Re: Re: Second Shot

[Guest guest]

Dana,

I can never have Xoalir again I even went back and attempted with the allergist

standing by and the reaction was very fast and very severe I need up on a

ventilator and had from what hey told me no blood pressure. IT does not meant

this will happen to you . I would just call. Trust me I know how much the Xolair

was helping me . Since I am off I am back to what I was on pred in the ER and

unable to go anywhere . IT just plain old stinks.

----- Original Message -----

From: happygirl61972

Sent: Monday, September 15, 2008 1:07 PM

Subject: [ ] Re: Second Shot

Do you still take the shot?? So far the it has already reduced the

number of times that I use the rescue inhaler, and I am still with my

black lab that everyone wants me to get rid of but I just can't bring

myself to do it. She even sleeps with me and now I am not waking up

at night I see this as a HUGE plus, although my husband and siste

both want me to get rid of her, but me and the kids do not want to!

Dana

>

> Dana,

> I would call the DR. I blew off reactions like that and ended up

have an really bad one . I so wanted the xoalir to make my life

better.

> ----- Original Message -----

> From: happygirl61972

>

> Sent: Thursday, September 11, 2008 4:22 PM

> Subject: [ ] Second Shot

>

>

> Hey all, I got my second shot this week and have a question. I

had

> both shots in the stomach this time, last time one was in my arm

and

> it hurt like a you know what!! Made my whole are go numb down to

my

> fingers. Anyway this time one side got a bubble of meds, that

while

> I was there waiting for the 4 hours, spread a bit. I showed the

> nurse but she just said next time they would use a " dry needle " ,

not

> sure what that means. But the next day that same side was red,

> swollen, itchy and hurt. The other side did not. It is better now

> at day 2.

>

> Do any of you know why only one side would react like that? Is

that

> something to worry about? Other then this and feeling like the

room

> is spinning when I lay down the night I get the shot, I am doing

> GREAT on it! It has already made a huge improvement with having

to

> use the rescue inhaler. We are hoping come dec at my next check

up

> we can reduce some of the other meds.

>

> Also I am off to Vegas for a week, any advice for the trip? I

carry

> my epi pens on me both, and will have all meds including a " just

in

> case " rx of Pred in my carry on.

>

> Thanks for everything,

> Dana

>

>

>

>

>

>

[Guest guest]

Would it help if you went on reduced dosages instead of coming off of xolair

entirely?  Would the co-pay be affordable then?  Just a suggestion although I am

sure you and your doctor will explore all of the possibilities.  I'll keep you

in my prayers.  It seems that the financial crunch has hit everyone!

From: uca79iii <uca79iii@...>

Subject: [ ] Re: Second Shot

Date: Tuesday, September 16, 2008, 11:19 AM

>

> Dana,

> I can never have Xoalir again I even went back and attempted with

the allergist standing by and the reaction was very fast and very

severe I need up on a ventilator and had from what hey told me no

blood pressure. IT does not meant this will happen to you . I would

just call. Trust me I know how much the Xolair was helping me . Since

I am off I am back to what I was on pred in the ER and unable to go

anywhere . IT just plain old stinks.

Karin,

I am so sorry. Unfortunately you are one of the very few who have

severe reaction problems. I have never had any kind of reaction

whatsoever in the past 5 years.

I might have to stop xolair too. I just found out that my insurance is

drastically changing next year and I will not be able to afford the

xolair co payments along with every other medication I take.

The premiums (I pay them myself) will be going up and the co payments

quite a bit.

I will have a good talk with my doctor Friday when I get my next shots

and see if I can go off xolair for a while. I might have to go back on

Prednisone again. I have already had neck surgery to correct pred

problems in my cervical spine and I can always go on insulin for my

diabetes when it comes back UGH!

Doug

Your scared to death of pred

group founder

[Guest guest]

Dear Karin:

 

I get my xolair shot at an allergy research clinic although I am not a part of

any of the xolair studies.  This clinic takes medicare and that is why I go

there.  It is advertised/listed as a research clinic in the phonebook.  I am too

old to take part in any of the studies, but you might look in the phone book and

see if there are any allergy research clinics in your city.  If there is a

medical center close by, they might be doing some clinical research for

allergies as well. 

