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thanks tracey! but i would like to ask if its alright to take gleevec even with

an empty stomach??? i think the reason also for my gaining weight was the

thought that i should take it with a full stomach...i am afraid that taking it

without any food would damage my internal organs...especially my intestines...i

don't know...i just fear that it would make things worst.... i am trying other

alternatives like taking it after lunch so as i could avoid eating too much at

dinner time...thanks Godbless.....

melisa

Tracey <traceyincanada@...> wrote:

Yes, I too went through the " always famished " stage of Gleevec

therapy. Some days are worse than others. I gained 40 pounds the

first year but I don't blame Gleevec for it. I'm sure the ice cream,

chips and other junk I was shoving down my throat had something to do

with it :) I did manage to get it off in the third year though.

Mostly because I started to watch what I ate but also because I just

got used to feeling hungry and ignored it.

Tracey

dx Jan 2002

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Gleevec, not Gleevac, sorry about the typo.

> Yes, I too went through the " always famished " stage of

Gleevec

> therapy. Some days are worse than others. I gained 40 pounds the

> first year but I don't blame Gleevec for it. I'm sure the ice

cream,

> chips and other junk I was shoving down my throat had something to

do

> with it :) I did manage to get it off in the third year though.

> Mostly because I started to watch what I ate but also because I

just

> got used to feeling hungry and ignored it.

>

> Tracey

> dx Jan 2002

>

>

>

>

>

> Send instant messages to your online friends

http://uk.messenger.

>

>

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hi bil,

i started gleevec december last year then started gaining weight 2 months

after or february...i used to weight 108 lbs...now i am almost 140!! more than

30 lbs in 4 months..oh well... same here...i also now have a very round face and

swollen eyelids which makes me feel awfull especially when people ( as in

everybody i know) tells me how i look...i never tell them but i get affected

with their comments. others they make a joke out of it which makes me feel

bad....but i just try to ignore those remarks...i just feel heavy

though...according to my doctor i cannot engage yet on strenous activities like

exercising...she just recommended for me to do brisk walking for 15 minutes...

thanks so much..

melisa

willha46 <creative@...> wrote:

Hi Melisa,

How long did it take you to gain the 30 pounds. Do you do any

excercise or walking or swimming?

Do not feel depressed about the weight. I too have had several

changes, my skin colour for example has become different and dark

circles under my eyes as well as the extra weight especially in my

face, but I try to look at this as a new phase in my life..a new

chapter almost so maybe we look a bit different but really when it

comes down to it, we are exactly the same people before the

medication,

The doctor has told me if the fluid still stays they can give a

diuretic which should help but makes you go to the toilet a little

more than usual. I have not opted for this route right now..

Good luck Melisa and God Bless..

Bil in the UK

> >

> > I know we have discussed this topic in the past but I am gaining

> weight very quickly and I need some support.

> >

> > I know there are various reasons related to Gleevec, like the

> fatigue, not wanting to exercise and the retention of water.

> >

> > My biggest problem is that my apetite is out of control. Has

> anyone had that problem?

> > I went from someone who could not eat primarliy because I had a

> spleen that was about three times its normal size and it was

pressing

> on my stomach so I felt full all the time to someone who now cannot

> stop eating.

> >

> > Has anyone had this problem and do you have any advice or just

> words of support. I do not want to gain any more weight and need to

> start losing.

> >

> > Efrem

> >

> >

> >

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Hi Melisa,

I just read your post, and I have to say, it made me sad.

I don't honestly see how you can allow your so called " friends "

and " associates " to make fun of you and point out your weight gain or

swollen eyes/face. It's not funny or joke material. This is your

new life, and like it or not, you have leukemia. You can see for

yourself how you look that day. You certainly don't need for anyone

to point it out to you. You take a drug to save your life that makes

you look different now. That's it.

The people that I choose to surround myself with love me for who I am

as an individual and a friend. They tell them they are just glad I'm

still here on this earth. They say, " Better fat or swollen than

DEAD! " .. and when it really comes down to it, it's true.

