Re: 2nd xoliar and no reaction

[Guest guest]

Hey  

Your daughter said the shots hurt. How do they hurt?  Does it hurt when the

needle goes in  OR does it hurt when the solution hurts?   I only ask this

because the person doing the injecting  MAY be doing it wrong.  

 The Xolair is really  thick so  it should be injected  SLOWLY. AND the needel

used to draw the Xolair out of the bottle is NOT the same needle used to inject.

  The nurse who did my initial injections was actually trained by a Xolair

employee, then they trained me to inject myself.   I found that the trick is to

" pinch the skin " when putting the needle in and not putting it in to far.  Then

inject SLOW. 

I've been on Xolair since July  2005 and have been able to dramatically change

my life around in a positive way.

From: gigles_1955 <fgigles55@...>

Subject: [ ] 2nd xoliar and no reaction

Date: Monday, May 25, 2009, 11:16 PM

Hi and everyone.

My daughter had her 2nd series of xolair shots last Friday. She didnt get

bronchitis or any asthma flares like after the first shots so I guess it is safe

to say it was just a conincidence( yea) Hasnt helped yet but it is early and I

am glad that there were no reactions other than she said the shots really hurt.

Its funny but when I first started the shots didnt hurt but the last few times

it did, it is over very quickly though. thanks for the help you have given.

jean

>

>

> Hi Jean!

>  

> Sorry it took so long for me to post a reply but I read your post with

interest. I personally think it is a bad conincidence. I have had my xolair and

then ended up in ER that NIGHT for an admission. I have been taken by my xolair

nurse from the clinic to ER with a flare. Your daughter could have been growing

a bug she wasnt telling you about if she didn't want to mess up getting her

first injection or she picked something up on site for the injection or she was

stressed about the whole thing. Its spring, does she normally flare in the

spring? The possibilities are endless. What MDs are really concerned about is

anaphylactic reactions, which is not what she had.

>  

> Its really hard to be a family member and advocate for our loved ones (my mom

has cancer and I do this all the time) because if we advocate too hard for

treatment A and something bad happens we feel beyond horrible. It clouds our

judgment which is why as a nurse I am often told to be the daughter and let

others make the decisions. Hah, easier said that done. your daughter is so

lucky to have you. Do not feel that what happened was in any way your fault or

was due to the xolair. That is up to her responsible MDs to figure out.

>  

>

>  

> ps I dont know a single med you can't take while on xolair. I have been on

pred since 2003 and xolair since 2005 and the two go hand in hand very well. It

is such a specific molecule it is difficult for there to be an interaction.

>  

>  

>  

> my daughter received her first shot(she gets maximum, 3 every two weeks) last

Monday. Her asthma started flaring a little that night and increasing symptoms,

but controlled with her nebulizer. Friday night her chest felt tight and Sat.

the nebi wasnt working that good. Took her to urgent care and dr. said she had

bronchitis.

>

> is this a possible reaction or just a coincendence?

> is it possible she doesnt have bronchitis but her asthma is worse because of

the xolair?

> she is really on the xolair more for skin(atopic derm) then asthma.

>

> also he put her on prednisone, tapered dose. I am guessing this is ok to be on

while on xolair because I have been on it.

>

> I will call her allergist/asthma dr. Monday but would like your opinion.

>

> I am on low dose xolair and have never had any problems.

> thanks. jean

>

>

>

> ____________ _________ _________ _________ _________ _________ _

> Looking for the perfect gift? Give the gift of Flickr!

>

> http://www.flickr. com/gift/

>

>

[Guest guest]

>

> From: gigles_1955 <fgigles55@...>

> Subject: [ ] 2nd xoliar and no reaction

>

> Date: Monday, May 25, 2009, 11:16 PM

>

>

I have been on Xolair since September of 2003 and I have never had any pain from

the shots.

Every other week I get my two xolair shots and then one REGULAR allergy shot. I

don't feel a thing when she gives the xolair but when she gives me the REGULAR

allergy shot, I always feel that one burn.

Everyone is different. This is just me

Doug

Group founder

[Guest guest]

I just noticed I made a typo.  I meant to say " does it hurt when the solution is

injected. "

From: gigles_1955 <fgigles55gmail (DOT) com>

Subject: [ ] 2nd xoliar and no reaction

Date: Monday, May 25, 2009, 11:16 PM

Hi and everyone.

My daughter had her 2nd series of xolair shots last Friday. She didnt get

bronchitis or any asthma flares like after the first shots so I guess it is safe

to say it was just a conincidence( yea) Hasnt helped yet but it is early and I

am glad that there were no reactions other than she said the shots really hurt.

Its funny but when I first started the shots didnt hurt but the last few times

it did, it is over very quickly though. thanks for the help you have given.

jean

>

>

> Hi Jean!

>  

> Sorry it took so long for me to post a reply but I read your post with

interest. I personally think it is a bad conincidence. I have had my xolair and

then ended up in ER that NIGHT for an admission. I have been taken by my xolair

nurse from the clinic to ER with a flare. Your daughter could have been growing

a bug she wasnt telling you about if she didn't want to mess up getting her

first injection or she picked something up on site for the injection or she was

stressed about the whole thing. Its spring, does she normally flare in the

spring? The possibilities are endless. What MDs are really concerned about is

anaphylactic reactions, which is not what she had.

>  

> Its really hard to be a family member and advocate for our loved ones (my mom

has cancer and I do this all the time) because if we advocate too hard for

treatment A and something bad happens we feel beyond horrible. It clouds our

judgment which is why as a nurse I am often told to be the daughter and let

others make the decisions. Hah, easier said that done. your daughter is so

lucky to have you. Do not feel that what happened was in any way your fault or

was due to the xolair. That is up to her responsible MDs to figure out.

>  

>

>  

> ps I dont know a single med you can't take while on xolair. I have been on

pred since 2003 and xolair since 2005 and the two go hand in hand very well. It

is such a specific molecule it is difficult for there to be an interaction.

>  

>  

>  

> my daughter received her first shot(she gets maximum, 3 every two weeks) last

Monday. Her asthma started flaring a little that night and increasing symptoms,

but controlled with her nebulizer. Friday night her chest felt tight and Sat.

the nebi wasnt working that good. Took her to urgent care and dr. said she had

bronchitis.

>

> is this a possible reaction or just a coincendence?

> is it possible she doesnt have bronchitis but her asthma is worse because of

the xolair?

