Re: Post from Pat about joint pain

[Guest guest]

Thank you for posting this. I just began Xolair; if I get benefits

like other users in this group, I'll endure any joint pains. An

improvement in breathing, thus lifestyle, will be so welcomed.

Jackie

>

> Our resident Xolair nurse has given me a response to the joint pain

> issue and told me to post it:

>

> Group,

>

> Joint pain has so many facets and factors...That being said, those

of

> us on evil candy & coming off will feel fatigue, joint pain, have

> swelling, maybe be lethargic (having no energy), have problems with

> glucose regulation and many more irritating problems. Chronic

steroid

> use causes bone necrosis (bone death) thats why so many asthmatics

> have hip & knee & other joint replacements. The barometric pressure

> can do a number on our lungs but also causes swelling in joints,

hence

> joint discomfort. More people complain of joint pain/discomfort in

> the Spring & Summer because of the barometric pressure swings.

Those

> of us who are not teenagers will have some degree of arthritis from

> joint damage from normal wear & tear on our bodies. Falling off

> roller skates, bicycles, swinging golf clubs, playing

basketball...all

> adds up over the years.

>

> So, for more reasons than I have listed, you could have joint pain.

> The mechanism of action with Xolair doesn't have any reason to cause

> joint pain. If you are experiencing joint pain and it is much worse

> than before you started Xolair, see a physician. If the pain is so

> bad it outweighs the benefits of Xolair speak to your physician

about

> stopping Xolair. Personally, I have asked this question to hundreds

> or thousands of Xolair users " Does this problem (whatever they

> complain about) cause enough psychological, physical or emotional

pain

> that you would think about stopping the Xolair when the benefits of

> its use outweigh the problem? " 99.9% of the people I ask that say

> " no " . Paraphrasing 'The benefit of Xolair & my life improvement on

> Xolair outweigh stopping it'. To them I say - " great, enough

said " .

> To the people I have had who stop Xolair for reasons other than

money,

> I say " I am sorry you see this problem as a reason to stop Xolair,

and

> I hope you find something that works as well or better for

you " , " New

> research is coming out all the time. "

>

> Xolair is a new generation of drug treatment. For moderately severe

> to severe asthmatics it is a way to stay out of the hospital, out

of

> the physicians office every week, a way to increase quality of life,

> and eventually decrease chronic medications. There will always be

> nay-sayers to anything. You are the only ones who can say " The

joint

> pain is more bothersome and taking an anti-inflammatory or something

> else the Physician prescribed is more psychologically upsetting than

> the benefit of the Xolair " . We are each adults and have to make up

> our own minds. Personally I see the benefits of Xolair many many

> times every day.

>

> By the way, Mothers against asthma, are the group that produced

> 'Asthma for Dummies' book. They have a website you may be able to

> order them from.

>

> Pat

>

[Guest guest]

one of the posts mentioned bone necrosis, what kind of

doctor would I go to for diagnosis? About five years

ago I popped my right knee and came down and struck my

left elbow. For months I couldn't straighten out the

arm, pt really helped and I regained full use and it

has been fine for over five years but about a month

ago it started to hurt REALLY BAD and now hurts all

time time, when I take a cup to my mouth to drink... I

can't lift a pitcher of juice or stir a pot with a

spoon. I have been on steroids constantly the past

two years and the pain is not going away even though

this week I'm on 60 mg and that should have dealt with

any inflammation. I am worried - what are the signs of

being septic (spelling) and why did this elbow start

to hurt me again a month ago? Luckily this pain was

bad before I start my xolair on July 17th.

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[Guest guest]

Joy, it's not possible to know what's going on without an exam and x-

rays. You need to see either your primary or your orthopedist ASAP,

whoever can get you in first. Please call right away to make the

appointement.

Fran

>

> one of the posts mentioned bone necrosis, what kind of

> doctor would I go to for diagnosis? About five years

> ago I popped my right knee and came down and struck my

> left elbow. For months I couldn't straighten out the

> arm, pt really helped and I regained full use and it

> has been fine for over five years but about a month

> ago it started to hurt REALLY BAD and now hurts all

> time time, when I take a cup to my mouth to drink... I

> can't lift a pitcher of juice or stir a pot with a

> spoon. I have been on steroids constantly the past

> two years and the pain is not going away even though

> this week I'm on 60 mg and that should have dealt with

> any inflammation. I am worried - what are the signs of

> being septic (spelling) and why did this elbow start

> to hurt me again a month ago? Luckily this pain was

> bad before I start my xolair on July 17th.

>

>

>

______________________________________________________________________

______________

> Luggage? GPS? Comic books?

> Check out fitting gifts for grads at Search

> http://search./search?

fr=oni_on_mail & p=graduation+gifts & cs=bz

>

[Guest guest]

Go to your PCP who can send you for appropriate scans.

I have not heard of many cases of elbow necrosis.

Sounds like a tendonitis which can be very painful.

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