Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 I know this question isn't Xolair related but since most members here are so familiar with evil candy I figured you were the best people to ask. Has anyone switched from prednisone to dexamethasone? My dr needs an accurate cortisol level so he switched me from 40mg of pred to 6.5 of the other. Is it just a straight change? Is one steroid any better than the other? Is there a possiblity that the new one will control my asthma any better? Is it any safer? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 > > I know this question isn't Xolair related but since most members here > are so familiar with evil candy I figured you were the best people to > ask. Has anyone switched from prednisone to dexamethasone? My dr needs > an accurate cortisol level so he switched me from 40mg of pred to 6.5 > of the other. Is it just a straight change? Is one steroid any better > than the other? Is there a possiblity that the new one will control my > asthma any better? Is it any safer? Thanks! > I don't know exactly what the difference is but I can't take Dexamethsone (Decadron) I HATE THAT STUFF!!! It is SUPER EVIL CANDY for me. My mental state goes completely bonkers, I turn red all over and then break out all over in steroid acne. The doctor had to give me Xanax to calm me down after taking that stuff. UGH! I have it on my medical records as one medication that I am extremely allergic to. When I got a Decadron shot several years back, there was no way to get it out of my system but to let it wear off. If you have no choice but to take it, ask for it in pill form. At least you can control the amount of the drug in your system that way. Doug Group founder Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2008 Report Share Posted March 7, 2008 Why would you be able to get an accurate cortisol level with decadron versus pred? Let me ask my pharmacy buddies. We use it for brain swelling so it does have a slightly different effect although does diminish inflammation. In Canada, lung dx is treated with pred when a steroid is needed, never decadron. ----- Original Message ---- From: <pirates_ej@...> Sent: Thursday, March 6, 2008 10:25:53 AM Subject: [ ] prednisone vs dexamethasone I know this question isn't Xolair related but since most members here are so familiar with evil candy I figured you were the best people to ask. Has anyone switched from prednisone to dexamethasone? My dr needs an accurate cortisol level so he switched me from 40mg of pred to 6.5 of the other. Is it just a straight change? Is one steroid any better than the other? Is there a possiblity that the new one will control my asthma any better? Is it any safer? Thanks! <!-- #ygrp-mkp{ border:1px solid #d8d8d8;font-family:Arial;margin:14px 0px;padding:0px 14px;} #ygrp-mkp hr{ border:1px solid #d8d8d8;} #ygrp-mkp #hd{ color:#628c2a;font-size:85%;font-weight:bold;line-height:122%;margin:10px 0px;} #ygrp-mkp #ads{ margin-bottom:10px;} #ygrp-mkp .ad{ padding:0 0;} #ygrp-mkp .ad a{ color:#0000ff;text-decoration:none;} --> <!-- #ygrp-sponsor #ygrp-lc{ font-family:Arial;} #ygrp-sponsor #ygrp-lc #hd{ margin:10px 0px;font-weight:bold;font-size:78%;line-height:122%;} #ygrp-sponsor #ygrp-lc .ad{ margin-bottom:10px;padding:0 0;} --> <!-- #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, sans-serif;} #ygrp-mlmsg table {font-size:inherit;font:100%;} #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean, sans-serif;} #ygrp-mlmsg pre, code {font:115% monospace;} #ygrp-mlmsg * {line-height:1.22em;} #ygrp-text{ font-family:Georgia; } #ygrp-text p{ margin:0 0 1em 0;} #ygrp-tpmsgs{ font-family:Arial; clear:both;} #ygrp-vitnav{ padding-top:10px;font-family:Verdana;font-size:77%;margin:0;} #ygrp-vitnav a{ padding:0 1px;} #ygrp-actbar{ clear:both;margin:25px 0;white-space:nowrap;color:#666;text-align:right;} #ygrp-actbar .left{ float:left;white-space:nowrap;} ..bld{font-weight:bold;} #ygrp-grft{ font-family:Verdana;font-size:77%;padding:15px 0;} #ygrp-ft{ font-family:verdana;font-size:77%;border-top:1px solid #666; padding:5px 0; } #ygrp-mlmsg #logo{ padding-bottom:10px;} #ygrp-vital{ background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;} #ygrp-vital #vithd{ font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:upp\ ercase;} #ygrp-vital ul{ padding:0;margin:2px 0;} #ygrp-vital ul li{ list-style-type:none;clear:both;border:1px solid #e0ecee; } #ygrp-vital ul li .ct{ font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-ri\ ght:.5em;} #ygrp-vital ul li .cat{ font-weight:bold;} #ygrp-vital a{ text-decoration:none;} #ygrp-vital a:hover{ text-decoration:underline;} #ygrp-sponsor #hd{ color:#999;font-size:77%;} #ygrp-sponsor #ov{ padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;} #ygrp-sponsor #ov ul{ padding:0 0 0 8px;margin:0;} #ygrp-sponsor #ov li{ list-style-type:square;padding:6px 0;font-size:77%;} #ygrp-sponsor #ov li a{ text-decoration:none;font-size:130%;} #ygrp-sponsor #nc{ background-color:#eee;margin-bottom:20px;padding:0 8px;} #ygrp-sponsor .ad{ padding:8px 0;} #ygrp-sponsor .ad #hd1{ font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%\ ;} #ygrp-sponsor .ad a{ text-decoration:none;} #ygrp-sponsor .ad a:hover{ text-decoration:underline;} #ygrp-sponsor .ad p{ margin:0;} o{font-size:0;} ..MsoNormal{ margin:0 0 0 0;} #ygrp-text tt{ font-size:120%;} blockquote{margin:0 0 0 4px;} ..replbq{margin:4;} --> Connect with friends from any web browser - no download required. Try the new Canada Messenger for the Web BETA at http://ca.messenger./webmessengerpromo.php Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2008 Report Share Posted March 7, 2008 - Both are corticosteroids. My BRIEF google expedition on this topic didn't turn up anything helpful, so I'm hoping or Fran can provide better information for you. - thanks for reminding all of us that we need drugs that are frequently used to combat brain swelling. How thoughtful of you! Addy Group co-owner Resident Smart (when I'm not letting Terry or Ron sub for me) > > I know this question isn't Xolair related but since most members here > are so familiar with evil candy I figured you were the best people to > ask. Has anyone switched from prednisone to dexamethasone? My dr needs > an accurate cortisol level so he switched me from 40mg of pred to 6.5 > of the other. Is it just a straight change? Is one steroid any better > than the other? Is there a possiblity that the new one will control my > asthma any better? Is it any safer? Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2008 Report Share Posted March 7, 2008 , I don't know the complete answer to your question, but I can comment on part of it. I am an ICU nurse and we occasionally have patients who are being screened for adrenal insuffiency (Cushing' syndrome) that must have the cortisol level checked. The lab test we do is called a Cosyntropin stimulation test. We give those patients decadron instead of pred or other steroids if the doc feels they must have steroids, as it does not interfere with the cortisol level accuracy. I have no idea why decadron does not affect the cortisol level as it is a steroid like prednisone, but that is what our lab people say is OK. As far as the diffence between the two drugs, the only thing I know is that decadron is more potent mg for mg than prednisone. I think it is something like about 5 mg of prednisone is the same as less than 1 mg of decadron, which is why your dose is so much lower. Decadron also has a longer half life in the body than prednisone. We use decadron mainly for brain swelling also, like 's hospital. Most patients with respiratory disorders get prednisone. Not really sure why-good question. I'll have to try to ask one of the attending docs. > > I know this question isn't Xolair related but since most members here > are so familiar with evil candy I figured you were the best people to > ask. Has anyone switched from prednisone to dexamethasone? My dr needs > an accurate cortisol level so he switched me from 40mg of pred to 6.5 > of the other. Is it just a straight change? Is one steroid any better > than the other? Is there a possiblity that the new one will control my > asthma any better? Is it any safer? Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2008 Report Share Posted March 7, 2008 I don't know the difference between Prednisone and Decadron, but I cannot take Prednisone, terrible side effects. I also have Lupus and I can take a Decadron injection every two months and it helps me both with Lupus and with my Asthma. So, I guess it just depends upon the individual. I don't think either is good for us, but sometimes we have to do what we have to do to keep going. > > > > I know this question isn't Xolair related but since most members here > > are so familiar with evil candy I figured you were the best people to > > ask. Has anyone switched from prednisone to dexamethasone? My dr needs > > an accurate cortisol level so he switched me from 40mg of pred to 6.5 > > of the other. Is it just a straight change? Is one steroid any better > > than the other? Is there a possiblity that the new one will control my > > asthma any better? Is it any safer? Thanks! > > > > > I don't know exactly what the difference is but I can't take > Dexamethsone (Decadron) > > I HATE THAT STUFF!!! It is SUPER EVIL CANDY for me. My