Guest guest Posted March 6, 2008 Report Share Posted March 6, 2008 Hi Aliza, I am the last person to explain what those letters mean, I have a brain like a sieve ! No memory what so ever. Lottie can tell you much better than I can. Yes, I am doing well, I travel a lot, do a lot of things with my kids and truly never give cml much thought. Perhaps I have had it so long, I've grown accustomed to it? Anyway, I never let it get me down, but then because I feel well, that's easy to say. In the beginning, before Gleevec, and on Interferon the world was quite miserable. Today we are all so furtunate to have these new drugs, chances of remission are so much better, and we no longer have a prognosis of 5 years. I have out lived that by 8, thanks to Gleevec and Sprycel. Have a great day, Bobby taina2044@... wrote: hi bobby; it's encorougeing to see how long you've lived with cml when one is diognosed all one thinks about is death, how are you doing now? u sound like you've been through a lot whitch also helps me understand that even at bad times don't give up.I pray you do great for a long, long time. can you translate pcru ,bms,pe, ccr and amn thankx aliza rochester n.y. **************It's Tax Time! Get tips, forms, and advice on AOL Money & Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2008 Report Share Posted November 18, 2008 go back a few posts and read what can happen from surgery-- I just did a flush last night and I feel great--no flank pain the itching is going away-- yea--- I have to stay away from cheese---and meat does this to me-- Try digestive enzymes for acid reflux--I get this from time to time goes away with proton pump inhibitors but you can't be on them forever-- have to change your diet---NO fried foods---very bad big time you are young so you really have to do the flushes-- if you have surgery it only goes into the ducts and liver--- so it never goes away --- I think of it this way---at least it's not in my veins---but in my GB doing it's job--- difficult to always do the flush figure at least one a year or two--- and fruit, veggies---and some fat but have to cut it down--- good luck > > I just joined this group. I'm a 34 yo white woman. My story starts in 2000 during my first > pregnancy when I starting have pain under my right shoulder blade when I ate fried > chicken. The pain continued for days before I figured it out there was timing to the pain > and I didn't just need a back massage. So I got through the last few weeks of the > pregnancy eating a low fat diet and had no pain after the birth so I basically forgot about > it. > Fast forward to 2004 when I was pregnant again. The gallbladder pain was constant by the > time I was 32 weeks pregnant. My midwife friend guided me through this gallbladder flush > at that time: 3 days have nothing but organic unfiltered apple juice. On the evening of the > 3rd day have a cup of laxative tea and then drink 1/2 cup EV olive oil with 1/2 c fresh > lemon juice. Then immediately go to bed on your right side. The next morning I passed all > sorts of stones-I think around 100. Afterward I felt great. > When that baby was about 8 months I began to feel the familiar pinch in my back > whenever I ate. I did another GB flush without any results. At that time I did some pretty > far out energy medicine that really took care of the pain for a couple years. During that > time I worked really hard to lose 30 lbs. > Only to regain most of that weight when life got stressful and busy. > Now over the past year I've been having bloating, belching, sharp abdominal pain, > depression, fatigue, the back pain and the new thing is burning burning burning in the > abdominal area. I have to take prilosec or pepcid all the time or it's constant. A couple > weeks ago I had one White Russian and had to sleep sitting up. The reflux pain actually > woke me up. I didn't realize that the GERD symptoms could be related to GB problems > until my family doctor said so. Talk about a lightbulb! I've been feeling so crappy for > months and months that I've been living on coffee, diet and rich food. DUH! > My doctor suggested a gallbladder ultrasound and possibly gallbladder removal. Now > understand that I had homebirths and have never had surgery it's just not " what I do. " On > the other hand I don't want to feel as bad as I have been! > For the last five days I haven't had coffee or diet coke (no headaches but I need to sleep a > lot). I'm also eating lots or fruits and veggies and eating only low-fat foods. I feel so much > better! But every time I eat I still feel the pinch in my back and if I don't take the pepcid I > still have the burning. Basically I'm committed to changing my diet and exercise habits but > want to care for my liver/gallbladder. > Should I do another flush? > Multiple times? > What do you all thing of the flush I did in 2004? Good? > I don't know why I'm reluctant-I guess it sounds like it will give me serious GERD-I frankly > cannot imagine laying down after drinking olive oil and lemon juice! > Should I spend the $ to get a GB ultrasound just so I'll know what's going on in there? > What about daily supplements? > I've been learning that just avoiding fats is not really a good thing but I'm scared to try > any. