Allergy Testing

November 6, 2004

----- Original Message -----

From: " Heidi Schuppenhauer "

> I tend to agree here. It is the norm in most of the world that people eat

> a LOT of one food. Look at Price's natives. They might eat rice, rice,

> and more rice ... or millet and more millet ... or beef and more beef.

> Simply " eating a lot of one food " can't, I think, be bad in and of itself,

> unless the food is one that really doesn't get along with humans well.

You've put your finger on the pulse of something that I kicked around about

two years ago, when we were first hit with the IgG's and I felt it was my

fault for not instituting a rotation diet right after being dxed with the

gluten thang. After I'd thought about it a while, I kept tripping over the

indigenous peoples who eat/ate plantain all the time. It gets confounded,

though, since a lot of the discussion on allergens and overload point to

various cultures where the primary food is also the highest reactive one.

Asians/rice and Scandinavians/fish were a couple of examples mentioned. But

then in these latter days, leaky guts seem to be pandemic....

> However, there has been work with mice that indicates that their

> intestines develop differently as pups if they are in a sterile

environment ...

> bacterial populations prompt the development of the intestine. So it

> could well be that our sterile food as babies (or lack of probiotics) or

> antibiotics or some other feature sets our intestines up for a lifetime

> of leakiness.

<nodding> I keep pointing out to people around me that unless you are

buying fermented foods from a HFS (and then perhaps not even there), yogurt

is the sole source of live probiotics in the grocery store. And it is a

pale shadow of what dietary probiotics can be. Except for yogurt, *every

single* traditionally probiotic food has been sterilized through

pasteurization and is actually detrimental instead of beneficial.

Then there is the uber-sanitary bent of our culture. And the overbalance of

formula feeding over breastfeeding in our culture. The surprise is not that

so many suffer from subclinical illnesses....the surprise is that *more* do

not.

> Also there is the zonulin issue: with a gluten IgA allergy, the intestine

> becomes permeable in the presence of zonulin (even if it is intact).

> Zonulin gets produced in response to the immune reaction. Maybe it

> gets produced in response to other things as well? Or there is some

> other hormone like it?

I'll have to cry ignorance. I've not heard of zonulin, but it sounds

entirely feasible. Could things like stress produce zonulin?

> And there is the digestion issue: most of us don't digest certain proteins

> like we should, which is one reason they reach the gut in the first

> place.

Another reason I give digestive enzymes to the kids. I'd love to ditch them

as well, since they are some of the priciest of what we are doing. Every

time I've tried, though, within three days they are giddy, hysterical, and

bouncing off the walls....well, more than normal for us ....which behavior

subsides when I reinstitute the enzymes. This tells me that food isn't

being digested properly and is fermenting in their intestines. Sigh.

> And there is the breast feeding issue: breast feeding can 'train' the

> body about what foods are ok. In a society that eats a stable

> diet, the kid will be 'trained' that rice, say, is ok, by the time he's

weaned.

Agreed.

> And of course there is the paleo issue ... we just get so many new

> foods from all over the world!

> >

Well, I've got a different world view about that, so I've got the " all

things are lawful " approach to foods and I'm not convinced that xeno-foods

are risky.

Off to google zonulin.

--s

November 7, 2004

>~~~Zonulin is just part of the intestinal membrane. It's one of those cases

where some is necessary, but too much causes problems. Here's an article about

how that relates to celiac disease.

>http://www.findarticles.com/p/articles/mi_m0ISW/is_2001_June/ai_75178698

>Carol

I don't think it's actually part of the membrane, it's a protein. It works on

the brain membrane too. But yeah, it exists all the time ... question is, how

much and what makes the levels of it go up?

http://www.eurekalert.org/pub_releases/2000-04/UoMM-Rfiz-2804100.php

" With celiac disease, we could never understand how a big protein like gluten

was getting through to the immune system. Now we have the answer, " explains Dr.

Fasano. " People with celiac have an increased level of zonulin, which opens the

junctions between the cells. In essence, the gateways are stuck open, allowing

gluten and other allergens to pass. Once these allergens get into the immune

system, they are attacked by the antibodies, " adds Dr. Fasano.

" I believe that zonulin plays a critical role in the modulation of our immune

system. For some reason, the zonulin levels go out of whack, and that leads to

autoimmune disease, " explains Fasano.