I'd rather have a small handful of exceptional, true friends, or be

alone, than to have to deal with insensitive, rude, and shallow

people in my life.

If the shoe was on the other foot, and your friend was diagnosed with

a chronic illness, how would you treat them? With compassion or

would you mock them?

Just something to ponder.

Lynn

Dx'd 12/03

> > >

> > > I know we have discussed this topic in the past but I am

gaining

> > weight very quickly and I need some support.

> > >

> > > I know there are various reasons related to Gleevec, like the

> > fatigue, not wanting to exercise and the retention of water.

> > >

> > > My biggest problem is that my apetite is out of control. Has

> > anyone had that problem?

> > > I went from someone who could not eat primarliy because I had a

> > spleen that was about three times its normal size and it was

> pressing

> > on my stomach so I felt full all the time to someone who now

cannot

> > stop eating.

> > >

> > > Has anyone had this problem and do you have any advice or just

> > words of support. I do not want to gain any more weight and need

to

> > start losing.

> > >

> > > Efrem

> > >

> > >

> > >

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Hi to all,

I have the opposite problem, I do not have appetite at all, I need to push

myself eat so I can survive. Before I was diagnosed I had lost a lot of weight

and I was suprised cause it happen all of a sudden, lost my appetite, I didnt

even want to think about food. For the last few years I had normal weight around

60 KG, yet last year (assumed when the CML started) I lost a lot of weight and I

was 53 KG I looked terrible and everyone was so suprised why I had lost so much

weight.

Now I eat just because I have to, and normally it is 2 meals per a day.

However I cycle to work, 7 miles per a day and that gives me stamina to go on. I

know that most of the physical activities make us tired very quiclky yet Im

trying to find the perfect balance for me so I can cope with CML and all the

emotinal downfalls. The idea itself that Im leading a " normal life " (working,

cycling) has helped me a lot to overcome the challenges to think about myself as

an ill person, and think about the worst. I have been through a LOT and most of

the time I HAVE BEEN ALONE, without anyones support.

I would like to thank to everyone cause you played an important role in my

life in the begining, by reading your experiences and courage you offer in each

and every post.

Best wishes to all,

Arta

diagnosed 04/01/07

Gleevec 400 mg

no children yet I am going to go through it with God's help next year and you

played an important role in making this decision

fischer <efrem_fischer@...> wrote:

I know we have discussed this topic in the past but I am gaining

weight very quickly and I need some support.

I know there are various reasons related to Gleevec, like the fatigue, not

wanting to exercise and the retention of water.

My biggest problem is that my apetite is out of control. Has anyone had that

problem?

I went from someone who could not eat primarliy because I had a spleen that was

about three times its normal size and it was pressing on my stomach so I felt

full all the time to someone who now cannot stop eating.

Has anyone had this problem and do you have any advice or just words of support.

I do not want to gain any more weight and need to start losing.

Efrem

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Guest guest

Hi Tracey!

Much love to you girlfriend! I appreciate your words of

encouragement.

I think everyone has different challenges of this disease, and it

also depends on what phase of your life you are in.

Raising kids and being sick takes on a whole new meaning. I'm

willing to give a new med a try, but with the kids getting out of

school very soon, for the summer, now is really not the time to try

something " new. "

With Celexa, I could sleep a solid 9 hours at night, wake up, get the

kids off to school, and then go back to bed for another 3-4 hours.

Then, by around 7:00 at night or so.. I was tired again. That is

simply not living! Absolutely crazy!

I'm want to have fun with my kids and hubby this summer. I will have

to push myself, but they deserve it.

I'm just going to see how I do, and in the Fall, when school starts

back again, I may try something different. I'm just going to see how

it goes!

Big Hugs!

Lynn

> > >

> > > I know we have discussed this topic in the past but I am

gaining

> > weight very quickly and I need some support.

> > >

> > > I know there are various reasons related to Gleevec, like the

> > fatigue, not wanting to exercise and the retention of water.