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 best bet eat a fruit/ veggie diet for a week---little to no meat or fat-- drink apple juice, cranberry---lots of water do this even 5 days is good enough-- get ready for the flush do it on friday night fri. morning eat oatmeal or just fruit-- no lunch--only water/juice and get read at 5 start the epsom salts---I drink with juice get it down and then at 9 to 10 drink half a cup of extra virgin olive oil---with ruby red graperfruit or lemon juice mixed in--- drink it very slowly---sit up take your time--- allow it to digest sit up and watch tv--until you get it all down and then lay on your right side and go to sleep you will feel it working get up in the AM---do another epsom salt drink with juice and out they will come I've done maybe 7 in the last 4 years---maybe less--- not a big deal--- if you do it correctly--- take your time with the oil sip it if you need too--- think happy thoughts as you will feel great once it's done--- > > Hi, I am new to the group this morning. I am 47 and live in Canada. I > have read many of the files and found them to be very informative. > Thank you for that. I still have a few questions of my own I hope > someone can answer. I have had two GB attacks, one almost 3 years ago > that I ended up in emergency with from the pain. No Dr. then related > it to my GB but instead my heart. My last attack was managed at home > and it wasn't until that attack I realized it was my GB and I got > through it on my own. I went to my Dr. after that who sent me for an > ultrasound and sure enough I have stones. I did see one large on > myself. > I think I am ready to do the flush as I want to avoid surgery so just > hjave a few questions. I saw a holistic Dr who recommended this. I do > a two week live/colon cleanse and on the second week start drinking > the apple juice, at least a liter per day. At the end of the cleanse > do the GB flush with the epson salts and cold pressed olive oil as > described on curezone site. My question in, if the stone/stones are > calcified will they still soften in that amount of time? > I am really watching what I eat now, limiting my fats but I do feel > the pinch in my shoulderblade area most of the time. > I guess I am a little nervous with this being my first time though > after seeing that some people have done this over 20 times it makes > me feel a whole lot better. <g> > Thanks for any insight you can give me. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 I feel better already, thanks <g> So no need to do the $100. Liver cleanser the Dr. was asking me to do? From: gallstones [mailto:gallstones ] On Behalf Of tina83862 Sent: Monday, November 24, 2008 4:05 PM gallstones Subject: Re: Intro best bet eat a fruit/ veggie diet for a week---little to no meat or fat-- drink apple juice, cranberry---lots of water do this even 5 days is good enough-- get ready for the flush do it on friday night fri. morning eat oatmeal or just fruit-- no lunch--only water/juice and get read at 5 start the epsom salts---I drink with juice get it down and then at 9 to 10 drink half a cup of extra virgin olive oil---with ruby red graperfruit or lemon juice mixed in--- drink it very slowly---sit up take your time--- allow it to digest sit up and watch tv--until you get it all down and then lay on your right side and go to sleep you will feel it working get up in the AM---do another epsom salt drink with juice and out they will come I've done maybe 7 in the last 4 years---maybe less--- not a big deal--- if you do it correctly--- take your time with the oil sip it if you need too--- think happy thoughts as you will feel great once it's done--- > > Hi, I am new to the group this morning. I am 47 and live in Canada. I > have read many of the files and found them to be very informative. > Thank you for that. I still have a few questions of my own I hope > someone can answer. I have had two GB attacks, one almost 3 years ago > that I ended up in emergency with from the pain. No Dr. then related > it to my GB but instead my heart. My last attack was managed at home > and it wasn't until that attack I realized it was my GB and I got > through it on my own. I went to my Dr. after that who sent me for an > ultrasound and sure enough I have stones. I did see one large on > myself. > I think I am ready to do the flush as I want to avoid surgery so just > hjave a few questions. I saw a holistic Dr who recommended this. I do > a two week live/colon cleanse and on the second week start drinking > the apple juice, at least a liter per day. At the end of the cleanse > do the GB flush with the epson salts and cold pressed olive oil as > described on curezone site. My question in, if the stone/stones are > calcified will they still soften in that amount of time? > I am really watching what I eat now, limiting my fats but I do feel > the pinch in my shoulderblade area most of the time. > I guess I am a little nervous with this being my first time though > after seeing that some people have done this over 20 times it makes > me feel a whole lot better. <g> > Thanks for any insight you can give me. > > __________ NOD32 3634 (20081124) Information __________ This message was checked by NOD32 antivirus system. http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2008 Report Share Posted November 25, 2008 First thing I recommend is that u invest in AF Beta Food tablets from Standard PROCESS- THAT may take away the pain- if u have no problem with fasting and the Beta tablets relieve the pain u may consider doing a couple of fasts before flushing good luck FB On Nov 24, 2008, at 8:21 AM, Warnock wrote: > Dr. after that who sent me for an > ultrasound and sure enough I have s J.R. Battaglia Prime Cut Media Productions tel 818 897 8500 cel 818 268 5395 frank_la@... www.primecutproductions.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Hi all, I posted earlier today, but probably should have introduced myself as well. I am 50 and live in Kenai, Alaska. I originally come from El Paso, and have lived in Denver and near Greenville (SC) as well. According to National Jewish, I've probably had asthma all my life. As a kid, I can think of only 2 times it bothered me. so it was not really an issue. In 1992 I inhaled de-icing fluid (ethylene glycol) when another person de-icing an aircraft accidentally shot me in the face. At that point my asthma began to escalate. For the past 3 years I've been symptomatic nearly 7 days per week. I moved from AK to SC in the hopes of finding relief but it only increased my problems. I've moved back to AK, but to no avail. My physician here referred me to a pulmonologist in Anchorage who is to start me on Xolair 1/5/09. I am hoping this will work, even a bit, as I DO NOT want to go onto disability. I am much to young to have to quit work because I cannot walk from one end of the treatment unit to the other without getting winded. Anyway, I appreciate the information I've been reading. As a 'newbie' to Xolair, I will probably sit back and read. Best wishes to all, Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Welcome aboard Mike! Doug Group founder on Xolair since September 2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Wow. That's quite a story. What triggers your asthma NOW? I have heard that folks can have a precipating event like you did that results in lungs becoming much more sensitive than they were prior to the event. Let us know how you do with Xolair. Addy Group Co-owner > > Hi all, > > I posted earlier today, but probably should have introduced myself > as well. I am 50 and live in Kenai, Alaska. I originally come from > El Paso, and have lived in Denver and near Greenville (SC) as well. > According to National Jewish, I've probably had asthma all my life. > As a kid, I can think of only 2 times it bothered me. so it was not > really an issue. In 1992 I inhaled de-icing fluid (ethylene glycol) > when another person de-icing an aircraft accidentally shot me in the > face. At that point my asthma began to escalate. For the past 3 > years I've been symptomatic nearly 7 days per week. I moved from AK > to SC in the hopes of finding relief but it only increased my > problems. I've moved back to AK, but to no avail. My physician > here referred me to a pulmonologist in Anchorage who is to start me > on Xolair 1/5/09. I am hoping this will work, even a bit, as I DO > NOT want to go onto disability. I am much to young to have to quit > work because I cannot walk from one end of the treatment unit to the > other without getting winded. > > Anyway, I appreciate the information I've been reading. As > a 'newbie' to Xolair, I will probably sit back and read. > > Best wishes to all, > > Mike > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Here is an interesting question. Perhaps someone can shed some light on this. I have had asthma since forever and my pulmonologist recntly suggested xolair. he took a blood test and my IGE was normal! I'm amazed at this because I am allergic to just about everything and my allergies trigger my asthma. I spoke with my allergist and he said that because I'd recently been on oral prednisone, this could affect the IGE test results. He suggested retesting in a month or so. Has anyone encountered this? I am kinda bummed because I was hping xolair might be the " magic bullet " for me. Thanks. On Wed, Dec 17, 2008 at 6:43 AM, pyle456 <jamcculloch2@...