Dr. Fasano adds that more research is needed. He is currently conducting

experiments with diabetic rats. Preliminary results from his experiments show

that insulin dependent diabetes occurs in lab rats about three to four weeks

after increased intestinal permeability. The researchers believe the increased

intestinal permeability is associated with increased levels of zonulin.

http://www.autism-pdd.net/bloodbrain.html

University of land Medical News

UM RESEARCHERS DISCOVER " KEY " TO BLOOD-BRAIN BARRIER

Findings Could Lead to New Treatments for Brain Disorders

Researchers at the University of land School of Medicine in Baltimore have

identified a receptor in the human brain that regulates the interface between

the bloodstream and the brain, which is known as the blood-brain barrier. This

breakthrough could lead to a better understanding of this nearly impenetrable

barrier and to treatment of diseases that affect the brain, such as Multiple

Sclerosis, brain tumors, meningitis, Alzheimer's disease, and HIV infection. The

findings are published in the January issue of the Journal of Neurochemistry.

The blood-brain barrier is a collection of cells that press together to block

many substances from entering the brain, while allowing others to pass. For

years, scientists knew little about how this barrier was regulated or why

certain diseases are able to manipulate the barrier and infect the brain.

Earlier research conducted at the University of land School of Medicine

found that two proteins, known as zonulin and zot, unlock the cell barrier in

the intestine. The proteins attach themselves to receptors in the intestine to

open the junctions between the cells and allow substances to be absorbed. The

new research indicates that zonulin and zot also react with similar receptors in

the brain.

" The blood-brain barrier is like a gateway to the brain. It is almost always

locked, keeping out many diseases. Unfortunately, it also keeps out medications

as well. Almost nothing can pass, " explains lead author Alessio Fasano, M.D.,

professor of pediatrics and physiology at the University of land School of

Medicine, and director of Pediatric Gastroenterology at the University of

land Hospital for Children. " First we discovered the key, and now we've

found the lock that fits that key to open the gateway into the brain. This

discovery could help us open that gateway, " explains Dr. Fasano.

Dr. Fasano and his team studied brain tissue samples obtained from a brain and

tissue bank at the University of land. The brain tissue was treated with

purified zonulin and zot proteins, then examined under a microscope. Researchers

observed the zonulin and zot proteins binding with the brain tissue. Next, they

compared the results to tests on tissue samples from the intestines.

" We've known about the blood-brain barrier for more than 100 years, but we've

never been able to figure out how it worked. Now we have a new piece to the

puzzle, " says Dr. Fasano.

" The identification of these proteins in the human brain holds the promise of

allowing us to deliver new types of medications across the blood-brain barrier.

It would be a boon to humanity if the blood-brain barrier could be opened

briefly, and safely, to allow passage of a new generation of drugs into the

brain, " says Zielke, Ph.D. co- author, professor of pediatrics and

director of the brain and tissue bank at the University of land School of

Medicine.

Dr. Fasano adds that more research is needed to understand how zonulin and zot

work during the formation and development of the brain. The current study was

funded by a grant from the National Institutes of Health.

Heidi Jean

November 7, 2004

> Oh, yeah, IKWYM. My guys tested postive for millet, rice, and bananas

> FCOL!

> The " classic " hypoallergenic first foods for babies! OTOH, they blow

> through 16 lbs of apples per week and have never demonstrated even the

> slightest leanings toward reacting to them. The same with any particular

> meat, of which we use primarily only three types. <knocking on forehead>

> Certainly hope this doesn't change!

>

> --s

Both you and your guys are lucky to have each other. Apples are the only

fruit protein metabolic types can eat like you describe. Same with the meat,

animal protein 3X a day. Should be no problem with those. Little ones

instincts should be listened to if they're reasonable. Only meat our

youngest ate up to 3 was liver and bear ribs ( like she'd never eaten

before) once when we were given them.

Wanita

November 7, 2004

>>>>At some point, I'm going to have to sit down and wrap my brain around the

>whole lectin issue....>>>

>

>The lectin issue is one reason I don't eat grains anymore. (They also give me

muscle cramps.) Have you seen this:

>http://www.krispin.com/lectin.html

>Carol

>

>--s

I read this awhile ago and you prompted me to read it again. Here is what I find

interesting:

SIgA, and other immune factors may, if sufficient in quantity, help protect

against some exposure to toxic lectins. See abstract at end of report

The high lectin-binding capacity of human secretory IgA protects nonspecifically

mucosae against environmental antigens.

