Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 In a message dated 4/20/2004 5:49:22 PM Pacific Daylight Time, bkholswort@... writes: My symptoms aren't nearly as severe as some of yours, but they are symptoms that are affecting my life. I'd really like to be able to prove that the mold at my workplace is affecting my health. If you stay in that workplace, your symptoms will increase and there is a point of no return. Get out while you can, then prove it, in that order. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 In MD, perhaps the best doctor for mold in America is in your immediate vicinity: Dr. Ritchie Shoemaker http://www.chronicneurotoxins.com/ that is his website. sure wish he was in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 In MD, perhaps the best doctor for mold in America is in your immediate vicinity: Dr. Ritchie Shoemaker http://www.chronicneurotoxins.com/ that is his website. sure wish he was in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 In a message dated 4/21/2004 6:12:49 AM Pacific Daylight Time, Gingersnap1964@... writes: Does anyone know of doctors of this nmagnitude near Maine? I have been on antigen shots of mold and have started to react violently to them. My body heats up, and I shake and get my mold symptoms back. This causes me to be nervous about my new doctor.Thanks personally, I would never take shots that made me feel like that Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 In a message dated 4/21/2004 6:12:49 AM Pacific Daylight Time, Gingersnap1964@... writes: Does anyone know of doctors of this nmagnitude near Maine? I have been on antigen shots of mold and have started to react violently to them. My body heats up, and I shake and get my mold symptoms back. This causes me to be nervous about my new doctor.Thanks personally, I would never take shots that made me feel like that Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Dr. Ritchie Shoemaker is in land: www.chronicneurotoxins.com I know of no one in Maine for treatment and upon extensive research there are only 4 toxicologist in the US that treat and litigate on these issues and Maine is not one of them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Dr. Ritchie Shoemaker is in land: www.chronicneurotoxins.com I know of no one in Maine for treatment and upon extensive research there are only 4 toxicologist in the US that treat and litigate on these issues and Maine is not one of them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Suze: >Does anyone know if food allergy tests are useful? I mean, do they only tell >you if you have IgG reactions or IgE? Or do they cover IgA? It seems that if you get an ELISA test, and have an IgA allergy to a thing, you will *also* have an IgG allergy to that thing (the IgG is used as a backup for gluten testing, when a person has low IgA). BUT ... the reverse isn't true, you can have an IgG allergy but no IgA allergy. IgE's seem to be unrelated for the most part. With the caveat that I don't think any of this is well studied. However, the ELISA test is cheap and you can get tested for a hundred or so foods at once. They used it in a double-blind study to test the concept for IBS ... when the folks avoided the foods they were IgG intolerant to, their symptoms got better (the " double blind " part is that another group got a fake list of foods to avoid). The main risk I see is that the IgG allergies can go away, but the IgA ones do not ... so if a person thinks they are all IgG allergies, they may well start eating the food again and the symptoms may take a long time to surface. > Are they only >partially useful if they don't test the exact same source of food you (or >your pet) consumes? Like GMO-fed chicken compared with organic, pasture-fed? If you are allergic to a protein, then you are allergic to it ... the test is for antibodies to a given protein. I kind of think folks who are ok with organic chicken but not factory chicken are reacting to something other than the chicken protein itself. There are a lot of issues NOT covered in this kind of testing, like sensitivies to oxalates, inability to metabolize protein or sugars, problems with sulfur. >I'm thinking of getting my dog tested if it's useful info. It's kind of >expensive, but the alternative is 6 weeks on a single food, and right now >her immune system ain't in great shape, her disk aren't either and she >generally requires digestive enzymes or having her food fermented for good >digestion, so all this would make it impossible to do a proper elimination >diet. You can read some of the literature on the York testing site, or Alpha Nutrition. Generally I think you are right, the testing is a LOT easier. I was considering doing it myself, in case some of things things I eat a lot of (like tomatoes) really are problematic. Heidi Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 Heidi wrote: " The main risk I see is that the IgG allergies can go away, but the IgA ones do not " Is this absolutely true? Not like I'm really questioning you, just having a hard time grasping it. My 2 year old tested positive (at scores of 11 & 12) for gluten, casein, eggs, and yeast with enterolab. Does that mean that for his whole life he can never eat any of those? That's a hard life. I know that he's allergic to more than that as well - I'll get him tested for more soon, hopefully. His only symptoms are that he's hungry ALL the time - he never gets full - and he