Post from Pat about joint pain

[Guest guest]

Our resident Xolair nurse has given me a response to the joint pain

issue and told me to post it:

Group,

Joint pain has so many facets and factors...That being said, those of

us on evil candy & coming off will feel fatigue, joint pain, have

swelling, maybe be lethargic (having no energy), have problems with

glucose regulation and many more irritating problems. Chronic steroid

use causes bone necrosis (bone death) thats why so many asthmatics

have hip & knee & other joint replacements. The barometric pressure

can do a number on our lungs but also causes swelling in joints, hence

joint discomfort. More people complain of joint pain/discomfort in

the Spring & Summer because of the barometric pressure swings. Those

of us who are not teenagers will have some degree of arthritis from

joint damage from normal wear & tear on our bodies. Falling off

roller skates, bicycles, swinging golf clubs, playing basketball...all

adds up over the years.

So, for more reasons than I have listed, you could have joint pain.

The mechanism of action with Xolair doesn't have any reason to cause

joint pain. If you are experiencing joint pain and it is much worse

than before you started Xolair, see a physician. If the pain is so

bad it outweighs the benefits of Xolair speak to your physician about

stopping Xolair. Personally, I have asked this question to hundreds

or thousands of Xolair users " Does this problem (whatever they

complain about) cause enough psychological, physical or emotional pain

that you would think about stopping the Xolair when the benefits of

its use outweigh the problem? " 99.9% of the people I ask that say

" no " . Paraphrasing 'The benefit of Xolair & my life improvement on

Xolair outweigh stopping it'. To them I say - " great, enough said " .

To the people I have had who stop Xolair for reasons other than money,

I say " I am sorry you see this problem as a reason to stop Xolair, and

I hope you find something that works as well or better for you " , " New

research is coming out all the time. "

Xolair is a new generation of drug treatment. For moderately severe

to severe asthmatics it is a way to stay out of the hospital, out of

the physicians office every week, a way to increase quality of life,

and eventually decrease chronic medications. There will always be

nay-sayers to anything. You are the only ones who can say " The joint

pain is more bothersome and taking an anti-inflammatory or something

else the Physician prescribed is more psychologically upsetting than

the benefit of the Xolair " . We are each adults and have to make up

our own minds. Personally I see the benefits of Xolair many many

times every day.

By the way, Mothers against asthma, are the group that produced

'Asthma for Dummies' book. They have a website you may be able to

order them from.

Pat