Re: continuing allergy shots

[Guest guest]

--- In , " wiesenstrasse7 " <terriball@...>

wrote:

>

> Hello,

>

> I would like to get opinions on continuing allergy shots when on

> Xolair. What do others do? Has research been done on this?

>

> I have been on allergy shots for more than 20 years. I never really

> knew if they worked, but I kept getting them b/c there was not really

> any other treatment. And if there was a slight chance it helped, I

> might as well get them. I haven't had one in about a month, so I am

> wondering if I can give them up or should I continue them a little

> while longer.

>

> I have had 4 Xolair injections. I was recently got a cold and it was

> the first time in 20 years that I have not been incapacitated for a

> month from the complications of a viral infection; sinusitis,

> bronchitis, and asthma.

>

> I appreciate your opinions.

>

> Terri

>

Terri,

I have been on allergy shots since 1959 and on xolair since 2003. I am

such a bad asthmatic, my doctor wants me to stay on both.

Doug

Group founder

[Guest guest]

I was told that allergy shots are part of the Xolair protocol. I have been

on and off allergy shots for 30 years and it has only been while on Xolair

that I have been able to get to maintenance level. Before the shots would

trigger an asthma flare, and even a couple of times, mild anaphylaxis. Now I

occasionally get a large local reaction to 1 of the 3 shots, but not every

time which is much improved.

My allergist did mention that the goal for that practice is to get a the

allergy shots done to the level we can try and stop Xolair. Not sure if I

agree yet with that goal as my allergy shots don't cover all of my

allergies, but we shall see.

B.

From: [mailto: ] On

Behalf Of uca79iii

Sent: Saturday, January 10, 2009 4:20 PM

Subject: [ ] Re: continuing allergy shots

--- In <mailto: %40>

, " wiesenstrasse7 " <terriball@...>

wrote:

>

> Hello,

>

> I would like to get opinions on continuing allergy shots when on

> Xolair. What do others do? Has research been done on this?

>

> I have been on allergy shots for more than 20 years. I never really

> knew if they worked, but I kept getting them b/c there was not really

> any other treatment. And if there was a slight chance it helped, I

> might as well get them. I haven't had one in about a month, so I am

> wondering if I can give them up or should I continue them a little

> while longer.

>

> I have had 4 Xolair injections. I was recently got a cold and it was

> the first time in 20 years that I have not been incapacitated for a

> month from the complications of a viral infection; sinusitis,

> bronchitis, and asthma.

>

> I appreciate your opinions.

>

> Terri

>

Terri,

I have been on allergy shots since 1959 and on xolair since 2003. I am

such a bad asthmatic, my doctor wants me to stay on both.

Doug

Group founder

[Guest guest]

My allergist says that Xolair should be used in conjunction with

allergy shots. In fact, it's not theory but they should help

reinforce each other. Allergy shots will help to reduce the level of

allergic reaction by retraining your immune system while Xolair will

help to prevent that allergic reactions from happening.

--

Dharm Guruswamy

--- In , " wiesenstrasse7 " <terriball@...>

wrote:

>

> Hello,

>

> I would like to get opinions on continuing allergy shots when on

> Xolair. What do others do? Has research been done on this?

>

> I have been on allergy shots for more than 20 years. I never really

> knew if they worked, but I kept getting them b/c there was not

really

> any other treatment. And if there was a slight chance it helped, I

> might as well get them. I haven't had one in about a month, so I am

> wondering if I can give them up or should I continue them a little

> while longer.

>

> I have had 4 Xolair injections. I was recently got a cold and it

was

> the first time in 20 years that I have not been incapacitated for a

> month from the complications of a viral infection; sinusitis,

> bronchitis, and asthma.

>

> I appreciate your opinions.

>

> Terri

>

[Guest guest]

Terri,

I'm like you - allergy shots kept me out of the hospital, but that

was about it. I never saw the improvement others did, despite taking

allergy shots pretty much continuously from age 3 to age 35. Also,

as I approached 30, I seemed to have more trouble with minor

reactions.

I stopped taking allergy shots with my allergist's approval after six

months on Xolair. Xolair has improved the quality of my life

tremendously.

It's a decision for you and your doctor, based on how well you do on

Xolair.

Good luck,

Addy

Group co-owner

> >

> > Hello,

> >

> > I would like to get opinions on continuing allergy shots when on

> > Xolair. What do others do? Has research been done on this?

> >

> > I have been on allergy shots for more than 20 years. I never

really

> > knew if they worked, but I kept getting them b/c there was not

> really

> > any other treatment. And if there was a slight chance it helped,

I

> > might as well get them. I haven't had one in about a month, so I

am

> > wondering if I can give them up or should I continue them a little

> > while longer.

> >

> > I have had 4 Xolair injections. I was recently got a cold and it

> was

> > the first time in 20 years that I have not been incapacitated for

a

> > month from the complications of a viral infection; sinusitis,

> > bronchitis, and asthma.