has bowel problems --> he's always got a red tushy. Poor little guy. Steph Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 >Is this absolutely true? Not like I'm really questioning you, just having a hard time grasping it. My 2 year old tested positive (at scores of 11 & 12) for gluten, casein, eggs, and yeast with enterolab. Does that mean that for his whole life he can never eat any of those? That's a hard life. I don't think anyone can say for certain with casein, eggs, and yeast. What I can say for gluten is that in the past, celiacs were told they would " get over it " when they got older. And in fact, the babies diagnosed with celiac seemed to grow out of it after they were 5 or so, sometimes long before that. Then they went back on a regular diet. Someone in Italy got it into their head to do biopsies on these " cured " kids when they were in their teens ... and all of them had active celiac, although without symptoms. Given that celiac without symptoms still causes a higher death rate (cancer) and autoimmune diseases, it's a big risk to take. Now celiac is an IgA allergy to gluten. So the same might apply to the other IgA allergies as well ... or not. Personally I don't think the reaction to casein, eggs, and yeast is nearly as devastating as the one to gluten, but that's just a guess on my part. Life without gluten or casein hasn't been as hard as I would have expected ... your average Asian might have lived their whole life without either one. >I know that he's allergic to more than that as well - I'll get him tested for more soon, hopefully. His only symptoms are that he's hungry ALL the time - he never gets full - and he has bowel problems --> he's always got a red tushy. Poor little guy. It can take awhile to heal, even if he does have a good diet. Pepto Bismol helps in that regard, as does Pascalite clay, and probiotics. The " always hungry " part I can really relate to! One issue in his healing is how much of those foods are around your house ... gluten especially gets in EVERYTHING ... I can't eat at someone's house where bread is baked in the oven, for instance. The IgG testing seems to be worthwhile for kids and the York test tests for a LOT of foods all in one test. I do know one kid who got tested and his Mom avoided all those foods ... sheesh, it was a lot of foods he had to avoid! Heidi Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 >Is this absolutely true? Not like I'm really questioning you, just having a hard time grasping it. My 2 year old tested positive (at scores of 11 & 12) for gluten, casein, eggs, and yeast with enterolab. Does that mean that for his whole life he can never eat any of those? That's a hard life.< ~~~I missed the beginning of this thread, so am not sure which kind of allergies you're talking about, but I was allergic to eggs and cow's milk and got over both of them, as well as some other foods. (IGG allergy.) It took years of not eating the eggs and milk, but I can eat both now and no longer test allergic to either. (I may have overcome them more quickly, if I was more successful at TOTALLY eliminating them faster.) Eggs and dairy allergies seem to be the most difficult to overcome and take a lot longer than other food allergies. With other foods, it's common to overcome the allergy in as little as three months, simply by not eating the food. As you can see by this article, you can become allergic to foods, eliminate them and then reintroduce them again, which is what I did: http://www.gsdl.com/assessments/allergy/ Here's another article with more information on food allergies in general: http://yorkallergyusa.com/dfa.html Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 ----- Original Message ----- From: " Steph " > Heidi wrote: > " The main risk I see is that the IgG allergies can go away, but the IgA ones > do not " > > Is this absolutely true? My research supports what Heidi is saying. My experience also supports it. There are several IgG's that have been successfully added back into my children's diets. There are some that haven't been successful when challenged. I suspect that these are IgA's for them. > I know that he's allergic to more than that as well - I'll get him tested for more soon, hopefully. His only symptoms are that he's hungry ALL the time - he never gets full - and he has bowel problems --> he's always got a red tushy. Poor little guy. > > Steph This sounds like a malabsorption problem. I found York Nutritional Labs to be very helpful in nailing down all of the reactive foods that I wouldn't have been able to trace down on my own. Once we got on a clean slate and they started taking a full complement of vitamin supplements and digestive enzymes, each of them put on about 6 lbs in a couple of weeks. HTH! --s Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 >~~~I missed the beginning of this thread, so am not sure which kind of allergies you're talking about, but I was allergic to eggs and cow's milk and got over both of them, as well as some other foods. (IGG allergy.) It took years of not eating the eggs and milk, but I can eat both now and no longer test allergic to either. Right, the IgG allergies CAN go away (and by doing the testing you can figure out if they have). The IgA ones are more problematic ... they usually have no overt symptoms and the testing is iffy. Also the IgG ones don't seem to be so toxic to the body. > Heidi Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 ----- Original Message ----- From: " Heidi Schuppenhauer " > > > Right, the IgG allergies CAN go away (and by doing the testing you can figure out if they have). A sister in struggle shared with me a conversation her dh had with some geek-heads who had advanced degrees in immunology. In their opinions/experiences, once the body begins creating antibodies, it will continue to do so for a *very* long time. They concurred that even when the offending food was removed, the body would continue to register as positive for as long as 5-10 years after the fact. It looks like this could render further testing unhelpful. Their opinion was that further testing would only be valuable in measuring for *new* reactions rather than measuring reactivity to old allergens. Just some food for thought. The IgA ones are more problematic ... they usually have no overt symptoms and the testing is iffy. Also the IgG ones don't seem to be so toxic to the body. > That's the impression that I've gotten from the stuff I've read. --s Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 >>>A sister in struggle shared with me a conversation her dh had with some geek-heads who had advanced degrees in immunology. In their opinions/experiences, once the body begins creating antibodies, it will continue to do so for a *very* long time. They concurred that even when the offending food was removed, the body would continue to register as positive for as long as 5-10 years after the fact. It looks like this could render further testing unhelpful.<<<< ~~~~That may be true of some allergies, but not IgG......at least not in all cases. If further testing comes back negative, you know you've overcome the allergy. I know that, because I've tested after only eliminating foods for 3-6 months and there were no longer any antibodies. It also depends on the food. Dairy and eggs took much longer for me. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 >They concurred that even when the >offending food was removed, the body would continue to register as positive >for as long as 5-10 years after the fact. Which is pretty much how vaccinations work ... if the immune system " decides " something is bad (like a cold virus) it remembers! The IgA system is odd though, it seems like the " recognition system " is actually hard-coded onto the HLA gene. So you are born " knowing " some microbes are bad, apparently? And one of those microbes happens to look like part of a gliadin or casein protein? Heidi Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 Thanks Heidi and Suzanne! I think I've gotten most of the gluten out of the house. I've been going through the cabinets trying to find it all. I replaced my toaster with a handy dandy toaster oven. :-) Suzanne, what vitamin supplements do you give your kids? He's pretty solid, but he should probably be obese with the amount he eats! Although, it's not junk, it's good stuff. So, he probably does have a malabsorption problem. My main thing right now is that I've lost a lot of the good fats - butter, cream, cheese, now egg yolk. We're eating a LOT of coconut oil! On my shopping list: Pepto, enzymes, probiotics, vitamins.... Steph " From: Suzanne This sounds like a malabsorption problem. I found York Nutritional Labs to be very helpful in nailing down all of the reactive foods that I wouldn't have been able to trace down on my own. Once we got on a clean slate and they started taking a full complement of vitamin supplements and digestive enzymes, each of them put on about 6 lbs in a couple of weeks. HTH! " " From Heidi It can take awhile to heal, even if he does have a good diet. Pepto Bismol helps in that regard, as does Pascalite clay, and probiotics. The " always hungry " part I can really relate to! One issue in his healing is how much of those foods are around your house ... gluten especially gets in EVERYTHING ... I can't eat at someone's house where bread is baked in the oven, for instance. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 ----- Original Message ----- From: " Heidi Schuppenhauer " > The IgA system is odd though, it seems like the " recognition system " is > actually hard-coded onto the HLA gene. So you are born " knowing " > some microbes are bad, apparently? And one of those microbes happens > to look like part of a gliadin or casein protein? > And I think you've put your finger on the distinction between the two antibodies, Heidi. IgG is an adventitiously acquired allergen, due to issues like leaky gut syndrome. (Does anyone know of other conditions that initiate IgG's? I haven't been able to find any.) IgA is something that is genetically encoded and you're stuck with it. IgE's tend to swing both ways and I believe can be genetic in origin. IgE's are the milk, wheat, whathaveyou allergens that kids " outgrow, " but can also be the nut and fish allergens that are with people for life and can be so dangerous. --s Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 ----- Original Message ----- From: " Steph " > Thanks Heidi and Suzanne! > > I think I've gotten most of the gluten out of the house. I've been going through the cabinets trying to find it all. I replaced my toaster with a handy dandy toaster oven. :-) > This is a very handy appliance in my house and gets more use than I would have credited. > Suzanne, what vitamin supplements do you give your kids? It's pretty convoluted and I expect that the purists here will probably cringe. I *do* work