> wrote: > Wow. That's quite a story. What triggers your asthma NOW? I have > heard that folks can have a precipating event like you did that > results in lungs becoming much more sensitive than they were prior to > the event. > > Let us know how you do with Xolair. > > Addy > Group Co-owner > > > > > > > Hi all, > > > > I posted earlier today, but probably should have introduced myself > > as well. I am 50 and live in Kenai, Alaska. I originally come > from > > El Paso, and have lived in Denver and near Greenville (SC) as > well. > > According to National Jewish, I've probably had asthma all my > life. > > As a kid, I can think of only 2 times it bothered me. so it was > not > > really an issue. In 1992 I inhaled de-icing fluid (ethylene > glycol) > > when another person de-icing an aircraft accidentally shot me in > the > > face. At that point my asthma began to escalate. For the past 3 > > years I've been symptomatic nearly 7 days per week. I moved from > AK > > to SC in the hopes of finding relief but it only increased my > > problems. I've moved back to AK, but to no avail. My physician > > here referred me to a pulmonologist in Anchorage who is to start me > > on Xolair 1/5/09. I am hoping this will work, even a bit, as I DO > > NOT want to go onto disability. I am much to young to have to quit > > work because I cannot walk from one end of the treatment unit to > the > > other without getting winded. > > > > Anyway, I appreciate the information I've been reading. As > > a 'newbie' to Xolair, I will probably sit back and read. > > > > Best wishes to all, > > > > Mike > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Thanks , will do. I apreciate the information from the others who have posted as well. Mike ________________________________ From: Harold Pineo <haroldbrenda@...> Sent: Tuesday, December 16, 2008 7:57:12 PM Subject: Re: [ ] Intro Welcome Mike, I have heard of people who have been exposed to chemicals like that before, and then they became chemically sensitive. It is possible to have both asthma and chemical sensitivities. I hope things get better with the xolair. Just a thought, you might want to check out information on chemical sensitivity reactions. From: Mike <mike.dmcbride> Subject: [ ] Intro Date: Tuesday, December 16, 2008, 7:07 PM Hi all, I posted earlier today, but probably should have introduced myself as well. I am 50 and live in Kenai, Alaska. I originally come from El Paso, and have lived in Denver and near Greenville (SC) as well. According to National Jewish, I've probably had asthma all my life. As a kid, I can think of only 2 times it bothered me. so it was not really an issue. In 1992 I inhaled de-icing fluid (ethylene glycol) when another person de-icing an aircraft accidentally shot me in the face. At that point my asthma began to escalate. For the past 3 years I've been symptomatic nearly 7 days per week. I moved from AK to SC in the hopes of finding relief but it only increased my problems. I've moved back to AK, but to no avail. My physician here referred me to a pulmonologist in Anchorage who is to start me on Xolair 1/5/09. I am hoping this will work, even a bit, as I DO NOT want to go onto disability. I am much to young to have to quit work because I cannot walk from one end of the treatment unit to the other without getting winded. Anyway, I appreciate the information I've been reading. As a 'newbie' to Xolair, I will probably sit back and read. Best wishes to all, Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Hi Addy, We have yet to figure out what the triggers are. I've had problems year round for the past 3 years. The cold seems to be problem, but not always. I can go out at 10 below without anything happening. The next day I go out at 20 above and get hit hard. Oh well, as long as I keep monitoring, I hope to see if it's air, food, temp, all of the above .. . . . . Will keep all informed about the Xolair. I am a bit apprehensive about it. I will get the shot at 11:30am, stay in the office for a couple of hours and then have a 3 hour drive home. The drive is quite scenic, but has very limited cell coverage and almost no place to seek help if needed. I've heard some folks on another list say that they carry an epi pen in case they go into anaphalactic shock. Is this a common thing to do? I've also heard that some wear a med-alert bracelet. Needed? Lots of questions yet, but moving ahead like I know what I'm doing. ;-) Mike ________________________________ From: pyle456 <jamcculloch2@...