Re: Re: Xolair and memory loss

[Guest guest]

This is exactly how my mother in law explains her episodes.  At first it was

only a few minutes but now it has become progressively worse whereby she can't

remember a whole day.

----- Original Message ----

From: instdesgn1 <instdesgn1@...>

Sent: Saturday, July 12, 2008 10:44:43 PM

Subject: [ ] Re: Xolair and memory loss

This is very interesting! How did you ever get a test to see if you

had elevated antibodies against IgE receptors?

I have noticed on a few occasions (including the last Xolair

injection by a slightly incompetent RN) I have had a strange odd

sensation for a little bit - maybe 1 to 5 mins at the most - where I

felt sort've " removed " or " foggy " or somehow not completely all there

although I talked and think I acted ok. I couldn't ever put my

finger on it though. It slightly reminded me of a TRH challenge test

except there was no urinary urgency and no particularly funny taste

in my mouth. It was sort've like something took control of my mind

and body (slightly) very briefly. However, since I never had any

swelling or difficulty breathing associated with the injection I did

not consider it serious.

I think I'm going to ask for a Prolactin test in the next few

months. I doubt the pulmo will do it, though.

My blood pressure has gradually escalated since I've been on Xolair

although I don't know if that had anything to do with it. I'm

thinking of going off Xolair at least for a while but that's for a

myriad of reasons including cost and access and the fact that it

seems to have mysteriously stopped working after 1-1/2 years. The

latter seems very strange.

--- In , " Mark Headley " <mjheadley@. ..>

wrote:

>

> I can't say I had such severe episodes of memory loss, but

cognitive impairment during my trial of Xolair was one thing that

made it seemingly untenable for me to continue.

>

> In my case, this seemed consistent with worsening of my systemic

mast cell disorder -- triggering additonal synthesis/release of

histamine/other mediators. Hence, too, the spike in my prolactin

that's since resolved. Pretreatment, my serum IgE levels were

modest, but a blood test indicated elevated antibodies against IgE

receptors -- similar to a patient whose chronic urticaria reportedly

went into remission with Xolair administration.

>

> Mark

>

>

[Guest guest]

Thanks Doug.  The Xolair has done wonders for my mother in law in regards to her

asthma.  She has not had to take Prednisone at all.  We think it may be some

sort of drug interaction with the Xolair and her other non asthma medications

that may be the cause of her memory loss.

----- Original Message ----

From: uca79iii <uca79iii@...>

Sent: Tuesday, July 15, 2008 4:23:02 PM

Subject: [ ] Re: Xolair and memory loss

Xolair in a way has improved my memory. Before xolair, all I could

take was 50 mg of Prednisone a day and sometimes more just to be able

to breathe. It was horrible on my mental state and my memory was

terrible!

Since Xolair has taken away my need for Prednisone, my memory has

vastly improved.

Just my personal experience here. Everyone is different. Talk to your

doctor.

Doug

Group founder