> >

> > I appreciate your opinions.

> >

> > Terri

> >

>

[Guest guest]

I don't understand - you're the third or fourth person in the time

we've been running this group who's said their doctor's got a goal

for them to come off Xolair.

My doctor has NEVER said that. He and I are both so happy with how

I'm doing on Xolair, neither of us would ever consider it until the

next great thing comes along. It seems to me that would only be a

wise course of action for someone who's had really good success with

allergy shots - and it sounds like you've had plenty of trouble with

them. Also, our bodies continually make new IgE, which can only be

bound to Xolair while one is taking it.

Addy

Group co-owner

> >

> > Hello,

> >

> > I would like to get opinions on continuing allergy shots when on

> > Xolair. What do others do? Has research been done on this?

> >

> > I have been on allergy shots for more than 20 years. I never

really

> > knew if they worked, but I kept getting them b/c there was not

really

> > any other treatment. And if there was a slight chance it helped, I

> > might as well get them. I haven't had one in about a month, so I

am

> > wondering if I can give them up or should I continue them a little

> > while longer.

> >

> > I have had 4 Xolair injections. I was recently got a cold and it

was

> > the first time in 20 years that I have not been incapacitated for

a

> > month from the complications of a viral infection; sinusitis,

> > bronchitis, and asthma.

> >

> > I appreciate your opinions.

> >

> > Terri

> >

>

> Terri,

>

> I have been on allergy shots since 1959 and on xolair since 2003. I

am

> such a bad asthmatic, my doctor wants me to stay on both.

>

> Doug

> Group founder

>

>

>

>

>

>

[Guest guest]

I agree. Xolair has been incredible for me. Thankfully my pulmonologist

thinks I am the perfect candidate for Xolair and has no thought of taking me

off, so the allergist will continue me on it until the pulmonologist says

stop. I now have airborne anaphylactic reactions to eggs. This was getting

worse over the years prior to starting Xolair. I do not expect to be able to

eat eggs while on it. I would be nuts! But it does give me the time needed

to get rescue meds in before a severe reaction fully develops if I am

exposed.

Breathe easy everyone. My 12 yr old non-asthmatic son has bronchitis right

now and I am watching him breath at 50% lung capacity. Good thing he is

young and strong.

B.

From: [mailto: ] On

Behalf Of pyle456

Sent: Saturday, January 10, 2009 6:29 PM

Subject: [ ] Re: continuing allergy shots

I don't understand - you're the third or fourth person in the time

we've been running this group who's said their doctor's got a goal

for them to come off Xolair.

My doctor has NEVER said that. He and I are both so happy with how

I'm doing on Xolair, neither of us would ever consider it until the

next great thing comes along. It seems to me that would only be a

wise course of action for someone who's had really good success with

allergy shots - and it sounds like you've had plenty of trouble with

them. Also, our bodies continually make new IgE, which can only be

bound to Xolair while one is taking it.

Addy

Group co-owner

> >

> > Hello,

> >

> > I would like to get opinions on continuing allergy shots when on

> > Xolair. What do others do? Has research been done on this?

> >

> > I have been on allergy shots for more than 20 years. I never

really

> > knew if they worked, but I kept getting them b/c there was not

really

> > any other treatment. And if there was a slight chance it helped, I

> > might as well get them. I haven't had one in about a month, so I

am

> > wondering if I can give them up or should I continue them a little

> > while longer.

> >

> > I have had 4 Xolair injections. I was recently got a cold and it

was

> > the first time in 20 years that I have not been incapacitated for

a

> > month from the complications of a viral infection; sinusitis,

> > bronchitis, and asthma.

> >

> > I appreciate your opinions.

> >

> > Terri

> >

>

> Terri,

>

> I have been on allergy shots since 1959 and on xolair since 2003. I

am

> such a bad asthmatic, my doctor wants me to stay on both.

>

> Doug

> Group founder

>

>

>

>

>

>

[Guest guest]

I guess the allergy shot decision depends on your MD. I am not on

allergy shots and haven't been for 4.5 years. It was actually an

anaphylactic reaction to allergy shots (loooooooooooong story) and my

allergist-at-the-time's lack of concern that led me to my current

allergist/pulmonologist who started me on Xolair. My current doctor

obviously knows about my history with allergy shots and won't even

consider doing skin testing on me(only blood-tests) because he's so

afraid I'll react. So I've been on Xolair exclusively (in addition to

my oral meds/inhalers & nebulizers) for about 3.5-4 years now and its

worked wonders for me.

