Guest guest Posted October 8, 2007 Report Share Posted October 8, 2007 : Compared to you, I'm in great shape. I'm so sorry to hear about the severity of your asthma. Puts mine in perspective. I hope Xolair eventually gets you off the evil candy. cheers, Lin > > > Greetings. I am brand new to this group. My > > allergist yesterday > > recommended that I participate in a new Xolair > > research study. It > > focuses on whether the drug allows Advair 500mg > > patients, such as > > myself, to stop using steroid inhalants. > > > > I have tremendous respect for my allergist. She is > > connected with > > s Hopkins Medical Center, and was the first one > > who diagnosed and > > properly treated my lifelong asthma (which had been > > repeatedly > > misdiagnosed, from infancy, as chronic bronchitis). > > > > But I am leery of the newness of this drug, along > > with the > > anaphylactic and cancer cases that have prompted the > > FDA black box > > warnings. > > > > My allergist gave me a detailed analysis of the > > research on those > > problems so far. She thinks both side effects have > > been exaggerated. > > She said two-thirds of the cancer cases appeared to > > be pre-existing > > conditions in Xolair patients. > > > > Where are the best sources of information online > > about ongoing, > > objective research results on Xolair? I want to make > > as informed a > > decision as I can, and wouldn't dare trust the > > pharmaceutical > > companies' brochures. > > > > Also, it sounds like many of those participating in > > this group have > > more severe asthma than I do. Mine is under control > > most of the year, > > except for the fall, when my system is always > > overwhelmed by molds. I > > currently take Advair, Singulair, and use a MaxAir > > inhaler a couple > > of times a day during the fall season. I often end > > up on short, > > intense does of Prednisone in the fall, when the > > congestion causes > > severe asthma, bronchitis and/or sinus infections. > > > > By contrast, many of you sound like you've been > > living on Prednisone > > (I love that " evil candy " nickname)on a regular > > basis. I've been on > > Prednisone frequently over the past 10 years, but > > only during certain > > high pollen periods (fall, and sometimes the > > spring). > > > > I can see wanting to get off the evil candy, if > > you've been forced to > > take it regularly. I can't sleep on the stuff! But I > > usually am cured > > with one or two 60mg tapers of prednisone. I've > > never had to take it > > for months or years at a time. > > > > My question is: Do I have severe enough asthma to > > warrant > > participating in this Xolair trial? I also risk > > getting the placebo, > > which would be good for science, but not for me. > > cheers, Lin > > > > > > > > Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new at http://mrd.mail./try_beta?.intl=ca > Quote Link to comment Share on other sites More sharing options...
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