Guest guest Posted August 9, 2008 Report Share Posted August 9, 2008 - my experience has been that it poops out the last few days before my shots. Tests of my IgE in the last year or so range from 257 to 1960, which I'm beginning to think may be related to when the tests are run. Ohldepharte ----- Original Message ----- From: gigles_1955 Sent: Friday, August 08, 2008 9:23 PM Subject: [ ] is it normal? does xolair build up in your body so it works continuously or does it run out right before your next schedule shot? It seems like I start wheezing a week before my shot is due. thanks. jean No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.6.0/1601 - Release Date: 8/8/2008 9:02 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2008 Report Share Posted August 9, 2008 for a lot of patients, the increase in symptoms before the next shot thing diminishes the longer they've been taking Xolair. This can change tho, because as Terry's IgE tests indicate, we don't have the same amount of IgE in our bodies all the time, AND also because our exposure to allergens and fluxtuate as well, making it more likely to have an increase in symptoms as the time for the next shot approaches. Addy Group co-owner Insert standard disclaimer about talking with your own doc here. --- In , " gigles_1955 " <fgigles55@...> wrote: > > does xolair build up in your body so it works continuously or does it > run out right before your next schedule shot? It seems like I start > wheezing a week before my shot is due. thanks. jean > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2008 Report Share Posted August 9, 2008 Thanks Addy, I noticed it the last time but didn't think much about it until it happened again. I have another question that I will ask my dr. office about but I just received a statement from my insurance and my dr. office is sending it in as a chemotherapy shot. Is this right?? jean ---- pyle456 <jamcculloch2@...> wrote: > for a lot of patients, the increase in symptoms before the next > shot thing diminishes the longer they've been taking Xolair. This can > change tho, because as Terry's IgE tests indicate, we don't have the > same amount of IgE in our bodies all the time, AND also because our > exposure to allergens and fluxtuate as well, making it more likely to > have an increase in symptoms as the time for the next shot approaches. > > Addy > Group co-owner > Insert standard disclaimer about talking with your own doc here. > > > > > > > does xolair build up in your body so it works continuously or does it > > run out right before your next schedule shot? It seems like I start > > wheezing a week before my shot is due. thanks. jean > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2008 Report Share Posted August 10, 2008 Thank you. I'm thinking thats what is happening. I will ask this Fri. at my next appt. I actually get to see the dr. as well for my bi monthly ck up. How are you doing? jean ---- Terry <onabeach@...> wrote: > - my experience has been that it poops out the last few days before my shots. Tests of my IgE in the last year or so range from 257 to 1960, which I'm beginning to think may be related to when the tests are run. > > Ohldepharte > > ----- Original Message ----- > From: gigles_1955 > > Sent: Friday, August 08, 2008 9:23 PM > Subject: [ ] is it normal? > > > does xolair build up in your body so it works continuously or does it > run out right before your next schedule shot? It seems like I start > wheezing a week before my shot is due. thanks. jean > > > > > No virus found in this incoming message. > Checked by AVG - http://www.avg.com > Version: 8.0.138 / Virus Database: 270.6.0/1601 - Release Date: 8/8/2008 9:02 AM > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2008 Report Share Posted August 10, 2008 I tried to convince my ins (a sort've subsidiary of BCBS) that it was chemotherapy so I wouldn't have to pay so many $ but it was ignored. I've seen several others on here for whom it was classified as chemotherapy and consequently had lower co-pays. As long as the diagnosis is correct (i.e., cancer would not be a correct diagnosis) then whatever works is probably best! Re the benefit of Xolair dropping off before the next shot ... I've seen so many people mention it here but I of course was the one who couldn't truly tell the difference. I never had a sudden improvement and after stopping it have not had a sudden drop-off either although I am having (I think) more sinus headaches w/o Xolair. The benefit was extremely gradual over many months of 3 shots every 2 weeks although the improvement did continue for a period of time. My last Xolair shots (about 6 weeks ago) were delayed by 4 days due to hassles