very hard to provide nutritional vectors for what the supplements provide, but I've seen with my own eyes that despite the good food I give them, they just don't absorb it sufficiently to feed their bodies what they need. And the amount I spend on supplements is heart-breaking, so I'd love to be able to ditch them. If you want, I can put you in touch with the Queen of Supplements, who has researched them from an orthomolecular standpoint and she can help you weigh which supplements would be most beneficial for your little. Because my kids are allergic to even pharmaceutical quality ingredients, I start with two Twinlabs Allergy Multiple as the " spine " of our regimen and add to that. They also take a Twinlabs Allergy C, Source Naturals Calcium, Vitamin K, Now Magnesium Oxide, RxOmega Factor (I give them four of these a day) Fish Oil, and 1200 IU of Bio-mulsion D. I also have some B-12 and B-5 that I augment when my oldest is not sleeping well. Add to that Garden Of Life Omegazyme with each meal. Oh, and once a week, I give them a 25,000 IU Carlson's Vitamin A. While we were battling candida, I was giving them Primal Defense, but now I've dropped that in favor of the coconut milk kefir, kombucha tea, and other fermented veggies that I can ply down their throats. I get the lion's share of this stuff from http://www.iherb.com, since the price is so good to start with, shipping above $20 is free, and with bulk orders they give such yummy discounts. My main thing right now is that I've lost a lot of the good fats - butter, cream, cheese, now egg yolk. We're eating a LOT of coconut oil! > I noticed a huge difference in my children's performance when I was able to add eggs back into the diet.....Vitamin A, yk. You definitely want to get a sufficient amount of A in him. Are there bumps on the backs of his arms near his elbows? That's a good indicator of vitamin A deficiency. Coconut products are terrific and I do quite a bit of this. I'm going to be trialling ghee pretty soon. I keep telling myself this, but they are so stable right now that I want to enjoy the tranquility before I voluntarily rock the boat. Is he able to tolerate fish and fish products? CLO--which would help you address the A & D as well--and/or fish oil are very important, too. Now that I think about what you're mentioning here, the hunger might be related to the loss of fats. Fats are part of what keep us from feeling hungry and if what he is eating is largely low in fat, then that might account for the ubiquitous hunger. Can you do animal fats? Things like bacon? Coconut milk smoothies? > On my shopping list: Pepto, enzymes, probiotics, vitamins.... > Steph Check out Iherb. You may also want to have your son tested for parasites, too, since that can contribute to malabsorption. --s, thinking there is more I should be saying, but blanking atm..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 >Thanks Heidi and Suzanne! > >I think I've gotten most of the gluten out of the house. I've been going through the cabinets trying to find it all. I replaced my toaster with a handy dandy toaster oven. :-) Congratulations! I try to get calcium/mag/D down my kids, because gluten intolerant kids usually have poor bone structure. However I don't know a good way to do it ... pulverized dried fish in kimchi is great, but they won't eat that! Maybe sneak it into sauces or soups. Or use the pills and mix them into smoothies. Heidi Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 >>>(Does anyone know of other conditions that initiate IgG's? I haven't been able to find any.)<<< There is a theory that, if a specific food protein 'looks' like a protein, (bacterial etc.), that the immune system is fighting, it will cause an immune reaction to that food as well, creating a positive response to the food in a blood test. Also, and this is only my personal belief, but I think eating a lot of a particular food will engender an IgG reaction, and probably IgE as well. I know that's happened to me. I've had numerous ELISA tests, both before and after allergies (IgG and IgE), appearance, over a period of 20 years. I used to have a lot more allergies than I do now, and I think they were from something like leaky gut, as you say, because I've been working on gut issues for years. But, of late, the few foods that sometimes turn up in testing as positive allergens are those foods that I've been eating a lot in the few weeks prior to a test. I'm due to go in soon and am trying not to over indulge in any one food, so it will be interesting to see what happens this time. Although, I have to say that, there are some foods which don't seem to create a reaction, no matter how much I eat them. I'm guessing those are genetically 'my foods', so to speak.....usually the foods that most people find the least allergenic. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 ----- Original Message ----- From: " Carol " > > >>>(Does anyone know of other conditions that > initiate IgG's? I haven't been able to find any.)