> Sent: Wednesday, December 17, 2008 2:43:39 AM Subject: [ ] Re: Intro Wow. That's quite a story. What triggers your asthma NOW? I have heard that folks can have a precipating event like you did that results in lungs becoming much more sensitive than they were prior to the event. Let us know how you do with Xolair. Addy Group Co-owner > > Hi all, > > I posted earlier today, but probably should have introduced myself > as well. I am 50 and live in Kenai, Alaska. I originally come from > El Paso, and have lived in Denver and near Greenville (SC) as well. > According to National Jewish, I've probably had asthma all my life. > As a kid, I can think of only 2 times it bothered me. so it was not > really an issue. In 1992 I inhaled de-icing fluid (ethylene glycol) > when another person de-icing an aircraft accidentally shot me in the > face. At that point my asthma began to escalate. For the past 3 > years I've been symptomatic nearly 7 days per week. I moved from AK > to SC in the hopes of finding relief but it only increased my > problems. I've moved back to AK, but to no avail. My physician > here referred me to a pulmonologist in Anchorage who is to start me > on Xolair 1/5/09. I am hoping this will work, even a bit, as I DO > NOT want to go onto disability. I am much to young to have to quit > work because I cannot walk from one end of the treatment unit to the > other without getting winded. > > Anyway, I appreciate the information I've been reading. As > a 'newbie' to Xolair, I will probably sit back and read. > > Best wishes to all, > > Mike > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 I always carry an epi-pen. I think most doctors automatically give an epi-pen for people with xolair. Where you have to travel 3 hours , Mike, without barely any cell coverage, I would ask your doctor for a prescription for one. It's always better to be safe. Hope your first shot goes well. From: McBride <mike.dmcbride@...> Subject: Re: [ ] Re: Intro Date: Wednesday, December 17, 2008, 11:49 AM Hi Addy, We have yet to figure out what the triggers are. I've had problems year round for the past 3 years. The cold seems to be problem, but not always. I can go out at 10 below without anything happening. The next day I go out at 20 above and get hit hard. Oh well, as long as I keep monitoring, I hope to see if it's air, food, temp, all of the above .. . . . . Will keep all informed about the Xolair. I am a bit apprehensive about it. I will get the shot at 11:30am, stay in the office for a couple of hours and then have a 3 hour drive home. The drive is quite scenic, but has very limited cell coverage and almost no place to seek help if needed. I've heard some folks on another list say that they carry an epi pen in case they go into anaphalactic shock. Is this a common thing to do? I've also heard that some wear a med-alert bracelet. Needed? Lots of questions yet, but moving ahead like I know what I'm doing. ;-) Mike ____________ _________ _________ __ From: pyle456 <jamcculloch2@ ec.rr.com> Sent: Wednesday, December 17, 2008 2:43:39 AM Subject: [ ] Re: Intro Wow. That's quite a story. What triggers your asthma NOW? I have heard that folks can have a precipating event like you did that results in lungs becoming much more sensitive than they were prior to the event. Let us know how you do with Xolair. Addy Group Co-owner > > Hi all, > > I posted earlier today, but probably should have introduced myself > as well. I am 50 and live in Kenai, Alaska. I originally come from > El Paso, and have lived in Denver and near Greenville (SC) as well. > According to National Jewish, I've probably had asthma all my life. > As a kid, I can think of only 2 times it bothered me. so it was not > really an issue. In 1992 I inhaled de-icing fluid (ethylene glycol) > when another person de-icing an aircraft accidentally shot me in the > face. At that point my asthma began to escalate. For the past 3 > years I've been symptomatic nearly 7 days per week. I moved from AK > to SC in the hopes of finding relief but it only increased my > problems. I've moved back to AK, but to no avail. My physician > here referred me to a pulmonologist in Anchorage who is to start me > on Xolair 1/5/09. I am hoping this will work, even a bit, as I DO > NOT want to go onto disability. I am much to young to have to quit > work because I cannot walk from one end of the treatment unit to the > other without getting winded. > > Anyway, I appreciate the information I've been reading. As > a 'newbie' to Xolair, I will probably sit back and read. > > Best wishes to all, > > Mike > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 > > Hi Addy, > > We have yet to figure out what the triggers