> she is really on the xolair more for skin(atopic derm) then asthma.

>

> also he put her on prednisone, tapered dose. I am guessing this is ok to be on

while on xolair because I have been on it.

>

> I will call her allergist/asthma dr. Monday but would like your opinion.

>

> I am on low dose xolair and have never had any problems.

> thanks. jean

>

>

>

> ____________ _________ _________ _________ _________ _________ _

> Looking for the perfect gift? Give the gift of Flickr!

>

> http://www.flickr. com/gift/

>

>

[Guest guest]

It hurts when the solution is injected. My dd gets three shots. The first

one looked like she injected slowly, i didnt notice the 2nd but the 3rd I

though she injected too quickly. I think she did this because my daughter

was complaining it hurt. I will watch them the next time to see exactly what

they do and will also ask if they were trained by a xolair employee.

If you get a chance could you let me know how they switch the needle that

draws out the soution to the needle that injects?

'

I am glad that the xolair has worked out for you. It is encouraging.

Thank you. Jean

On Tue, May 26, 2009 at 1:59 PM, K K <grneyyedlady@...> wrote:

>

>

> I just noticed I made a typo. I meant to say " does it hurt when the

> solution is injected. "

>

>

>

> From: gigles_1955 <fgigles55gmail (DOT) com>

>

> Subject: [ ] 2nd xoliar and no reaction

>

>

>

> Date: Monday, May 25, 2009, 11:16 PM

>

> Hi and everyone.

>

> My daughter had her 2nd series of xolair shots last Friday. She didnt get

> bronchitis or any asthma flares like after the first shots so I guess it is

> safe to say it was just a conincidence( yea) Hasnt helped yet but it is

> early and I am glad that there were no reactions other than she said the

> shots really hurt. Its funny but when I first started the shots didnt hurt

> but the last few times it did, it is over very quickly though. thanks for

> the help you have given. jean

>

> >

>

> >

>

> > Hi Jean!

>

> >

>

> > Sorry it took so long for me to post a reply but I read your post with

> interest. I personally think it is a bad conincidence. I have had my xolair

> and then ended up in ER that NIGHT for an admission. I have been taken by

> my xolair nurse from the clinic to ER with a flare. Your daughter could have

> been growing a bug she wasnt telling you about if she didn't want to mess up

> getting her first injection or she picked something up on site for the

> injection or she was stressed about the whole thing. Its spring, does she

> normally flare in the spring? The possibilities are endless. What MDs are

> really concerned about is anaphylactic reactions, which is not what she had.

>

> >

>

> > Its really hard to be a family member and advocate for our loved ones (my

> mom has cancer and I do this all the time) because if we advocate too hard

> for treatment A and something bad happens we feel beyond horrible. It clouds

> our judgment which is why as a nurse I am often told to be the daughter and

> let others make the decisions. Hah, easier said that done. your

> daughter is so lucky to have you. Do not feel that what happened was in any

> way your fault or was due to the xolair. That is up to her responsible MDs

> to figure out.

>

> >

>

> >

>

> >

>

> > ps I dont know a single med you can't take while on xolair. I have been

> on pred since 2003 and xolair since 2005 and the two go hand in hand very

> well. It is such a specific molecule it is difficult for there to be an

> interaction.

>

> >

>

> >

>

> >

>

> > my daughter received her first shot(she gets maximum, 3 every two weeks)

> last Monday. Her asthma started flaring a little that night and increasing

> symptoms, but controlled with her nebulizer. Friday night her chest felt

> tight and Sat. the nebi wasnt working that good. Took her to urgent care and

> dr. said she had bronchitis.

>

> >

>

> > is this a possible reaction or just a coincendence?

>

> > is it possible she doesnt have bronchitis but her asthma is worse because

> of the xolair?

>

> > she is really on the xolair more for skin(atopic derm) then asthma.

>

> >

>

> > also he put her on prednisone, tapered dose. I am guessing this is ok to

> be on while on xolair because I have been on it.

>

> >

>

> > I will call her allergist/asthma dr. Monday but would like your opinion.

>

> >

>

> > I am on low dose xolair and have never had any problems.

>

> > thanks. jean

>

> >

>

> >

>

> >

>

> > ____________ _________ _________ _________ _________ _________ _

>

> > Looking for the perfect gift? Give the gift of Flickr!

>

> >

>

> > http://www.flickr. com/gift/

>

> >

>

> >

[Guest guest]

I find Xolair shots much less painful t han traditional allergy shots. I give

myself Xolair, and the only time it hurts is if I do a bad job sticking myself.

The needle switch is no big deal. The needle is screwed onto the syringe like

any screw top (righty-tighty, lefty-lucy). You just unscrew the larger needle

which is used to draw the fluid from the vial (while holding the syringe

upright, of course) and screw on the smaller needle, then follow the usual

instructions for filling the needle prior to giving the shot, and so on.

Xolair should be given slowly, primarily so it has time to get in there and

doesn't leak out the injection site so you don't lose any money--I mean dosage.

I'm glad your daughter didn't have any reaction after this 2nd set of

shots. I know that must be a big relief for you.

Addy

Group co-owner

> >

> > From: gigles_1955 <fgigles55gmail (DOT) com>

> >

> > Subject: [ ] 2nd xoliar and no reaction

> >

> >

> >

> > Date: Monday, May 25, 2009, 11:16 PM

> >

> > Hi and everyone.

> >

> > My daughter had her 2nd series of xolair shots last Friday. She didnt get

> > bronchitis or any asthma flares like after the first shots so I guess it is

> > safe to say it was just a conincidence( yea) Hasnt helped yet but it is

> > early and I am glad that there were no reactions other than she said the

> > shots really hurt. Its funny but when I first started the shots didnt hurt

> > but the last few times it did, it is over very quickly though. thanks for

> > the help you have given. jean

> >

> > >

> >

> > >

> >

> > > Hi Jean!

> >

> > >

> >

> > > Sorry it took so long for me to post a reply but I read your post with

> > interest. I personally think it is a bad conincidence. I have had my xolair

> > and then ended up in ER that NIGHT for an admission. I have been taken by

> > my xolair nurse from the clinic to ER with a flare. Your daughter could have

> > been growing a bug she wasnt telling you about if she didn't want to mess up

> > getting her first injection or she picked something up on site for the

> > injection or she was stressed about the whole thing. Its spring, does she

> > normally flare in the spring? The possibilities are endless. What MDs are

> > really concerned about is anaphylactic reactions, which is not what she had.

