Re: Very few have responded to my questions. I'll ask again

[Guest guest]

>

> I am wondering if any of you got ill with upper respitory

> infections-swollen glands, laryngitis, sore throat since you began

> Xolair. I know it is not allergy. I don't often get sick but started

> to a week or two after my 2nd and 3rd shots-and it seems related. If

> any of you have, does this side effect(as listed on Xolair) eventually

> go away? Thanks.

>

Shril,

I have not heard of anyone getting these kinds of side effects in the

group. Others outside this group many have. You might want to ask your

doctor and get his/her opinin.

I have had 120 xolair shots since 2003 and never had any problems at all.

Doug

Group founder

[Guest guest]

I've had repetitive infections since I started - various kinds of infections,

although most have been sinus infections. Seems like I get about one a month.

I'm planning to go to Duke's immunology department to see if they can get a

handle on it. Since beginning Xolair, I've been blessed with about 35

antibiotic prescriptions, expensive cefepime infusion and three

hospitalizations. I'm beginning to wonder.

----- Original Message -----

From: shirl.halpern

Sent: Wednesday, July 02, 2008 7:23 PM

Subject: [ ] Very few have responded to my questions. I'll ask

again

I am wondering if any of you got ill with upper respitory

infections-swollen glands, laryngitis, sore throat since you began

Xolair. I know it is not allergy. I don't often get sick but started

to a week or two after my 2nd and 3rd shots-and it seems related. If

any of you have, does this side effect(as listed on Xolair) eventually

go away? Thanks.

[Guest guest]

I occasionally have a sore throat but I don't think it is related to xolair

since a sore throat is one of the side effects of some of the other meds I

take.  I have not had any upper respiratory infections, nor a severe sore throat

since Jan. 2006 and I started xolair July 2006.  I have not had to take

prednisone since Jan. 2006.  I apologize for not answering your earlier email,

but since I had not had any reaction after the xolair shots, I didn't respond.

 

I did have a bout with sinusitis this spring, but the pollen counts were very

high.  However, it did NOT turn into an infection.  The doc put me on zyrtec for

two weeks, and that took care of the drippy nose.  (He also had me use Nasonex

and Astelin twice each day for those two weeks.)  The drippy nose was definitely

not in connection with my xolair shot.

 

I hope you can get some help. 

 

Adah

From: shirl.halpern <shirl.halpern@...>

Subject: [ ] Very few have responded to my questions. I'll ask again

Date: Wednesday, July 2, 2008, 6:23 PM

I am wondering if any of you got ill with upper respitory

infections-swollen glands, laryngitis, sore throat since you began

Xolair. I know it is not allergy. I don't often get sick but started

to a week or two after my 2nd and 3rd shots-and it seems related. If

any of you have, does this side effect(as listed on Xolair) eventually

go away? Thanks.

[Guest guest]

Terry:  I sure hope they can help you.  Sounds like you have had a rough time. 

Is it between shots, or right after the shots?  Just curious.

 

Adah

From: Terry <onabeach@...>

Subject: Re: [ ] Very few have responded to my questions. I'll ask

again

Date: Wednesday, July 2, 2008, 9:09 PM

I've had repetitive infections since I started - various kinds of infections,

although most have been sinus infections. Seems like I get about one a month.

I'm planning to go to Duke's immunology department to see if they can get a

handle on it. Since beginning Xolair, I've been blessed with about 35 antibiotic

prescriptions, expensive cefepime infusion and three hospitalizations. I'm

beginning to wonder.

----- Original Message -----

From: shirl.halpern

Sent: Wednesday, July 02, 2008 7:23 PM

Subject: [ ] Very few have responded to my questions. I'll ask again

I am wondering if any of you got ill with upper respitory

infections-swollen glands, laryngitis, sore throat since you began

Xolair. I know it is not allergy. I don't often get sick but started

to a week or two after my 2nd and 3rd shots-and it seems related. If

any of you have, does this side effect(as listed on Xolair) eventually

go away? Thanks.