> > >

> > > My biggest problem is that my apetite is out of control. Has

> > anyone had that problem?

> > > I went from someone who could not eat primarliy because I had

a

> > spleen that was about three times its normal size and it was

> pressing

> > on my stomach so I felt full all the time to someone who now

cannot

> > stop eating.

> > >

> > > Has anyone had this problem and do you have any advice or

just

> > words of support. I do not want to gain any more weight and need

> to

> > start losing.

> > >

> > > Efrem

> > >

> > >

> > >

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Hi Melisa,

The main reason we're supposed to take Gleevec with a full stomach is

because it really cuts down on the nausea. If you don't have a problem

with nausea, then I don't see why you couldn't take it with a smaller

meal (like lunch or breakfast).

Good luck,

Tracey

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Guest guest

I have been reading these post with interest. After I first started gleevec,

I gained weight but this past year I have had difficultly maintaining my

weight and have dropped 50 pounds. I have a lot of nausea and vomiting and

no interest in food. So some days rather than dealing with the vomiting I

just don't eat. i try but nothing seems to interest me. Between the fatigue

and the other side of effects, I am just plain tired. Some of it I know is

depression, and I have tried several antidepressents with nothing really

working for me.I tried exercising to get more energy but that does not

really help. I am so tired of taking medication to deal with the side

effects of gleevec or the countless number of other pills they have given

me. I feel like I have no life anymore.

My Dr. had taken me off gleevec at this point for a month and is considering

switching me to sprycel. Just lovely considering I just bought my three

month supply of gleevec that i know have to throw out. To be honest with you

i am tired of all this. I want an end to things. I am considering pushing my

Dr. towards transplant.

I am single and I live alone, this has gotten hard for me. I work full time

and don't have the option of not working. So every day I push my self to

keep going, and not give up. (A little bit of ritalin helps to.)

This group has been a great support for me. I don't post often but I do read

and it is good to know that I am not alone in this struggle.

in Pa

_________________________________________________________________

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Hi Melisa,

Give it a try. If it works, then your home free. If it is worse, then go

back to eating before taking the pills. Make sure that you drink lots of

water.

You can't damage your insides.

Zavie

Zavie (age 69)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-202-0204

ID: zaviem

_____

From: [mailto: ] On Behalf Of melisa

adan

Sent: June 15, 2007 12:03 PM

Subject: Re: [ ] Re: Weight Gain

thanks tracey! but i would like to ask if its alright to take gleevec even

with an empty stomach??? i think the reason also for my gaining weight was

the thought that i should take it with a full stomach...i am afraid that

taking it without any food would damage my internal organs...especially my

intestines...i don't know...i just fear that it would make things worst....

i am trying other alternatives like taking it after lunch so as i could

avoid eating too much at dinner time...thanks Godbless.....

Tracey <traceyincanada@ <mailto:traceyincanada%40> >

wrote: Yes, I too went through the " always famished " stage of Gleevec

therapy. Some days are worse than others. I gained 40 pounds the

first year but I don't blame Gleevec for it. I'm sure the ice cream,

chips and other junk I was shoving down my throat had something to do

with it :) I did manage to get it off in the third year though.

Mostly because I started to watch what I ate but also because I just

got used to feeling hungry and ignored it.

Tracey

dx Jan 2002

Send instant messages to your online friends http://uk.messenger

<http://uk.messenger.> .

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oh ok....thanks tracey for that info...with regards to nausea...sometimes i

do..sometimes i don't...that is why i don't know if i should take it with a full

stomach or not....Godbless!

Tracey <traceyincanada@...> wrote: Hi Melisa,

The main reason we're supposed to take Gleevec with a full stomach is

because it really cuts down on the nausea. If you don't have a problem

with nausea, then I don't see why you couldn't take it with a smaller

meal (like lunch or breakfast).

