Guest guest Posted June 26, 2008 Report Share Posted June 26, 2008 Every winter I usually have 4-5 rounds of prednisone due to illness. Last winter I had so much of it that when I tried to taper off, I suffered withdrawal and my doctor had to extend that round and bring me off it a lot slower. I have been on inhaled steriods since a very young age. I have lost track of all the different kinds of drug therapies I have tried in my lifetime. I do know that when I am not taking inhaled steriods, I lose weight. I don't think I can ever change my body structure or grow hair in places it should be, but I know that I would feel better if I could lose weight. I have my first shot tomorrow and I am apprehensive and a little scared. I am not sure if this is the right way to go. All I want is to get away from steriods. I asked the group when I first join about this because I am only willing to take the risk with this new medicine if the possibility is there and wondered if anyone has acheived this goal. On Thu, Jun 26, 2008 at 9:37 AM, billybaroo1958 <cajjz109@...> wrote: > > I might start a poll with this question, but figured I would go this > way first. Before I started Xolair, I was on a low dose of inhaled > corticosteroids for about 20 years. Prior to that time, I was only put > on prednisone when I had complications with my asthma from a cold or > flu virus. That occurred maybe 5-6 times from the ages of 14-28. I had > no ridiculous reactions to allergens, and yet I was atopic. > > The question is before people in this group went on Xolair, how many > were on daily Prednisone (or some other oral corticosteroid) and/or an > inhaled corticosteroid? > > I have been on Xolair for about 5 months, and while I am still mildly > atopic, I don't use any inhaled corticosteroids and I have used my > rescue inhaler about 2-3 times. > > > -- From the abundance of the heart the mouth speaks. - Prince Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2008 Report Share Posted June 26, 2008 Welcome to the group! I've gone from an average of 9 rounds of steroids every year to three, and I am much healthier thanks to Xolair! Addy Group Co-owner Xolair users nearly 5 years. > > > > > I might start a poll with this question, but figured I would go this > > way first. Before I started Xolair, I was on a low dose of inhaled > > corticosteroids for about 20 years. Prior to that time, I was only put > > on prednisone when I had complications with my asthma from a cold or > > flu virus. That occurred maybe 5-6 times from the ages of 14-28. I had > > no ridiculous reactions to allergens, and yet I was atopic. > > > > The question is before people in this group went on Xolair, how many > > were on daily Prednisone (or some other oral corticosteroid) and/or an > > inhaled corticosteroid? > > > > I have been on Xolair for about 5 months, and while I am still mildly > > atopic, I don't use any inhaled corticosteroids and I have used my > > rescue inhaler about 2-3 times. > > > > > > > > > > -- > From the abundance of the heart the mouth speaks. - Prince > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2008 Report Share Posted June 26, 2008 I can't say if Xolair will or will not get you off of steroids, but if your asthma is allergically driven, it offers you the best chance for what is not available. > > > > > I might start a poll with this question, but figured I would go this > > way first. Before I started Xolair, I was on a low dose of inhaled > > corticosteroids for about 20 years. Prior to that time, I was only put > > on prednisone when I had complications with my asthma from a cold or > > flu virus. That occurred maybe 5-6 times from the ages of 14-28. I had > > no ridiculous reactions to allergens, and yet I was atopic. > > > > The question is before people in this group went on Xolair, how many > > were on daily Prednisone (or some other oral corticosteroid) and/or an > > inhaled corticosteroid? > > > > I have been on Xolair for about 5 months, and while I am still mildly > > atopic, I don't use any inhaled corticosteroids and I have used my > > rescue inhaler about 2-3 times. > > > > > > > > > > -- > From the abundance of the heart the mouth speaks. - Prince > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2008 Report Share Posted June 27, 2008 Hi , Everyone responds differently and at different time frames. But I wanted to offer you some words of encouragement. The 2 years before I started Xolair I was off and on Prenisone and they would have to put me on high doses like 80 or 50 mg's when I was really sick. I was on Advair then. I have been on Xolair for a year and 3 months and during that time I only went on Prednisone once in at New years because I was allergic to all the mold spors that had grown on my Christmas tree and I had gotten sick from the exposure. Prior to Xolair I was using a nebulizer all the time and had to take it with me to work when I was sick. Now I rarley use my rescue inhaler. Not everyone has the same level of results as this but its worth a try to stay off the dreaded prednisone and have happier breathing. I wish you the best. I too was nervous when I first started but I am over that now because I started feeling so much better. I have changed to Symbiocort last fall and the last time I had my PFT my doctor said my results were normal. I confessed that I had been without my Symbiocort for a week and she said we could look at lowering my dose (inhaled steroids) next time if my results stayed the same. I will be thinking good thoughts and prayers for you tomorrow. Laurie From: Stesia <annastesia926@...