[Guest guest]

I just had my 2nd shot and haven't had any side effects. Hopefully someone here

can help you. I would also check with your dr. Sorry I'm not much help. I hope

you feel better. jean

---- " shirl.halpern " <shirl.halpern@...> wrote:

> I am wondering if any of you got ill with upper respitory

> infections-swollen glands, laryngitis, sore throat since you began

> Xolair. I know it is not allergy. I don't often get sick but started

> to a week or two after my 2nd and 3rd shots-and it seems related. If

> any of you have, does this side effect(as listed on Xolair) eventually

> go away? Thanks.

>

[Guest guest]

Again, per the Xolair (Genentech) page website, these were the Xolair

side effects noted that might be relevant to you:

" viral infections (23%), upper respiratory tract infection (20%),

sinusitis (16%), headache (15%), and pharyngitis (11%). These events

were observed at similar rates in Xolair-treated patients and control

patients. "

There could be something going on that has nothing to do w/Xolair or

there could be something about Xolair that is part of the problem.

Definitely follow-up on it with your doctors.

--- In , " Terry " <onabeach@...>

wrote:

>

> I've had repetitive infections since I started - various kinds of

infections, although most have been sinus infections. Seems like I

get about one a month. I'm planning to go to Duke's immunology

department to see if they can get a handle on it. Since beginning

Xolair, I've been blessed with about 35 antibiotic prescriptions,

expensive cefepime infusion and three hospitalizations. I'm

beginning to wonder.

>

>

>

>

> ----- Original Message -----

> From: shirl.halpern

>

> Sent: Wednesday, July 02, 2008 7:23 PM

> Subject: [ ] Very few have responded to my questions.

I'll ask again

>

>

> I am wondering if any of you got ill with upper respitory

> infections-swollen glands, laryngitis, sore throat since you began

> Xolair. I know it is not allergy. I don't often get sick but

started

> to a week or two after my 2nd and 3rd shots-and it seems related.

If

> any of you have, does this side effect(as listed on Xolair)

eventually

> go away? Thanks.

>

>

>

>

>

>

[Guest guest]

>

> I've had repetitive infections since I started - various kinds of

infections, although most have been sinus infections. Seems like I

get about one a month. I'm planning to go to Duke's immunology

department to see if they can get a handle on it. Since beginning

Xolair, I've been blessed with about 35 antibiotic prescriptions,

expensive cefepime infusion and three hospitalizations. I'm beginning

to wonder.

>

> Thanks to everyone for responding. Looks like one person has been

struggling. Do you know how it may affect the immune system i.e.

viruses-do the lymphocytes decrease?

>

>

> ----- Original Message -----

> From: shirl.halpern

>

> Sent: Wednesday, July 02, 2008 7:23 PM

> Subject: [ ] Very few have responded to my questions.

I'll ask again

>

>

> I am wondering if any of you got ill with upper respitory

> infections-swollen glands, laryngitis, sore throat since you began

> Xolair. I know it is not allergy. I don't often get sick but started

> to a week or two after my 2nd and 3rd shots-and it seems related. If

> any of you have, does this side effect(as listed on Xolair) eventually

> go away? Thanks.

>

>

>

>

>

>

[Guest guest]

Of all the good things xolair does the downside of it does seem to be catching

infections with increased incidents.

From: Terry <onabeachcharter (DOT) net>

Subject: Re: [ ] Very few have responded to my questions. I'll ask

again

Date: Wednesday, July 2, 2008, 9:09 PM

I've had repetitive infections since I started - various kinds of infections,

although most have been sinus infections. Seems like I get about one a month.

I'm planning to go to Duke's immunology department to see if they can get a

handle on it. Since beginning Xolair, I've been blessed with about 35 antibiotic

prescriptions, expensive cefepime infusion and three hospitalizations. I'm

beginning to wonder.