Good luck,

Tracey

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  • 2 weeks later...
Guest guest

Efrem,

Just remember--a day at a time. I have struggled with my weight too

and it is partially fluid retention, which has gotten worse, the

longer I have been on Gleevec, and also appetite. I am ALWAYS

hungry. I have tried everything--the best for me is to eat multiple

small healthy meals per day, making sure to include some protein in

all of them. Please don't get discouraged by this--we are all

fighting these battles right along with you. Take care. Maybe

you're just making up for the time when you couldn't eat. Also, just

having CML makes me want to eat somehow--it is a bursting forth of

the life-force! You deserve to give yourself a little space--and

don't sweat it too much unless you believe it is a serious health

issue for you. In that case, talk to your doctor about it and maybe

there will be some good ideas from that area. Protein seems to be the

key for me shutting down my appetite.

Best wishes,

Vicki

>

> I know we have discussed this topic in the past but I am gaining

weight very quickly and I need some support.

>

> I know there are various reasons related to Gleevec, like the

fatigue, not wanting to exercise and the retention of water.

>

> My biggest problem is that my apetite is out of control. Has

anyone had that problem?

> I went from someone who could not eat primarliy because I had a

spleen that was about three times its normal size and it was pressing

on my stomach so I felt full all the time to someone who now cannot

stop eating.

>

> Has anyone had this problem and do you have any advice or just

words of support. I do not want to gain any more weight and need to

start losing.

>

> Efrem

>

>

>

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  • 1 month later...
Guest guest

hi lynn,

yeah you are right..i am now staring to meet my long lost friends..and they

make me feel good by saying that i still look good....thanks so much for the

inspiration...Godbless!

snickersunny <no_reply > wrote:

Hi Melisa,

I just read your post, and I have to say, it made me sad.

I don't honestly see how you can allow your so called " friends "

and " associates " to make fun of you and point out your weight gain or

swollen eyes/face. It's not funny or joke material. This is your

new life, and like it or not, you have leukemia. You can see for

yourself how you look that day. You certainly don't need for anyone

to point it out to you. You take a drug to save your life that makes

you look different now. That's it.

The people that I choose to surround myself with love me for who I am

as an individual and a friend. They tell them they are just glad I'm

still here on this earth. They say, " Better fat or swollen than

DEAD! " .. and when it really comes down to it, it's true.

I'd rather have a small handful of exceptional, true friends, or be

alone, than to have to deal with insensitive, rude, and shallow

people in my life.

If the shoe was on the other foot, and your friend was diagnosed with

a chronic illness, how would you treat them? With compassion or

would you mock them?

Just something to ponder.

Lynn

Dx'd 12/03

> > >

> > > I know we have discussed this topic in the past but I am

gaining

> > weight very quickly and I need some support.

> > >

> > > I know there are various reasons related to Gleevec, like the

> > fatigue, not wanting to exercise and the retention of water.

> > >

> > > My biggest problem is that my apetite is out of control. Has

> > anyone had that problem?

> > > I went from someone who could not eat primarliy because I had a

> > spleen that was about three times its normal size and it was

> pressing

> > on my stomach so I felt full all the time to someone who now

cannot

> > stop eating.

> > >

> > > Has anyone had this problem and do you have any advice or just

> > words of support. I do not want to gain any more weight and need

to

> > start losing.

> > >

> > > Efrem

> > >

> > >

> > >

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Guest guest

lynn,

i think its awfull people would even joke with you about this. its very

serious not a joking matter. they arent your friends. a friend would show

compassion.

---------------------------------

Park yourself in front of a world of choices in alternative vehicles.

Visit the Auto Green Center.

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Absolutely,

I have been on Gleevec since February and have gained alot of weight. When my

friends see me now, they are so happy because they know that my weight gain is a

sign of good health. They tell me how good I look.

It is important to surround yourself with those friends

melisa adan <lisa_adan@...> wrote:

hi lynn,

yeah you are right..i am now staring to meet my long lost friends..and they make

me feel good by saying that i still look good....thanks so much for the

inspiration...Godbless!

snickersunny <no_reply > wrote:

Hi Melisa,

I just read your post, and I have to say, it made me sad.