Davin JC, Senterre J, Mahieu PR

Department of Pediatrics, State University of Liege, Belgium.

The anti-infectious role of human milk may be, at least partly, ascribed to its

content in secretory IgA. As lectins are present in various infectious antigens,

the binding of different types of IgA to three lectins (concanavalin A, peanut

agglutinin, wheat germ agglutinin) was studied by . The specificity of

those bindings was assessed by inhibitory experiments performed with the

corresponding oligosaccharides. The following were found for the three lectins:

(1) the lectin-binding capacity of colostrum secretory IgA was markedly greater

than that of normal plasma IgA1 (p less than 0.001); (2) the lectin-binding

capacity of polymeric IgA1 was greater than that of monomeric IgA1 (p less than

0.001). This property of mucosal IgA may be responsible of a nonimmune

opsonization able to prevent the early step of some infectious mucosal diseases,

i.e. the attachment of bacteria to epithelial cells by lectin-like bonds and

also the penetration into the body of some antigens able to favor the

development of allergy. Milk mucosal IgA, present in significant amounts in

human colostrum and mature milk - but not in infant formulas - may therefore

play an important polyvalent protective role in newborns.

OK, now this is interesting! The IgA *protects* against the lectins in milk (and

likely in gliadin too). So: that might be one reason raw milk is less

problematic. But also: if a person tests high for anti-casein or anti-gliadin

IgA, they are considered " allergic " or " reactive " to casein or gliadin. But

consider the reverse: if a person doe NOT have the IgA, then that person has no

protection against the binding of the lectins. Does that mean that a person who

does NOT show up as reactive is open to more damage from those lectins????