----- Original Message -----

From: shirl.halpern

Sent: Wednesday, July 02, 2008 7:23 PM

Subject: [ ] Very few have responded to my questions. I'll ask again

I am wondering if any of you got ill with upper respitory

infections-swollen glands, laryngitis, sore throat since you began

Xolair. I know it is not allergy. I don't often get sick but started

to a week or two after my 2nd and 3rd shots-and it seems related. If

any of you have, does this side effect(as listed on Xolair) eventually

go away? Thanks.

[Guest guest]

Perhaps lowering your dose of xolair might help. So that you still have the

xolair, but it doesnt' cause so many infections. Just a thought.

> I am wondering if any of you got ill with upper respitory

> infections-swollen glands, laryngitis, sore throat since you began

> Xolair. I know it is not allergy. I don't often get sick but started

> to a week or two after my 2nd and 3rd shots-and it seems related. If

> any of you have, does this side effect(as listed on Xolair) eventually

> go away? Thanks.

>

[Guest guest]

I have not had any problems with infections. I have been on  a year and a half.

I hope you are feeling better soon and they can help you.

 

Laurie

From: Terry <onabeach@...>

Subject: Re: [ ] Very few have responded to my questions. I'll ask

again

Date: Wednesday, July 2, 2008, 7:09 PM

I've had repetitive infections since I started - various kinds of infections,

although most have been sinus infections. Seems like I get about one a month.

I'm planning to go to Duke's immunology department to see if they can get a

handle on it. Since beginning Xolair, I've been blessed with about 35 antibiotic

prescriptions, expensive cefepime infusion and three hospitalizations. I'm

beginning to wonder.

----- Original Message -----

From: shirl.halpern

Sent: Wednesday, July 02, 2008 7:23 PM

Subject: [ ] Very few have responded to my questions. I'll ask again

I am wondering if any of you got ill with upper respitory

infections-swollen glands, laryngitis, sore throat since you began

Xolair. I know it is not allergy. I don't often get sick but started

to a week or two after my 2nd and 3rd shots-and it seems related. If

any of you have, does this side effect(as listed on Xolair) eventually

go away? Thanks.

[Guest guest]

Adah - I never thunk of it that way. I get the shots twice a month and an

infection about once a month, it seems, but there's no timing correlation I can

think of. Usually, I associate the infections with a cold, and some into morph

into another. It's weird. But I have the joy of having a lot of CT scans.

----- Original Message -----

From: Adah Voigt

Sent: Wednesday, July 02, 2008 11:48 PM

Subject: Re: [ ] Very few have responded to my questions. I'll ask

again

Terry: I sure hope they can help you. Sounds like you have had a rough time.

Is it between shots, or right after the shots? Just curious.

Adah

From: Terry <onabeach@...>

Subject: Re: [ ] Very few have responded to my questions. I'll ask

again

Date: Wednesday, July 2, 2008, 9:09 PM

I've had repetitive infections since I started - various kinds of infections,

although most have been sinus infections. Seems like I get about one a month.

I'm planning to go to Duke's immunology department to see if they can get a

handle on it. Since beginning Xolair, I've been blessed with about 35 antibiotic

prescriptions, expensive cefepime infusion and three hospitalizations. I'm

beginning to wonder.

----- Original Message -----

From: shirl.halpern

Sent: Wednesday, July 02, 2008 7:23 PM

Subject: [ ] Very few have responded to my questions. I'll ask

again

I am wondering if any of you got ill with upper respitory

infections-swollen glands, laryngitis, sore throat since you began

Xolair. I know it is not allergy. I don't often get sick but started

to a week or two after my 2nd and 3rd shots-and it seems related. If

any of you have, does this side effect(as listed on Xolair) eventually

go away? Thanks.

