Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 No, I haven't had any problems with memory loss at all with Xolair. I did have times I forgot things when I was on Chemo (10 yrs ago when I had cancer). Is you Mother in law near the age of menopause. I think sometimes that can affect memory somewhat but I don't about forgetting whole days. You might have her check with her doctor. From: christineda <christineda@...> Subject: [ ] Xolair and memory loss Date: Wednesday, July 9, 2008, 9:52 AM Hi, I am a new group member. I was just wondering if anyone has experienced any memory loss when using Xolair. My mother in law has been using Xolair for approx 1 1/2 yrs and we have noticed that in the last 6 months whenever she gets her injection about 1 week letter she has an episode where she cannot remember anything that happened during the day. Has anyone experienced anything similar? Any information on any side effects would be greatly appreciated. Thank you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2008 Report Share Posted July 10, 2008 Thanks for the reply. She was hospitalized and they could not link it with anything. They said it could be a one time occurance but since then it has happened 5 times. The only new medication that she has been on is Xolair. She is going to attempt to go off Xolair for a period of 6 months to see if it happens again. ----- Original Message ---- From: " laurie@... " <laurie@...> Sent: Wednesday, July 9, 2008 5:30:04 PM Subject: Re: [ ] Xolair and memory loss No, I haven't had any problems with memory loss at all with Xolair. I did have times I forgot things when I was on Chemo (10 yrs ago when I had cancer). Is you Mother in law near the age of menopause. I think sometimes that can affect memory somewhat but I don't about forgetting whole days. You might have her check with her doctor. From: christineda <christineda> Subject: [ ] Xolair and memory loss Date: Wednesday, July 9, 2008, 9:52 AM Hi, I am a new group member. I was just wondering if anyone has experienced any memory loss when using Xolair. My mother in law has been using Xolair for approx 1 1/2 yrs and we have noticed that in the last 6 months whenever she gets her injection about 1 week letter she has an episode where she cannot remember anything that happened during the day. Has anyone experienced anything similar? Any information on any side effects would be greatly appreciated. Thank you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2008 Report Share Posted July 11, 2008 I have suspected that my memory might be slightly diminishing although nothing dramatic. I don't associate it with Xolair per se although I'd never thought about that ... assume it was high stress in my life. It's more a matter of recalling names of people places and things. I think that when my sinuses are inflammed and my head is throbbing or my lungs are tight and I'm not getting enough air that it affects my mental function. Prednisone and other steroids can create memory problems along with a myriad of other disorders. --- In , " christineda " <christineda@...> wrote: > > Hi, > I am a new group member. I was just wondering if anyone has experienced > any memory loss when using Xolair. My mother in law has been using > Xolair for approx 1 1/2 yrs and we have noticed that in the last 6 > months whenever she gets her injection about 1 week letter she has an > episode where she cannot remember anything that happened during the > day. Has anyone experienced anything similar? > > Any information on any side effects would be greatly appreciated. > Thank you, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2008 Report Share Posted July 11, 2008 > > From: christineda <christineda@...> > Subject: [ ] Xolair and memory loss > > Date: Wednesday, July 9, 2008, 9:52 AM > > I have been having the same problem.I thought it was because I am 44 and maybe experiencing pre menopause. Maybe it is b/c of the shots.But Im not sure if there is any medical evidence to support that memory loss is a side effect,If there any doctors or experts on this board that can enlighten us that would be wonderful. > > > > > Hi, > I am a new group member. I was just wondering if anyone has experienced > any memory loss when using Xolair. My mother in law has been using > Xolair for approx 1 1/2 yrs and we have noticed that in the last 6 > months whenever she gets her injection about 1 week letter she has an > episode where she cannot remember anything that happened during the > day. Has anyone experienced anything similar? > > Any information on any side effects would be greatly appreciated. > Thank you, > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2008 Report Share Posted July 11, 2008 I can't say I had such severe episodes of memory loss, but cognitive impairment during my trial of Xolair was one thing that made it seemingly untenable for me to continue. In my case, this seemed consistent with worsening of my systemic mast cell disorder -- triggering additonal synthesis/release of histamine/other mediators. Hence, too, the spike in my prolactin that's since resolved. Pretreatment, my serum IgE levels were modest, but a blood test indicated elevated antibodies against IgE receptors -- similar to a patient whose chronic urticaria reportedly went into remission with Xolair administration. Mark Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2008 Report Share Posted July 13, 2008 This is very interesting! How did you ever get a test to see if you had elevated antibodies against IgE receptors? I