Heidi Jean

November 7, 2004

>>>>OK, now this is interesting! The IgA *protects* against the lectins in milk

(and likely in gliadin too). So: that might be one reason raw milk is less

problematic. But also: if a person tests high for anti-casein or anti-gliadin

IgA, they are considered " allergic " or " reactive " to casein or gliadin. But

consider the reverse: if a person doe NOT have the IgA, then that person has no

protection against the binding of the lectins. Does that mean that a person who

does NOT show up as reactive is open to more damage from those lectins????<<<<<

~~~I don't see how you arrived at that conclusion. Can you explain further?

Also, how is IgA tested?

Carol

Heidi Jean

November 7, 2004

Thought I would share my experiences with you all. I have two

children with lots of IgE allergies, some serious nut ones, some

less serious ones too. My son just outgrew a severe egg white IgE

allergy after only 2 years! Exciting.

Anyway, on the milk issue, I thought it might make a difference in

pasteurized vs raw also. He tested positive for cow milk whey, so I

though raw goat milk would be great! I didnt even let him drink any,

just touched it to his skin & he immediately broke out in huge hives

covering his whole face, sure glad I didnt give him a drink! Guess

every one is different, so I thought I would offer up my experiences!

T.

>

> ----- Original Message -----

> From: " Heidi Schuppenhauer "

> >

>

> >

> > Right, the IgG allergies CAN go away (and by doing the testing

you can

> figure out if they have).

>

> A sister in struggle shared with me a conversation her dh had with

some

> geek-heads who had advanced degrees in immunology. In their

> opinions/experiences, once the body begins creating antibodies, it

will

> continue to do so for a *very* long time. They concurred that

even when the

> offending food was removed, the body would continue to register as

positive

> for as long as 5-10 years after the fact. It looks like this

could render

> further testing unhelpful. Their opinion was that further testing

would

> only be valuable in measuring for *new* reactions rather than

measuring

> reactivity to old allergens. Just some food for thought.

>

> The IgA ones are more problematic ... they usually have no overt

symptoms

> and the testing is iffy. Also the IgG ones don't seem to be so

toxic to the

> body.

> >

>

> That's the impression that I've gotten from the stuff I've read.

>

> --s

November 8, 2004

>>>>>OK, now this is interesting! The IgA *protects* against the lectins in milk

(and likely in gliadin too). So: that might be one reason raw milk is less

problematic. But also: if a person tests high for anti-casein or anti-gliadin

IgA, they are considered " allergic " or " reactive " to casein or gliadin. But

consider the reverse: if a person doe NOT have the IgA, then that person has no

protection against the binding of the lectins. Does that mean that a person who

does NOT show up as reactive is open to more damage from those lectins????<<<<<

>

>~~~I don't see how you arrived at that conclusion. Can you explain further?

Also, how is IgA tested?

>Carol

In the article, it talks about how SIgA (secretory IgA) in the gut reacts with

lectins to

disable them (which I've heard elsewhere too). IgA is immunoglubolin, which

is used in the body to attack viruses and bacteria, but apparently it also

acts on lectins (or I'm misreading the article). High levels of antigliadin IgA

are

what is used to diagnose gluten intolerance ... but those same high levels

might be disabling the gluten to some extent, if Krispin is correct.

Now it is assumed that a person with low levels of antigliaden IgA is ok

to eat gluten foods. But if the gluten lectins are causing problems, and

the person has low levels of IgA, that would make them more vulnerable

to lectin damage (albeit not to the damage from an over-reactive immune

system).

Is that clearer? There's probably a better way of wording it ...

Heidi Jean

November 8, 2004

----- Original Message -----

From: " Heidi Schuppenhauer "

> Now it is assumed that a person with low levels of antigliaden IgA is ok

> to eat gluten foods. But if the gluten lectins are causing problems, and

> the person has low levels of IgA, that would make them more vulnerable

> to lectin damage (albeit not to the damage from an over-reactive immune

> system).

>

> Is that clearer? There's probably a better way of wording it ...

>

No, I'm with you, HJ. And it explains A LOT.....

I'm wondering if the lectin sensitivity will be life long, then, or will it

diminish with improved gut integrity?

--s

November 8, 2004

I think we must be talking about two different types of lectins. I know D'Adamo

talks about the lectins that form in the blood when certain foods are introduced

to it. There is a different type of lectin that is inherent in grains, legumes

and nightshade veggies. It will never go away, and is only diminished when the

foods are processed certain ways.

Carol

>>No, I'm with you, HJ. And it explains A LOT.....

I'm wondering if the lectin sensitivity will be life long, then, or will it

diminish with improved gut integrity?

--s<<

November 8, 2004

>No, I'm with you, HJ. And it explains A LOT.....

>

>I'm wondering if the lectin sensitivity will be life long, then, or will it

