Joint Pain

[Guest guest]

--- Im not sure about my period but it was due yesterday so it is

possible ive never noticed before. good luck on the 5 oct i will be

thinking of you.

lesleyIn , " Sis Canfield "

<auntsisnj@l...> wrote:

> I could have posted that e-mail myself! I'm having mine out on October

> 5th with Dr. Feng, and for a couple of days last week I felt almost

> normal, and I was getting a little freaked out. This plays so much on

> the brain. I'm going through the same exact feelings, although after my

> couple of days without symptoms, last night and today they've kicked

back

> in again, which made me anxious to have them removed. I don't know if

> you notice any difference during your period, but I notice I usually

feel

> better during mine, only to start feeling poorly again towards the

end of

> it. Are you going to Dr. Feng as well?

>

> joint pain

> Date: Sun, 02 Oct 2005 20:37:33 -0000

>

> does anyone get a break from there joint pain i havent had any for 2

> days im not complaining i just cant remember not having pain

> somewhere

> in my body. i think maybe my brains playing tricks cos my implants

> are

> coming out (6 oct) do you think im just getting cold feet about the

> surgery.

>

>

>

>

> Opinions expressed are NOT meant to take the place of advice given by

> licensed health care professionals. Consult your physician or

> licensed health care professional before commencing any medical

> treatment.

>

> " Do not let either the medical authorities or the politicians mislead

> you. Find out what the facts are, and make your own decisions about

> how to live a happy life and how to work for a better world. " - Linus

> ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

>

>

[Guest guest]

Rogene

thanks rogene it does relieve the stress knowing im not mad and i have

been looking after myself since i found out whats wrong with me.

love lesley

> Lesley,

>

> I hope the fact you've had a couple days without pain

> means you are getting in better health before your

> explant . . .

>

> Just understanding that what's going on is not our

> imagination can relieve enough stress to feel better

> too!

>

> It won't be long now! . . . Most women get somewhat

> anxious when it gets close. . . Just keep your mind on

> the future.

>

> Hugs and prayers,

>

> Rogene

[Guest guest]

Rogene Could you please remove me from the e-mail list for the time being we have sold our home and life is hectic with me being so sick at times. I will check in once we get organized. We will have internet once we get settled. We have brought a new truck and fifth wheel and that will be our home where ever it takes us lol. Thank you I will be in touch soon .

Norma

Re: joint pain

Lesley,I hope the fact you've had a couple days without painmeans you are getting in better health before yourexplant . . . Just understanding that what's going on is not ourimagination can relieve enough stress to feel bettertoo!It won't be long now! . . . Most women get somewhatanxious when it gets close. . . Just keep your mind onthe future. Hugs and prayers,Rogene

No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.0.344 / Virus Database: 267.11.9/118 - Release Date: 03/10/2005

[Guest guest]

Norma,

I've set you up for " No Mail " . You are still a member

and can post or read anytime you would like.

We have a number of friends who've adopted the travel

lifestyle. . . It sounds like fun. If you have an

opportunity, check out the square dance world. You'll

be seeing the same folks all over the country! Lots of

fun too!

I hope you're doing well!

Hugs,

Rogene

[Guest guest]

Thank you so much Rogene it will only be a few weeks till we get set up. Take care and ty

Re: joint pain

Norma,I've set you up for "No Mail". You are still a memberand can post or read anytime you would like.We have a number of friends who've adopted the travellifestyle. . . It sounds like fun. If you have anopportunity, check out the square dance world. You'llbe seeing the same folks all over the country! Lots offun too!I hope you're doing well!Hugs,Rogene

No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.0.344 / Virus Database: 267.11.10/119 - Release Date: 04/10/2005

[Guest guest]

We dont know yet Lea we will get over winter first we have thought of Nova Scotia for a home base and south for winters but a lot depends on me and of course Barry with his heart BUT we can not always live around our medical problems can we. Love you so much hope your doing ok and remember to phone when you need .