have noticed on a few occasions (including the last Xolair injection by a slightly incompetent RN) I have had a strange odd sensation for a little bit - maybe 1 to 5 mins at the most - where I felt sort've " removed " or " foggy " or somehow not completely all there although I talked and think I acted ok. I couldn't ever put my finger on it though. It slightly reminded me of a TRH challenge test except there was no urinary urgency and no particularly funny taste in my mouth. It was sort've like something took control of my mind and body (slightly) very briefly. However, since I never had any swelling or difficulty breathing associated with the injection I did not consider it serious. I think I'm going to ask for a Prolactin test in the next few months. I doubt the pulmo will do it, though. My blood pressure has gradually escalated since I've been on Xolair although I don't know if that had anything to do with it. I'm thinking of going off Xolair at least for a while but that's for a myriad of reasons including cost and access and the fact that it seems to have mysteriously stopped working after 1-1/2 years. The latter seems very strange. --- In , " Mark Headley " <mjheadley@...> wrote: > > I can't say I had such severe episodes of memory loss, but cognitive impairment during my trial of Xolair was one thing that made it seemingly untenable for me to continue. > > In my case, this seemed consistent with worsening of my systemic mast cell disorder -- triggering additonal synthesis/release of histamine/other mediators. Hence, too, the spike in my prolactin that's since resolved. Pretreatment, my serum IgE levels were modest, but a blood test indicated elevated antibodies against IgE receptors -- similar to a patient whose chronic urticaria reportedly went into remission with Xolair administration. > > Mark > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 Xolair in a way has improved my memory. Before xolair, all I could take was 50 mg of Prednisone a day and sometimes more just to be able to breathe. It was horrible on my mental state and my memory was terrible! Since Xolair has taken away my need for Prednisone, my memory has vastly improved. Just my personal experience here. Everyone is different. Talk to your doctor. Doug Group founder Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 - My memory's gone to hell since I've been on Xolair, but then again, it was well on the way before that because of lifelong sleep apnea which prevented proper conversion of short-term memory during my sleeping hours. We think the apnea was caused by severe childhood asthma. Terry ----- Original Message ----- From: christineda Sent: Wednesday, July 09, 2008 12:52 PM Subject: [ ] Xolair and memory loss Hi, I am a new group member. I was just wondering if anyone has experienced any memory loss when using Xolair. My mother in law has been using Xolair for approx 1 1/2 yrs and we have noticed that in the last 6 months whenever she gets her injection about 1 week letter she has an episode where she cannot remember anything that happened during the day. Has anyone experienced anything similar? Any information on any side effects would be greatly appreciated. Thank you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 Thanks for your response Terry. Do you think it could be caused by the Xolair or do you think it is the sleep apnea? My mother in law has had approx 5 episodes in the last 6 months and the episodes can vary from 5 minutes of just feeling foggy to whole days of memory being lost. It happens about 1-2 weeks after her injection each and every time. ----- Original Message ---- From: Terry <onabeach@...> Sent: Tuesday, July 15, 2008 11:47:44 PM Subject: Re: [ ] Xolair and memory loss - My memory's gone to hell since I've been on Xolair, but then again, it was well on the way before that because of lifelong sleep apnea which prevented proper conversion of short-term memory during my sleeping hours. We think the apnea was caused by severe childhood asthma. Terry ----- Original Message ----- From: christineda Sent: Wednesday, July 09, 2008 12:52 PM Subject: [ ] Xolair and memory loss Hi, I am a new group member. I was just wondering if anyone has experienced any memory loss when using Xolair. My mother in law has been using Xolair for approx 1 1/2 yrs and we have noticed that in the last 6 months whenever she gets her injection about 1 week letter she has an episode where she cannot remember anything that happened during the day. Has anyone experienced anything similar? Any information on any side effects would be greatly appreciated. Thank you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 - I wish I knew the answer to that. Actually, I remember very little of anything - my childhood, my adult life, whatever - just scattered disjointed bits and pieces, many of which are quite vivid. What's been bothering me most lately is the fairly frequent missing word. I go to use a word and it's not there. It'll come to me in a few minutes, but when I want it, it's missing. It's not a big problem, partly because I have a large vocabulary so I can find a substitute without missing too much of a beat, but it's annoying. I've been thoroughly tested, and it's not Alzheimers. Getting back to Xolair, we've been noticing a number of odd things that developed this past year or so, and we're beginning to wonder if any are Xolair related. However, I'm going up to Duke next month to see a doc at the Asthma, Allergy and Airway Center Clinic who specializes in Pulmonary and Critical Care, and whose clinical interests include allergy and immunology, immunodeficiency and immunoglobulin therapy. Hopefully, we can get to the bottom of the problem, which is mostly chronic infections. Terry ----- Original Message ----- From: Da Sent: Wednesday, July 16, 2008 12:03 PM Subject: Re: [ ] Xolair and memory loss Thanks for your response Terry. Do you think it could be caused by the Xolair or do you think it is the sleep apnea? My mother in law has had approx 5 episodes in the last 6 months and the episodes can vary from 5 minutes of just feeling foggy to whole days of memory being lost. It happens about 1-2 weeks after her injection each and every time. ----- Original Message ---- From: Terry <onabeach@...