Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 My mother was diagnosed in September 06 with CML and started Gleevec in about October and was taken off of it due to side effects. She has been doing pretty good on it and her checkup results today say we are in remission. Thanks for the group and all the advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 Dear Stacey, Congratulations to you and your mother. It's unclear from your post, however, whether she is still off the Gleevec or whether she's resumed taking it. If she can't tolerate Gleevec and is still off it, has her doctor considered trying her on Sprycel? It's always been my understanding that, if left untreated, CML in remission will very likely return, and possibly in a more resistant form. Some patients who have had trouble with Gleevec have responded better to Sprycel. Maybe I'm not telling you anything you don't already know, but it concerned me that your mom might not be receiving any treatment. Please explore this further with her doctor. If I've misunderstood your message, then disregard what I've said and just accept my congratulations. I wish you all the best. Warm regards. > > My mother was diagnosed in September 06 with CML and started Gleevec > in about October and was taken off of it due to side effects. She has > been doing pretty good on it and her checkup results today say we are > in remission. Thanks for the group and all the advice. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 That was an excellent post . I had the same concerns that you did. Tracey > > > > My mother was diagnosed in September 06 with CML and started Gleevec > > in about October and was taken off of it due to side effects. She has > > been doing pretty good on it and her checkup results today say we are > > in remission. Thanks for the group and all the advice. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2007 Report Share Posted January 11, 2007 Sorry I was unclear...I was just very excited that she got the remission news today. She has been back on the Gleevec for about a month and she's doing better on it than she was. She had to be built up to the 400mg she's on now and she is tolerating it with little discomfort. She was having leg cramps to the point that she could barely walk and since they let her take 100mg then 200 and 300 she has done better. Thanks so much doveh12 <deh12@...> wrote: Dear Stacey, Congratulations to you and your mother. It's unclear from your post, however, whether she is still off the Gleevec or whether she's resumed taking it. If she can't tolerate Gleevec and is still off it, has her doctor considered trying her on Sprycel? It's always been my understanding that, if left untreated, CML in remission will very likely return, and possibly in a more resistant form. Some patients who have had trouble with Gleevec have responded better to Sprycel. Maybe I'm not telling you anything you don't already know, but it concerned me that your mom might not be receiving any treatment. Please explore this further with her doctor. If I've misunderstood your message, then disregard what I've said and just accept my congratulations. I wish you all the best. Warm regards. > > My mother was diagnosed in September 06 with CML and started Gleevec > in about October and was taken off of it due to side effects. She has > been doing pretty good on it and her checkup results today say we are > in remission. Thanks for the group and all the advice. > ~Stacey Thacker~ __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2008 Report Share Posted June 10, 2008 Filed a complaint with the State of Illinois against BCBS and in response to the investigation launched by the state BCBS now sees that I do, in fact, meet all of the requirements for Xolair and has approved my therapy. & nbsp; I find it interesting that they couldn't see this sooner. & nbsp; At any rate, I'm approved and have to provide clinical documentation that it is continuing to be effective every 16 weeks. Just wondering if anyone else has to " report in " every 16 weeks? Oh, and if anyone needs any help with the Insurance Appeals process feel free to contact me. & nbsp; I'll help in any way I can. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 Katy, I don't know why they biopsy rash but it is done a lot. They can tell a lot from a biopsy. Like what kind of rash it is. Or what is causing it. Should be interesting to hear what he comes back with. Let us know Sharon T _____ From: [mailto: ] On Behalf Of Sent: Thursday, July 17, 2008 3:44 PM Subject: [ ] Good News Hey everybody, well I had my " squeezogram " ! and Ultrasound and it was negative!! I apparently just have really thick bands of tissue there. Anyway that was the good news. I went to a skin doctor yesterday because I have this pesky lil rash up the front of my right leg that is making me crazy, while I was there I asked him about this lil tiny lump in my eyebrow. Well he biopsied both places, he is ruling out BCC or basil cell carcinoma on my eyebrow but wouldnt tell me what he was looking or with the rash......sooooo now I can't go swimming for two weeks I went sunday and felt sooo good afterward and was going to go yesterday after my appointment...oooh well. Anyway I will get the results back in two weeks. By the way, anybody know why he would biopsy the rash?? hugs, Katy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2008 Report Share Posted July 19, 2008 hi gang ,hope everyone is well: I just got a box of bilingual B12,folic acid,b6,and biotin capsules i take 400mg gleeve and my crit at present is 28. does anyone know if this is safe to take? I will see my onc for another month. have a great day aliza yaffa **************Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) Quote Link to comment Share on other sites More sharing options...
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