mental state > goes completely bonkers, I turn red all over and then break out all > over in steroid acne. The doctor had to give me Xanax to calm me down > after taking that stuff. > UGH! I have it on my medical records as one medication that I am > extremely allergic to. > > When I got a Decadron shot several years back, there was no way to get > it out of my system but to let it wear off. > > If you have no choice but to take it, ask for it in pill form. At > least you can control the amount of the drug in your system that way. > > Doug > Group founder > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2008 Report Share Posted March 7, 2008 - thank you for that explanation! Addy Group co-owner > > > > I know this question isn't Xolair related but since most members here > > are so familiar with evil candy I figured you were the best people to > > ask. Has anyone switched from prednisone to dexamethasone? My dr needs > > an accurate cortisol level so he switched me from 40mg of pred to 6.5 > > of the other. Is it just a straight change? Is one steroid any better > > than the other? Is there a possiblity that the new one will control my > > asthma any better? Is it any safer? Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2008 Report Share Posted March 7, 2008 Thanks for the info. THey are testing for adrenal problems so that would make sense I guess. Has anyone had severely low potassium from prednisone? Since November I have been in the ICU 4 times with it and have been able to stay out for the last while only because I have a home health nurse coming daily to draw a potassium level. I have a PICC line for a continuous potassium infusion, I am taking 12 potassium pills a day, and am on 4 potassium sparing drugs. And my levels are still low enough most days that they would keep me in ICU if I were to go to the hospital. THe drs can not figure out why my body is not able to hold on to any potassium at all. I have one last aderenal test on Monday and then the drs are saying I will need to be admitted to the hospital to be taken off the steroids completely to see if they can get answers. I am on 40 mg of pred a day. Is there any kind of standard on how quick the taper would be? I don't have any more sick days so a weekend would be ideal if that is long enough. Thanks! <shuttsgirl@...> wrote: , I don't know the complete answer to your question, but I can comment on part of it. I am an ICU nurse and we occasionally have patients who are being screened for adrenal insuffiency (Cushing' syndrome) that must have the cortisol level checked. The lab test we do is called a Cosyntropin stimulation test. We give those patients decadron instead of pred or other steroids if the doc feels they must have steroids, as it does not interfere with the cortisol level accuracy. I have no idea why decadron does not affect the cortisol level as it is a steroid like prednisone, but that is what our lab people say is OK. Recent Activity 5 New Members Visit Your Group Meditation and Lovingkindness A Group to share and learn. Health Healthy Aging Improve your quality of life. Find helpful tips for Moderators on the Groups team blog. . --------------------------------- Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2008 Report Share Posted March 7, 2008 Wow. I am betting it is some sort of adrenal/kidney disfunction. Tapering from 40mg pred daily can take weeks depending on how long you have been on and how brittle your asthma is. I hope you have some good internal med/internist people working on this for you. Did you have this problem before you were on pred? ps I thought pred had a longer half life than decadron which is why we give pred QD and decadron more frequently??? At least we do this with our brain tumour patients.... Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new . Click on Options in Mail and switch to New Mail today or register for free at http://mail..ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2008 Report Share Posted March 7, 2008 I have been on at least 40 daily for about 8 years. I frequently have to go up to 80 and taper back down due to flares. I still have asthma symptoms daily. My old pulmo took me off Xolair after 4 months due to not seeing results. I am currently looking for someone else to prescribe it since I read here results can take a year to see. It is a nephrologist that is currently trying to treat my low potassium. I was also seeing a endocrinologist but she was out of ideas. Depending on my cortisol test Monday they will admit me under the care of a pulmo. I'm really hoping it doesn't take weeks to taper! I hope they will decide that I can do it as an outpatient although