>diminish with improved gut integrity?

>

>--s

I dunno. I've got this sinking feeling that the Paleo folks might have it

right. The problem is, the lectins in the blood glom onto joints and

nerves too, where they are attacked by the immune system and might

be implicated in a lot of degenerative diseases.

Does this happen in healthy guts? THAT is the question! The skeletal

evidence seems to indicate that the Native Americans started getting

arthritis about the time they started farming corn, ditto for the Romans

and wheat, which isn't very encouraging. I'd expect that your average

Native American ate a pretty good diet, but they still did better on

buffalo or salmon than on corn and beans.

The one bright spot is that some lectins CAN be easily disabled ... they

glom onto certain saccharides (which one depends on the lectin). I

would expect that the " traditional diets " combine foods that

disable the lectins --- wheat/wine/olive oil combo, for one).

I started taking some Pascalite clay WITH dinner, as an experiment ...

some cultures used clay " to help their digestion " and it may be

that it gloms onto the toxins in food? I don't know that it doesn't

glom onto the NUTRIENTS in food either, but since dirt was a

common food item in ancient diets ...

Also there are lectins in about all foods ... likely the body

knows how to deal with lectins in, say, red meat.

And I'd expect any lectins in greens would be ones we

are used to also.

Heidi Jean

November 8, 2004

Heidi,

Very clear explanation. It had been a year or two since I read that article and

I'd forgotten about the SIgA part, and evidently totally missed the connection

for me. I tested low in SIgA several years ago in a stool test. That is

probably why ALL grains bother me. Thanks for the explanation, because it

connected those things for me.

Carol

>In the article, it talks about how SIgA (secretory IgA) in the gut reacts with

lectins to

disable them (which I've heard elsewhere too).

Heidi Jean<

November 10, 2004

--- Heidi Schuppenhauer <heidis@...>

wrote:

or not. Personally I

> don't think the reaction to casein, eggs, and yeast

> is nearly as devastating as the one to gluten, but

> that's just a guess on my part. Life without gluten

> or casein hasn't been as hard as I would have

> expected

Heidi

I haven't read the research, but from my own point of

view, the casein intolerance has a much longer lasting

and wider reaching effect on my body than the gluten

intolerance does. I have never had a blood test, but

my reaction to gluten is always 1-2 days after eating

it, it hurts my gut at a particular place with exactly

the same symptoms (bloating, wind, localised pain)

every single time. Then it goes. No headaches, sinus

problems, or any other typical allergic reactions.

However, casein causes a list of symptoms as long as

my arm which affect most areas of my body, incl my

immune system and my endometriosis, my skin, and much

more. It can take a week or 2 for symptoms to appear,

but they also take many weeks to get rid of. As a

result, I feel that casein is the one thing I should

put the most effort into avoiding for hte good of my

health.

> It can take awhile to heal, even if he does have a

> good diet. Pepto Bismol helps in that regard, as

> does Pascalite clay, and probiotics.

I have tried the PB for about 5 days - no effect. DH

tried it one day and felt REALLY sick! I hesitate to

give it to him again. Do you have a view on whether

it is better to take on a full or empty stomach?

Jo

___________________________________________________________

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November 10, 2004

Jo,

I think it is best to follow your instincts. Everybody has different

reactions to various things, and so would rate them differently.

Personally I would stay away from the Pepto Bismol. Chemicals are just

asking for more problems. I for one have horrible reactions to any

synthetic medicines, and so all the OTC went out the door years ago. I

missed the beginning of this thread... why are you taking the Pepto?

I'll take your reaction to gluten any day! For me (with wheat), it's

unmovable,painful joints, sinuses swollen so much that it is hard to

breathe, and unbearable black depression that last for almost 2 weeks!

L.

> I haven't read the research, but from my own point of

> view, the casein intolerance has a much longer lasting

> and wider reaching effect on my body than the gluten

> intolerance does. I have never had a blood test, but

> my reaction to gluten is always 1-2 days after eating

> it, it hurts my gut at a particular place with exactly

> the same symptoms (bloating, wind, localised pain)

> every single time. Then it goes. No headaches, sinus

> problems, or any other typical allergic reactions.

>

> However, casein causes a list of symptoms as long as

> my arm which affect most areas of my body, incl my

> immune system and my endometriosis, my skin, and much

> more. It can take a week or 2 for symptoms to appear,

> but they also take many weeks to get rid of. As a

> result, I feel that casein is the one thing I should

> put the most effort into avoiding for hte good of my

> health.

>

> > It can take awhile to heal, even if he does have a

> > good diet. Pepto Bismol helps in that regard, as

> > does Pascalite clay, and probiotics.

>