are. I've had problems year round for the past 3 years. The cold seems to be problem, but not always. I can go out at 10 below without anything happening. The next day I go out at 20 above and get hit hard. Oh well, as long as I keep monitoring, I hope to see if it's air, food, temp, all of the above .. . . . . > > Will keep all informed about the Xolair. I am a bit apprehensive about it. I will get the shot at 11:30am, stay in the office for a couple of hours and then have a 3 hour drive home. The drive is quite scenic, but has very limited cell coverage and almost no place to seek help if needed. I've heard some folks on another list say that they carry an epi pen in case they go into anaphalactic shock. Is this a common thing to do? I've also heard that some wear a med- alert bracelet. Needed? > > Lots of questions yet, but moving ahead like I know what I'm doing. ;-) > > Mike > > > > > ________________________________ > From: pyle456 <jamcculloch2@...> > > Sent: Wednesday, December 17, 2008 2:43:39 AM > Subject: [ ] Re: Intro > > > Wow. That's quite a story. What triggers your asthma NOW? I have > heard that folks can have a precipating event like you did that > results in lungs becoming much more sensitive than they were prior to > the event. > > Let us know how you do with Xolair. > > Addy > Group Co-owner > > --- In , " Mike " <mike.dmcbride@ ...> wrote: > > > > Hi all, > > > > I posted earlier today, but probably should have introduced myself > > as well. I am 50 and live in Kenai, Alaska. I originally come > from > > El Paso, and have lived in Denver and near Greenville (SC) as > well. > > According to National Jewish, I've probably had asthma all my > life. > > As a kid, I can think of only 2 times it bothered me. so it was > not > > really an issue. In 1992 I inhaled de-icing fluid (ethylene > glycol) > > when another person de-icing an aircraft accidentally shot me in > the > > face. At that point my asthma began to escalate. For the past 3 > > years I've been symptomatic nearly 7 days per week. I moved from > AK > > to SC in the hopes of finding relief but it only increased my > > problems. I've moved back to AK, but to no avail. My physician > > here referred me to a pulmonologist in Anchorage who is to start me > > on Xolair 1/5/09. I am hoping this will work, even a bit, as I DO > > NOT want to go onto disability. I am much to young to have to quit > > work because I cannot walk from one end of the treatment unit to > the > > other without getting winded. > > > > Anyway, I appreciate the information I've been reading. As > > a 'newbie' to Xolair, I will probably sit back and read. > > > > Best wishes to all, > > > > Mike > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 The allergist who oversees my xolair shots requires me to have an epi-pen. In fact this reminds me that I haven't refilled the newest prescription. I carried one until it expired--never used either one of them, but felt a little safer having one in my purse at all times. My family all know how to use it if I can't and are instructed as to what to do if they have to use it--i.e. get me to a hospital as soon as possible. Mike, I agree that since you travel three hours and are out of cell phone range at times, that you talk with your doctor about this for sure! I have never had any kind of anaphylactic reaction to anything, but I am not so foolish as to think there isn't a first time for every thing.  Adah From: McBride <mike.dmcbride> Subject: Re: [ ] Re: Intro Date: Wednesday, December 17, 2008, 11:49 AM Hi Addy, We have yet to figure out what the triggers are. I've had problems year round for the past 3 years. The cold seems to be problem, but not always. I can go out at 10 below without anything happening. The next day I go out at 20 above and get hit hard. Oh well, as long as I keep monitoring, I hope to see if it's air, food, temp, all of the above .. . . . . Will keep all informed about the Xolair. I am a bit apprehensive about it. I will get the shot at 11:30am, stay in the office for a couple of hours and then have a 3 hour drive home. The drive is quite scenic, but has very limited cell coverage and almost no place to seek help if needed. I've heard some folks on another list say that they carry an epi pen in case they go into anaphalactic shock. Is this a common thing to do? I've also heard that some wear a med-alert bracelet. Needed? Lots of questions yet, but moving ahead like I know what I'm doing. ;-) Mike ____________ _________ _________ __ From: pyle456 <jamcculloch2@ ec.rr.com> Sent: Wednesday, December 17, 2008 2:43:39 AM Subject: [ ] Re: Intro Wow. That's quite a story. What triggers your asthma NOW? I have heard that folks can have a precipating event like you did that results in lungs becoming much more