> >

> > >

> >

> > > Its really hard to be a family member and advocate for our loved ones (my

> > mom has cancer and I do this all the time) because if we advocate too hard

> > for treatment A and something bad happens we feel beyond horrible. It clouds

> > our judgment which is why as a nurse I am often told to be the daughter and

> > let others make the decisions. Hah, easier said that done. your

> > daughter is so lucky to have you. Do not feel that what happened was in any

> > way your fault or was due to the xolair. That is up to her responsible MDs

> > to figure out.

> >

> > >

> >

> > >

> >

> > >

> >

> > > ps I dont know a single med you can't take while on xolair. I have been

> > on pred since 2003 and xolair since 2005 and the two go hand in hand very

> > well. It is such a specific molecule it is difficult for there to be an

> > interaction.

> >

> > >

> >

> > >

> >

> > >

> >

> > > my daughter received her first shot(she gets maximum, 3 every two weeks)

> > last Monday. Her asthma started flaring a little that night and increasing

> > symptoms, but controlled with her nebulizer. Friday night her chest felt

> > tight and Sat. the nebi wasnt working that good. Took her to urgent care and

> > dr. said she had bronchitis.

> >

> > >

> >

> > > is this a possible reaction or just a coincendence?

> >

> > > is it possible she doesnt have bronchitis but her asthma is worse because

> > of the xolair?

> >

> > > she is really on the xolair more for skin(atopic derm) then asthma.

> >

> > >

> >

> > > also he put her on prednisone, tapered dose. I am guessing this is ok to

> > be on while on xolair because I have been on it.

> >

> > >

> >

> > > I will call her allergist/asthma dr. Monday but would like your opinion.

> >

> > >

> >

> > > I am on low dose xolair and have never had any problems.

> >

> > > thanks. jean

> >

> > >

> >

> > >

> >

> > >

> >

> > > ____________ _________ _________ _________ _________ _________ _

> >

> > > Looking for the perfect gift? Give the gift of Flickr!

> >

> > >

> >

> > > http://www.flickr. com/gift/

> >

> > >

> >

> > >

[Guest guest]

I have yet to experience pain with xolair other than when the nurse put it in

the blood vessel, etc.  Like Addy, I was pretty good at giving myself my

injections. 

________________________________

From: Jeannie Sheehan <fgigles55@...>

Sent: Tuesday, May 26, 2009 4:56:32 PM

Subject: Re: [ ] 2nd xoliar and no reaction

It hurts when the solution is injected. My dd gets three shots. The first

one looked like she injected slowly, i didnt notice the 2nd but the 3rd I

though she injected too quickly. I think she did this because my daughter

was complaining it hurt. I will watch them the next time to see exactly what

they do and will also ask if they were trained by a xolair employee.

If you get a chance could you let me know how they switch the needle that

draws out the soution to the needle that injects?

'

I am glad that the xolair has worked out for you. It is encouraging.

Thank you. Jean

On Tue, May 26, 2009 at 1:59 PM, K K <grneyyedlady> wrote:

>

>

> I just noticed I made a typo. I meant to say " does it hurt when the

> solution is injected. "

>

>

>

> From: gigles_1955 <fgigles55gmail (DOT) com>

>

> Subject: [ ] 2nd xoliar and no reaction

>

>

>

> Date: Monday, May 25, 2009, 11:16 PM

>

> Hi and everyone.

>

> My daughter had her 2nd series of xolair shots last Friday. She didnt get

> bronchitis or any asthma flares like after the first shots so I guess it is

> safe to say it was just a conincidence( yea) Hasnt helped yet but it is

> early and I am glad that there were no reactions other than she said the

> shots really hurt. Its funny but when I first started the shots didnt hurt

> but the last few times it did, it is over very quickly though. thanks for

> the help you have given. jean

>

> >

>

> >

>

> > Hi Jean!

>

> >

>

> > Sorry it took so long for me to post a reply but I read your post with

> interest. I personally think it is a bad conincidence. I have had my xolair

> and then ended up in ER that NIGHT for an admission. I have been taken by

> my xolair nurse from the clinic to ER with a flare. Your daughter could have

> been growing a bug she wasnt telling you about if she didn't want to mess up

> getting her first injection or she picked something up on site for the

> injection or she was stressed about the whole thing. Its spring, does she

> normally flare in the spring? The possibilities are endless. What MDs are

> really concerned about is anaphylactic reactions, which is not what she had.

>

> >

>

> > Its really hard to be a family member and advocate for our loved ones (my

> mom has cancer and I do this all the time) because if we advocate too hard

> for treatment A and something bad happens we feel beyond horrible. It clouds

> our judgment which is why as a nurse I am often told to be the daughter and

> let others make the decisions. Hah, easier said that done. your

> daughter is so lucky to have you. Do not feel that what happened was in any

> way your fault or was due to the xolair. That is up to her responsible MDs

> to figure out.

>

> >

>

> >

>

> >

>

> > ps I dont know a single med you can't take while on xolair. I have been

> on pred since 2003 and xolair since 2005 and the two go hand in hand very

> well. It is such a specific molecule it is difficult for there to be an

> interaction.

>

> >

>

> >

>

> >

>

> > my daughter received her first shot(she gets maximum, 3 every two weeks)

> last Monday. Her asthma started flaring a little that night and increasing

> symptoms, but controlled with her nebulizer. Friday night her chest felt

> tight and Sat. the nebi wasnt working that good. Took her to urgent care and

> dr. said she had bronchitis.

>

> >

>

> > is this a possible reaction or just a coincendence?

>

> > is it possible she doesnt have bronchitis but her asthma is worse because

> of the xolair?

>

> > she is really on the xolair more for skin(atopic derm) then asthma.

>

> >

>

> > also he put her on prednisone, tapered dose. I am guessing this is ok to

> be on while on xolair because I have been on it.

>

> >

>

> > I will call her allergist/asthma dr. Monday but would like your opinion.

>

> >

>

> > I am on low dose xolair and have never had any problems.

>

> > thanks. jean

>

> >

>

> >

>

> >

>

> > ____________ _________ _________ _________ _________ _________ _

>

> > Looking for the perfect gift? Give the gift of Flickr!

>

> >

>

> > http://www.flickr. com/gift/

>

> >

>

> >

[Guest guest]

" so you don't lose any money--I mean dosage. "

LOL!

Doug

[Guest guest]

Thanks Addy.