Re: joint pain

Lesley,I hope the fact you've had a couple days without painmeans you are getting in better health before yourexplant . . . Just understanding that what's going on is not ourimagination can relieve enough stress to feel bettertoo!It won't be long now! . . . Most women get somewhatanxious when it gets close. . . Just keep your mind onthe future. Hugs and prayers,Rogene

No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.0.344 / Virus Database: 267.11.9/118 - Release Date: 03/10/2005

No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.0.344 / Virus Database: 267.11.10/119 - Release Date: 04/10/2005

[Guest guest]

>

> I have never had any joint pain before but near the end of November I

> started to notice pain in my right index finger. I have quit all

> nightshade vegetables but the pain is still there and now I am

> noticing a very significant bump developing which is indicative of

> arthritis. I am wondering if eating so much red meat might be the

> cause. Also my great toe on the right foot is also becoming sore in

> the joint. Any ideas or suggestions would be welcome.

> I have been on the candida diet 8 months now and was vegetarian

> before that.

==>Dear Laurie. It is important that you are also eating enough " good "

saturated fats along with meats (protein times 2.5 to 3.5 = good fats

to consume per the ratios in the Candida Diet folder). See the

arthritis article in our files for more helps and suggestions.

Bee

[Guest guest]

Rosie, I had horrible joint pain. My elbows hurt so badly I couldn't lift a

cup and my hands ached so much I couldn't squeeze toothpaste. Even the joints

in my feet hurt and my hip joints were very painful. All my joints felt like

they were on fire as well as the muscles in my legs. I even had red painful

bumbs on some of my finger joints but they are gone now. It was very

frightening and none of Drs. knew what was wrong. They said I probably had some

type

of virus!!!!

Sue

Jeanine and have both mentioned horrific joint pains. Have others had

joint pains also? Is this an inflammatory pain with hot, swollen joints

similar to let's say rheumatoid arthritis affecting the connective tissues

and synovial fluids? Would/could this cause degeneration seen on X-rays?

Thanks for any feedback,

Rosie

[Guest guest]

Since taking the CSM and being out of the school for 2 yrs. all my joint

pain is gone!!

I've noticed that I often get terrible aches in my back and in other

joints (hips, arms, shoulders) when I get a lot of mold exposure. I

didn't realize the two were connected for a long time, but now that I

am taking cholstyramine, the inflammation doesn't last as long so the

connection is made much more obvious.

[Guest guest]

My horrific joint pain is attributed to autoimmune or inflammatory or

arthritic causes specifically but I've had them since I was in my 20s. They

are degenerative and can be seen on x-rays, worse now that I am in early 40s

_____

From: [mailto: ]

On Behalf Of healthier4all

Sent: Sunday, April 09, 2006 6:45 PM

Subject: [] Joint Pain

* Jeanine and have both mentioned horrific joint pains. Have

others had

joint pains also? Is this an inflammatory pain with hot, swollen joints

similar to let's say rheumatoid arthritis affecting the connective tissues

and synovial fluids? Would/could this cause degeneration seen on X-rays?

Thanks for any feedback,

Rosie

rest snipped

_____

[Guest guest]

-I think it has something to do with infection from mycoxins in your

glands and viens and a reaction to it distroying healthy blood cells.

The two lower glands in my lower back would swell up to knots this

rediated down my legs and up my back with ackeing, swelling and pains

and numbness and burning and makes you stiff as a board up and down ,

painful to bend. Fibromyalgia was first dignosed by doctor suprizeing

me and and pokeing on 17 different glands all over my body, it hurt

so bad and instantly brought back this pain and within 5 minutes of

doing that this, pain had me stiff and in a lot of pain like

before.He was possitive I had it. test came back negitive. possible

fibromyaglia was listed on report.same with LGS. I often fell like I

cant raise my arms and acke all over, this comes and goes now.stomach

problems next were dignosed as food algeries. basically I think all

my " like " condictions to some known illness is just a way of trying

to not reconize it this disease. We have been poisoned by toxic

produceing molds it poisons your whole body and damages it.weaker

organs will get hit the hardest and from what I've read, so we can

have several symptoms the same(better or worse) and different damage

depending on our body. Sorry Rosie, may of got of the track a little.

I was dignosed with degenerative disk disease to.

-- In , " healthier4all "

<Healthier4All@...> wrote:

>

> Jeanine and have both mentioned horrific joint pains. Have

others had

> joint pains also? Is this an inflammatory pain with hot, swollen

joints

> similar to let's say rheumatoid arthritis affecting the connective

tissues

> and synovial fluids? Would/could this cause degeneration seen on X-

rays?