w/medical personnel and I thought possibly I was a bit worse for it but can't really say for sure. I'm kind've envious of those who see an immediate difference! Sure would like to know what kind of " magic " it takes! <grin> > > > > > > does xolair build up in your body so it works continuously or does it > > > run out right before your next schedule shot? It seems like I start > > > wheezing a week before my shot is due. thanks. jean > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2008 Report Share Posted August 10, 2008 mine are submitted in the same category as chemo so that they are paid at 100% instead of 80% like allergy shots. > > > > > > does xolair build up in your body so it works continuously or does it > > > run out right before your next schedule shot? It seems like I start > > > wheezing a week before my shot is due. thanks. jean > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2008 Report Share Posted August 10, 2008 thanks . thats probably why they're showing a credit on my acct because I paid a co pay on the first one. Cool, I'll take a savings wherever I can get one. jean ---- brown_with_blue <rrgrimes_u3@...> wrote: > mine are submitted in the same category as chemo so that they are paid > at 100% instead of 80% like allergy shots. > > > > > > > > > > does xolair build up in your body so it works continuously or > does it > > > > run out right before your next schedule shot? It seems like I start > > > > wheezing a week before my shot is due. thanks. jean > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2008 Report Share Posted August 10, 2008 thank you for the response. I know my symptoms increase a week before my next shot but haven't paid too much attention to it. It could be that I am doing things I put off before because of my asthma and am just pushing myself too much. I'm going to keep a diary just to see what the reasons are. I hope you are doing better. jean - > > > > > > > > does xolair build up in your body so it works continuously or > does it > > > > run out right before your next schedule shot? It seems like I > start > > > > wheezing a week before my shot is due. thanks. jean > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2008 Report Share Posted August 10, 2008 Could it be the individual insurance companies that decide how to classify the xolair? The only way mine was covered is that Medicare considered it in the same class as chemotherapy. I think that means it is a " therapy " ???? My supplemental takes up the balance so that so far I have paid nothing for the xolair shots.  Also, since the doctor changed my shots to every six weeks, instead of every four weeks, the last two weeks before my next shot I do have asthmatic symptoms periodically and do use my inhaler more. I have told the nurse, but will not see the doc until sometime in Sept. She did say she would mention the symptoms to the doc. They are not bad enough to go on pred. or to the emergency room, etc. Just annoying more than anything. From: brown_with_blue <rrgrimes_u3@...> Subject: [ ] Re: is it normal? Date: Sunday, August 10, 2008, 11:13 AM mine are submitted in the same category as chemo so that they are paid at 100% instead of 80% like allergy shots. > > > > > > does xolair build up in your body so it works continuously or does it > > > run out right before your next schedule shot? It seems like I start > > > wheezing a week before my shot is due. thanks. jean > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 Same with me, Adah, except my Medicare expl of ben reads " omalizumab (generic for Xolair) injections " and my bcbs eob reads " medical services " I don't have to pay anything, but I'm told by my pulmo who set everything up that I have to go to the hospital (outpatient services unit) for my injections in order to make them freebies. I don't want to queer the deal by protesting, but I'm curious as to whether all this travel to the hospital (well, not all that much travel - 13 mi. ea. way) is necessary. Wife is nurse and can easily give me injections - in fact, she takes a certain degree of sadistic pleasure in sticking sharp objects into my body - no sharp stick in the eye yet, but there's a first time for everything. At any rate, do you have to go to hosp. in order to get Medicare to cough up? Ohldepharte ----- Original Message ----- From: Adah Voigt Sent: Sunday, August 10, 2008 3:28 PM Subject: Re: [ ] Re: is it normal? Could it be the individual insurance companies that decide how to classify the xolair? The only way mine was covered is that Medicare considered it in the same class as chemotherapy. I think that means it is a " therapy " ???? My supplemental takes up the balance so that so far I have paid nothing for the xolair shots. Also, since the doctor changed my shots to every six weeks, instead of every four weeks, the last two weeks before my next shot I do have asthmatic symptoms periodically and do use my inhaler more. I have told the nurse, but will not see the doc until sometime in Sept. She did say she would mention the symptoms to the doc. They are not bad enough to go on pred. or to the emergency room, etc. Just annoying more than anything. From: brown_with_blue <rrgrimes_u3@...