I don't honestly see how you can allow your so called " friends "

and " associates " to make fun of you and point out your weight gain or

swollen eyes/face. It's not funny or joke material. This is your

new life, and like it or not, you have leukemia. You can see for

yourself how you look that day. You certainly don't need for anyone

to point it out to you. You take a drug to save your life that makes

you look different now. That's it.

The people that I choose to surround myself with love me for who I am

as an individual and a friend. They tell them they are just glad I'm

still here on this earth. They say, " Better fat or swollen than

DEAD! " .. and when it really comes down to it, it's true.

I'd rather have a small handful of exceptional, true friends, or be

alone, than to have to deal with insensitive, rude, and shallow

people in my life.

If the shoe was on the other foot, and your friend was diagnosed with

a chronic illness, how would you treat them? With compassion or

would you mock them?

Just something to ponder.

Lynn

Dx'd 12/03

> > >

> > > I know we have discussed this topic in the past but I am

gaining

> > weight very quickly and I need some support.

> > >

> > > I know there are various reasons related to Gleevec, like the

> > fatigue, not wanting to exercise and the retention of water.

> > >

> > > My biggest problem is that my apetite is out of control. Has

> > anyone had that problem?

> > > I went from someone who could not eat primarliy because I had a

> > spleen that was about three times its normal size and it was

> pressing

> > on my stomach so I felt full all the time to someone who now

cannot

> > stop eating.

> > >

> > > Has anyone had this problem and do you have any advice or just

> > words of support. I do not want to gain any more weight and need

to

> > start losing.

> > >

> > > Efrem

> > >

> > >

> > >

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  • 3 weeks later...

> > > Hi Efrem,

> > > Just a quick note, I am not sure how far into your initial

> > diagnosis

> > > you are but I am on Glivec and for the first four weeks when

I

> > > started the medication, I had the same...I could not stop

eating.

> > > EVERYTHING>..

> > > It has subsided now..I am 7 weeks into the meds, I have

gained

> > about

> > > 7 kilos but it has evened out and I have not gained any

more over

> > the

> > > past three weeks. I have gained a lot I think as well for the

> > reasons

> > > you mentioned. But also I asked the hemo..they said this is

> > standard

> > > with all Glivec and a lot of it is water retention.

> > >

> > > So I have joined a swimming club that has a steam room

and a

> Sauna

> > > and I am trying to sweat out the extra weight.

> > >

> > > I will let you know how it goes! Good luck to you email me if

you

> > > want to

> > >

> > > Bil in the UK

> > >

> > > --- In , fischer <efrem_fischer@>

wrote:

> > > >

> > > > I know we have discussed this topic in the past but I am

> gaining

> > > weight very quickly and I need some support.

> > > >

> > > > I know there are various reasons related to Gleevec, like

the

> > > fatigue, not wanting to exercise and the retention of water.

> > > >

> > > > My biggest problem is that my apetite is out of control.

Has

> > > anyone had that problem?

> > > > I went from someone who could not eat primarliy

because I had a

> > > spleen that was about three times its normal size and it

was

> > pressing

> > > on my stomach so I felt full all the time to someone who

now

> cannot

> > > stop eating.

> > > >

> > > > Has anyone had this problem and do you have any

advice or just

> > > words of support. I do not want to gain any more weight

and need

> to

> > > start losing.

> > > >

> > > > Efrem

> > > >

> > > >

> > > >

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  • 7 months later...
Guest guest

has anyone had to go up on their dose because of weight gain?

fgigles55@... wrote: Yes it helps. I

thought maybe it was a precaution not to take f you IgE was so high, but I guess

it just might take longer. I'll take longer over never, lol. Thanks for you

help. jean

---- meagainbenny <bennetme@...> wrote:

> Total IgE is supposed to be under 700 because the clinical trials were

> only done in patients with IgE's less than 700. Prior to starting

> Xolair almost 3 years ago, my IgE was just over 1100. My pulmo

> justified starting it with 'well it can't hurt to try' and thank God

> we did try it. While it did take close to 2 years to see any

> significant improvement (my MD says it's b/c my IgE was so high), it

> has literally changed my life.

