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Re: Dingdongs at Xhale

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Good subject line! That's one of several reasons I don't like

infusion centers - they screw up appts constantly for my husband who

has MS. Also, they talk to patients about their symptoms, blood

pressure, temperature, etc. in front of everyone else. Naturally my

hubby rarely tells the truth. Everybody is in one big open room. I

would never ever let them do that to me on Xolair. Honest ... I'd be

calling the Joint Commission right then and there about violation of

HIPA laws. Glad you stood up to them - you're right - clerks should

not be practicing medicine.

>

> Hi,

> So in Canada, Xolair influsions are organized by Xhale, a third

party used by Novartis to administer the injections at infusions

centers. The infusion centers are in local health clinics where they

rent space. The people at Xhale are generally a friendly, competent

lot. They do have some trouble with communication.

> Last week I showed up to my appointment to find the nurse was not

there as she had called sick that day. Xhale had called my mom's

house to cancel my appointment. I do not even live with my mom so I

never got the message. So I missed my injection and showed up for

nothing.

> This week, on Monday, I called them to reschedule. The chick was

like " well since you have an appointment already for the week of June

16, why don't we just skip this injection so I don't have to move

all  your appointements? " I was about to say yes, then I realized,

wait a minute, this chick is no doctor, who is she to suggest I skip

a treatment???? I already was sob so I said " Um, no I kinda need my

injection this week.... " She was nice about it but clearly annoyed

that I made her do more work. Well too bad!

> Home injection is not going to happen any time soon in Canada so I

might as well get used to this.....

>

>

>

>

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