Xolair and possible side effects and resultant illnesses

July 20, 2008

We have had a run lately of questions regarding Xolair and

possible/potential side effects and/or possible/potential resultant

illnesses.

Quite frankly, as a moderator, I'm beginning to get frustrated by this,

particularly with the concerns that sound more like complaints than

questions or concerns. I know that I am not the only moderator who

feels this way. I quite realize that this is part of the reason for

the group and I/we just have to deal, but I'm about ready to wonder if

two or three of our posting family are simply looking for a reason NOT

to take Xolair. Also, I'm concerned that some of us are relying more

on information from this group than our own doctors. THIS GROUP IS

SIMPLY A FORUM OF EXPERIENCED PATIENTS, NOT MEDICAL PROVIDERS.

Please, everyone, if you have any kind of concern or questions about

Xolair, by all means post them here. But please make an appointment to

discuss this issue with your prescribing physician AND your GP. ANd,

of course, feel free to share your doctor's response with the group.

Finally, please remember that Xolair is NOT a cure. It is simply the

best hope for those of us with IgE mediated disease whose illness is so

serious that we have become steroid dependent. Certainly physicians

are now prescribing it for folks with mild and moderate asthma, and to

excellent effect, and that portion of the population may have greater

questions about taking such a serious medication. But those of us

who've been dying slowly from regular prednisone use and who've been at

risk of a fatal allergic or asthmatic attack on a regular basis are

grateful for the opportunity to take a medicine that has such a good

chance of giving a normal life.

Gotta go take my blood pressure medicine, my calcium & vitamin D, and

do my weight bearing exercises, thank you prednisone.

Thanks for listening,

Addy

Group co-owner

Whose marriage has greatly improved now that she no longer has to take

mood-altering prednisone on a regular basis.

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