that also scares me a bit if I have a hard time with it. Is there any kind of chance of tapering in only a day or two? I have never been successful of getting below 30 on my own before I have to go back up due to severe flares, but hoped that maybe in the hospital they had tools to help. I have only had the potassium problem since November. Does that make sense that prednisone would suddenly cause such a significant problem after so long? Initially all the drs kept telling me it was impossible that was the problem because it is so marked but now they are changing their story so I just don't know... I really appreciate everyone's knowledge and support on this list!!! Thanks! <carrie72583@...> wrote: Wow. I am betting it is some sort of adrenal/kidney disfunction. Tapering from 40mg pred daily can take weeks depending on how long you have been on and how brittle your asthma is. I hope you have some good internal med/internist people working on this for you. Did you have this problem before you were on pred? Recent Activity 5 New Members Visit Your Group Meditation and Lovingkindness A Group to share and learn. Health Achy Joint? Common arthritis myths debunked. Check out the Y! Groups blog Stay up to speed on all things Groups! . --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2008 Report Share Posted March 7, 2008 , I went back after seeing your post to look up the half life to be sure, and decadron is listed as a long acting steroid with a half life of 36 to 54 hours. Prednisone is listed as an intermediate acting steroid with a half life of 12 to 36 hours. Like you, I do see decadron given more frequently though, usually every 6 hours IV for ICU patients. We usually give IV Solumedrol 125mg every 8 hours for patients with respiratory failure and then taper down from there, switching over to daily oral prednisone when they are off the ventilator and able to take oral meds. I don't know why we give the decadron more frequently. Maybe it takes more to get the anti-inflammatory effect for neuro patients than is needed for respiratory problems? Just guessing there. I've seen decadron just given as a once daily dose though for patients with endocrine problems, but it's always more frequent for neuro patients. I normally rarely float to the neuro ICU, so it's not my area of expertise, I usually work in a large surgical trauma ICU. When they are trying to figure out adrenal endocrine issues, I've seen a whole bunch of different tests ordered, from just a single cortisol level to checking saliva cortisol levels, to dexamethasone suppression tests, plus the other test I mentioned in my previous post It's so very complicated! I also would bet there is some kind of kidney problem involved for too. , I wish you the best of luck. The low potassium levels sound very serious and that is one huge amount of potassium you are having to take. I hope they can figure out what is wrong. I think it will take much longer than a weekend to come down on your pred, unfortunately. > > Wow. I am betting it is some sort of adrenal/kidney disfunction. Tapering from 40mg pred daily can take weeks depending on how long you have been on and how brittle your asthma is. I hope you have some good internal med/internist people working on this for you. Did you have this problem before you were on pred? > > > ps I thought pred had a longer half life than decadron which is why we give pred QD and decadron more frequently??? At least we do this with our brain tumour patients.... > > > Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new . Click on Options in Mail and switch to New Mail today or register for free at http://mail..ca > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2008 Report Share Posted March 8, 2008 , you are in our prayers as the doctor search to find the cause of your low potassium. I will add the doctors that they will be given wisdom to find the cause. Adah <pirates_ej@...> wrote: I have been on at least 40 daily for about 8 years. I frequently have to go up to 80 and taper back down due to flares. I still have asthma symptoms daily. My old pulmo took me off Xolair after 4 months due to not seeing results. I am currently looking for someone else to prescribe it since I read here results can take a year to see. It is a nephrologist that is currently trying to treat my low potassium. I was also seeing a endocrinologist but she was out of ideas. Depending on my cortisol test Monday they will admit me under the care of a pulmo. I'm really hoping it doesn't take weeks to taper! I hope they will decide that I can do it as an outpatient although that also scares me a bit if I have a hard time with it. Is there any kind of chance of tapering in only a day or two? I have never been successful of getting below 30 on my own before I have to go back up due to severe flares, but hoped that maybe in the hospital they had tools to help. I have only had the potassium problem since November. Does that make sense that prednisone would suddenly cause such a significant problem after so long? Initially all the drs kept telling me it was impossible that was the problem because it is so marked but now they are changing their story so I just don't know... I really appreciate everyone's knowledge and support on this list!!! Thanks! <carrie72583@...