Guest guest Posted August 17, 2003 Report Share Posted August 17, 2003 Patty i know my mom was told a few years ago that she had it. I know she was having some irregular heartbeats and then she was feeling short of breath and thought it was maybe anxiety related but it turned out to be MVP. I think that she has the least serious type. I know that some people really have problems with it. Anyhow I hope you don't have it but if it turns out that you do I don't think it is hard to live with. It really does not affect my mom much. hugs In , " *~Patty~* " <fdp@l...> wrote: > Has anyone here been diagnosed with Mitral valve prolapse? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2003 Report Share Posted August 17, 2003 I have no idea if I have it or not, but I have had palpitations on and off for the past month or so, and I also read that Shomon, (who wrote the book on hypothyroidism--she has Hashimoto's) has it too. I'm just curious. I have never had my heart checked out, never been to a cardiologist before. I guess I was wondering if some of the others here with Hashimoto's or thyroid problems have been checked out too. I think there are issues with our implants possibly affecting our hearts, as I have heard a few women discussing heart issues lately after getting ill from implants, (and there was that one lady who had heart problems come up yet she denied associating it with her implants.) I'll have to ask my mom if she has it, as she has had a problem with a racing heart and palpitations too. ----- Original Message ----- From: naturalbeauty38 Sent: Sunday, August 17, 2003 9:20 AM Subject: Re: MVP Patty i know my mom was told a few years ago that she had it. I know she was having some irregular heartbeats and then she was feeling short of breath and thought it was maybe anxiety related but it turned out to be MVP. I think that she has the least serious type. I know that some people really have problems with it. Anyhow I hope you don't have it but if it turns out that you do I don't think it is hard to live with. It really does not affect my mom much.hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2007 Report Share Posted April 14, 2007 Hypermobility is hyper mobile joints, myopia is nearsightedness and pectus excavatum is sunken chest. Yes, CoQ10 is good for the heart, as is Rybos, taurine and carnitine. I have my dog with heart disease on all of them now -- at my ND's recommendation. Kenda > Kenda ... > > I seem to be falling into this category ... what is ... > > hypermobility, myopia, pectus excavatum, TMJ ? > > I have scoliosis, wound healing problems .. I've heard about this condition > some years ago ... I just put out of my head. But the thing is, if you can > categorize your problem ... the question is, can I do something about it? I > am taking CoQ10 (that's good for heart). > > LCL > > --------- Re: Heart Abnormalities >> >> >> Yes, that's what I was told too. I'm having the Echo to be sure it is a >> small abnormality and not a big one. >> >> Here is a little blurb about small breasts: >> >> Question: I have heard that there is a condition known as Mitral Valve >> Prolapse Syndrome, which includes symptoms including anxiety, irritable >> bowel syndrome, migraine headaches and extreme fatigue. Is Mitral Valve >> Prolapse Syndrome a recognized and medically accepted syndrome and, if so, >> could my " saggy " valve cause the Syndrome? >> >> Answer: MVP has been described for years and about 10% of women do have >> MVP. >> It seems that the connective tissue throughout the body is " different " and >> the MVP is only one manifestation of this genetic variation. Migraine >> headaches and irritable bowel are not part of this syndrome. The valve >> does >> not cause the systemic problems seen with MVP, rather different connective >> tissue does. Anxiety, fast heart beats, excessive response to caffeine and >> like drugs, hyperextendable joints, a tendency to small breasts are part >> of >> the syndrome. >> >> Kenda >> >>> Hi ... >>> >>> When I had my lumpectomy for breast cancer about 2 years ago, the surgeon >>> said >>> I have irregular hearts beats (I am small breasted also). She said that a >>> high percent of the people that she sees has small abnormalities ... she >>> said >>> it's pretty normal. >>> >>> LCL >>> >>> -------------- Original message -------------- >>> From: Kenda Skaggs <lovesgoldens@...