> Subject: Re: [ ] Prednisone Use Date: Thursday, June 26, 2008, 12:28 PM Every winter I usually have 4-5 rounds of prednisone due to illness. Last winter I had so much of it that when I tried to taper off, I suffered withdrawal and my doctor had to extend that round and bring me off it a lot slower. I have been on inhaled steriods since a very young age. I have lost track of all the different kinds of drug therapies I have tried in my lifetime. I do know that when I am not taking inhaled steriods, I lose weight. I don't think I can ever change my body structure or grow hair in places it should be, but I know that I would feel better if I could lose weight. I have my first shot tomorrow and I am apprehensive and a little scared. I am not sure if this is the right way to go. All I want is to get away from steriods. I asked the group when I first join about this because I am only willing to take the risk with this new medicine if the possibility is there and wondered if anyone has acheived this goal. On Thu, Jun 26, 2008 at 9:37 AM, billybaroo1958 <cajjz109sbcglobal (DOT) net> wrote: > > I might start a poll with this question, but figured I would go this > way first. Before I started Xolair, I was on a low dose of inhaled > corticosteroids for about 20 years. Prior to that time, I was only put > on prednisone when I had complications with my asthma from a cold or > flu virus. That occurred maybe 5-6 times from the ages of 14-28. I had > no ridiculous reactions to allergens, and yet I was atopic. > > The question is before people in this group went on Xolair, how many > were on daily Prednisone (or some other oral corticosteroid) and/or an > inhaled corticosteroid? > > I have been on Xolair for about 5 months, and while I am still mildly > atopic, I don't use any inhaled corticosteroids and I have used my > rescue inhaler about 2-3 times. > > > -- From the abundance of the heart the mouth speaks. - Prince Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2008 Report Share Posted June 27, 2008 I also takes Prednisone every 2 months since 6 years with full dose i.e 5 tablest for 3 days,4 tablets for 3 days and so on. Last year i took the Xolair it helped me but this i have stoped Xolair lazy going to doctors place , its 1 hr drive. so again i have to back to Prednisone. my question: Is there any side effect if we are taking prednisone every 2 months with full dose? thx From: billybaroo1958 <cajjz109@...> Subject: [ ] Re: Prednisone Use Date: Thursday, June 26, 2008, 4:45 PM I can't say if Xolair will or will not get you off of steroids, but if your asthma is allergically driven, it offers you the best chance for what is not available. > > > > > I might start a poll with this question, but figured I would go this > > way first. Before I started Xolair, I was on a low dose of inhaled > > corticosteroids for about 20 years. Prior to that time, I was only put > > on prednisone when I had complications with my asthma from a cold or > > flu virus. That occurred maybe 5-6 times from the ages of 14-28. I had > > no ridiculous reactions to allergens, and yet I was atopic. > > > > The question is before people in this group went on Xolair, how many > > were on daily Prednisone (or some other oral corticosteroid) and/or an > > inhaled corticosteroid? > > > > I have been on Xolair for about 5 months, and while I am still mildly > > atopic, I don't use any inhaled corticosteroids and I have used my > > rescue inhaler about 2-3 times. > > > > > > > > > > -- > From the abundance of the heart the mouth speaks. - Prince > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2008 Report Share Posted June 27, 2008 Thank you for your words of encouragement. It is greatly appreciated. I have seen ads for Symbiocort on TV. It sounds similar to Advair. Are they different? -Kim ( Stesia is my name - It is one of my favorite Prince songs) On Thu, Jun 26, 2008 at 5:18 PM, <laurie@...> wrote: > Hi , > > Everyone responds differently and at different time frames. But I wanted to > offer you some words of encouragement. The 2 years before I started Xolair I > was off and on Prenisone and they would have to put me on high doses like 80 > or 50 mg's when I was really sick. I was on Advair then. I have been on > Xolair for a year and 3 months and during that time I only went on > Prednisone once in at New years because I was allergic to all the mold spors > that had grown on my Christmas tree and I had gotten sick from the exposure. > > Prior to Xolair I was using a nebulizer all the time and had to take it > with me to work when > I was sick. Now I rarley use my rescue inhaler. Not everyone has the same > level of results as this but its worth a try to stay off the dreaded > prednisone and have happier breathing. > > I wish you the best. I too was nervous when I first started but I am over > that now because I started feeling so much better. > > I have changed to Symbiocort last fall and the last time I had my PFT my > doctor said my results were normal. I confessed that I had been without my > Symbiocort for a week and she said we could look at lowering my dose > (inhaled steroids) next time if my results stayed the same. > > I will be thinking good thoughts and prayers for you tomorrow. > > Laurie > > > > > > > I might start a poll with this question, but figured I would go this > > way first. Before I started Xolair, I was on a low dose of inhaled > > corticosteroids for about 20 years. Prior to that time, I was only put > > on prednisone when I had complications with my asthma from a cold or > > flu virus. That occurred maybe 5-6 times from the ages of 14-28. I had > > no ridiculous reactions to allergens, and yet I was atopic. > > > > The question is before people in this group went on Xolair, how many > > were on daily Prednisone (or some other oral corticosteroid) and/or an > > inhaled corticosteroid? > > > > I have been on Xolair for about 5 months, and while I am still mildly > > atopic, I don't use any