sensitive than they were prior to the event. Let us know how you do with Xolair. Addy Group Co-owner > > Hi all, > > I posted earlier today, but probably should have introduced myself > as well. I am 50 and live in Kenai, Alaska. I originally come from > El Paso, and have lived in Denver and near Greenville (SC) as well. > According to National Jewish, I've probably had asthma all my life. > As a kid, I can think of only 2 times it bothered me. so it was not > really an issue. In 1992 I inhaled de-icing fluid (ethylene glycol) > when another person de-icing an aircraft accidentally shot me in the > face. At that point my asthma began to escalate. For the past 3 > years I've been symptomatic nearly 7 days per week. I moved from AK > to SC in the hopes of finding relief but it only increased my > problems. I've moved back to AK, but to no avail. My physician > here referred me to a pulmonologist in Anchorage who is to start me > on Xolair 1/5/09. I am hoping this will work, even a bit, as I DO > NOT want to go onto disability. I am much to young to have to quit > work because I cannot walk from one end of the treatment unit to the > other without getting winded. > > Anyway, I appreciate the information I've been reading. As > a 'newbie' to Xolair, I will probably sit back and read. > > Best wishes to all, > > Mike > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 ? My allergy doctor told me the same thing, oral steroids can mess up IGE tests. When I took my IGE test I only registered around a 20! -----Original Message----- From: V S <tzarina2002@...> Sent: Wed, 17 Dec 2008 9:23 am Subject: Re: [ ] Re: Intro Here is an interesting question. Perhaps someone can shed some light on this. I have had asthma since forever and my pulmonologist recntly suggested xolair. he took a blood test and my IGE was normal! I'm amazed at this because I am allergic to just about everything and my allergies trigger my asthma. I spoke with my allergist and he said that because I'd recently been on oral prednisone, this could affect the IGE test results. He suggested retesting in a month or so. Has anyone encountered this? I am kinda bummed because I was hping xolair might be the " magic bullet " for me. Thanks. On Wed, Dec 17, 2008 at 6:43 AM, pyle456 <jamcculloch2@...> wrote: > Wow. That's quite a story. What triggers your asthma NOW? I have > heard that folks can have a precipating event like you did that > results in lungs becoming much more sensitive than they were prior to > the event. > > Let us know how you do with Xolair. > > Addy > Group Co-owner > > > > > > > Hi all, > > > > I posted earlier today, but probably should have introduced myself > > as well. I am 50 and live in Kenai, Alaska. I originally come > from > > El Paso, and have lived in Denver and near Greenville (SC) as > well. > > According to National Jewish, I've probably had asthma all my > life. > > As a kid, I can think of only 2 times it bothered me. so it was > not > > really an issue. In 1992 I inhaled de-icing fluid (ethylene > glycol) > > when another person de-icing an aircraft accidentally shot me in > the > > face. At that point my asthma began to escalate. For the past 3 > > years I've been symptomatic nearly 7 days per week. I moved from > AK > > to SC in the hopes of finding relief but it only increased my > > problems. I've moved back to AK, but to no avail. My physician > > here referred me to a pulmonologist in Anchorage who is to start me > > on Xolair 1/5/09. I am hoping this will work, even a bit, as I DO > > NOT want to go onto disability. I am much to young to have to quit > > work because I cannot walk from one end of the treatment unit to > the > > other without getting winded. > > > > Anyway, I appreciate the information I've been reading. As > > a 'newbie' to Xolair, I will probably sit back and read. > > > > Best wishes to all, > > > > Mike > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 You should get a twin package of Epi-Pen. If the first shot misfires or does not do the trick there is a back-up. My doc says you can administer 2 doses if need be. On Wed, Dec 17, 2008 at 1:51 PM, Harold Pineo <haroldbrenda@...