Thats the thing, my daughter was getting allergy shots a few years back

and never complained they hurt, got bi-weekly blood test for a long time and

although I could tell it hurt sometimes by her face she didnt complain, but

these shots she said really hurt. One of my fears is she wont go back, and

another is I dont want the nurse to be doing it wrong. Is there a way i can

tell that they switch the needle to the smaller one (other than ask)? This

office has made a few mistakes with things like submitting the original

order, notifing me my daughter was approved, appt. screw-ups, lets just say

they dont instill a lot of confidence in me :-). Another question if you

dont mind, if I decide to change her doctor does my dd have to be approved

again through curiscript or can I just call and tell them we switch drs.?

OK enough questions for now, thanks to everyone for your help. Stay well.

jean

On Tue, May 26, 2009 at 6:07 PM, pyle456 <jamcculloch2@...> wrote:

>

>

> I find Xolair shots much less painful t han traditional allergy shots. I

> give myself Xolair, and the only time it hurts is if I do a bad job sticking

> myself.

>

> The needle switch is no big deal. The needle is screwed onto the syringe

> like any screw top (righty-tighty, lefty-lucy). You just unscrew the larger

> needle which is used to draw the fluid from the vial (while holding the

> syringe upright, of course) and screw on the smaller needle, then follow the

> usual instructions for filling the needle prior to giving the shot, and so

> on.

>

> Xolair should be given slowly, primarily so it has time to get in there and

> doesn't leak out the injection site so you don't lose any money--I mean

> dosage.

>

> I'm glad your daughter didn't have any reaction after this 2nd set of

> shots. I know that must be a big relief for you.

>

> Addy

> Group co-owner

>

>

> > >

> > > From: gigles_1955 <fgigles55gmail (DOT) com>

> > >

> > > Subject: [ ] 2nd xoliar and no reaction

> > >

> > >

> > >

> > > Date: Monday, May 25, 2009, 11:16 PM

> > >

> > > Hi and everyone.

> > >

> > > My daughter had her 2nd series of xolair shots last Friday. She didnt

> get

> > > bronchitis or any asthma flares like after the first shots so I guess

> it is

> > > safe to say it was just a conincidence( yea) Hasnt helped yet but it is

> > > early and I am glad that there were no reactions other than she said

> the

> > > shots really hurt. Its funny but when I first started the shots didnt

> hurt

> > > but the last few times it did, it is over very quickly though. thanks

> for

> > > the help you have given. jean

> > >

> > > >

> > >

> > > >

> > >

> > > > Hi Jean!

> > >

> > > >

> > >

> > > > Sorry it took so long for me to post a reply but I read your post

> with

> > > interest. I personally think it is a bad conincidence. I have had my

> xolair

> > > and then ended up in ER that NIGHT for an admission. I have been taken

> by

> > > my xolair nurse from the clinic to ER with a flare. Your daughter could

> have

> > > been growing a bug she wasnt telling you about if she didn't want to

> mess up

> > > getting her first injection or she picked something up on site for the

> > > injection or she was stressed about the whole thing. Its spring, does

> she

> > > normally flare in the spring? The possibilities are endless. What MDs

> are

> > > really concerned about is anaphylactic reactions, which is not what she

> had.

> > >

> > > >

> > >

> > > > Its really hard to be a family member and advocate for our loved ones

> (my

> > > mom has cancer and I do this all the time) because if we advocate too

> hard

> > > for treatment A and something bad happens we feel beyond horrible. It

> clouds

> > > our judgment which is why as a nurse I am often told to be the daughter

> and

> > > let others make the decisions. Hah, easier said that done. your

> > > daughter is so lucky to have you. Do not feel that what happened was in

> any

> > > way your fault or was due to the xolair. That is up to her responsible

> MDs

> > > to figure out.

> > >

> > > >

> > >

> > > >

> > >

> > > >

> > >

> > > > ps I dont know a single med you can't take while on xolair. I have

> been

> > > on pred since 2003 and xolair since 2005 and the two go hand in hand

> very

> > > well. It is such a specific molecule it is difficult for there to be an

> > > interaction.

> > >

> > > >

> > >

> > > >

> > >

> > > >

> > >

> > > > my daughter received her first shot(she gets maximum, 3 every two

> weeks)

> > > last Monday. Her asthma started flaring a little that night and

> increasing

> > > symptoms, but controlled with her nebulizer. Friday night her chest

> felt

> > > tight and Sat. the nebi wasnt working that good. Took her to urgent

> care and

> > > dr. said she had bronchitis.

> > >

> > > >

> > >

> > > > is this a possible reaction or just a coincendence?

> > >

> > > > is it possible she doesnt have bronchitis but her asthma is worse

> because

> > > of the xolair?

> > >

> > > > she is really on the xolair more for skin(atopic derm) then asthma.

> > >

> > > >

> > >

> > > > also he put her on prednisone, tapered dose. I am guessing this is ok

> to

> > > be on while on xolair because I have been on it.

> > >

> > > >

> > >

> > > > I will call her allergist/asthma dr. Monday but would like your

> opinion.

> > >

> > > >

> > >

> > > > I am on low dose xolair and have never had any problems.

> > >

> > > > thanks. jean

> > >

> > > >

> > >

> > > >

> > >

> > > >

> > >

> > > > ____________ _________ _________ _________ _________ _________ _

> > >

> > > > Looking for the perfect gift? Give the gift of Flickr!

> > >

> > > >

> > >

> > > > http://www.flickr. com/gift/

> > >

> > > >

> > >

> > > >

[Guest guest]

There is a such a significant difference in the size of hte needle used to draw

the Xolair and the size used to inject it, that I can't imagine the doctor's

office is getting it wrong. Moreover, the size used for the draw is specifically

a " fill " needle, NOT for injection. It is HIGHLY unlikely the nurse is getting

it wrong. The size used to draw the Xolair is 18Gx1 and the size used to inject

is 25Gx5/8. You'll probably have to ask.

I don't know about the procedure for changing doctors, if the new doctor has to

do a new order or what. I suggest you call curascript and ask.

Addy

> > > >

> > > > From: gigles_1955 <fgigles55gmail (DOT) com>

> > > >

> > > > Subject: [ ] 2nd xoliar and no reaction

> > > >

> > > >

> > > >

> > > > Date: Monday, May 25, 2009, 11:16 PM

> > > >

> > > > Hi and everyone.