inhaled corticosteroids and I have used my > > rescue inhaler about 2-3 times. > > > > > > > > -- > From the abundance of the heart the mouth speaks. - Prince > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2008 Report Share Posted June 27, 2008 Hi, Welcome! Just FYI - 'full dose' of Prednisone for you isn't necessarily 'full dose' for everyone, some people (like me) take Prednisone everyday or every other day for years, I think you meant 'taper' dose. To answer your question, yes there are definite side-effects (I think almost everyone in this group who has taken Prednisone long-term has had side-effects), for some people being on Xolair constantly, we still can't come totally off Prednisone. Arguably though, the greatest 'side-effect' of Xolair is at least lowering the amount of Prednisone you're on if not eliminating the need for it all together. Maybe through the Xolair website, you can find a Dr. closer to you that administers Xolair, so you can get back on it. Good luck! Meagan > > > > > > > > I might start a poll with this question, but figured I would go > this > > > way first. Before I started Xolair, I was on a low dose of > inhaled > > > corticosteroids for about 20 years. Prior to that time, I was > only put > > > on prednisone when I had complications with my asthma from a > cold or > > > flu virus. That occurred maybe 5-6 times from the ages of 14- 28. > I had > > > no ridiculous reactions to allergens, and yet I was atopic. > > > > > > The question is before people in this group went on Xolair, how > many > > > were on daily Prednisone (or some other oral corticosteroid) > and/or an > > > inhaled corticosteroid? > > > > > > I have been on Xolair for about 5 months, and while I am still > mildly > > > atopic, I don't use any inhaled corticosteroids and I have used > my > > > rescue inhaler about 2-3 times. > > > > > > > > > > > > > > > > > -- > > From the abundance of the heart the mouth speaks. - Prince > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2008 Report Share Posted June 27, 2008 Hi Kim, Just to fill you in, my name is Meagan, I'm 21 years-old, I live in NY, I'm a college student majoring in pre-med, I have severe allergies/asthma, I see an allergist/pulmo on Staten Island (I see him b/c the theory among my Dr.'s years ago was that I'm too complicated for any specialists near me), my pre-Xolair IgE was 1,100, I've been on Xolair 375mg every 2 wks for over 3 years, and although I'm still on Prednisone, I have been able to taper to every other day and to just 7mg (!), and I LOVE Xolair. I react oddly to beta-agonists like albuterol, xopenex, and foradil. I was on Advair for probably 2 years about 3 years ago, until we figured out that the reason my asthma was `worse' was because of the beta-agonist in advair. So I am no longer on ANY beta agonists. I am however on Pulmicort, which is the steroid part of Symbicort. The main reason why some people believe Symbicort is `better- than' Advair is because Symbicort is a lot cheaper, and is covered more easily by many insurance companies. Also, Symbicort contains formoterol (Foradil) as it's long-acting beta-agonist and formoterol has been shown to `kick-in' faster than salmeterol (Advair's long- acting beta-agonist) so some asthma patients feel that Symbicort works `better' than Advair. It's worth discussing possibly switching from Advair to Symbicort with your pulmo, and by going on mysymbicort.com, and clicking on `send me information about Symbicort,' you can get more drug info mailed to you, which you or your doctor might be interested in (my pulmo/allergist is one of the physician-speakers for Symbicort, that's why I know about it.) Please let me know if you have any more questions. Meagan > > > > > > > > I might start a poll with this question, but figured I would go this > > > way first. Before I started Xolair, I was on a low dose of inhaled > > > corticosteroids for about 20 years. Prior to that time, I was only put > > > on prednisone when I had complications with my asthma from a cold or > > > flu virus. That occurred maybe 5-6 times from the ages of 14- 28. I had > > > no ridiculous reactions to allergens, and yet I was atopic. > > > > > > The question is before people in this group went on Xolair, how many > > > were on daily Prednisone (or some other oral corticosteroid) and/or an > > > inhaled corticosteroid? > > > > > > I have been on Xolair for about 5 months, and while I am still mildly > > > atopic, I don't use any inhaled corticosteroids and I have used my > > > rescue inhaler about 2-3 times. > > > > > > > > > > > > > -- > > From the abundance of the heart the mouth speaks. - Prince > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2008 Report Share Posted June 29, 2008 I was on Advair twice daily, along with steroid nasal spray twice a day and oral prednisone short term for allergy flare-ups that exacerbated my asthma. > > > I might start a poll with this question, but figured I would go this > way first. Before I started Xolair, I was on a low dose of inhaled > corticosteroids for about 20 years. Prior to that time, I was only put > on prednisone when I had complications with my asthma from a cold or > flu virus. That occurred maybe 5-6 times from the ages of 14-28. I had > no ridiculous reactions to allergens, and yet I was atopic. > > The question is before people in this group went on Xolair, how many > were on daily Prednisone (or some other oral corticosteroid) and/or an > inhaled corticosteroid? > > > I have been on Xolair for about 5 months, and while I am still mildly > atopic, I don't use any inhaled corticosteroids and I have used my > rescue inhaler about 2-3 times. > Quote Link to comment Share on other sites More sharing options...
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