[Guest guest]

I was just curious.  I have only had one brain ct scan and that was about 9

years ago when I had a TIA.  I had been having lung ct scans every six months

for the last two years because of a spot the doc was watching but it never

changed in any way, so I don't have to go through those anymore. 

 

I really do hope the docs at Duke can determine how to help you....

 

Have a wonderful Fourth!

 

Adah

From: Terry <onabeachcharter (DOT) net>

Subject: Re: [ ] Very few have responded to my questions. I'll ask

again

Date: Wednesday, July 2, 2008, 9:09 PM

I've had repetitive infections since I started - various kinds of infections,

although most have been sinus infections. Seems like I get about one a month.

I'm planning to go to Duke's immunology department to see if they can get a

handle on it. Since beginning Xolair, I've been blessed with about 35 antibiotic

prescriptions, expensive cefepime infusion and three hospitalizations. I'm

beginning to wonder.

----- Original Message -----

From: shirl.halpern

Sent: Wednesday, July 02, 2008 7:23 PM

Subject: [ ] Very few have responded to my questions. I'll ask again

I am wondering if any of you got ill with upper respitory

infections-swollen glands, laryngitis, sore throat since you began

Xolair. I know it is not allergy. I don't often get sick but started

to a week or two after my 2nd and 3rd shots-and it seems related. If

any of you have, does this side effect(as listed on Xolair) eventually

go away? Thanks.

[Guest guest]

>

>

>

> From: Terry <onabeachcharter (DOT) net>

>

> Subject: Re: [ ] Very few have responded to my questions.

I'll ask again

>

>

>

> Date: Wednesday, July 2, 2008, 9:09 PM

>

>

>

> I've had repetitive infections since I started - various kinds of

infections, although most have been sinus infections. Seems like I get

about one a month. I'm planning to go to Duke's immunology department

to see if they can get a handle on it. Since beginning Xolair, I've

been blessed with about 35 antibiotic prescriptions, expensive

cefepime infusion and three hospitalizations. I'm beginning to wonder.

>

>

>

> ----- Original Message -----

>

> From: shirl.halpern

>

>

>

> Sent: Wednesday, July 02, 2008 7:23 PM

>

> Subject: [ ] Very few have responded to my questions.

I'll ask again

>

>

>

> I am wondering if any of you got ill with upper respitory

>

> infections-swollen glands, laryngitis, sore throat since you began

>

> Xolair. I know it is not allergy. I don't often get sick but started

>

> to a week or two after my 2nd and 3rd shots-and it seems related. If

>

> any of you have, does this side effect(as listed on Xolair) eventually

>

> go away? Thanks.

>

>

>

>

[Guest guest]

>

> From: Terry <onabeachcharter (DOT) net>

> Subject: Re: [ ] Very few have responded to my

questions. I'll ask again

>

> Date: Wednesday, July 2, 2008, 9:09 PM

>

> I've had repetitive infections since I started - various kinds of

infections, although most have been sinus infections. Seems like I

get about one a month. I'm planning to go to Duke's immunology

department to see if they can get a handle on it. Since beginning

Xolair, I've been blessed with about 35 antibiotic prescriptions,

expensive cefepime infusion and three hospitalizations. I'm beginning

to wonder.

>

> ----- Original Message -----

> From: shirl.halpern

>

> Sent: Wednesday, July 02, 2008 7:23 PM

> Subject: [ ] Very few have responded to my questions.

I'll ask again

>

> I am wondering if any of you got ill with upper respitory

> infections-swollen glands, laryngitis, sore throat since you began

> Xolair. I know it is not allergy. I don't often get sick but started

> to a week or two after my 2nd and 3rd shots-and it seems related. If

> any of you have, does this side effect(as listed on Xolair)

eventually

> go away? Thanks.

>

>

[Guest guest]

Hi:

 

No, I don't get sick after getting my three shots every two weeks.  I've been

getting shots for five years now.   Talk to your doctor.