 

I don't know what kinds of studies are on going, but I know I was asked to be a

part of a study, but when the interviewer for the study found out I was 70, I

was told I was too old!  The cut off was 65. 

 

I hope you and Doug both get things worked out so you can continue xolair.

 

By the way, I have not stopped any of my regimen of meds for asthma, but the

great thing that xolair has done for me is kept me off of prednisone and

antibiotics. 

 

Adah

From: instdesgn1 <instdesgn1@...>

Subject: [ ] Re: Second Shot

Date: Wednesday, September 17, 2008, 1:48 AM

Doug,

I hope you can work something out to stay on it. Perhaps a cost-

benefit analysis approach to the insurance? Perhaps complaining to

the appropriate boards/agencies about the specific issues that would

prevent you from being able to pay for Xolair? i.e., denial of care?

I'm hoping that there is some " carry-over " of benefit even

after stopping Xolair June 30th because of the time & dollars

involved in going to a major medical center. Perhaps that will be

the case for you. At the time I quit I noticed it wasn't working as

well for asthma although that might have been a temporary situation.

I almost felt like I needed more and more and of course they will not

allow anything like that. I'm on Advair twice a day now and Spiriva

and Albuterol every day. Still not totally under control. I guess

in some ways it could be worse, though.

Is it possible to volunteer for any kind of study to get Xolair

for free? Or, possibly a study on something new coming on the

market? (I realize that's a bit off topic here)

Take care.

> Karin,

>

> I am so sorry. Unfortunately you are one of the very few who have

> severe reaction problems. I have never had any kind of reaction

> whatsoever in the past 5 years.

>

> I might have to stop xolair too. I just found out that my insurance

is

> drastically changing next year and I will not be able to afford the

> xolair co payments along with every other medication I take.

> The premiums (I pay them myself) will be going up and the co

payments

> quite a bit.

>

> I will have a good talk with my doctor Friday when I get my next

shots

> and see if I can go off xolair for a while. I might have to go back

on

> Prednisone again. I have already had neck surgery to correct pred

> problems in my cervical spine and I can always go on insulin for my

> diabetes when it comes back UGH!

>

> Doug

>

> Your scared to death of pred

> group founder

>

[Guest guest]

I would speak to my allergist there are ways to get some financial help to pay

for the xolair

----- Original Message -----

From: Adah Voigt

Sent: Tuesday, September 16, 2008 1:51 PM

Subject: Re: [ ] Re: Second Shot

Would it help if you went on reduced dosages instead of coming off of xolair

entirely? Would the co-pay be affordable then? Just a suggestion although I am

sure you and your doctor will explore all of the possibilities. I'll keep you

in my prayers. It seems that the financial crunch has hit everyone!

From: uca79iii <uca79iii@...>

Subject: [ ] Re: Second Shot

Date: Tuesday, September 16, 2008, 11:19 AM

>

> Dana,

> I can never have Xoalir again I even went back and attempted with

the allergist standing by and the reaction was very fast and very

severe I need up on a ventilator and had from what hey told me no

blood pressure. IT does not meant this will happen to you . I would

just call. Trust me I know how much the Xolair was helping me . Since

I am off I am back to what I was on pred in the ER and unable to go

anywhere . IT just plain old stinks.

Karin,

I am so sorry. Unfortunately you are one of the very few who have

severe reaction problems. I have never had any kind of reaction

whatsoever in the past 5 years.

I might have to stop xolair too. I just found out that my insurance is

drastically changing next year and I will not be able to afford the

xolair co payments along with every other medication I take.

The premiums (I pay them myself) will be going up and the co payments

quite a bit.

I will have a good talk with my doctor Friday when I get my next shots

and see if I can go off xolair for a while. I might have to go back on

Prednisone again. I have already had neck surgery to correct pred

problems in my cervical spine and I can always go on insulin for my

diabetes when it comes back UGH!