> I have tried the PB for about 5 days - no effect. DH

> tried it one day and felt REALLY sick! I hesitate to

> give it to him again. Do you have a view on whether

> it is better to take on a full or empty stomach?

>

> Jo

>

> ___________________________________________________________

> ALL-NEW Messenger - all new features - even more fun!

> http://uk.messenger.

>

November 11, 2004

>However, casein causes a list of symptoms as long as

>my arm which affect most areas of my body, incl my

>immune system and my endometriosis, my skin, and much

>more. It can take a week or 2 for symptoms to appear,

>but they also take many weeks to get rid of. As a

>result, I feel that casein is the one thing I should

>put the most effort into avoiding for hte good of my

>health.

Interesting. Casein affects my brain more than

my body, I get neurological effects from it. But in

any case I don't really eat casein OR gluten at this

point. But casein isn't banned from the house. There

isn't as much research done on casein though,

so sharing experiences is good! The kind of symptoms

you describe sound like an IgA reaction, and those

are pretty nasty.

>> It can take awhile to heal, even if he does have a

>> good diet. Pepto Bismol helps in that regard, as

>> does Pascalite clay, and probiotics.

>

>I have tried the PB for about 5 days - no effect. DH

>tried it one day and felt REALLY sick! I hesitate to

>give it to him again. Do you have a view on whether

>it is better to take on a full or empty stomach?

Interesting he'd get sick from it! I don't think it matters

if your stomach is full or empty, or it hasn't for me ...

nor have I ever talked to anyone who got sick off it ...

it does kill off bacteria though and that could release

toxins. Has he tried Pascalite clay? It's supposed

to absorb toxins (and maybe nutrients, which is

why I'm still iffy on it).

Anyway, if it didn't help you then maybe your issues

aren't so bacterial?

>

Heidi Jean

March 28, 2006

Im on immunotherapy. Even if it doesnt help the mold, maybe it will help they

other allergies that went haywire after I got sick and my immune systen went

nuts. Ive been on steroids so long now that I probably dont have an immune

system left. I am scared as I have been told a few days ago to stop the sporanox

because my liver count has doubled and my white blood cell count is sky high

and Im down to 8 mgs of steroids. I started at 100.

Janet

May 24, 2008

Hi to all (and a Happy Holiday Weekend to all too!),

For the past 2-3 months, I seemingly have and 1 continuous (except

my Dr.'s say it has cleared up 3x) Sinus Infection. As you may know, I

have had a difficult time locating an ENT who realizes what a problem

like a sinus infection can mean for my asthma (I have tried and failed

3 ENTs and am now starting with a 4th). I had been seeing an ENT for

about 10 years but her practice decided to not accept my insurance

anymore. Anyway, this newest ENT specializes in 'allergic ENT,' so I

figured he would be good. I have only actually seen him once, spoke to

his nurse on the phone once, and have another appointment with him

scheduled in 2 wks., this doctor kind of confused me, and I didn't

totally understand what he was talking about until I was home (of

course).

I've had allergy testing multiple times, and my allergist says

that I can't have skin testing anymore because of my high risk of

anaphylaxis (to things so minor it's incredible). I am on Xolair as

well as a host of other meds including antihistamines and Prednisone.

Now this new ENT kept talking about this new kind (more types I guess)

of mold RAST skin testing, and doing this testing on me. When the ENT

mentioned this I immediately said " um, no, " but this Doctor was

persistent that this type of testing would be a good thing.

After running it by my allergist this week, he agrees with me

(he actually got quite angry (protective of me, I think) at the idea).

My allergist also said " Good for who? You're on the max dose of

Xolair, what can he add? " So at this point, I'm quite confused, I

trust my allergist (who I've seen for years) WAY more than this new

ENT, and I know how bad an anaphylactic reaction can be (I've almost

died more times than I can count), and at this point I would flat out

refuse ANY allergy skin testing.

Can anybody think of ANY reason why this ENT would want to do

more skin testing? I am going to ask the ENT at my next appointment,

but quite frankly at this point, even the suggestion of skin testing

seems so dangerous that I am (and my allergist and my family, even if

they're not saying it are all) beginning to wonder if this ENT is the

doctor I should be seeing. I'm just looking for a fresh perspective at

this point (ie: does this sound so absurd to all of you), any help

would be greatly appreciated.

Thanks,

Meagan

May 24, 2008

Hi Meagan.

As far as I know a RAST test is a blood test so it shouldn't cause a reaction.

My daughter's dr does this on her because of her reactions to skin test. Why

your ENT wants it done , who knows. Maybe so you'll know. I think ENT;s like

to run test. When I went to one because of reaccuring sinus infections he said

they were allergy related and ordered skin prick test. It did prove I was

allergic to a lot of things but I personally don't think my sinus infections are