> Subject: [ ] Re: is it normal? Date: Sunday, August 10, 2008, 11:13 AM mine are submitted in the same category as chemo so that they are paid at 100% instead of 80% like allergy shots. > > > > > > does xolair build up in your body so it works continuously or does it > > > run out right before your next schedule shot? It seems like I start > > > wheezing a week before my shot is due. thanks. jean > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 No, I don't have to go to a hospital to get my shots, but I do go to an Asthma and Allergy Research Clinic where they do take Medicare patients. The allergists there is doing further research for Genetech on Xolair. I was asked to be a part of a research group, but wouldn't you know it...when the interviewer for the research asked me my age he politely told me I was too old! (I'm 70, but I don't look 70 and for the most part don't act that old. I am very active physically and still have a rather busy schedule for someone who is retired!)  Adah From: brown_with_blue <rrgrimes_u3> Subject: [ ] Re: is it normal? Date: Sunday, August 10, 2008, 11:13 AM mine are submitted in the same category as chemo so that they are paid at 100% instead of 80% like allergy shots. > > > > > > does xolair build up in your body so it works continuously or does it > > > run out right before your next schedule shot? It seems like I start > > > wheezing a week before my shot is due. thanks. jean > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 > > Same with me, Adah, except my Medicare expl of ben reads " omalizumab (generic for Xolair) injections " and my bcbs eob reads " medical services " > > I don't have to pay anything, but I'm told by my pulmo who set everything up that I have to go to the hospital (outpatient services unit) for my injections in order to make them freebies. I don't want to queer the deal by protesting, but I'm curious as to whether all this travel to the hospital (well, not all that much travel - 13 mi. ea. way) is necessary. Wife is nurse and can easily give me injections - in fact, she takes a certain degree of sadistic pleasure in sticking sharp objects into my body - no sharp stick in the eye yet, but there's a first time for everything. At any rate, do you have to go to hosp. in order to get Medicare to cough up? > > Ohldepharte > > I have always had my shots at an allergy clinic. Heaven forbid that they would even consider letting me self inject. Doug Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2008 Report Share Posted December 11, 2008 You exacly described what my guys head looks like right now. I was worried that the helmet was making him worse and going to leave a dent in his head. Good to hear thats normal and the helmet is doing its job very quickly!- Cole is 7 months and has been in his DOCband for 12 daysFrom: ginlei <ginlei@...>Plagiocephaly Sent: Wednesday, December 10, 2008 11:11:52 PMSubject: Re: is it normal? that's how ours is right now. we are at the 4 week mark now, and our son's head is rounding out at the bottom (where the occipital bone is) but less on the top. i think that is one of the last things to "pooch out". our son has moderate brachy and was pretty much flat as a board back there. after being in the band for only a few days, the occipital bone already started coming out (visibly). the rest of the area in between the top of the head and the occipital bone is still kinda flat though. it makes a big difference though. our son has a lot of hair so even with the flatness, the protruding of the lower bone creates a much rounder shape with his hair, so no one right now would comment on how flat his head is (it's not noticeable enough now; before it was very flat, even with his hair). however, if his hair is wet, you can still see that the flatness has a long way to go ... > > hi all - is it normal for the rounding out of the flat spots to not round out equally? for example. the bottom part of his flat spot is rounding but the top isnt. shouldnt it be going at the same rate? thanks, rachel - cole - day 11 in docband > Quote Link to comment Share on other sites More sharing options...
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