> Sent: Tuesday, July 15, 2008 11:47:44 PM Subject: Re: [ ] Xolair and memory loss - My memory's gone to hell since I've been on Xolair, but then again, it was well on the way before that because of lifelong sleep apnea which prevented proper conversion of short-term memory during my sleeping hours. We think the apnea was caused by severe childhood asthma. Terry ----- Original Message ----- From: christineda Sent: Wednesday, July 09, 2008 12:52 PM Subject: [ ] Xolair and memory loss Hi, I am a new group member. I was just wondering if anyone has experienced any memory loss when using Xolair. My mother in law has been using Xolair for approx 1 1/2 yrs and we have noticed that in the last 6 months whenever she gets her injection about 1 week letter she has an episode where she cannot remember anything that happened during the day. Has anyone experienced anything similar? Any information on any side effects would be greatly appreciated. Thank you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 Does anyone else feel that being on prednisone for an extended period of time messes with the brain? I always felt like it messed with my brain everytime I went on it and I know it messed with my personality. Adah From: Terry <onabeach@...> Subject: Re: [ ] Xolair and memory loss Date: Wednesday, July 16, 2008, 11:33 PM - I wish I knew the answer to that. Actually, I remember very little of anything - my childhood, my adult life, whatever - just scattered disjointed bits and pieces, many of which are quite vivid. What's been bothering me most lately is the fairly frequent missing word. I go to use a word and it's not there. It'll come to me in a few minutes, but when I want it, it's missing. It's not a big problem, partly because I have a large vocabulary so I can find a substitute without missing too much of a beat, but it's annoying. I've been thoroughly tested, and it's not Alzheimers. Getting back to Xolair, we've been noticing a number of odd things that developed this past year or so, and we're beginning to wonder if any are Xolair related. However, I'm going up to Duke next month to see a doc at the Asthma, Allergy and Airway Center Clinic who specializes in Pulmonary and Critical Care, and whose clinical interests include allergy and immunology, immunodeficiency and immunoglobulin therapy. Hopefully, we can get to the bottom of the problem, which is mostly chronic infections. Terry ----- Original Message ----- From: Da Sent: Wednesday, July 16, 2008 12:03 PM Subject: Re: [ ] Xolair and memory loss Thanks for your response Terry. Do you think it could be caused by the Xolair or do you think it is the sleep apnea? My mother in law has had approx 5 episodes in the last 6 months and the episodes can vary from 5 minutes of just feeling foggy to whole days of memory being lost. It happens about 1-2 weeks after her injection each and every time. ----- Original Message ---- From: Terry <onabeachcharter (DOT) net> Sent: Tuesday, July 15, 2008 11:47:44 PM Subject: Re: [ ] Xolair and memory loss - My memory's gone to hell since I've been on Xolair, but then again, it was well on the way before that because of lifelong sleep apnea which prevented proper conversion of short-term memory during my sleeping hours. We think the apnea was caused by severe childhood asthma. Terry ----- Original Message ----- From: christineda Sent: Wednesday, July 09, 2008 12:52 PM Subject: [ ] Xolair and memory loss Hi, I am a new group member. I was just wondering if anyone has experienced any memory loss when using Xolair. My mother in law has been using Xolair for approx 1 1/2 yrs and we have noticed that in the last 6 months whenever she gets her injection about 1 week letter she has an episode where she cannot remember anything that happened during the day. Has anyone experienced anything similar? Any information on any side effects would be greatly appreciated. Thank you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 Yes Adah, I would get prednisone pychosis while on Pred. I had very extreme mood swings and was not my normal self. I would get agressive, hyper, (felt like someone on speed) I couldn't sleep and would go on cleaning frenzies late at night. When I drove I would be very road rage..ish. I would also get very emotional and would feel like I was seriously going crazy. I think I was even a little parinoid. I know not all people have this severe of a reaction. My husband took it and didn't have any issues. Some people are just more sensitive to the Evil Candy. Here's to hoping we can all stay off of Pred or get off of Pred soon, Laurie From: Terry <onabeachcharter (DOT) net> Subject: Re: [ ] Xolair and memory loss Date: Wednesday, July 16, 2008, 11:33 PM - I wish I knew the answer to that. Actually, I remember very little of anything - my