: What is the maximum dosage? I met a woman the other

day

> > who

> > is on 450 mg every other week. (I think that's what it was--

> > somewhere

> > in the back of my mind I want to say she told me it was 475, but

I'm

> > not sure of that). I remember thinking that was very high

> > dosage....maybe not. She had only been on xolair for about two

> > months

> > but said she could already tell the difference.

> > >

> > > Adah

> > >

> > > Adah:

> >

> > I'm under the impression Xolair allows up to 375 mgs. every two

> > weeks.

> > I could be wrong. If I am, I want a mega dose:-) (OK. I'm

confessing.

> > I NEVER throw away the 75mg. So, I really take a 450 dose, but I

> > haven't told my Doc yet.)

> >

> > And, I have had NO side effects from Xolair. Sometimes the

> > shots hurt a little, sometimes not. Depends on " the angle " . After

a

> > while, it's not a " big deal " . Definately worth it for you And

your

> > daughter (I don't know how young Xolair patients are). Like I

said, I

> > still itch, but nowhere as near as before (would like to someday

be

> > itch free). My asthma is also definately better. Hardly use the

> > albuterol anymore.

> >

> > Oh, typical, the last time I went for shots, I thought I was due

to

> > be pickup more (delivered to Doc's). Just as I was ready to check

> > into it, I got a notice from Curascript (who's been excellent),

that

> > my insurance company (Oxford) needed doctor's notes and a plan

before

> > sending me more! I hope the insurance company moves quickly (ha,

ha).

> > I'm due in 3 days for shots and no Xolair thus far. I want to

> > scream!!!

> > Marie

> >

>