>

> Hope this helps,

> Meagan

>

>

> This is just for my own edification, so nobody needs to answer if

> > > they don't wish to answer. I have Asthma and Eosinophilic

> Esophagitis.

> > > I know I have had the former since birth. It, however, has been very

> > > well controlled through minimal inhaled corticosteroids since about

> > > 1990. The EE may have been around for more years than I know, but I

> > > have only had problems with it in the last two years. Nonetheless,

> > > except for occassional nausea and chest pain, I haven't visited a

> > > hospital for either in any crisis situation since I was about 15.

> I am

> > > now 49.

> > >

> > > The question is: what are you IgE levels and what is the largest IgE

> > > level for an allergen or allergens? My IgE started at about 254

> when I

> > > was first tested about two years ago and is now about 345 (prior to

> > > Xolair in November). But, my biggest allergen by far is wheat and

> > > gluten ( I am not Celiac ). I have been off of both for over a year.

> > > The reason I ask is that Xolair has helped me, but primarlily with

> > > skin allergies, which is not typical.

> > >

> > >

> > >

> > >

> > >

> > > __________________________________________________

> > >

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  • 1 month later...
Guest guest

HI EVERYONE, I THINK THAT WAS ME WITH THE WEIGHT SUPPORT GROUP AND I STARTED

TODAY!!! HAD TO FAST ANYWAY TO HAVE SEVERAL TESTS DONE. ON THE WAY HOME I

PULLED INTO A PANERA'S TO EAT - AND THEN PULLED RIGHT OUT, BECAUSE I KNEW I

WOULD GO FOR A STICKY BUN. INSTEAD I CAME HOME AND SCRAMBLED EGGS AND HAD A

SMALL PIECE OF SAUSAGE, NO TOAST, NO BREAD. SO! THAT'S A START....BOBBY

carolyn_kuptz2000 <carolyn_kuptz2000@...> wrote: Dear Sharon,

I am on sprycel and have put on 20 pounds that I really can't afford to

have since I am 5feet 5. My current weight has reached 180. I did go

to weight watcher for awhile but to now avail. I don't eat alot at

meals but I do graze alot during the day. A little here and a little

there. I know the meds do make you put on weight also but can't blame

it all on that. So I guess I just accept it and thank the Lord that I

get up each day in remission. Hang in there. I liked the idea someone

posted of having a weight support group.

God Bless You and yours

Carolyn

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840 - Zavie's Zero Club

09/2006 - out of CCR

04/29/08 - XL228 Trial/ U.of Michigan

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Guest guest

I am all for a weight support group. Since I started Tsigne 90 days ago I

have gained 10 pounds.. I hate it. I am only 5 ft and I weigh 135..

I know I eat a lot. The Tsigna gives me a huge appitite. My husband can not

believe how much I eat.but he thinks it is good for me. He doesn't care what

I weigh. I Do!!!! When I can't fit in my jeans anymore I get frightened. I

have been cutting back and trying to eat healthy. And I have been drinking a

lot of water. I broke my foot about 5 weeks ago so I have not been able to

do much exercise but now that my cast is off I will start. My son and his

family bought me a bike for mothers day. I am anxious to start that.I HATE

EXERCISE!!!!!!

Let's support each other.

By the way---has any of you ever heard of the foundation called " face in the

Mirror " ?????what a wonderful wonderful thing it is. I would like to see it

started in Calif.