> >>> Nan, >>> >>> I had the same thing happen to me yesterday at my doctor appointment. I had >>> a systolic click and some irregularities on an EKG and am having an Echo in >>> a couple of weeks. No one has ever told me that I have a murmur or other >>> heart problem. The doc did tell me that some heart problems are more common >>> with small breasted women! I was never implanted. >>> >>> Kenda >>> >>>> Beth. No I have never had anyone tell me this so I was shocked, and >>>> to hear it on the echocardio test was sort of scary. I have NO idea >>>> what is going on. I am three months post explant, never had the >>>> heart thing until about two months ago, so I am just clueless. Dr >>>> Kolb told me to check my heart. But I did not ask more about it. I >>>> am going back to see her in two weeks. I am glad yours went away. >>>> I have been so miserable for two months, mine is constant now. Nan >>>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> >>>> >>>>>> >>>>>> you have calmed so much through this! My echo today did show I >>>> have >>>>> a >>>>>> loud heart murmur and it was very irregular. My thyroid is very >>>>>> sore. So just like you, those implants have really taken me >>>> down! >>>>>> But I am still here, and you are amazing. I am actually looking >>>>>> forward to getting this all taken care of because I have >>>> worsened >>>>> with >>>>>> the pounding heart and trouble breathing. I would love to get >>>> rid of >>>>>> this! My appt is monday morning with the cardiologist and I >>>> will let >>>>>> you know. Thanks again for all your help and support. Nan >>>>>> >>>>> >>>> >>>> >>> >>> >>> >> >> >> >> >> >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 JoyCarol, Sorry you are having a bit of a hassle. Some general info you MAY be interested in learning about If you are having problems affording Xolair or your co-pay/deductible contact SPOC through Xolair. http://www.xolair.com/index.jsp http://www.xolair.com/patient/reimbursement_information.jsp Another good thing for any one on Xolair, who has not already done so, is to enroll in Xpansions. https://www.xpansions.com/splash.jsp Good luck!! Kathe --- JoyCarol and <jclutterbuster@...> wrote: > I live in upstate NY and I switched my insurance > from regular Medicare > to MVP Gold. When I enrolled, I was told my Xolair > injections would > be covered and it would cost me $15 for office visit > and $15 for > serum. I just got a call from the curascript rep, > and if I understood > her correctly MVP will cover $237 and I have to pay > $270 (or maybe I > have them switched) until I reach the $4,000 limit. > It's 5pm on a > Friday and of course I can't reach anyone at the > insurance so I told > them not to send any serum - I wasn't authorizing > anything. > > Is there anyone out there getting Xolair and they > are on MVP gold and > what is the arrangement and cost? > > Also, before I try and switch my insurance back to > straight Medicare, > can someone tell me simply what Medicare is covering > this year - I > hear its different than last year. > > I've had six injections and am due for my seventh, > last year through > Medicare it cost me $100.07 a month out of my > pocket. My only income > is $10,000 year Social Security Disability, I don't > think I am going > to be able to continue the injections if they are > going to cost me > over $200 a month. > > ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 I called Medicare earlier this month to clarify my coverage for Xolair because my Part D Prescription plan (AARP United) is covering Xolair for the first time but with a 33% copay. Medicare told me Xolair is still covered under Part B with a 20% copay as before and I could choose which way to cover my Xolair. Naturally, I'm continuing to receive it under Part B because of the lower copay than my prescription plan. My copay has been about $100 for one 150mg vial every 4 weeks. Your MVP plan sounds like it used the bait and switch tactic. You might considering reporting that to Medicare. I hope your switch back to straight Medicare goes quickly and smoothly. Fran > > I live in upstate NY and I switched my insurance from regular Medicare > to MVP Gold. When I enrolled, I was told my Xolair injections would > be covered and it would cost me $15 for office visit and $15 for > serum. I just got a call from the curascript rep, and if I understood > her correctly MVP will cover $237 and I have to pay $270 (or maybe I > have them switched) until I reach the $4,000 limit. It's 5pm on a > Friday and of course I can't reach anyone at the insurance so I told > them not to send any serum - I wasn't authorizing anything. > > Is there anyone out there getting Xolair and they are on MVP gold and > what is the arrangement and cost? > > Also, before I try and switch my insurance back to straight Medicare, > can someone tell me simply what Medicare is covering this year - I > hear its different than last year. > > I've had six injections and am due for my seventh, last year through > Medicare it cost me $100.07 a month out of my pocket. My only income > is $10,000 year Social Security Disability, I don't think I am going > to be able to continue the injections if they are going to cost me > over $200 a month. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 I have Medicare and BCBS which combined pay 100% - however, the BCBS costs $148.50 per month - there are less expensive versions - but I don't know if they'll cover Xolair - it might be worth checking. ----- Original Message ----- From: JoyCarol and Sent: Friday, January 18, 2008 5:15 PM Subject: [ ] MVP I live in upstate NY and I switched my insurance from regular Medicare to MVP Gold. When I enrolled, I was told my Xolair injections would be covered and it would cost me $15 for office visit and $15 for serum. I just got a call from the curascript rep, and if I understood her correctly MVP will cover $237 and I have to pay $270 (or maybe I have them switched) until I reach the $4,000 limit. It's 5pm on a Friday and of course I can't reach anyone at the insurance so I told them not to send any serum - I wasn't authorizing anything. Is there anyone out there getting Xolair and they are on MVP gold and what is the arrangement and cost? Also, before I try and switch my insurance back to straight Medicare, can someone tell me simply what Medicare is covering this year - I hear its different than last year. I've had six injections and am due for my seventh, last year through Medicare it cost me $100.07 a month out of my pocket. My only income is $10,000 year Social Security Disability, I don't think I am going to be able to continue the injections if they are going to cost me over $200 a month. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 Terry: Is that $148.50 for just you or for you and your spouse? We have GEHA supplemental and pay $155 a month for husband and wife. We pay nothing for my xolair shots ( which I have outlined in an earlier email.) We have been very happy with GEHA and when other insurance providers call and want us to consider them, they hang up when I say GEHA! Hope everything works out for you, JoyCarol, and that you can get back on the xolair very soon. Adah Terry <onabeach@...> wrote: I have Medicare and BCBS which combined pay 100% - however, the BCBS costs $148.50 per month - there are less expensive versions - but I don't know if they'll cover Xolair - it might be worth checking. ----- Original Message ----- From: JoyCarol and Sent: Friday, January 18, 2008 5:15 PM Subject: [ ] MVP I live in upstate NY and I switched my insurance from regular Medicare to MVP Gold. When I enrolled, I was told my Xolair injections would be covered and it would cost me $15 for office visit and $15 for serum. I just got a call from the curascript rep, and if I understood her correctly MVP will cover $237 and I have to pay $270 (or maybe I have them switched) until I reach the $4,000 limit. It's 5pm on a Friday and of course I can't reach anyone at the insurance so I told them not to send any serum - I wasn't authorizing anything. Is there anyone out there getting Xolair and they are on MVP gold and what is the arrangement and cost? Also, before I try and switch my insurance back to straight Medicare, can someone tell me simply what Medicare is covering this year - I hear its different than last year. I've had six injections and am due for my seventh, last year through Medicare it cost me $100.07 a month out of my pocket. My only income is $10,000 year Social Security Disability, I don't think I am going to be able to continue the injections if they are going to cost me over $200 a month. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 Adah, unfortunately that's for me only. My wife's supplementary is with AARP/United and costs about the same. What is GEHA? Sounds like something from GE, maybe. Wife's LTC ins. is with GE. Ohldepharte ----- Original Message ----- From: Adah Voigt Sent: Saturday, January 19, 2008 1:02 PM Subject: Re: [ ] MVP Terry: Is that $148.50 for just you or for you and your spouse? We have GEHA supplemental and pay $155 a month for husband and wife. We pay nothing for my xolair shots ( which I have outlined in an earlier email.) We have been very happy with GEHA and when other insurance providers call and want us to consider them, they hang up when I say GEHA! Hope everything works out for you, JoyCarol, and that you can get back on the xolair very soon. Adah Terry <onabeach@...