On an unrelated note, I was recently hospitalized for pancreatitis

following a series of weird reactions to medications (my kidneys had

an allergic reaction and shut-down, setting-off the pancreatitis),

and during that time the fact that I was on Theophylline never seemed

to 'register' with any doctors and I inadvertently came off it. I

feel totally fine (I haven't taken it for about 4 weeks now) my

allergist/pulmonologist was fine with me being off it as long as my

lungs sounded good and I felt fine. I would not be fine without

Theophylline had it not been for Xolair so I count me being off

Theophylline as a Xolair-victory. I'm still getting used to taking

fewer pills in the AM and PM! Yay Xolair!

Meagan

> >

> > Hello,

> >

> > I would like to get opinions on continuing allergy shots when on

> > Xolair. What do others do? Has research been done on this?

> >

> > I have been on allergy shots for more than 20 years. I never

really

> > knew if they worked, but I kept getting them b/c there was not

really

> > any other treatment. And if there was a slight chance it helped, I

> > might as well get them. I haven't had one in about a month, so I

am

> > wondering if I can give them up or should I continue them a little

> > while longer.

> >

> > I have had 4 Xolair injections. I was recently got a cold and it

was

> > the first time in 20 years that I have not been incapacitated for

a

> > month from the complications of a viral infection; sinusitis,

> > bronchitis, and asthma.

> >

> > I appreciate your opinions.

> >

> > Terri

> >

>

> Terri,

>

> I have been on allergy shots since 1959 and on xolair since 2003. I

am

> such a bad asthmatic, my doctor wants me to stay on both.

>

> Doug

> Group founder

>

>

>

>

>

>

[Guest guest]

A lot like you I had anaphylactic reactions to allergy shots so I

never continued on them for very long with the exception of when I was

a kid and took them for several years. Unfortunately even then (when

the allergies weren't as severe) they couldn't increase the dilution

above the starting dose although they increased the amount maybe five

times in those two years.

The Xolair has helped tremendously for my asthma and pretty well for

my allergies/skin and I asked my doc if we could attempt one last try

for allergy shots now that I have been on Xolair for three years. I'm

hoping that the Xolair will fend off enough of the reaction I've had

in the past so maybe I can continue the allergy shots up to a

beneficial level, if not...at least we gave it a shot (lol no pun

intended) and will know that is not an option.

Yikes @ the pancreatitis but congrats on the Theophylline. It

was one of the few pre-Xolair meds that made a difference for me but I

hated the stuff. The side effects were horrid and the continual blood

tests to check my levels which never seemed to be between the 10-20

they wanted. The doc said it couldn't be helping at the low levels my

blood was showing (@400mg/day) but if I didn't take it I was in an

almost constant mild/moderate attack state. When we increased the

dosage to 600mg/day, I felt like I was car sick or had morning

sickness full-time.

>

> I guess the allergy shot decision depends on your MD. I am not on

> allergy shots and haven't been for 4.5 years. It was actually an

> anaphylactic reaction to allergy shots (loooooooooooong story) and my

> allergist-at-the-time's lack of concern that led me to my current

> allergist/pulmonologist who started me on Xolair. My current doctor

> obviously knows about my history with allergy shots and won't even

> consider doing skin testing on me(only blood-tests) because he's so

> afraid I'll react. So I've been on Xolair exclusively (in addition to

> my oral meds/inhalers & nebulizers) for about 3.5-4 years now and its

> worked wonders for me.

>

> On an unrelated note, I was recently hospitalized for pancreatitis

> following a series of weird reactions to medications (my kidneys had

> an allergic reaction and shut-down, setting-off the pancreatitis),

> and during that time the fact that I was on Theophylline never seemed

> to 'register' with any doctors and I inadvertently came off it. I

> feel totally fine (I haven't taken it for about 4 weeks now) my

> allergist/pulmonologist was fine with me being off it as long as my

> lungs sounded good and I felt fine. I would not be fine without

> Theophylline had it not been for Xolair so I count me being off

> Theophylline as a Xolair-victory. I'm still getting used to taking

> fewer pills in the AM and PM! Yay Xolair!

>

>

> Meagan

[Guest guest]

I don't know much about this but my allergist said that there is some

evidence that taking allergy shots and xolair at the same time mya boost the

benefit from allergy shots.

On Sat, Jan 10, 2009 at 2:37 PM, wiesenstrasse7 <terriball@...>wrote:

> Hello,

>

> I would like to get opinions on continuing allergy shots when on

> Xolair. What do others do? Has research been done on this?

>

> I have been on allergy shots for more than 20 years. I never really

> knew if they worked, but I kept getting them b/c there was not really

> any other treatment. And if there was a slight chance it helped, I

> might as well get them. I haven't had one in about a month, so I am

> wondering if I can give them up or should I continue them a little

> while longer.

>

> I have had 4 Xolair injections. I was recently got a cold and it was

> the first time in 20 years that I have not been incapacitated for a

> month from the complications of a viral infection; sinusitis,

> bronchitis, and asthma.

>

> I appreciate your opinions.

>

> Terri

>

>

>