> wrote: Wow. I am betting it is some sort of adrenal/kidney disfunction. Tapering from 40mg pred daily can take weeks depending on how long you have been on and how brittle your asthma is. I hope you have some good internal med/internist people working on this for you. Did you have this problem before you were on pred? Recent Activity 5 New Members Visit Your Group Meditation and Lovingkindness A Group to share and learn. Health Achy Joint? Common arthritis myths debunked. Check out the Y! Groups blog Stay up to speed on all things Groups! .. --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2008 Report Share Posted March 8, 2008 , it sounds like you're going through a really tough time. I assume that since you are under the care of a nephrologist, he has ruled out renal (kidney) causes for your potassium loss. Did he do a complete evaluation of your kidneys? Do you know if you have RTA (renal tubular acidosis)? That is a common cause of large potassium losses but is usually treated with IV bicarbonate rather than high doses of potassium. If you do have RTA, a common cause of that is side effects of medications like bronchodilators (I know you're on those for your asthma); NSAIDS like Alleve, ibuprofen, Vioxx and Celebrex; and some blood pressure meds, but not prednisone to my knowledge. RTA can also be caused by cysts in the kidneys, which can be detected with ultrasound. I don't know that you'll be on a prolonged prednisone taper since you're switching to dexamethasone. The dexamethasone would replace the prednisone so it may be possible to carry out the switch over a period of several days or even less. Sending a hug and wishing you some clear answers and a smoother course soon - Fran > Wow. I am betting it is some sort of adrenal/kidney disfunction. Tapering from 40mg pred daily can take weeks depending on how long you have been on and how brittle your asthma is. I hope you have some good internal med/internist people working on this for you. Did you have this problem before you were on pred? > > > Recent Activity > > 5 > New Members > > Visit Your Group > Meditation and > Lovingkindness > A Group > to share and learn. > > Health > Achy Joint? > Common arthritis > myths debunked. > > Check out the > Y! Groups blog > Stay up to speed > on all things Groups! > > > > . > > > > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2008 Report Share Posted March 8, 2008 For three months the drs have all been telling me that problem is with my kidneys. I am certainly losing the potassium that way. I have critically low levels in my blood and critically high levels in my urine. THey have not done ultrasounds or anything. Just lots of blood tests and urine tests. They come back mostly normal except for the potassium so they are wondering if prednisone is masking something and changing the labs. I have noticed significantly increased asthma symptoms since changing to the dexamethasone. I hope I can make it until Monday morning when they will run the cortisol level. I'm thinking I'll have to go back to the pred right after the draw though in order to gain control over the flare. tiredofsteroids <sitesee@...> wrote: , it sounds like you're going through a really tough time. I assume that since you are under the care of a nephrologist, he has ruled out renal (kidney) causes for your potassium loss. Recent Activity 4 New Members Visit Your Group Health Achy Joint? Common arthritis myths debunked. Meditation and Lovingkindness A Group to share and learn. Find helpful tips for Moderators on the Groups team blog. . --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2008 Report Share Posted March 8, 2008 Thanks so much! It is amazing to me how much this has affected my life! I am used to the asthma and diabetes and other stuff but this has just really knocked me out! I am out of sick days at work due to all my ICU stays so I go to work as long as I can in the day and then go home and sleep until the next morning. Except for when I am constantly waking up to vomit which is due to the low potassium but then it also makes it worse. It is such a vicious cycle!!! Thanks again to everyone for all of your posts and help!!! Adah Voigt <asthmatic50@...