> Thanks for any feedback,

> Rosie

>

>

> On Behalf Of who

> - thank you , yes, pain killers was no help for me either and

it

> was so hard to deal with. needless to say that kind of pain can

play

> havic with your emotions, big time.spent a lot of time in bed.

>

> -- In , Leonard

> <moonshotbuck@> wrote:

> > Jeaninem660, I had joint pain before starting L- cysteine and

still

> do but Im working on that also.My wife on the other hand would

scream

> from the pain she was in and I think it was a combination of the

> mycotoxins and the Fibromyalgia that she had, no amount of pain

killers

> would help her when an attack would occur.Those were just a couple

of

> sypmtoms she suffered from but the major ones covering pain.

>

[Guest guest]

I've noticed that I often get terrible aches in my back and in other

joints (hips, arms, shoulders) when I get a lot of mold exposure. I

didn't realize the two were connected for a long time, but now that I

am taking cholstyramine, the inflammation doesn't last as long so the

connection is made much more obvious.

[Guest guest]

Ive had joint pain when you cant even touch me its so bad. Especially my

legs.

Janet

[Guest guest]

I can tell you that mine was SO bad I couldn't even put my knees together

when I tried to sleep. Laying on my back my elbows were so bad it hurt when they

touched the mattress. My hands were awful! It hurt to squeeze toothpaste,

hold a pen, anything. I actually drove with just the palms & my hands open!!

Even the bones in my feet hurt so I had 2 foam pads in the bottoms of my

shoes!!! An absolute nightmare!!!!

Sue

Ive had joint pain when you cant even touch me its so bad. Especially my

legs.

Janet

[Guest guest]

did u have high-dose steroids? if so, look up AVN--avascular necrosis.

take care,

v.

[] Joint Pain

>

>

>

> * Jeanine and have both mentioned horrific joint pains. Have

> others had

> joint pains also? Is this an inflammatory pain with hot, swollen joints

> similar to let's say rheumatoid arthritis affecting the connective tissues

> and synovial fluids? Would/could this cause degeneration seen on X-rays?

> Thanks for any feedback,

> Rosie

> rest snipped

>

>

>

> _____

>

>

>

>

[Guest guest]

hi,

what are the supplements? i live in california, but

have the same joint pains and the sharp pains. i know

about too much acid, but did not realize they were

connected. thanks. karen

--- Kott <ckott@...> wrote:

> Yes, I have had joint pain, and strange sharp pains

> as well as throbbing throughout my body (but I do

> have chronic infections). Sometimes when I wake up,

> I'm awakened from sleep with circulation cut off on

> one of my arms. My chronic infections lead to very

> active periodontal disease. My doctor diagnosed me

> with adrenal problems. Of course, before I was

> exposed to the toxic mold levels, I never had these

> problems. The idea is to rebuild your immune system,

> by eating differently - organic vegetables (mostly

> greens) and some fruit, no read meat, dairy or any

> sugars.

>

> I found that in my case, the throbbing and the sharp

> pains were a symptom of too much acid in my body.

> This along with chronic infections sets you up for

> cancer. I'm taking certain supplements that help

> normalize the PH level in my body. That along with

> diet makes a major difference. Stress from what

> you're going through exasperates this condition.

>

> If anyone wants to know what supplements have been

> helpful to me or what doctors may help in

> Chicagoland area, please write.. I have three years

> experience in fighting this.

>

> Cyndi

>

>

> ---- Original Message -----

> From:

>

> Sent: Friday, April 14, 2006 9:17 AM

> Subject: Re: [] Joint Pain

>

>

> did u have high-dose steroids? if so, look up

> AVN--avascular necrosis.

> take care,

> v.

>

> [] Joint Pain

> >

> >

> >

> > * Jeanine and have both mentioned horrific

> joint pains. Have

> > others had

> > joint pains also? Is this an inflammatory pain

> with hot, swollen joints

> > similar to let's say rheumatoid arthritis

> affecting the connective tissues

> > and synovial fluids? Would/could this cause

> degeneration seen on X-rays?

> > Thanks for any feedback,

> > Rosie

> > rest snipped

> >

> >

> >

> > _____

> >

> >

> >

> > [Non-text portions of this message have been

> removed]

> >

> >

> >

> >

> >

> > FAIR USE NOTICE:

> >

> >

> >

[Guest guest]

Cyndi, I have had this problem as well. It has been better since taking

Trental and by doing exactly what said to do. I try to keep my arms

straight while sleeping on my back. Two years ago I would wake up without any

feeling at all in my arms what so ever.The worst part was when the feeling would

start to return which was actually painful at times.