> > > >

> > > > My daughter had her 2nd series of xolair shots last Friday. She didnt

> > get

> > > > bronchitis or any asthma flares like after the first shots so I guess

> > it is

> > > > safe to say it was just a conincidence( yea) Hasnt helped yet but it is

> > > > early and I am glad that there were no reactions other than she said

> > the

> > > > shots really hurt. Its funny but when I first started the shots didnt

> > hurt

> > > > but the last few times it did, it is over very quickly though. thanks

> > for

> > > > the help you have given. jean

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > > Hi Jean!

> > > >

> > > > >

> > > >

> > > > > Sorry it took so long for me to post a reply but I read your post

> > with

> > > > interest. I personally think it is a bad conincidence. I have had my

> > xolair

> > > > and then ended up in ER that NIGHT for an admission. I have been taken

> > by

> > > > my xolair nurse from the clinic to ER with a flare. Your daughter could

> > have

> > > > been growing a bug she wasnt telling you about if she didn't want to

> > mess up

> > > > getting her first injection or she picked something up on site for the

> > > > injection or she was stressed about the whole thing. Its spring, does

> > she

> > > > normally flare in the spring? The possibilities are endless. What MDs

> > are

> > > > really concerned about is anaphylactic reactions, which is not what she

> > had.

> > > >

> > > > >

> > > >

> > > > > Its really hard to be a family member and advocate for our loved ones

> > (my

> > > > mom has cancer and I do this all the time) because if we advocate too

> > hard

> > > > for treatment A and something bad happens we feel beyond horrible. It

> > clouds

> > > > our judgment which is why as a nurse I am often told to be the daughter

> > and

> > > > let others make the decisions. Hah, easier said that done. your

> > > > daughter is so lucky to have you. Do not feel that what happened was in

> > any

> > > > way your fault or was due to the xolair. That is up to her responsible

> > MDs

> > > > to figure out.

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > > ps I dont know a single med you can't take while on xolair. I have

> > been

> > > > on pred since 2003 and xolair since 2005 and the two go hand in hand

> > very

> > > > well. It is such a specific molecule it is difficult for there to be an

> > > > interaction.

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > > my daughter received her first shot(she gets maximum, 3 every two

> > weeks)

> > > > last Monday. Her asthma started flaring a little that night and

> > increasing

> > > > symptoms, but controlled with her nebulizer. Friday night her chest

> > felt

> > > > tight and Sat. the nebi wasnt working that good. Took her to urgent

> > care and

> > > > dr. said she had bronchitis.

> > > >

> > > > >

> > > >

> > > > > is this a possible reaction or just a coincendence?

> > > >

> > > > > is it possible she doesnt have bronchitis but her asthma is worse

> > because

> > > > of the xolair?

> > > >

> > > > > she is really on the xolair more for skin(atopic derm) then asthma.

> > > >

> > > > >

> > > >

> > > > > also he put her on prednisone, tapered dose. I am guessing this is ok

> > to

> > > > be on while on xolair because I have been on it.

> > > >

> > > > >

> > > >

> > > > > I will call her allergist/asthma dr. Monday but would like your

> > opinion.

> > > >

> > > > >

> > > >

> > > > > I am on low dose xolair and have never had any problems.

> > > >

> > > > > thanks. jean

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > > ____________ _________ _________ _________ _________ _________ _

> > > >

> > > > > Looking for the perfect gift? Give the gift of Flickr!

> > > >

> > > > >

> > > >

> > > > > http://www.flickr. com/gift/

> > > >

> > > > >

> > > >

> > > > >

[Guest guest]

My second shot hurt, but it was given to me by a different nurse from the first

one.  I had a knot and a bruise.  I saw the doctor before the next shot, told

him and I now have the same nurse give me my shots every time.....very slowly! 

No hurts, no bruises!

From: uca79iii <uca79iii@...>

Subject: [ ] Re: 2nd xoliar and no reaction

Date: Tuesday, May 26, 2009, 5:45 PM

" so you don't lose any money--I mean dosage. "

LOL!

Doug

[Guest guest]

Thanks Addy. If the needle is that much different in size and also marked

then I'm sure they are doing it correctly. I will ask for my own

reassurance but feel better about it. Jean

On Tue, May 26, 2009 at 9:02 PM, pyle456 <jamcculloch2@...> wrote:

>

>

>

>

> There is a such a significant difference in the size of hte needle used to

> draw the Xolair and the size used to inject it, that I can't imagine the

> doctor's office is getting it wrong. Moreover, the size used for the draw is

> specifically a " fill " needle, NOT for injection. It is HIGHLY unlikely the

> nurse is getting it wrong. The size used to draw the Xolair is 18Gx1 and the

> size used to inject is 25Gx5/8. You'll probably have to ask.

>

> I don't know about the procedure for changing doctors, if the new doctor

> has to do a new order or what. I suggest you call curascript and ask.

>

> Addy

>

>

> > > > >

> > > > > From: gigles_1955 <fgigles55gmail (DOT) com>

> > > > >

> > > > > Subject: [ ] 2nd xoliar and no reaction

> > > > >

> > > > >

> > > > >

> > > > > Date: Monday, May 25, 2009, 11:16 PM

> > > > >

> > > > > Hi and everyone.

> > > > >

> > > > > My daughter had her 2nd series of xolair shots last Friday. She

> didnt

> > > get

> > > > > bronchitis or any asthma flares like after the first shots so I

> guess

> > > it is

> > > > > safe to say it was just a conincidence( yea) Hasnt helped yet but

> it is

> > > > > early and I am glad that there were no reactions other than she

> said

> > > the

> > > > > shots really hurt. Its funny but when I first started the shots

> didnt

> > > hurt

> > > > > but the last few times it did, it is over very quickly though.

> thanks

> > > for

> > > > > the help you have given. jean

> > > > >

> > > > > >

> > > > >

> > > > > >

> > > > >

> > > > > > Hi Jean!

> > > > >

> > > > > >

> > > > >

> > > > > > Sorry it took so long for me to post a reply but I read your post

> > > with

> > > > > interest. I personally think it is a bad conincidence. I have had

> my

> > > xolair

> > > > > and then ended up in ER that NIGHT for an admission. I have been

> taken

> > > by

> > > > > my xolair nurse from the clinic to ER with a flare. Your daughter

> could

> > > have

> > > > > been growing a bug she wasnt telling you about if she didn't want

> to

> > > mess up

> > > > > getting her first injection or she picked something up on site for

> the

> > > > > injection or she was stressed about the whole thing. Its spring,

> does

> > > she

> > > > > normally flare in the spring? The possibilities are endless. What

> MDs

> > > are

> > > > > really concerned about is anaphylactic reactions, which is not what

> she

> > > had.

