Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 My IgE is fairly low compared to most asthmatics at 44. I have also heard people over 800 don't respond well to X but I've heard a few people who are taking it that it does help somewhat. I think the trick will be getting your insurance company to pay for it. If you can it's worth a try. From: gigles_1955 <fgigles55@...> Subject: [ ] IgE and xolair Date: Thursday, June 19, 2008, 6:52 PM In past post there have been some people who said xolair has helped their eczema as well as their asthma. If anyone with an IgE of 6000 or close to that level has had success with xolair and their E could you please e mail either through this group or off line. I was just told by a well respected allergist/dermatolo gist that xolair for anything over 800 IgE is a waste of time and money because it won't help. Same dr. said cyclosporin would be better although E may return to where it was before once the cyclosporin is stopped. Her regular allergist thinks xolair is a better choice although he thinks it will only help some. I figured people who have experience with one or both are better to help me than doctors. Any help appreciated. Thank you. Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 Bottom line there is no way to know unless it is tried. My IgE was 345 before I started Xolair. I was highly atopic, but not terribly symptomatic with my asthma or perennial allergies. I was told by two doctors that the IgE levels I had could be a baseline level that didn't contribute to any symptoms or were the sign of parasites from extensive Third World travel or some other underlying cause. All I knew was I was getting worse with urticaria and EE. Finally, a doctor prescribed it despite fairly well controlled asthma. Five months later no urticaria, off all asthma meds and no eosinophils in my esophagus. My IgE is still 220. The moral is some of the 6000 might not add up to any symptoms, so Xolair could shut down the small amount that does. > > In past post there have been some people who said xolair has helped > their eczema as well as their asthma. > If anyone with an IgE of 6000 or close to that level has had success > with xolair and their E could you please e mail either through this > group or off line. > I was just told by a well respected allergist/dermatologist that > xolair for anything over 800 IgE is a waste of time and money because > it won't help. Same dr. said cyclosporin would be better although E > may return to where it was before once the cyclosporin is stopped. > Her regular allergist thinks xolair is a better choice although he > thinks it will only help some. > I figured people who have experience with one or both are better to > help me than doctors. > Any help appreciated. Thank you. Jean > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 we've had a few folks with exceedingly high IgE counts. Usually those folks get put on the max dose and we've had a couple of of EXTREMELY high IgE and extremely obese patients get permission for a dose slightly larger than the recommended max. Because your daughter has so much IgE, my bet is that it will take her a full year to see improvement, b/c she'll need a lot of Xolair to bind to all that IgE and begin to curb the allergic reactions. It's certainly possible that with Xolair she'll see enough improvement to make her condition tolerable. What I found is that even though I till have mild symptoms in heavy allergic periods and while I have about 3 serious episodes a year as opposed to 9 or 10, Xolair has been able to sufficiently break the allergic chain that I have a life now. I think the dermatologist is not sufficiently informed. Addy Group co-owner > From: gigles_1955 <fgigles55@...> > Subject: [ ] IgE and xolair > > Date: Thursday, June 19, 2008, 6:52 PM > > > > > > > > > > > > In past post there have been some people who said xolair has helped > > their eczema as well as their asthma. > > If anyone with an IgE of 6000 or close to that level has had success > > with xolair and their E could you please e mail either through this > > group or off line. > > I was just told by a well respected allergist/dermatolo gist that > > xolair for anything over 800 IgE is a waste of time and money because > > it won't help. Same dr. said cyclosporin would be better although E > > may return to where it was before once the cyclosporin is stopped. > > Her regular allergist thinks xolair is a better choice although he > > thinks it will only help some. > > I figured people who have experience with one or both are better to > > help me than doctors. > > Any help appreciated. Thank you. Jean > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2008 Report Share Posted June 23, 2008 My IgE has been between 6,000 and 8,000 and I have had a 100% improvement since being on Xolair. I am on 375 mg every two weeks. Anne ----- Original Message ---- From: McLaughlin <gmclaughlin1000@...> Sent: Thursday, June 19, 2008 10:01:36 PM Subject: Re: [ ] IgE and xolair My IgE is fairly low compared to most asthmatics at 44. I have also heard people over 800 don't respond well to X but I've heard a few people who are taking it that it does help somewhat. I think the trick will be getting your insurance company to pay for it. If you can it's worth a try. From: gigles_1955 <fgigles55nycap (DOT) rr.com> Subject: [ ] IgE and xolair Date: Thursday, June 19, 2008, 6:52 PM In past post there have been some people who said xolair has helped their eczema as well as their asthma. If anyone with an IgE of 6000 or close to that level has had success with xolair and their E could you please e mail either through this group or off line. I was just told by a well respected allergist/dermatolo gist that xolair for anything over 800 IgE is a waste of time and money because it won't help. Same dr. said cyclosporin would be better although E may return to where it was before once the cyclosporin is stopped. Her regular allergist thinks xolair is a better choice although he thinks it will only help some. I figured people who have experience with one or both are better to help me than doctors. Any help appreciated. Thank you. Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2008 Report Share Posted June 24, 2008 Oh Anne, Thank you so much for this info. My daughter is going for the blood workup to try to get approved but I am getting some resistance from her doctor. He was for it but apparently the dr. we saw for a 2nd opinion wants my daughter to try cyclosporin. Now her allergist thinks that might be better because her IgE is so high. I had to re convince him into sending in for ins. approval. aahhh. Jean ---- Magnuson <magnuson.mary@...> wrote: > My IgE has been between 6,000 and 8,000 and I have had a 100% improvement since being on Xolair. I am on 375 mg every two weeks. > Anne > > > ----- Original Message ---- > From: McLaughlin <gmclaughlin1000@...> > > Sent: Thursday, June 19, 2008 10:01:36 PM > Subject: Re: [ ] IgE and xolair > > > My IgE is fairly low compared to most asthmatics at 44. I have also heard people over 800 don't respond well to X but I've heard a few people who are taking it that it does help somewhat. I think the trick will be getting your insurance company to pay for it. If you can it's worth a try. > > > From: gigles_1955 <fgigles55nycap (DOT) rr.com> > Subject: [ ] IgE and xolair > > Date: Thursday, June 19, 2008, 6:52 PM > > In past post there have been some people who said xolair has helped > > their eczema as well as their asthma. > > If anyone with an IgE of 6000 or close to that level has had success > > with xolair and their E could you please e mail either through this > > group or off line. > > I was just told by a well respected allergist/dermatolo gist that > > xolair for anything over 800 IgE is a waste of time and money because > > it won't help. Same dr. said cyclosporin would be better although E > > may return to where it was before once the cyclosporin is stopped. > > Her regular allergist thinks xolair is a better choice although he > > thinks it will only help some. > > I figured people who have experience with one or both are better to > > help me than doctors. > > Any help appreciated. Thank you. Jean > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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