Sue

> Sometimes when I wake up, I'm awakened from sleep with circulation cut off

on one of my arms.

Cyndi

>

Hi Cyndi

I have had this problem as well. It was caused by Ulna Nerve Compression due

to my elbows being in a bent position when sleeping. You may be able to

prevent this happening by making sure your arms are relatively straight when

going to sleep. It is not all that easy to do but it is possible and after a

while becomes second nature. I have almost eliminated this from happening

this way. It only happened when I had my elbow(s) bent at an acute angle

(less than 90 degrees) for some time. Daytime situations where I am

constantly moving my arms are not a problem.

[Guest guest]

> Sometimes when I wake up, I'm awakened from sleep with circulation cut off

on one of my arms.

Cyndi

>

Hi Cyndi

I have had this problem as well. It was caused by Ulna Nerve Compression due

to my elbows being in a bent position when sleeping. You may be able to

prevent this happening by making sure your arms are relatively straight when

going to sleep. It is not all that easy to do but it is possible and after a

while becomes second nature. I have almost eliminated this from happening

this way. It only happened when I had my elbow(s) bent at an acute angle

(less than 90 degrees) for some time. Daytime situations where I am

constantly moving my arms are not a problem.

Check these links for more information. As you will see on these websites,

it may be necessary to use splints on your arms while you sleep for a few

months while you develop the habit of sleeping without bending your elbow

excessively. Carpel Tunnel Syndrome is another possible cause as mentioned

in the last of these websites.

http://www.e-hand.com/hw/hw007.htm?

http://www.dynomed.com/encyclopedia/encyclopedia/elbow_and_forearm/Cubital_T

unnel_Syndrome.html

http://www.henryfordhealth.org/114753.cfm

[Guest guest]

I do know that Glucosamine is fantastic for joint pain - min req. is 1500 mg

and need to be taken for approx 6 weeks for the benefits to kick in.

[Guest guest]

I thought Nova Factor was who my dr. said he talked to. Whoever he talked

to is the person he deals with for Xolair. He uses Xolair on a large number

of his patients. The person he talked to is his contact for Xolair.

************************************** See what's free at http://www.aol.com.

[Guest guest]

I'm a little confused here. Why would you or your

doctor want to talk to someone at Nova Factor.

Granted, they are a specialty pharmacy that dispenses

expensive biopharmaceuticals for the treatment of

chronic diseases. You should really speak to some one

at Novartis or Genentec, as they are the manufacturers

and have more updated information that the pharmacy

who dispenses the medicine to you. I'd call the

Xolair help line and talk to a Xolair Nurse.

--- SuzFisher@... wrote:

> I saw my PCP this afternoon. He said he officially

> listed me as having a

> severe adverse reaction to Xolair this morning. I

> was hoping Nova Factor could

> give him some ideas about how to manage the side

> effects. He said they told

> him no one else has been listed with severe joint

> pains. The only thing

> they have listed are the reactions during the

> trial. So, needless to say, Nova

> Factor wasn't very helpful.

>

> I take Xolair every two weeks. My dr. wants me to

> skip this dose coming up

> on Friday to see if the pain eases some. None of us

> want me to go off of

> Xolair because of the severity of my asthma.

>

> My dr. wants me to go back to National Jewish.

> Right now, I just can't

> afford to go. But the joint pain would be a great

> question to the people at

> National Jewish!

>

> Suzanne

>

>

>

>

> ************************************** See what's

> free at http://www.aol.com.

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

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[Guest guest]

Group,

Joint pain has so many facets and factors...That being said, those of us on

evil candy & coming off will feel fatigue, joint pain, have swelling, maybe be

lethargic (having no energy), have problems with glucose regulation and many

more irritating problems. Chronic steroid use causes bone necrosis (bone death)

thats why so many asthmatics have hip & knee & other joint replacements. The

barometric pressure can do a number on our lungs but also causes swelling in

joints, hence joint discomfort. More people complain of joint pain/discomfort

in the Spring & Summer because of the barometric pressure swings. Those of us

who are not teenagers will have some degree of arthritis from joint damage from

normal wear & tear on our bodies. Falling off roller skates, bicycles, swinging

golf clubs, playing basketball...all adds up over the years.