childhood, my adult life, whatever - just scattered disjointed bits and pieces, many of which are quite vivid. What's been bothering me most lately is the fairly frequent missing word. I go to use a word and it's not there. It'll come to me in a few minutes, but when I want it, it's missing. It's not a big problem, partly because I have a large vocabulary so I can find a substitute without missing too much of a beat, but it's annoying. I've been thoroughly tested, and it's not Alzheimers. Getting back to Xolair, we've been noticing a number of odd things that developed this past year or so, and we're beginning to wonder if any are Xolair related. However, I'm going up to Duke next month to see a doc at the Asthma, Allergy and Airway Center Clinic who specializes in Pulmonary and Critical Care, and whose clinical interests include allergy and immunology, immunodeficiency and immunoglobulin therapy. Hopefully, we can get to the bottom of the problem, which is mostly chronic infections. Terry ----- Original Message ----- From: Da Sent: Wednesday, July 16, 2008 12:03 PM Subject: Re: [ ] Xolair and memory loss Thanks for your response Terry. Do you think it could be caused by the Xolair or do you think it is the sleep apnea? My mother in law has had approx 5 episodes in the last 6 months and the episodes can vary from 5 minutes of just feeling foggy to whole days of memory being lost. It happens about 1-2 weeks after her injection each and every time. ----- Original Message ---- From: Terry <onabeachcharter (DOT) net> Sent: Tuesday, July 15, 2008 11:47:44 PM Subject: Re: [ ] Xolair and memory loss - My memory's gone to hell since I've been on Xolair, but then again, it was well on the way before that because of lifelong sleep apnea which prevented proper conversion of short-term memory during my sleeping hours. We think the apnea was caused by severe childhood asthma. Terry ----- Original Message ----- From: christineda Sent: Wednesday, July 09, 2008 12:52 PM Subject: [ ] Xolair and memory loss Hi, I am a new group member. I was just wondering if anyone has experienced any memory loss when using Xolair. My mother in law has been using Xolair for approx 1 1/2 yrs and we have noticed that in the last 6 months whenever she gets her injection about 1 week letter she has an episode where she cannot remember anything that happened during the day. Has anyone experienced anything similar? Any information on any side effects would be greatly appreciated. Thank you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 Amen to staying off of pred. My reactions could be extreme, but I also worked very hard to keep a balance mentally, knowing how I reacted to the pred. Glad you can be off of it! From: Terry <onabeachcharter (DOT) net> Subject: Re: [ ] Xolair and memory loss Date: Wednesday, July 16, 2008, 11:33 PM - I wish I knew the answer to that. Actually, I remember very little of anything - my childhood, my adult life, whatever - just scattered disjointed bits and pieces, many of which are quite vivid. What's been bothering me most lately is the fairly frequent missing word. I go to use a word and it's not there. It'll come to me in a few minutes, but when I want it, it's missing. It's not a big problem, partly because I have a large vocabulary so I can find a substitute without missing too much of a beat, but it's annoying. I've been thoroughly tested, and it's not Alzheimers. Getting back to Xolair, we've been noticing a number of odd things that developed this past year or so, and we're beginning to wonder if any are Xolair related. However, I'm going up to Duke next month to see a doc at the Asthma, Allergy and Airway Center Clinic who specializes in Pulmonary and Critical Care, and whose clinical interests include allergy and immunology, immunodeficiency and immunoglobulin therapy. Hopefully, we can get to the bottom of the problem, which is mostly chronic infections. Terry ----- Original Message ----- From: Da Sent: Wednesday, July 16, 2008 12:03 PM Subject: Re: [ ] Xolair and memory loss Thanks for your response Terry. Do you think it could be caused by the Xolair or do you think it is the sleep apnea? My mother in law has had approx 5 episodes in the last 6 months and the episodes can vary from 5 minutes of just feeling foggy to whole days of memory being lost. It happens about 1-2 weeks after her injection each and every time. ----- Original Message ---- From: Terry <onabeachcharter (DOT) net> Sent: Tuesday, July 15, 2008 11:47:44 PM Subject: Re: [ ] Xolair and memory loss - My memory's gone to hell since I've been on Xolair, but then again, it was well on the way before that because of lifelong sleep apnea which prevented proper conversion of short-term memory during my sleeping hours. We think the apnea was caused by severe childhood asthma. Terry ----- Original Message ----- From: christineda Sent: Wednesday, July 09, 2008 12:52 PM Subject: [ ] Xolair and memory loss Hi, I am a new group member. I was just wondering if anyone has experienced any memory loss when using Xolair. My mother in law has been using Xolair for approx 1 1/2 yrs and we have noticed that in the last 6 months whenever she gets her injection about 1 week letter she has an episode where she cannot remember anything that happened during the day. Has anyone experienced anything similar? Any information on any side effects would be greatly appreciated. Thank you, Quote Link to comment Share on other sites More sharing options...
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