> wrote: I have Medicare and BCBS which combined pay 100% - however, the BCBS costs $148.50 per month - there are less expensive versions - but I don't know if they'll cover Xolair - it might be worth checking. ----- Original Message ----- From: JoyCarol and Sent: Friday, January 18, 2008 5:15 PM Subject: [ ] MVP I live in upstate NY and I switched my insurance from regular Medicare to MVP Gold. When I enrolled, I was told my Xolair injections would be covered and it would cost me $15 for office visit and $15 for serum. I just got a call from the curascript rep, and if I understood her correctly MVP will cover $237 and I have to pay $270 (or maybe I have them switched) until I reach the $4,000 limit. It's 5pm on a Friday and of course I can't reach anyone at the insurance so I told them not to send any serum - I wasn't authorizing anything. Is there anyone out there getting Xolair and they are on MVP gold and what is the arrangement and cost? Also, before I try and switch my insurance back to straight Medicare, can someone tell me simply what Medicare is covering this year - I hear its different than last year. I've had six injections and am due for my seventh, last year through Medicare it cost me $100.07 a month out of my pocket. My only income is $10,000 year Social Security Disability, I don't think I am going to be able to continue the injections if they are going to cost me over $200 a month. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 My husband was a letter carrier and had Government Employees Health Assoc. Insurance. For the coverage it was and has been the cheapest. He kept the coverage after he retired. As long as I was working my insurance premium was paid for me as a part of our benefit package. Before I retired we added me to his GEHA policy so I had continuous coverage and at 65 I began using medicare as my primary insurance. We are very fortunate we know! Not only has all of my xolair been covered, my husband had double by-pass surgery three years ago, had a private room for intensive care and stayed in the same room until he was dismissed and we did not pay one cent on any part of his surgery or hospital bill! Again, we realize how very fortunate we are--even if my co-pay for the other medicine is close to $500 a month..... Terry <onabeach@...> wrote: Adah, unfortunately that's for me only. My wife's supplementary is with AARP/United and costs about the same. What is GEHA? Sounds like something from GE, maybe. Wife's LTC ins. is with GE. Ohldepharte ----- Original Message ----- From: Adah Voigt Sent: Saturday, January 19, 2008 1:02 PM Subject: Re: [ ] MVP Terry: Is that $148.50 for just you or for you and your spouse? We have GEHA supplemental and pay $155 a month for husband and wife. We pay nothing for my xolair shots ( which I have outlined in an earlier email.) We have been very happy with GEHA and when other insurance providers call and want us to consider them, they hang up when I say GEHA! Hope everything works out for you, JoyCarol, and that you can get back on the xolair very soon. Adah Terry <onabeach@...> wrote: I have Medicare and BCBS which combined pay 100% - however, the BCBS costs $148.50 per month - there are less expensive versions - but I don't know if they'll cover Xolair - it might be worth checking. ----- Original Message ----- From: JoyCarol and Sent: Friday, January 18, 2008 5:15 PM Subject: [ ] MVP I live in upstate NY and I switched my insurance from regular Medicare to MVP Gold. When I enrolled, I was told my Xolair injections would be covered and it would cost me $15 for office visit and $15 for serum. I just got a call from the curascript rep, and if I understood her correctly MVP will cover $237 and I have to pay $270 (or maybe I have them switched) until I reach the $4,000 limit. It's 5pm on a Friday and of course I can't reach anyone at the insurance so I told them not to send any serum - I wasn't authorizing anything. Is there anyone out there getting Xolair and they are on MVP gold and what is the arrangement and cost? Also, before I try and switch my insurance back to straight Medicare, can someone tell me simply what Medicare is covering this year - I hear its different than last year. I've had six injections and am due for my seventh, last year through Medicare it cost me $100.07 a month out of my pocket. My only income is $10,000 year Social Security Disability, I don't think I am going to be able to continue the injections if they are going to cost me over $200 a month. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 Hi, there. I am on disability for allergic asthma, and I pay $50.00 for 10 doses of 150 mg. Xolair...I take 2 injections twice a month, 4 injections a month total. I have United Healthcare, from Accredo health Group. -- In , Adah Voigt <asthmatic50@...> wrote: > > My husband was a letter carrier and had Government Employees Health Assoc. Insurance. For the coverage it was and has been the cheapest. He kept the coverage after he retired. As long as I was working my insurance premium was paid for me as a part of our benefit package. Before I retired we added me to his GEHA policy so I had continuous coverage and at 65 I began using medicare as my primary insurance. We are very fortunate we know! Not only has all of my xolair been covered, my husband had double by-pass surgery three years ago, had a private room for intensive care and stayed in the same room until he was dismissed and we did not pay one cent on any part of his surgery or hospital bill! Again, we realize how very fortunate we are--even if my co-pay for the other medicine is close to $500 a month..... > > Terry <onabeach@...