Doug

Your scared to death of pred

group founder

[Guest guest]

I've said it before and I will say it again . EVERYONE who is on Xolair should

sign up to belong toXpansions.  Just go to www.Xpansions.com  There you will

find LOTS of information  and answers to questions you may have.

Anyone who has questions re: how to pay for your Xolair should also check out

their Access Solutions.

https://www.genentechaccesssolutions.com/index_xolair.jsp

 

 

From: uca79iii <uca79iiigmail (DOT) com>

Subject: [ ] Re: Second Shot

Date: Tuesday, September 16, 2008, 11:19 AM

>

> Dana,

> I can never have Xoalir again I even went back and attempted with

the allergist standing by and the reaction was very fast and very

severe I need up on a ventilator and had from what hey told me no

blood pressure. IT does not meant this will happen to you . I would

just call. Trust me I know how much the Xolair was helping me . Since

I am off I am back to what I was on pred in the ER and unable to go

anywhere . IT just plain old stinks.

Karin,

I am so sorry. Unfortunately you are one of the very few who have

severe reaction problems. I have never had any kind of reaction

whatsoever in the past 5 years.

I might have to stop xolair too. I just found out that my insurance is

drastically changing next year and I will not be able to afford the

xolair co payments along with every other medication I take.

The premiums (I pay them myself) will be going up and the co payments

quite a bit.

I will have a good talk with my doctor Friday when I get my next shots

and see if I can go off xolair for a while. I might have to go back on

Prednisone again. I have already had neck surgery to correct pred

problems in my cervical spine and I can always go on insulin for my

diabetes when it comes back UGH!

Doug

Your scared to death of pred

group founder

[Guest guest]

Doug, that is such great news.  What I like about this group is that when a

problem arises, you have a lot of support, help, suggestions and prayers going

up for you.  God does hear our prayers!

 

One more year! and many, many more!

 

Adah

Adah,

Thanks

Doug

[Guest guest]

I agree - I signed up two years ago and they call me about every three months to

check on how I am doing and have me go through their questionair - when I first

started I had a score of 5 on how well my asthma was controlled - today then

they called - my score was 16 - I didn't ask what a perfect score was however.

Been on 375 mg Zolair every two weeks since February 2006

________________________________

From: K K <grneyyedlady@...>

Sent: Wednesday, September 17, 2008 4:51:23 PM

Subject: Re: [ ] Re: Second Shot

I've said it before and I will say it again . EVERYONE who is on Xolair should

sign up to belong toXpansions. Just go to www.Xpansions. com There you will

find LOTS of information and answers to questions you may have.

Anyone who has questions re: how to pay for your Xolair should also check out

their Access Solutions. https://www. genentechaccesss olutions. com/index_

xolair.jsp

From: uca79iii <uca79iiigmail (DOT) com>

Subject: [ ] Re: Second Shot

Date: Tuesday, September 16, 2008, 11:19 AM

>

> Dana,

> I can never have Xoalir again I even went back and attempted with

the allergist standing by and the reaction was very fast and very

severe I need up on a ventilator and had from what hey told me no

blood pressure. IT does not meant this will happen to you . I would

just call. Trust me I know how much the Xolair was helping me . Since

I am off I am back to what I was on pred in the ER and unable to go

anywhere . IT just plain old stinks.

Karin,

I am so sorry. Unfortunately you are one of the very few who have

severe reaction problems. I have never had any kind of reaction

whatsoever in the past 5 years.

I might have to stop xolair too. I just found out that my insurance is

drastically changing next year and I will not be able to afford the

xolair co payments along with every other medication I take.

The premiums (I pay them myself) will be going up and the co payments

quite a bit.

I will have a good talk with my doctor Friday when I get my next shots

and see if I can go off xolair for a while. I might have to go back on

Prednisone again. I have already had neck surgery to correct pred

problems in my cervical spine and I can always go on insulin for my

diabetes when it comes back UGH!

Doug

Your scared to death of pred

group founder