<<< > > There is a theory that, if a specific food protein 'looks' like a protein, (bacterial etc.), that the immune system is fighting, it will cause an immune reaction to that food as well, creating a positive response to the food in a blood test. > > Also, and this is only my personal belief, but I think eating a lot of a particular food will engender an IgG reaction, and probably IgE as well. <nodding> I know this to be true. This is what I've gleaned from my readings, but I could be forming erroneous conclusions: IgG's are a result of food proteins in the bloodstream that trigger mast cell reactions. The food proteins in the bloodstream are present because of the leaky nature of the intestines. When the intestines are healthy and intact, the foods no longer slip through the previously hyper permeable membrane and present to the body in the manner that was biologically intended and no longer trigger mast cell reactions. What I'm wondering, though, is if leaky gut would be the only vehicle for triggering the reaction, as is my assumption. I know that's happened to me. I've had numerous ELISA tests, both before and after allergies (IgG and IgE), appearance, over a period of 20 years. I used to have a lot more allergies than I do now, and I think they were from something like leaky gut, as you say, because I've been working on gut issues for years. But, of late, the few foods that sometimes turn up in testing as positive allergens are those foods that I've been eating a lot in the few weeks prior to a test. >> This is consistent with the experience of sooooo many people with gut problems! The favorite foods are the offending ones. But that ties in with leaky gut and IgG's. The more the food is eaten, the more undigested molecules float through the bloodstream and the more hysterical the immune system reaction, yk? I'm due to go in soon and am trying not to over indulge in any one food, so it will be interesting to see what happens this time. Although, I have to say that, there are some foods which don't seem to create a reaction, no matter how much I eat them. I'm guessing those are genetically 'my foods', so to speak.....usually the! foods that most people find the least allergenic. > Carol > Oh, yeah, IKWYM. My guys tested postive for millet, rice, and bananas FCOL! The " classic " hypoallergenic first foods for babies! OTOH, they blow through 16 lbs of apples per week and have never demonstrated even the slightest leanings toward reacting to them. The same with any particular meat, of which we use primarily only three types. <knocking on forehead> Certainly hope this doesn't change! At some point, I'm going to have to sit down and wrap my brain around the whole lectin issue.... --s Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 >>>At some point, I'm going to have to sit down and wrap my brain around the whole lectin issue....>>> The lectin issue is one reason I don't eat grains anymore. (They also give me muscle cramps.) Have you seen this: http://www.krispin.com/lectin.html Carol --s Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 >>>>Also there is the zonulin issue: with a gluten IgA allergy, the intestine becomes permeable in the presence of zonulin (even if it is intact). Zonulin gets produced in response to the immune reaction. Maybe it gets produced in response to other things as well? Or there is some other hormone like it?<<<<< ~~~Zonulin is just part of the intestinal membrane. It's one of those cases where some is necessary, but too much causes problems. Here's an article about how that relates to celiac disease. http://www.findarticles.com/p/articles/mi_m0ISW/is_2001_June/ai_75178698 Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 ><nodding> I know this to be true. This is what I've gleaned from my >readings, but I could be forming erroneous conclusions: IgG's are a result >of food proteins in the bloodstream that trigger mast cell reactions. The >food proteins in the bloodstream are present because of the leaky nature of >the intestines. When the intestines are healthy and intact, the foods no >longer slip through the previously hyper permeable membrane and present to >the body in the manner that was biologically intended and no longer trigger >mast cell reactions. I tend to agree here. It is the norm in most of the world that people eat a LOT of one food. Look at Price's natives. They might eat rice, rice, and more rice ... or millet and more millet ... or beef and more beef. Simply " eating a lot of one food " can't, I think, be bad in and of itself, unless the food is one that really doesn't get along with humans well. However, there has been work with mice that indicates that their intestines develop differently as pups if they are in a sterile environment ... bacterial populations prompt the development of the intestine. So it could well be that our sterile food as babies (or lack of probiotics) or antibiotics or some other feature sets our intestines up for a lifetime of leakiness. Also there is the zonulin issue: with a gluten IgA allergy, the intestine becomes permeable in the presence of zonulin (even if it is intact). Zonulin gets produced in response to the immune reaction. Maybe it gets produced in response to other things as well? Or there is some other hormone like it? And there is the digestion issue: most of us don't digest certain proteins like we should, which is one reason they reach the gut in the first place. And there is the breast feeding issue: breast feeding can 'train' the body about what foods are ok. In a society that eats a stable diet, the kid will be 'trained' that rice, say, is ok, by the time he's weaned. And of course there is the paleo issue ... we just get so many new foods from all over the world! > Heidi Jean Quote Link to comment Share on other sites More sharing options...
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