> wrote: Adah, unfortunately that's for me only. My wife's supplementary is with AARP/United and costs about the same. What is GEHA? Sounds like something from GE, maybe. Wife's LTC ins. is with GE. > > Ohldepharte > > ----- Original Message ----- > From: Adah Voigt > > Sent: Saturday, January 19, 2008 1:02 PM > Subject: Re: [ ] MVP > > Terry: Is that $148.50 for just you or for you and your spouse? We have GEHA supplemental and pay $155 a month for husband and wife. We pay nothing for my xolair shots ( which I have outlined in an earlier email.) We have been very happy with GEHA and when other insurance providers call and want us to consider them, they hang up when I say GEHA! > > Hope everything works out for you, JoyCarol, and that you can get back on the xolair very soon. > > Adah > > Terry <onabeach@...> wrote: > I have Medicare and BCBS which combined pay 100% - however, the BCBS costs $148.50 per month - there are less expensive versions - but I don't know if they'll cover Xolair - it might be worth checking. > > ----- Original Message ----- > From: JoyCarol and > > Sent: Friday, January 18, 2008 5:15 PM > Subject: [ ] MVP > > I live in upstate NY and I switched my insurance from regular Medicare > to MVP Gold. When I enrolled, I was told my Xolair injections would > be covered and it would cost me $15 for office visit and $15 for > serum. I just got a call from the curascript rep, and if I understood > her correctly MVP will cover $237 and I have to pay $270 (or maybe I > have them switched) until I reach the $4,000 limit. It's 5pm on a > Friday and of course I can't reach anyone at the insurance so I told > them not to send any serum - I wasn't authorizing anything. > > Is there anyone out there getting Xolair and they are on MVP gold and > what is the arrangement and cost? > > Also, before I try and switch my insurance back to straight Medicare, > can someone tell me simply what Medicare is covering this year - I > hear its different than last year. > > I've had six injections and am due for my seventh, last year through > Medicare it cost me $100.07 a month out of my pocket. My only income > is $10,000 year Social Security Disability, I don't think I am going > to be able to continue the injections if they are going to cost me > over $200 a month. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2008 Report Share Posted January 22, 2008 Hi, again, I made a mistake in my last message...I receive 12 vials of Xolair 150 mg. for $50.00 co-pay, from Accredo, who works with United Healthcare. I think I wrote that I received 10. Just wanted to clear it up. My IgE level is 379, and I am really noticing a marked improvement in my breathing! Take care, Barb > I have Medicare and BCBS which combined pay 100% - however, the BCBS costs $148.50 per month - there are less expensive versions - but I don't know if they'll cover Xolair - it might be worth checking. > > ----- Original Message ----- > From: JoyCarol and > > Sent: Friday, January 18, 2008 5:15 PM > Subject: [ ] MVP > > I live in upstate NY and I switched my insurance from regular Medicare > to MVP Gold. When I enrolled, I was told my Xolair injections would > be covered and it would cost me $15 for office visit and $15 for > serum. I just got a call from the curascript rep, and if I understood > her correctly MVP will cover $237 and I have to pay $270 (or maybe I > have them switched) until I reach the $4,000 limit. It's 5pm on a > Friday and of course I can't reach anyone at the insurance so I told > them not to send any serum - I wasn't authorizing anything. > > Is there anyone out there getting Xolair and they are on MVP gold and > what is the arrangement and cost? > > Also, before I try and switch my insurance back to straight Medicare, > can someone tell me simply what Medicare is covering this year - I > hear its different than last year. > > I've had six injections and am due for my seventh, last year through > Medicare it cost me $100.07 a month out of my pocket. My only income > is $10,000 year Social Security Disability, I don't think I am going > to be able to continue the injections if they are going to cost me > over $200 a month. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2008 Report Share Posted April 6, 2008 Hi Jane, My Mom's cardiologist also told her it's no longer necessary to take antibiotics before dental work. I see my cardiologist next month, I'll be asking him about it. When you were taking LDN, did you try day time dosing at all...?? That's what I'm trying to see if it makes a difference. Jann Quote Link to comment Share on other sites More sharing options...
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