related to my allergies. I couldn't convince him of this of course.

Long story short, I believe the RAST should be safe but hope others on this

list will verify this. I hope you feel better. jean

---- meagainbenny <bennetme@...> wrote:

> Hi to all (and a Happy Holiday Weekend to all too!),

>

> For the past 2-3 months, I seemingly have and 1 continuous (except

> my Dr.'s say it has cleared up 3x) Sinus Infection. As you may know, I

> have had a difficult time locating an ENT who realizes what a problem

> like a sinus infection can mean for my asthma (I have tried and failed

> 3 ENTs and am now starting with a 4th). I had been seeing an ENT for

> about 10 years but her practice decided to not accept my insurance

> anymore. Anyway, this newest ENT specializes in 'allergic ENT,' so I

> figured he would be good. I have only actually seen him once, spoke to

> his nurse on the phone once, and have another appointment with him

> scheduled in 2 wks., this doctor kind of confused me, and I didn't

> totally understand what he was talking about until I was home (of

> course).

>

> I've had allergy testing multiple times, and my allergist says

> that I can't have skin testing anymore because of my high risk of

> anaphylaxis (to things so minor it's incredible). I am on Xolair as

> well as a host of other meds including antihistamines and Prednisone.

> Now this new ENT kept talking about this new kind (more types I guess)

> of mold RAST skin testing, and doing this testing on me. When the ENT

> mentioned this I immediately said " um, no, " but this Doctor was

> persistent that this type of testing would be a good thing.

>

> After running it by my allergist this week, he agrees with me

> (he actually got quite angry (protective of me, I think) at the idea).

> My allergist also said " Good for who? You're on the max dose of

> Xolair, what can he add? " So at this point, I'm quite confused, I

> trust my allergist (who I've seen for years) WAY more than this new

> ENT, and I know how bad an anaphylactic reaction can be (I've almost

> died more times than I can count), and at this point I would flat out

> refuse ANY allergy skin testing.

>

> Can anybody think of ANY reason why this ENT would want to do

> more skin testing? I am going to ask the ENT at my next appointment,

> but quite frankly at this point, even the suggestion of skin testing

> seems so dangerous that I am (and my allergist and my family, even if

> they're not saying it are all) beginning to wonder if this ENT is the

> doctor I should be seeing. I'm just looking for a fresh perspective at

> this point (ie: does this sound so absurd to all of you), any help

> would be greatly appreciated.

>

> Thanks,

> Meagan

>

May 25, 2008

when my daughter was 5 they did a skin test on her for dust and her arm swelled

up almost 3 times it size instantly. Her allergist couldn't believe it. He

then did the rast test which confirmed she was allergic to dust. Scary thing.

jean

---- pyle456 <coachmac@...> wrote:

> Meagan,

>

> Your anaphylactic reaction to allergy shots is why your allergist

> will only agree to the RAST blood tests. The skin testing could

> cause you to have an anaphlactic reaction. It's rare, but given your

> experience with the shots, it is a more likely event for you than

> most.

>

> Addy

>

> > > > > Hi to all (and a Happy Holiday Weekend to all too!),

> > > > >

> > > > > For the past 2-3 months, I seemingly have and 1

> continuous

> > > (except

> > > > > my Dr.'s say it has cleared up 3x) Sinus Infection. As you

> may

> > > know, I

> > > > > have had a difficult time locating an ENT who realizes what a

> > > problem

> > > > > like a sinus infection can mean for my asthma (I have tried

> and

> > > failed

> > > > > 3 ENTs and am now starting with a 4th). I had been seeing an

> ENT

> > > for

> > > > > about 10 years but her practice decided to not accept my

> > > insurance

> > > > > anymore. Anyway, this newest ENT specializes in 'allergic

> ENT,'

> > > so I

> > > > > figured he would be good. I have only actually seen him once,

> > > spoke to

> > > > > his nurse on the phone once, and have another appointment

> with

> > > him

> > > > > scheduled in 2 wks., this doctor kind of confused me, and I

> > > didn't

> > > > > totally understand what he was talking about until I was home

> (of

> > > > > course).

> > > > >

> > > > > I've had allergy testing multiple times, and my

> allergist

> > > says

> > > > > that I can't have skin testing anymore because of my high

> risk of

> > > > > anaphylaxis (to things so minor it's incredible). I am on

> Xolair

> > > as

> > > > > well as a host of other meds including antihistamines and

> > > Prednisone.

> > > > > Now this new ENT kept talking about this new kind (more types

> I

> > > guess)

> > > > > of mold RAST skin testing, and doing this testing on me. When

> > > the ENT

> > > > > mentioned this I immediately said " um, no, " but this Doctor

> was

> > > > > persistent that this type of testing would be a good thing.

> > > > >

> > > > > After running it by my allergist this week, he agrees

> with

> > > me

> > > > > (he actually got quite angry (protective of me, I think) at

> the

> > > idea).

> > > > > My allergist also said " Good for who? You're on the max dose

> of

> > > > > Xolair, what can he add? " So at this point, I'm quite

