Re: update from Pamela on how she is doing

[Guest guest]

My IgE is 44 and with my weight I was prescribed 150 per month.  My doctors

office called Genentech and they suggested I alternate between 150 and 75 every

two weeks.  I wasn't even close to going to a higher dose based on the

prescribing guidelines but my doctor didn't hesitate trying it.  I'm eternally

grateful because this dose was the silver bullet.  It didn't cure my asthma but

it did give me my life back.  150 per month just wasn't enough.  Perhaps sharing

my story with your doctor will help or perhaps you should see another doctor?

From: pyle456 <jamcculloch2@...>

Subject: [ ] update from Pamela on how she is doing

Date: Monday, September 29, 2008, 5:35 AM

I am no longer on Xolair...after a year there was not a noticeable

improvement. ...I was on the miniumum dosage, but very close in weight

and IGE to move up to the next level, but my presribing physician would

not allow it (even though my husbands's insurance company was willing

to pay!!)

I do enjoy reading all the posts, but have refrained from posting

anything myself as I'm no long on Xolair. Needless to say I am on

numerous other meds (including a low dose of daily prednisone), and

find the wealth of information in this group for severe asthmatics is

helpful!

Pamela

[Guest guest]

Hi,

I'm new to this group today!

I take 2 shots every 2 weeks and it has changed my life. I think I

would insist that my Dr increase the dosage and see how that works for

awhile. I know that I could feel a change just after a few shots.

I think it is worth another try.

Jane

> From: pyle456 <jamcculloch2@...>

> Subject: [ ] update from Pamela on how she is doing

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> Date: Monday, September 29, 2008, 5:35 AM

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> I am no longer on Xolair...after a year there was not a noticeable

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> improvement. ...I was on the miniumum dosage, but very close in weight

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> and IGE to move up to the next level, but my presribing physician would

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> not allow it (even though my husbands's insurance company was willing

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> to pay!!)

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> I do enjoy reading all the posts, but have refrained from posting

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> anything myself as I'm no long on Xolair. Needless to say I am on

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> numerous other meds (including a low dose of daily prednisone), and

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> find the wealth of information in this group for severe asthmatics is

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> helpful!

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> Pamela

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[Guest guest]

Hi Jane....I have tried to do this in the past. My respirologist is against

it...there is only 1 group of respirologists in Kingston, and if I piss her off

by trying to push the issue again, I could be without a doctor. The Province of

Ontario has a shortage of doctors, and there are a lot of people who have to

suck it up, even if the disagree with their doctors, or else they could find

themselves with continuity of care (ie having to attend ER for prescription

refills as the After-Hours Clinics won't refill them)

Pamela

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