> > > > >

> > > > > >

> > > > >

> > > > > > Its really hard to be a family member and advocate for our loved

> ones

> > > (my

> > > > > mom has cancer and I do this all the time) because if we advocate

> too

> > > hard

> > > > > for treatment A and something bad happens we feel beyond horrible.

> It

> > > clouds

> > > > > our judgment which is why as a nurse I am often told to be the

> daughter

> > > and

> > > > > let others make the decisions. Hah, easier said that done. Jean

> your

> > > > > daughter is so lucky to have you. Do not feel that what happened

> was in

> > > any

> > > > > way your fault or was due to the xolair. That is up to her

> responsible

> > > MDs

> > > > > to figure out.

> > > > >

> > > > > >

> > > > >

> > > > > >

> > > > >

> > > > > >

> > > > >

> > > > > > ps I dont know a single med you can't take while on xolair. I

> have

> > > been

> > > > > on pred since 2003 and xolair since 2005 and the two go hand in

> hand

> > > very

> > > > > well. It is such a specific molecule it is difficult for there to

> be an

> > > > > interaction.

> > > > >

> > > > > >

> > > > >

> > > > > >

> > > > >

> > > > > >

> > > > >

> > > > > > my daughter received her first shot(she gets maximum, 3 every two

> > > weeks)

> > > > > last Monday. Her asthma started flaring a little that night and

> > > increasing

> > > > > symptoms, but controlled with her nebulizer. Friday night her chest

> > > felt

> > > > > tight and Sat. the nebi wasnt working that good. Took her to urgent

> > > care and

> > > > > dr. said she had bronchitis.

> > > > >

> > > > > >

> > > > >

> > > > > > is this a possible reaction or just a coincendence?

> > > > >

> > > > > > is it possible she doesnt have bronchitis but her asthma is worse

> > > because

> > > > > of the xolair?

> > > > >

> > > > > > she is really on the xolair more for skin(atopic derm) then

> asthma.

> > > > >

> > > > > >

> > > > >

> > > > > > also he put her on prednisone, tapered dose. I am guessing this

> is ok

> > > to

> > > > > be on while on xolair because I have been on it.

> > > > >

> > > > > >

> > > > >

> > > > > > I will call her allergist/asthma dr. Monday but would like your

> > > opinion.

> > > > >

> > > > > >

> > > > >

> > > > > > I am on low dose xolair and have never had any problems.

> > > > >

> > > > > > thanks. jean

> > > > >

> > > > > >

> > > > >

> > > > > >

> > > > >

> > > > > >

> > > > >

> > > > > > ____________ _________ _________ _________ _________ _________ _

> > > > >

> > > > > > Looking for the perfect gift? Give the gift of Flickr!

> > > > >

> > > > > >

> > > > >

> > > > > > http://www.flickr. com/gift/

> > > > >

> > > > > >

> > > > >

> > > > > >

[Guest guest]

Thanks. I'll ask my daughter if the first one hurt less and will suggest

this to her dr. jean

On Tue, May 26, 2009 at 9:38 PM, Adah Voigt <asthmatic50@...> wrote:

>

>

> My second shot hurt, but it was given to me by a different nurse from the

> first one. I had a knot and a bruise. I saw the doctor before the next

> shot, told him and I now have the same nurse give me my shots every

> time.....very slowly! No hurts, no bruises!

>

>

>

> From: uca79iii <uca79iii@... <uca79iii%40gmail.com>>

> Subject: [ ] Re: 2nd xoliar and no reaction

> < %40>

> Date: Tuesday, May 26, 2009, 5:45 PM

>

> " so you don't lose any money--I mean dosage. "

>

> LOL!

>

> Doug

>

>

[Guest guest]

It also may be worth having the nurse, or whomever is administering the

injection to make sure that the finished solution is completely dissolved. If it

is not totally in solution, the precipitates can cause local pain, and potential

decrease in efficacy (although no real immediate danger to the patient)

Glenn

> > > > > >

> > > > > > From: gigles_1955 <fgigles55gmail (DOT) com>

> > > > > >

> > > > > > Subject: [ ] 2nd xoliar and no reaction

> > > > > >

> > > > > >

> > > > > >

> > > > > > Date: Monday, May 25, 2009, 11:16 PM

> > > > > >

> > > > > > Hi and everyone.

> > > > > >

> > > > > > My daughter had her 2nd series of xolair shots last Friday. She

> > didnt

> > > > get

> > > > > > bronchitis or any asthma flares like after the first shots so I

> > guess

> > > > it is

> > > > > > safe to say it was just a conincidence( yea) Hasnt helped yet but

> > it is

> > > > > > early and I am glad that there were no reactions other than she

> > said

> > > > the

> > > > > > shots really hurt. Its funny but when I first started the shots

> > didnt

> > > > hurt

> > > > > > but the last few times it did, it is over very quickly though.

> > thanks

> > > > for

> > > > > > the help you have given. jean

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > Hi Jean!

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > Sorry it took so long for me to post a reply but I read your post

> > > > with

> > > > > > interest. I personally think it is a bad conincidence. I have had

> > my

> > > > xolair

> > > > > > and then ended up in ER that NIGHT for an admission. I have been

> > taken

> > > > by

> > > > > > my xolair nurse from the clinic to ER with a flare. Your daughter

> > could

> > > > have

> > > > > > been growing a bug she wasnt telling you about if she didn't want

> > to

> > > > mess up

> > > > > > getting her first injection or she picked something up on site for

> > the

> > > > > > injection or she was stressed about the whole thing. Its spring,

> > does

> > > > she

> > > > > > normally flare in the spring? The possibilities are endless. What

> > MDs

> > > > are

> > > > > > really concerned about is anaphylactic reactions, which is not what

> > she

> > > > had.

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > Its really hard to be a family member and advocate for our loved

> > ones

> > > > (my

> > > > > > mom has cancer and I do this all the time) because if we advocate

> > too

> > > > hard

> > > > > > for treatment A and something bad happens we feel beyond horrible.

> > It

> > > > clouds

> > > > > > our judgment which is why as a nurse I am often told to be the

> > daughter

> > > > and

> > > > > > let others make the decisions. Hah, easier said that done. Jean

> > your

> > > > > > daughter is so lucky to have you. Do not feel that what happened

> > was in

> > > > any

> > > > > > way your fault or was due to the xolair. That is up to her

> > responsible

> > > > MDs

> > > > > > to figure out.