> confused, I

> > > > > trust my allergist (who I've seen for years) WAY more than

> this

> > > new

> > > > > ENT, and I know how bad an anaphylactic reaction can be (I've

> > > almost

> > > > > died more times than I can count), and at this point I would

> > > flat out

> > > > > refuse ANY allergy skin testing.

> > > > >

> > > > > Can anybody think of ANY reason why this ENT would want

> to

> > > do

> > > > > more skin testing? I am going to ask the ENT at my next

> > > appointment,

> > > > > but quite frankly at this point, even the suggestion of skin

> > > testing

> > > > > seems so dangerous that I am (and my allergist and my family,

> > > even if

> > > > > they're not saying it are all) beginning to wonder if this

> ENT

> > > is the

> > > > > doctor I should be seeing. I'm just looking for a fresh

> > > perspective at

> > > > > this point (ie: does this sound so absurd to all of you), any

> > > help

> > > > > would be greatly appreciated.

> > > > >

> > > > > Thanks,

> > > > > Meagan

> > > > >

> > > >

> > >

> >

>

April 14, 2010

Have yu had him tested for Streph

On Wed, Apr 14, 2010 at 2:32 PM, <suniradit@...> wrote:

>

> Hi

> My son has been getting recurrent fever in the last 10 months.

> It is making him weak and irritable. And I am at total loss .

> Any ideas what can be done ? What could be the reason ?

> Do you testing with the belgian prof de melliers may give us a clue ?

> Pl give his contact details.

> Thanks

> Sunira

>

> Sent from BlackBerry® on Airtel

>

> Re: WONDERFUL NEWS!!!

>

> Last check, his IgG was high, but they said it was *still ok* and to

>

> watch it to make sure it did not get too high. (I was not sure why

>

> then.)Food testing came back ok except for almonds (the first time). We

> know

>

> gluten is bad from an elimination diet and the symptoms ceased. Everyone

> had

>

> been telling me that the behavior was from his apraxia, but I believe it

> was

>

> from the casein and I also believe that his apraxia is in part from the

>

> casein. (I also think his fluctuating fluid in his ears, lymphadeno

>

> pathy, and immune system issues may be from the casein.) Now, it is just a

>

> wait and see thing.

>

> >

>

> >

>

> >

>

> > >I have a calm boy!!!!! Thanks to removing casein....omg....I saw an

>

> instant improvement. He is so calm and well behaved! It has been a long

> time

>

> since I have witnessed this. I wish I would have realized this years ago,

>

> but all of allergy testing kept coming back ok...so much for allergy

>

> testing.

>

> >

>

> > >I have to go get casein free icecream today, as he keeps getting the old

>

> icecream (well it is new, but bought before we went casein free for my son)

>

> out of the freezer and bringing it to me. I read somewhere where people

>

> actually crave what they are allergic to.

>

> >

>

> > >I cannot wait to see if it has a positive effect on his speech outcome.

>

> >

>

> > >I am very pleased. 8)

>

> >

>

> > >

>

> >

>

> > >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> > __________________________________________________________

>

> > If It Exists, You'll Find it on SEEK. Australia's #1 job site

>

> > http://clk.atdmt.com/NMN/go/157639755/direct/01/

>

> >

>

> >

April 14, 2010

Hi

My son has been getting recurrent fever in the last 10 months.

It is making him weak and irritable. And I am at total loss .

Any ideas what can be done ? What could be the reason ?

Do you testing with the belgian prof de melliers may give us a clue ?

Pl give his contact details.

Thanks

Sunira

Sent from BlackBerryÂ® on Airtel

Re: WONDERFUL NEWS!!!

Last check, his IgG was high, but they said it was *still ok* and to

watch it to make sure it did not get too high. (I was not sure why

then.)Food testing came back ok except for almonds (the first time). We know

gluten is bad from an elimination diet and the symptoms ceased. Everyone had

been telling me that the behavior was from his apraxia, but I believe it was

from the casein and I also believe that his apraxia is in part from the

casein. (I also think his fluctuating fluid in his ears, lymphadeno

pathy, and immune system issues may be from the casein.) Now, it is just a

wait and see thing.

>

> >I have a calm boy!!!!! Thanks to removing casein....omg....I saw an

instant improvement. He is so calm and well behaved! It has been a long time

since I have witnessed this. I wish I would have realized this years ago,

but all of allergy testing kept coming back ok...so much for allergy

testing.

>

> >I have to go get casein free icecream today, as he keeps getting the old

icecream (well it is new, but bought before we went casein free for my son)

out of the freezer and bringing it to me. I read somewhere where people

actually crave what they are allergic to.

>

> >I cannot wait to see if it has a positive effect on his speech outcome.

>

> >I am very pleased. 8)

>

> >

>

> >

>

> __________________________________________________________

> If It Exists, You'll Find it on SEEK. Australia's #1 job site

> http://clk.atdmt.com/NMN/go/157639755/direct/01/

>

April 16, 2010

The problem is that if the immune system is dysfunctional and the child is not

medically stable allergy testing results are not always reliable.

on RN, MSN

NNY Autism Clinic