So, for more reasons than I have listed, you could have joint pain. The

mechanism of action with Xolair doesn't have any reason to cause joint pain. If

you are experiencing joint pain and it is much worse than before you started

Xolair, see a physician. If the pain is so bad it outweighs the benefits of

Xolair speak to your physician about stopping Xolair. Personally, I have asked

this question to hundreds or thousands of Xolair users " Does this problem

(whatever they complain about) cause enough psychological, physical or emotional

pain that you would think about stopping the Xolair when the benefits of its use

outweigh the problem? " 99.9% of the people I ask that say " no " . Paraphrasing

'The benefit of Xolair & my life improvement on Xolair outweigh stopping it'.

To them I say - " great, enough said " . To the people I have had who stop Xolair

for reasons other than money, I say " I am sorry you see this problem as a reason

to stop Xolair, and I hope you find

something that works as well or better for you " , " New research is coming out

all the time. "

Xolair is a new generation of drug treatment. For moderately severe to severe

asthmatics it is a way to stay out of the hospital, out of the physicians

office every week, a way to increase quality of life, and eventually decrease

chronic medications. There will always be nay-sayers to anything. You are the

only ones who can say " The joint pain is more bothersome and taking an

anti-inflammatory or something else the Physician prescribed is more

psychologically upsetting than the benefit of the Xolair " . We are each adults

and have to make up our own minds. Personally I see the benefits of Xolair many

many times every day.

By the way, Mothers against asthma, are the group that produced 'Asthma for

Dummies' book. They have a website you may be able to order them from.

Pat

---------------------------------

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[Guest guest]

After 6 years with lyme and many treatments (currently on herbs and rife for 9

months), I suddenly started having knee and back pain. I've never had this. Is

the lyme spreading even with all the ways I'm fighting it or was it always there

and is just showing itself? What is best for this? I'm miserable and so

discouraged!

Any thoughts would be so greatly appreciated.

Wishing you all wellness and a good day today!!

judy b

[Guest guest]

I can't speak for anyone else but I have experienced migrating pains over the

years (what I termed " mystery pains " before my diagnosis). I crashed a little

over a year ago (after searching for a diagnosis for 2+ years). I really don't

know how long I've had Lyme & Co. It started with costochondritis (sternum

pain) about 13 years ago. Then there was the stiff neck for many months. Then

both shoulders. Then lower back. Then left hip. Then left elbow. Then it

moved into the GI system. Then it went neuro which was the crash.

Nowadays I don't have pain in all those places at once, but obviously the bug

disseminates into the tissues so symptoms can pop up that make it seem like a

progression but the bugs were there all along.

I have been using rife for 9 months and have found it helpful. I also added

salt/vitamin C three months ago. (I tried some of the Buhner herbs awhile back

but my gut could not handle them.) The salt/c protocol calls for SCWDD, which

is salt, C, water, diet, and detox. All of these components are required for

healing, not just the killing.

Some say it takes 2 to 4 years of any treatment. As one member adequately

summed it up on another group, it requires " superhuman patience " .

deb

>

> After 6 years with lyme and many treatments (currently on herbs and rife for 9

months), I suddenly started having knee and back pain. I've never had this. Is

the lyme spreading even with all the ways I'm fighting it or was it always there

and is just showing itself? What is best for this? I'm miserable and so

discouraged!

>

> Any thoughts would be so greatly appreciated.

>

> Wishing you all wellness and a good day today!!

>

> judy b

>

>

[Guest guest]

My wife uses apple cider vinegar and evening primrose oil as her principle

agents against inflammation. She is also on the restricted inflammation diet

recommended by the book " Lyme disease solution " . It removes many of the

common allergy foods that Lymies seem prone to.

Gluten and tomatoes for example.

www.lyme-resource.com

You can lead a person to a fact, but you can't make them think! -

> Re: [ ] joint pain

>

> After 6 years with lyme and many treatments (currently on

> herbs and rife for 9 months), I suddenly started having knee

> and back pain. I've never had this. Is the lyme spreading

> even with all the ways I'm fighting it or was it always there

> and is just showing itself? What is best for this? I'm

> miserable and so discouraged!

>

> Any thoughts would be so greatly appreciated.

>

> Wishing you all wellness and a good day today!!

>

> judy b

>

>