Sharon T

_____

From: [mailto: ] On Behalf Of

ROBERTA DOYLE

Sent: Tuesday, June 03, 2008 8:03 AM

Subject: Re: [ ] weight gain

HI EVERYONE, I THINK THAT WAS ME WITH THE WEIGHT SUPPORT GROUP AND I STARTED

TODAY!!! HAD TO FAST ANYWAY TO HAVE SEVERAL TESTS DONE. ON THE WAY HOME I

PULLED INTO A PANERA'S TO EAT - AND THEN PULLED RIGHT OUT, BECAUSE I KNEW I

WOULD GO FOR A STICKY BUN. INSTEAD I CAME HOME AND SCRAMBLED EGGS AND HAD A

SMALL PIECE OF SAUSAGE, NO TOAST, NO BREAD. SO! THAT'S A START....BOBBY

carolyn_kuptz2000 <carolyn_kuptz2000@ <mailto:carolyn_kuptz2000%40>

> wrote: Dear Sharon,

I am on sprycel and have put on 20 pounds that I really can't afford to

have since I am 5feet 5. My current weight has reached 180. I did go

to weight watcher for awhile but to now avail. I don't eat alot at

meals but I do graze alot during the day. A little here and a little

there. I know the meds do make you put on weight also but can't blame

it all on that. So I guess I just accept it and thank the Lord that I

get up each day in remission. Hang in there. I liked the idea someone

posted of having a weight support group.

God Bless You and yours

Carolyn

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840 - Zavie's Zero Club

09/2006 - out of CCR

04/29/08 - XL228 Trial/ U.of Michigan

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HI SHARON, NO, I HAVE NOT HEARD OF " FACE IN THE MIRROR " - BUT THE OTHER DAY I

SAW MY ENTIRE BODY IN THE MIRROR AND WONDERED WHO THE HECK IT WAS! COULDN'T BE

ME, I'M NOT THAT FAT - HA HA, YES I AM. 195, SO I DEFINITELY NEED HELP!!!!!

BOBBY

Sharon & Denny <onthewtr@...> wrote: I am all for a weight

support group. Since I started Tsigne 90 days ago I

have gained 10 pounds.. I hate it. I am only 5 ft and I weigh 135..

I know I eat a lot. The Tsigna gives me a huge appitite. My husband can not

believe how much I eat.but he thinks it is good for me. He doesn't care what

I weigh. I Do!!!! When I can't fit in my jeans anymore I get frightened. I

have been cutting back and trying to eat healthy. And I have been drinking a

lot of water. I broke my foot about 5 weeks ago so I have not been able to

do much exercise but now that my cast is off I will start. My son and his

family bought me a bike for mothers day. I am anxious to start that.I HATE

EXERCISE!!!!!!

Let's support each other.

By the way---has any of you ever heard of the foundation called " face in the

Mirror " ?????what a wonderful wonderful thing it is. I would like to see it

started in Calif.

Sharon T

_____

From: [mailto: ] On Behalf Of

ROBERTA DOYLE

Sent: Tuesday, June 03, 2008 8:03 AM

Subject: Re: [ ] weight gain

HI EVERYONE, I THINK THAT WAS ME WITH THE WEIGHT SUPPORT GROUP AND I STARTED

TODAY!!! HAD TO FAST ANYWAY TO HAVE SEVERAL TESTS DONE. ON THE WAY HOME I

PULLED INTO A PANERA'S TO EAT - AND THEN PULLED RIGHT OUT, BECAUSE I KNEW I

WOULD GO FOR A STICKY BUN. INSTEAD I CAME HOME AND SCRAMBLED EGGS AND HAD A

SMALL PIECE OF SAUSAGE, NO TOAST, NO BREAD. SO! THAT'S A START....BOBBY

carolyn_kuptz2000 <carolyn_kuptz2000@ <mailto:carolyn_kuptz2000%40>

> wrote: Dear Sharon,

I am on sprycel and have put on 20 pounds that I really can't afford to

have since I am 5feet 5. My current weight has reached 180. I did go

to weight watcher for awhile but to now avail. I don't eat alot at

meals but I do graze alot during the day. A little here and a little

there. I know the meds do make you put on weight also but can't blame

it all on that. So I guess I just accept it and thank the Lord that I

get up each day in remission. Hang in there. I liked the idea someone

posted of having a weight support group.

God Bless You and yours

Carolyn

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840 - Zavie's Zero Club

09/2006 - out of CCR

04/29/08 - XL228 Trial/ U.of Michigan

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