Re: setback and a drug question

[Guest guest]

>

> Well, I have had some serious setbacks with my asthma. I really

> thought xolair was going to be my magic thing to make me feel better,

> but it doesn't seem to be. I have had four shots, and I am still on

> breathing treatments 3-4 times a day. I am a non reactor to

> prednisone, so my doctor is putting me on Florinef. Does anyone know

> what this is? I have never even heard of it. Does anyone have any

> experience with it? Anyway, I was just going to give everyone and

> update with me.

>

Remember,

It takes up to a year for some of us to see any results. I got worse

and tried to quit at 6 months but my allergist talked me into staying

the course. I am glad I did. Ask your doctor what he/she thinks and

let us know.

Hope this helps,

Doug

Group founder

[Guest guest]

4 shots are not enough to judge the benefits of xolair. I have been on shots

for almost 3

years & the benefits seem to increase the longer you are on shots.

[Guest guest]

I was on xolair for 4 months back in 2005 and thought it wasn't helping

so I stopped. Thanks to this group I've recently learned that it could

take longer for the shots to work. I've been trying to find a doctor

who will give me the shots 3 months now and FINALLY everything is set

so I can receive shots again. I can't wait to try again and this time

I plan to stay on it long term.

[Guest guest]

>

> I was on xolair for 4 months back in 2005 and thought it wasn't helping

> so I stopped. Thanks to this group I've recently learned that it could

> take longer for the shots to work. I've been trying to find a doctor

> who will give me the shots 3 months now and FINALLY everything is set

> so I can receive shots again. I can't wait to try again and this time

> I plan to stay on it long term.

>

Congrats on getting your shots again

When my doctor first told me about Xolair in 2003, he told me that

it was NOT a cure for asthma but another new weapon in the fight.

Also, he stressed very well to me that it was NOT a fast acting

medication like my neb or rescue inhaler and that it sometimes took up

to a year or more to work and not to expect instant results.

After 6 months, I was ready to quit anyway but he convinced me to stay

the full course. I am now glad he did

Doug

Group founder &

first patient in the state of Arkansas

to get Xolair, September 2003

[Guest guest]

I don't plan on quitting the shot. I just didn't expect to have so

much trouble with my asthma still. Unfortunately since I am a non

responder to prednisone and metabolize medication about twice as fast

as the average person, there just isn't a lot to keep mine under

control. I have to switch my inhaled steroid about every six months

because it stops working. Makes treating my asthma extremely hard.

My doctor warned me it could be up to a year to see any results, so I

was going to stay with it at least that long and possibly longer

before stopping. Remember, though, this asthma stuff is new for me.

I wasn't diagnosed until a year ago, and have gone downhill from there.

>

> >

> > I was on xolair for 4 months back in 2005 and thought it wasn't

helping

> > so I stopped. Thanks to this group I've recently learned that it

could

> > take longer for the shots to work. I've been trying to find a

doctor

> > who will give me the shots 3 months now and FINALLY everything is set

> > so I can receive shots again. I can't wait to try again and this

time

> > I plan to stay on it long term.

> >

>

>

> Congrats on getting your shots again

>

> When my doctor first told me about Xolair in 2003, he told me that

> it was NOT a cure for asthma but another new weapon in the fight.

> Also, he stressed very well to me that it was NOT a fast acting

> medication like my neb or rescue inhaler and that it sometimes took up

> to a year or more to work and not to expect instant results.

>

> After 6 months, I was ready to quit anyway but he convinced me to stay

> the full course. I am now glad he did

>

>

> Doug

> Group founder &

> first patient in the state of Arkansas

> to get Xolair, September 2003

>