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > ps I dont know a single med you can't take while on xolair. I

> > have

> > > > been

> > > > > > on pred since 2003 and xolair since 2005 and the two go hand in

> > hand

> > > > very

> > > > > > well. It is such a specific molecule it is difficult for there to

> > be an

> > > > > > interaction.

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > my daughter received her first shot(she gets maximum, 3 every two

> > > > weeks)

> > > > > > last Monday. Her asthma started flaring a little that night and

> > > > increasing

> > > > > > symptoms, but controlled with her nebulizer. Friday night her chest

> > > > felt

> > > > > > tight and Sat. the nebi wasnt working that good. Took her to urgent

> > > > care and

> > > > > > dr. said she had bronchitis.

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > is this a possible reaction or just a coincendence?

> > > > > >

> > > > > > > is it possible she doesnt have bronchitis but her asthma is worse

> > > > because

> > > > > > of the xolair?

> > > > > >

> > > > > > > she is really on the xolair more for skin(atopic derm) then

> > asthma.

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > also he put her on prednisone, tapered dose. I am guessing this

> > is ok

> > > > to

> > > > > > be on while on xolair because I have been on it.

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > I will call her allergist/asthma dr. Monday but would like your

> > > > opinion.

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > I am on low dose xolair and have never had any problems.

> > > > > >

> > > > > > > thanks. jean

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > ____________ _________ _________ _________ _________ _________ _

> > > > > >

> > > > > > > Looking for the perfect gift? Give the gift of Flickr!

> > > > > >

> > > > > > >

> > > > > >

> > > > > > > http://www.flickr. com/gift/

> > > > > >

> > > > > > >

> > > > > >

> > > > > > >

[Guest guest]

If the nurse isn't properly trained, they could easily screw things up.  Case in

point:The needles I have for home injection AREN'T marked fill  or  draw.   I

have prepackaged kits that are included with my shipment, which are labeled. 

XOLAIR SUPPLY KIT ( PER VIAL)2----3cc BD safety syringes2----18 g x 1 in.

 safety needles2----25 g x 5/8 in safety needles4--- Alcohol swabs1---Bandaid

My initial  point for asking was...because I was properly trained to self inject

I know that the 18 gage needle is for " reconstitution " .  AND...it  doesn't take

a rocket scientist to notice that the 18 gage  needle is like  twice  the size

as the  25 gage.  HOWEVER there are nurses out there who are injection and don't

really know what they are doing (as well as nurses who think they know

everything  and that patients know jack.) so it it possible that the wrong

needle could be used to inject. 

(I have been getting 2  injections every 2 weeks for almost  4 years now.) 

From: pyle456 <jamcculloch2@...>

Subject: [ ] Re: 2nd xoliar and no reaction

Date: Tuesday, May 26, 2009, 9:02 PM

There is a such a significant difference in the size of hte needle used to draw

the Xolair and the size used to inject it, that I can't imagine the doctor's

office is getting it wrong. Moreover, the size used for the draw is specifically

a " fill " needle, NOT for injection. It is HIGHLY unlikely the nurse is getting

it wrong. The size used to draw the Xolair is 18Gx1 and the size used to inject

is 25Gx5/8. You'll probably have to ask.

I don't know about the procedure for changing doctors, if the new doctor has to

do a new order or what. I suggest you call curascript and ask.

Addy

> > > >

> > > > From: gigles_1955 <fgigles55gmail (DOT) com>

> > > >

> > > > Subject: [ ] 2nd xoliar and no reaction

> > > >

> > > >

> > > >

> > > > Date: Monday, May 25, 2009, 11:16 PM

> > > >

> > > > Hi and everyone.

> > > >

> > > > My daughter had her 2nd series of xolair shots last Friday. She didnt

> > get

> > > > bronchitis or any asthma flares like after the first shots so I guess

> > it is

> > > > safe to say it was just a conincidence( yea) Hasnt helped yet but it is

> > > > early and I am glad that there were no reactions other than she said

> > the

> > > > shots really hurt. Its funny but when I first started the shots didnt

> > hurt

> > > > but the last few times it did, it is over very quickly though. thanks

> > for

> > > > the help you have given. jean

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > > Hi Jean!

> > > >

> > > > >

> > > >

> > > > > Sorry it took so long for me to post a reply but I read your post

> > with

> > > > interest. I personally think it is a bad conincidence. I have had my

> > xolair

> > > > and then ended up in ER that NIGHT for an admission. I have been taken

> > by

> > > > my xolair nurse from the clinic to ER with a flare. Your daughter could

> > have

> > > > been growing a bug she wasnt telling you about if she didn't want to

> > mess up

> > > > getting her first injection or she picked something up on site for the

> > > > injection or she was stressed about the whole thing. Its spring, does

> > she

> > > > normally flare in the spring? The possibilities are endless. What MDs

> > are

> > > > really concerned about is anaphylactic reactions, which is not what she

> > had.

> > > >

> > > > >

> > > >

> > > > > Its really hard to be a family member and advocate for our loved ones

> > (my

> > > > mom has cancer and I do this all the time) because if we advocate too

> > hard

> > > > for treatment A and something bad happens we feel beyond horrible. It

> > clouds

> > > > our judgment which is why as a nurse I am often told to be the daughter

> > and

> > > > let others make the decisions. Hah, easier said that done. your

> > > > daughter is so lucky to have you. Do not feel that what happened was in

> > any

> > > > way your fault or was due to the xolair. That is up to her responsible

> > MDs

> > > > to figure out.

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > > ps I dont know a single med you can't take while on xolair. I have

> > been

> > > > on pred since 2003 and xolair since 2005 and the two go hand in hand

> > very

> > > > well. It is such a specific molecule it is difficult for there to be an

> > > > interaction.

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > > my daughter received her first shot(she gets maximum, 3 every two

> > weeks)

> > > > last Monday. Her asthma started flaring a little that night and

> > increasing

> > > > symptoms, but controlled with her nebulizer. Friday night her chest

> > felt

> > > > tight and Sat. the nebi wasnt working that good. Took her to urgent

> > care and

> > > > dr. said she had bronchitis.

> > > >

> > > > >

> > > >

> > > > > is this a possible reaction or just a coincendence?