 

Kathy

> I am wondering if any of you got ill with upper respitory

> infections-swollen glands, laryngitis, sore throat since you began

> Xolair. I know it is not allergy. I don't often get sick but started

> to a week or two after my 2nd and 3rd shots-and it seems related. If

> any of you have, does this side effect(as listed on Xolair) eventually

> go away? Thanks.

>

[Guest guest]

Thanks everyone for responding! Shirl

----- Original Message ----

From: kathy eisen <kathyh1942@...>

Sent: Sunday, July 6, 2008 1:37:32 PM

Subject: Re: [ ] Very few have responded to my questions. I'll ask

again

Hi:

No, I don't get sick after getting my three shots every two weeks. I've been

getting shots for five years now. Talk to your doctor.

Kathy

> I am wondering if any of you got ill with upper respitory

> infections-swollen glands, laryngitis, sore throat since you began

> Xolair. I know it is not allergy. I don't often get sick but started

> to a week or two after my 2nd and 3rd shots-and it seems related. If

> any of you have, does this side effect(as listed on Xolair) eventually

> go away? Thanks.

>

[Guest guest]

Shirl,

Sorry I missed your first post to this question.  When I started Xolair I

noticed I got upper resp infection MUCH more frequently than when I was not

taking X.  I asked my Doc and he said he wasn't aware of that being a side

effect but it easily could be.  For me though, it was a tolerable side effect

and wouldn't convince me to discontinue the X.

From: shirl.halpern <shirl.halpern@...>

Subject: [ ] Very few have responded to my questions. I'll ask again

Date: Wednesday, July 2, 2008, 6:23 PM

I am wondering if any of you got ill with upper respitory

infections-swollen glands, laryngitis, sore throat since you began

Xolair. I know it is not allergy. I don't often get sick but started

to a week or two after my 2nd and 3rd shots-and it seems related. If

any of you have, does this side effect(as listed on Xolair) eventually

go away? Thanks.

[Guest guest]

Hi - Do the infections still happen, or did they stop after you got used to

the Xolair?

----- Original Message ----

From: McLaughlin <gmclaughlin1000@...>

Sent: Friday, July 11, 2008 6:46:43 PM

Subject: Re: [ ] Very few have responded to my questions. I'll ask

again

Shirl,

Sorry I missed your first post to this question. When I started Xolair I

noticed I got upper resp infection MUCH more frequently than when I was not

taking X. I asked my Doc and he said he wasn't aware of that being a side

effect but it easily could be. For me though, it was a tolerable side effect

and wouldn't convince me to discontinue the X.

From: shirl.halpern <shirl.halpern>

Subject: [ ] Very few have responded to my questions. I'll ask again

Date: Wednesday, July 2, 2008, 6:23 PM

I am wondering if any of you got ill with upper respitory

infections-swollen glands, laryngitis, sore throat since you began

Xolair. I know it is not allergy. I don't often get sick but started

to a week or two after my 2nd and 3rd shots-and it seems related. If

any of you have, does this side effect(as listed on Xolair) eventually

go away? Thanks.

[Guest guest]

They seem to have slowed down but I still get typical winter infections.  This

past winter I caught a dreadful one that was easily the worst bug I've had since

I had strep when I was a kid.  Fortunately, it responded to the meds and I was

on the mend in just a couple of days.  Many other people I knew caught this bug

too so I don't think it was the Xolair.

From: shirl.halpern <shirl.halpern>

Subject: [ ] Very few have responded to my questions. I'll ask again

Date: Wednesday, July 2, 2008, 6:23 PM

I am wondering if any of you got ill with upper respitory

infections-swollen glands, laryngitis, sore throat since you began

Xolair. I know it is not allergy. I don't often get sick but started

to a week or two after my 2nd and 3rd shots-and it seems related. If

any of you have, does this side effect(as listed on Xolair) eventually

go away? Thanks.