> wrote: , you are in our prayers as the doctor search to find the cause of your low potassium. I will add the doctors that they will be given wisdom to find the cause. Adah Recent Activity 4 New Members Visit Your Group Health Asthma Triggers How you can identify them. Meditation and Lovingkindness A Group to share and learn. All-Bran 10 Day Challenge Join the club and feel the benefits. . --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2008 Report Share Posted March 8, 2008 Sorry, I doubt very much you will be able to come down fast without a major increase in your symptoms. There is nothing really they can do in hosptial to prevent a flare that you could not do at home (unless there are triggers at home that are not present in hosptial). The only real treatment other than loads of albuterol and brochodilators is some form of systemic corticosteroid. If you have been on 40mg for 8 years in all likelihood your own adrenals are not producing any cortisol at all. I got down to 5mg and my adrenals were still too sluggish for me to come off completely. I am betting this problem may have been exacerbated by the long course of pred since basially you have a nice case of Cushings secondary to pred. Do you have the other side effects? I am hoping your nephro can get to the bottom of this. Let us know what your cortisol test shows. I think you would probably feel very unwell if someone cut your pred dose completely in a couple of days...Perhaps Fran can comment more on this. Ask a question on any topic and get answers from real people. Go to Answers and share what you know at http://ca.answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2008 Report Share Posted March 8, 2008 Oh, my goodness! This sounds similar to what my husband went through for years and years due to gross ignorance of many doctors and a very respected hospital that totally missed the boat. My husband has a condition that's called HYPERALDOSTERONISM (sometimes called Conn's Disease) - we found out through a cardiologist about 1-1/2 years ago. I'd have to look it up again to really explain it but it kind've crosses over two specialties - endocrinology and nephrology. One of the major symptoms is very low potassium despite taking gobs of potassium and potassium sparing diuretics and no diuretics at all. He's never been on much steroid so that was not the cause - we believe it's an heredity condition. His blood pressure could run 240 over 120 and flipped out wretched docs who PUT HIM ON TERRIBLE ANTIHYPERTENSIVES AND MADE HIM WORSE AND WORSE. The test requires someone who really knows what they're doing - you should be prone for 30 minutes before blood is drawn and should be fasting and no caffeine or stimulating substances for a day or 2 in advance of testing. Even a professor at a medical school and our lab screwed up on doing it right. Read up about it and demand appropriate care. Because you've been on steroids that could interfere with test accuracy - that's something that will need some careful orchestration so I strongly recommend learning about it yourself. My husband also has asthma but not as severely as I do so is not on xolair which I am. It sounds to me like you are REALLY a strong candidate for Xolair as long as your IgE is at the appropriate levels and you do not react (adversely) to the Xolair. The steroid treatments are causing trouble you don't deserve and shouldn't have to go through with other treatment out there. Like the turtle, Xolair can be very slow but for many it does finally get there! > , > > I don't know the complete answer to your question, but I can comment on > part of it. I am an ICU nurse and we occasionally have patients who are > being screened for adrenal insuffiency (Cushing' syndrome) that must > have the cortisol level checked. The lab test we do is called a > Cosyntropin stimulation test. We give those patients decadron instead > of pred or other steroids if the doc feels they must have steroids, as > it does not interfere with the cortisol level accuracy. I have no idea > why decadron does not affect the cortisol level as it is a steroid like > prednisone, but that is what our lab people say is OK. > > > Recent Activity > > 5 > New Members > > Visit Your Group > Meditation and > Lovingkindness > A Group > to share and learn. > > Health > Healthy Aging > Improve your > quality of life. > > Find helpful tips > for Moderators > on the > Groups team blog. > > > > . > > > > > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Search. