Re: Spent 4 days in the hospital

[Guest guest]

So sorry about the arm, but glad you are doing okay, now.

 

All of my doctors now know about xolair, but it is their " new " nurses that I

have to educate when they take my records of meds! 

 

My husband and I were in San Diego the summer just after I had been tested to

see if I qualified for xolair (about two and a half years ago).  As we road

through downtown there were xolair banners lining the streets.  I think there

had just been a " convention " or some kind of meeting there to introduce xolair

to this group...whatever it was.  No one that we asked knew what the banners

were!  So I could tell them what I knew then.  I could tell them a whole lot

more now!

 

You would think that medical personnel that deal with asthma/respiratory

illnesses would be " up " on the latest drugs.  I thought they had to go to

workshops, meetings, like continuing education for teachers, in order to keep

their medical licenses up to date.  Maybe I am wrong.

 

Glad you're okay......

From: uca79iii <uca79iii@...>

Subject: [ ] Spent 4 days in the hospital

Date: Monday, October 20, 2008, 7:01 AM

But NOT for asthma. I had bursitis on my elbow that suddenly got

severely infected and my whole turned arm red and swolen. After 4

days of IV antibiotics and strong pain killers I was fine.

One thing about hospital food is that you always get enough!

One bite is enough LOL! (grin)

Of course, none of the doctors or staff had ever heard of Xolair.

When they went over my meds they all asked " what is this? Never heard

of that before, what is it for and what does it do? "

Fortunately, I had just had my shots 2 days before.

There were 3 different respiratory therapists giving me my nebs every

day. NONE of them had ever heard of Xolair. These people are supposed

to be up on the latest meds for people with lung problems aren't they?

Year before last, many xolair users including Kathie (also a member of

this group) and myself took training classes to become patient speakers to

educate the medical community on xolair and what is about.

Strange that this drug has been out on the market over 5 years now and

some doctors and other medical professionals have never heard of it.

Don't doctors have to go to some kind of training every few years go

keep up on the latest meds? Do they at least read their Physicians

Desk Reference?

Well, I am now back home, breathing fine and with a normal left arm!

Doug

Group founder

__________________________________________________

[Guest guest]

I know. When I had my D & C, no one had heard of xolair and they

spelled it zolair on my chart.

>

> From: uca79iii <uca79iii@...>

> Subject: [ ] Spent 4 days in the hospital

>

> Date: Monday, October 20, 2008, 7:01 AM

>

>

>

>

>

>

> But NOT for asthma. I had bursitis on my elbow that suddenly got

> severely infected and my whole turned arm red and swolen. After 4

> days of IV antibiotics and strong pain killers I was fine.

>

> One thing about hospital food is that you always get enough!

> One bite is enough LOL! (grin)

>

> Of course, none of the doctors or staff had ever heard of Xolair.

> When they went over my meds they all asked " what is this? Never

heard

> of that before, what is it for and what does it do? "

> Fortunately, I had just had my shots 2 days before.

>

> There were 3 different respiratory therapists giving me my nebs

every

> day. NONE of them had ever heard of Xolair. These people are

supposed

> to be up on the latest meds for people with lung problems aren't

they?

>

> Year before last, many xolair users including Kathie (also a member

of

> this group) and myself took training classes to become patient

speakers to

> educate the medical community on xolair and what is about.

>

> Strange that this drug has been out on the market over 5 years now

and

> some doctors and other medical professionals have never heard of it.

>

> Don't doctors have to go to some kind of training every few years go

> keep up on the latest meds? Do they at least read their Physicians

> Desk Reference?

>

> Well, I am now back home, breathing fine and with a normal left arm!

>

> Doug

> Group founder

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

YIKES! I was hospitalized two years ago and they did not know about

Xolair then neither. I tried to educate them but I was " just a

patient " . I assumed it was just because it was relatively new but

there is no excuse now. Kinda scares me!

This is why I visit this site daily, Hands on Knowledge, irreplaceable!

On Oct 20, 2008, at 1:33 PM, Theresa wrote:

> I know. When I had my D & C, no one had heard of xolair and they

> spelled it zolair on my chart.

>

>

> >

> > From: uca79iii <uca79iii@...>

> > Subject: [ ] Spent 4 days in the hospital

> >

> > Date: Monday, October 20, 2008, 7:01 AM

> >

> >

> >

> >

> >

> >

> > But NOT for asthma. I had bursitis on my elbow that suddenly got

> > severely infected and my whole turned arm red and swolen. After 4

> > days of IV antibiotics and strong pain killers I was fine.

