Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 I know my primary knew nothing about xolair Louise **************Gas prices getting you down? Search AOL Autos for fuel-efficient used cars. (http://autos.aol.com/used?ncid=aolaut00050000000007) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 thank you so much. It is a lot to consider but your response has helped.(just wish I have a magic ball, lol). I am so glad it helped you. jean ---- billybaroo1958 <cajjz109@...> wrote: > Bottom line there is no way to know unless it is tried. My IgE was 345 before I started > Xolair. I was highly atopic, but not terribly symptomatic with my asthma or perennial > allergies. I was told by two doctors that the IgE levels I had could be a baseline level that > didn't contribute to any symptoms or were the sign of parasites from extensive Third > World travel or some other underlying cause. All I knew was I was getting worse with > urticaria and EE. Finally, a doctor prescribed it despite fairly well controlled asthma. Five > months later no urticaria, off all asthma meds and no eosinophils in my esophagus. My IgE > is still 220. The moral is some of the 6000 might not add up to any symptoms, so Xolair > could shut down the small amount that does. > > > > > > > > In past post there have been some people who said xolair has helped > > their eczema as well as their asthma. > > If anyone with an IgE of 6000 or close to that level has had success > > with xolair and their E could you please e mail either through this > > group or off line. > > I was just told by a well respected allergist/dermatologist that > > xolair for anything over 800 IgE is a waste of time and money because > > it won't help. Same dr. said cyclosporin would be better although E > > may return to where it was before once the cyclosporin is stopped. > > Her regular allergist thinks xolair is a better choice although he > > thinks it will only help some. > > I figured people who have experience with one or both are better to > > help me than doctors. > > Any help appreciated. Thank you. Jean > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 Thanks Addy. I really appreciate it. This group has helped so much. If approved my daughter will get two shots a month and from what the allergist said at high doses, Even if it knocks some of the itching down anything is better than itching 24/7. I feel like putting itching powder in that dr clothes and see how long he " copes " and " deals " with it. Jean ---- pyle456 <coachmac@...> wrote: > we've had a few folks with exceedingly high IgE counts. > Usually those folks get put on the max dose and we've had a couple of > of EXTREMELY high IgE and extremely obese patients get permission for > a dose slightly larger than the recommended max. > > Because your daughter has so much IgE, my bet is that it will take > her a full year to see improvement, b/c she'll need a lot of Xolair > to bind to all that IgE and begin to curb the allergic reactions. > It's certainly possible that with Xolair she'll see enough > improvement to make her condition tolerable. What I found is that > even though I till have mild symptoms in heavy allergic periods and > while I have about 3 serious episodes a year as opposed to 9 or 10, > Xolair has been able to sufficiently break the allergic chain that I > have a life now. > > I think the dermatologist is not sufficiently informed. > > Addy > Group co-owner > > > > > From: gigles_1955 <fgigles55@...> > > Subject: [ ] IgE and xolair > > > > Date: Thursday, June 19, 2008, 6:52 PM > > > > > > > > > > > > > > > > > > > > > > > > In past post there have been some people who said > xolair has helped > > > > their eczema as well as their asthma. > > > > If anyone with an IgE of 6000 or close to that level has had > success > > > > with xolair and their E could you please e mail either through this > > > > group or off line. > > > > I was just told by a well respected allergist/dermatolo gist that > > > > xolair for anything over 800 IgE is a waste of time and money > because > > > > it won't help. Same dr. said cyclosporin would be better although > E > > > > may return to where it was before once the cyclosporin is stopped. > > > > Her regular allergist thinks xolair is a better choice although he > > > > thinks it will only help some. > > > > I figured people who have experience with one or both are better > to > > > > help me than doctors. > > > > Any help appreciated. Thank you. Jean > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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