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 OK, their belief that it's in the kidneys definitely makes the most sense. BUT - you should have renal ultrasound to see if you have cysts in your kidneys, which can be a cause. Beyond that.....do you live anywhere near a medical school? I think you really deserve to be re-evaluated by a medical school nephrologist and endocrinologist. It's not that they can't ever miss anything, as a previous poster pointed out, but they are likely to add a much needed increased level of expertise and experience compared to specialists practicing in the community. Also, with a difficult case like yours they would put their heads together with other medical school specialists and this is definitely a case of two (or more) heads are way better than one. Fran , it sounds like you're going through a really tough time. I > assume that since you are under the care of a nephrologist, he has > ruled out renal (kidney) causes for your potassium loss. > > > Recent Activity > > 4 > New Members > > Visit Your Group > Health > Achy Joint? > Common arthritis > myths debunked. > > Meditation and > Lovingkindness > A Group > to share and learn. > > Find helpful tips > for Moderators > on the > Groups team blog. > > > > . > > > > > > --------------------------------- > Be a better friend, newshound, and know-it-all with Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 One of the most frustrating parts of all of this is that I am being seen at a major teaching hospital. The first time I was admitted I started at a community hospital and they took me to the University. I was having major heart problems due to the low potassium so they put me in the cardiac ICU for just over a week. When there was no easy diagnosis they decided I must be abusing diuretics and released me. I kept losing the potassium (since they didn't fix it) and ended back in ICU a few days later at another hospital. That is how I found out that they suspected me of causing the problem. I also found out that the diuretic screen was negative. Duh. I never took any diuretics. The whole time I was at the University they told me everyday that a nephrologist would come see me but that never happened. Now I am under the care of the chief of nephrology and was being seen by the chief of endocrinology. Both are pretty much out of ideas. I do know that they have consulted each other on my case which I appreciate but I sure hope someone hurries and figures something out! tiredofsteroids <sitesee@...> wrote: do you live anywhere near a medical school? I think you really deserve to be re-evaluated by a medical school nephrologist and endocrinologist. Recent Activity 4 New Members Visit Your Group Meditation and Lovingkindness A Group to share and learn. Health Heartburn or Worse What symptoms are most serious? McEnroe on Join him for the 10 Day Challenge. . --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2008 Report Share Posted March 10, 2008 I am pretty sure that my drs looked into this initially but my blood pressure has not been high. My heart rate is running in the 130-140 range though. Do you think that could be related? It has only been this high since the whole potassium problem started. instdesgn1 <instdesgn1@...> wrote: My husband has a condition that's called HYPERALDOSTERONISM (sometimes called Conn's Disease) Recent Activity 4 New Members Visit Your Group Health Achy Joint? Common arthritis myths debunked. Meditation and Lovingkindness A Group to share and learn. Cat Groups on Share pictures & stories about cats. . --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2008 Report Share Posted March 11, 2008 OMG, I can't believe the diuretics issue. It does sound like you're in an appropriate setting at the teaching hospital, in spite of their initial gaff. You can see how seriously they are taking your situation by the fact that you're now being cared for by the chiefs. You might ask them if they're consulting with other specialists at other medical schools. Hopefully they're doing that. Fran do you > live anywhere near a medical school? I think you really deserve to be > re-evaluated by a medical school nephrologist and endocrinologist. > > > > Recent Activity > > 4 > New Members > > Visit Your Group > Meditation and > Lovingkindness > A Group > to share and learn. > > Health > Heartburn or Worse > What symptoms > are most serious? > > McEnroe > on > Join him for the > 10 Day Challenge. > > > > . > > > > > > --------------------------------- > Never miss a thing. Make your homepage. > > Quote Link to comment Share on other sites More sharing options...
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