>wrote: > I always carry an epi-pen. I think most doctors automatically give an > epi-pen for people with xolair. Where you have to travel 3 hours , Mike, > without barely any cell coverage, I would ask your doctor for a prescription > for one. It's always better to be safe. Hope your first shot goes well. > > > From: McBride <mike.dmcbride@... <mike.dmcbride%40> > > > Subject: Re: [ ] Re: Intro > < %40> > Date: Wednesday, December 17, 2008, 11:49 AM > > > Hi Addy, > > We have yet to figure out what the triggers are. I've had problems year > round for the past 3 years. The cold seems to be problem, but not always. > I can go out at 10 below without anything happening. The next day I go out > at 20 above and get hit hard. Oh well, as long as I keep monitoring, I hope > to see if it's air, food, temp, all of the above .. . . . . > > Will keep all informed about the Xolair. I am a bit apprehensive about > it. I will get the shot at 11:30am, stay in the office for a couple of > hours and then have a 3 hour drive home. The drive is quite scenic, but has > very limited cell coverage and almost no place to seek help if needed. I've > heard some folks on another list say that they carry an epi pen in case they > go into anaphalactic shock. Is this a common thing to do? I've also heard > that some wear a med-alert bracelet. Needed? > > Lots of questions yet, but moving ahead like I know what I'm doing. ;-) > > Mike > > ____________ _________ _________ __ > > From: pyle456 <jamcculloch2@ ec.rr.com> > > > > Sent: Wednesday, December 17, 2008 2:43:39 AM > > Subject: [ ] Re: Intro > > Wow. That's quite a story. What triggers your asthma NOW? I have > > heard that folks can have a precipating event like you did that > > results in lungs becoming much more sensitive than they were prior to > > the event. > > Let us know how you do with Xolair. > > Addy > > Group Co-owner > > > > > > > > Hi all, > > > > > > I posted earlier today, but probably should have introduced myself > > > as well. I am 50 and live in Kenai, Alaska. I originally come > > from > > > El Paso, and have lived in Denver and near Greenville (SC) as > > well. > > > According to National Jewish, I've probably had asthma all my > > life. > > > As a kid, I can think of only 2 times it bothered me. so it was > > not > > > really an issue. In 1992 I inhaled de-icing fluid (ethylene > > glycol) > > > when another person de-icing an aircraft accidentally shot me in > > the > > > face. At that point my asthma began to escalate. For the past 3 > > > years I've been symptomatic nearly 7 days per week. I moved from > > AK > > > to SC in the hopes of finding relief but it only increased my > > > problems. I've moved back to AK, but to no avail. My physician > > > here referred me to a pulmonologist in Anchorage who is to start me > > > on Xolair 1/5/09. I am hoping this will work, even a bit, as I DO > > > NOT want to go onto disability. I am much to young to have to quit > > > work because I cannot walk from one end of the treatment unit to > > the > > > other without getting winded. > > > > > > Anyway, I appreciate the information I've been reading. As > > > a 'newbie' to Xolair, I will probably sit back and read. > > > > > > Best wishes to all, > > > > > > Mike > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Prednisone can effect IgE levels, but doesn't have to effect IgE levels. So, yes, it is best to get tested again after some suitable time or when you feel atopic. The issue is how often do you suffer from allergies to the point of it being literall enough where they constantly throw you into an asthmatic state. I have high IgE (about 335 before Xolair) but it didn't really trigger my asthma. Yet, the end result of one year on Xolair for me is no more EIA or virus induced asthma. Those two were not dependent on my allergic system, and yet the halted on Xolair. The nuances of asthma stimulation are indeed not clear cut. > > > > > > Hi all, > > > > > > I posted earlier today, but probably should have introduced myself > > > as well. I am 50 and live in Kenai, Alaska. I originally come > > from > > > El Paso, and have lived in Denver and near Greenville (SC) as > > well. > > > According to National Jewish, I've probably had asthma all my > > life. > > > As a kid, I can think of only 2 times it bothered me. so it was > > not > > > really an issue. In 1992 I inhaled de-icing fluid (ethylene > > glycol) > > > when another person de-icing an aircraft accidentally shot me in > > the > > > face. At that point my asthma began to escalate. For the past 3 > > > years I've been symptomatic nearly 7 days per week. I moved from > > AK > > > to SC in the hopes of finding relief but it only increased my > > > problems. I've moved back to AK, but to no avail. My physician > > > here referred me to a pulmonologist in Anchorage who is to start me > > > on Xolair 1/5/09. I am hoping this will work, even a bit, as I DO > > > NOT want to go onto disability. I am much to young to have to quit > > > work because I cannot walk from one end of the treatment unit to > > the > > > other without getting winded. > > > > > > Anyway, I appreciate the information I've been reading. As > > > a 'newbie' to Xolair, I will probably sit back and read. > > > > > > Best wishes to all, > > > > > > Mike > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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