> >

> > One thing about hospital food is that you always get enough!

> > One bite is enough LOL! (grin)

> >

> > Of course, none of the doctors or staff had ever heard of Xolair.

> > When they went over my meds they all asked " what is this? Never

> heard

> > of that before, what is it for and what does it do? "

> > Fortunately, I had just had my shots 2 days before.

> >

> > There were 3 different respiratory therapists giving me my nebs

> every

> > day. NONE of them had ever heard of Xolair. These people are

> supposed

> > to be up on the latest meds for people with lung problems aren't

> they?

> >

> > Year before last, many xolair users including Kathie (also a member

> of

> > this group) and myself took training classes to become patient

> speakers to

> > educate the medical community on xolair and what is about.

> >

> > Strange that this drug has been out on the market over 5 years now

> and

> > some doctors and other medical professionals have never heard of it.

> >

> > Don't doctors have to go to some kind of training every few years go

> > keep up on the latest meds? Do they at least read their Physicians

> > Desk Reference?

> >

> > Well, I am now back home, breathing fine and with a normal left arm!

> >

> > Doug

> > Group founder

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

It is scary, if a 'medical professional' doesn't know about

Xolair, what else don't they know about?

I have run into my share of 'medical people' who've never heard

of Xolair too. The one that sticks out the most was about 3 years ago

when I went to an ER for a bad asthma attack/pnuemonia and the main

ER doc had never heard of Xolair -- I was like 'I think you need to

call MY pulmonologist now.' Since that 'experience' I tend to tell my

pulmo everything even remotely medical that way I know he at least

knows incase there is an issue with my Xolair or anything.

I have to say though, I do find it more comforting if a doctor

has at least heard of Xolair. I have been on an ENT-hunt for the past

2 years or so, (the ENT I had been seeing stopped participating with

my insurance all of a sudden) and part of the reason that I'm seeing

a new ENT tomorrow is b/c it scared both my pulmo and I that the ENT

I had been seeing didn't know what Xolair did.

Knowledge of Xolair has become my 'Litmus paper' of sorts in

deciding whether a doctor is going to understand my specific case.

Xolair is not like a cream or something that doesn't really play a

role in anything else, it changes your blood chemistry! It really

does baffle me as to why so many so-called 'medical experts' don't

know about Xolair, hopefully though it's something that will

eventually percolate through and until it does us patients get to

play Xolair ambassador - yay!

Anyway - rant over - I'm glad you're on the mend Doug!

Meagan

> > >

> > > From: uca79iii <uca79iii@>

> > > Subject: [ ] Spent 4 days in the hospital

> > >

> > > Date: Monday, October 20, 2008, 7:01 AM

> > >

> > >

> > >

> > >

> > >

> > >

> > > But NOT for asthma. I had bursitis on my elbow that suddenly got

> > > severely infected and my whole turned arm red and swolen. After

4

> > > days of IV antibiotics and strong pain killers I was fine.

> > >

> > > One thing about hospital food is that you always get enough!

> > > One bite is enough LOL! (grin)

> > >

> > > Of course, none of the doctors or staff had ever heard of

Xolair.

> > > When they went over my meds they all asked " what is this? Never

> > heard

> > > of that before, what is it for and what does it do? "

> > > Fortunately, I had just had my shots 2 days before.

> > >

> > > There were 3 different respiratory therapists giving me my nebs

> > every

> > > day. NONE of them had ever heard of Xolair. These people are

> > supposed

> > > to be up on the latest meds for people with lung problems aren't

> > they?

> > >

> > > Year before last, many xolair users including Kathie (also a

member

> > of

> > > this group) and myself took training classes to become patient

> > speakers to

> > > educate the medical community on xolair and what is about.

> > >

> > > Strange that this drug has been out on the market over 5 years

now

> > and

> > > some doctors and other medical professionals have never heard

of it.

> > >

> > > Don't doctors have to go to some kind of training every few

years go

> > > keep up on the latest meds? Do they at least read their

Physicians

> > > Desk Reference?

> > >

> > > Well, I am now back home, breathing fine and with a normal left

arm!

> > >

> > > Doug

> > > Group founder

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > __________________________________________________

> > >

[Guest guest]

Doug, I'm glad you are back home and things are going better for you,

jean

>

> Well, I am now back home, breathing fine and with a normal left arm!

>

> Doug

> Group founder

>

[Guest guest]

>

> Doug, I'm glad you are back home and things are going better for you,

> jean

>

Thanks so much