> > > >

> > > > > is it possible she doesnt have bronchitis but her asthma is worse

> > because

> > > > of the xolair?

> > > >

> > > > > she is really on the xolair more for skin(atopic derm) then asthma.

> > > >

> > > > >

> > > >

> > > > > also he put her on prednisone, tapered dose. I am guessing this is ok

> > to

> > > > be on while on xolair because I have been on it.

> > > >

> > > > >

> > > >

> > > > > I will call her allergist/asthma dr. Monday but would like your

> > opinion.

> > > >

> > > > >

> > > >

> > > > > I am on low dose xolair and have never had any problems.

> > > >

> > > > > thanks. jean

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > >

> > > >

> > > > > ____________ _________ _________ _________ _________ _________ _

> > > >

> > > > > Looking for the perfect gift? Give the gift of Flickr!

> > > >

> > > > >

> > > >

> > > > > http://www.flickr. com/gift/

> > > >

> > > > >

> > > >

> > > > >

[Guest guest]

Dear

 

My name is Sr. Pat.  I have been taking Xolair shots since 2004.  I have

had some pain with the injections and that is when the shot sits to long and

when the doctor tries to inject it to fast.  Or some times I think she goes to

far into the arm.  But it is only hurts for a little and then it is fine or

maybe a bruise.  I hope you daughter continues it has helped me very much.

 

As Always,

 

Sr. Pat, C.R.

>

> From: gigles_1955 <fgigles55gmail (DOT) com>

>

> Subject: [ ] 2nd xoliar and no reaction

>

>

>

> Date: Monday, May 25, 2009, 11:16 PM

>

> Hi and everyone.

>

> My daughter had her 2nd series of xolair shots last Friday. She didnt get

> bronchitis or any asthma flares like after the first shots so I guess it is

> safe to say it was just a conincidence( yea) Hasnt helped yet but it is

> early and I am glad that there were no reactions other than she said the

> shots really hurt. Its funny but when I first started the shots didnt hurt

> but the last few times it did, it is over very quickly though. thanks for

> the help you have given. jean

>

> >

>

> >

>

> > Hi Jean!

>

> >

>

> > Sorry it took so long for me to post a reply but I read your post with

> interest. I personally think it is a bad conincidence. I have had my xolair

> and then ended up in ER that NIGHT for an admission. I have been taken by

> my xolair nurse from the clinic to ER with a flare. Your daughter could have

> been growing a bug she wasnt telling you about if she didn't want to mess up

> getting her first injection or she picked something up on site for the

> injection or she was stressed about the whole thing. Its spring, does she

> normally flare in the spring? The possibilities are endless. What MDs are

> really concerned about is anaphylactic reactions, which is not what she had.

>

> >

>

> > Its really hard to be a family member and advocate for our loved ones (my

> mom has cancer and I do this all the time) because if we advocate too hard

> for treatment A and something bad happens we feel beyond horrible. It clouds

> our judgment which is why as a nurse I am often told to be the daughter and

> let others make the decisions. Hah, easier said that done. your

> daughter is so lucky to have you. Do not feel that what happened was in any

> way your fault or was due to the xolair. That is up to her responsible MDs

> to figure out.

>

> >

>

> >

>

> >

>

> > ps I dont know a single med you can't take while on xolair. I have been

> on pred since 2003 and xolair since 2005 and the two go hand in hand very

> well. It is such a specific molecule it is difficult for there to be an

> interaction.

>

> >

>

> >

>

> >

>

> > my daughter received her first shot(she gets maximum, 3 every two weeks)

> last Monday. Her asthma started flaring a little that night and increasing

> symptoms, but controlled with her nebulizer. Friday night her chest felt

> tight and Sat. the nebi wasnt working that good. Took her to urgent care and

> dr. said she had bronchitis.

>

> >

>

> > is this a possible reaction or just a coincendence?

>

> > is it possible she doesnt have bronchitis but her asthma is worse because

> of the xolair?

>

> > she is really on the xolair more for skin(atopic derm) then asthma.

>

> >

>

> > also he put her on prednisone, tapered dose. I am guessing this is ok to

> be on while on xolair because I have been on it.

>

> >

>

> > I will call her allergist/asthma dr. Monday but would like your opinion.

>

> >

>

> > I am on low dose xolair and have never had any problems.

>

> > thanks. jean

>

> >

>

> >

>

> >

>

> > ____________ _________ _________ _________ _________ _________ _

>

> > Looking for the perfect gift? Give the gift of Flickr!

>

> >

>

> > http://www.flickr. com/gift/

>

> >

>

> >

[Guest guest]

Thank you.everyone. For the next shot I am going to ask them questions and

appriciate you giving me tips so I know what to ask. I dont think it should

have hurt as much as my dd said, and like I said before she doesnt complain

about things like this. I'll let you know.

I hope eveyone is doing well. jean

On Wed, May 27, 2009 at 9:19 AM, K K <grneyyedlady@...> wrote:

>

>

> If the nurse isn't properly trained, they could easily screw things up.

> Case in point:The needles I have for home injection AREN'T marked fill or

> draw. I have prepackaged kits that are included with my shipment, which

> are labeled.

> XOLAIR SUPPLY KIT ( PER VIAL)2----3cc BD safety syringes2----18 g x 1 in.

> safety needles2----25 g x 5/8 in safety needles4--- Alcohol

> swabs1---Bandaid

> My initial point for asking was...because I was properly trained to self

> inject I know that the 18 gage needle is for " reconstitution " . AND...it

> doesn't take a rocket scientist to notice that the 18 gage needle is like

> twice the size as the 25 gage. HOWEVER there are nurses out there who

> are injection and don't really know what they are doing (as well as nurses

> who think they know everything and that patients know jack.) so it it

> possible that the wrong needle could be used to inject.

> (I have been getting 2 injections every 2 weeks for almost 4 years now.)

>

>

>

> From: pyle456 <jamcculloch2@... <jamcculloch2%40ec.rr.com>>

> Subject: [ ] Re: 2nd xoliar and no reaction

> < %40>

> Date: Tuesday, May 26, 2009, 9:02 PM

>

>

>

> There is a such a significant difference in the size of hte needle used to

> draw the Xolair and the size used to inject it, that I can't imagine the

> doctor's office is getting it wrong. Moreover, the size used for the draw is

> specifically a " fill " needle, NOT for injection. It is HIGHLY unlikely the

> nurse is getting it wrong. The size used to draw the Xolair is 18Gx1 and the

> size used to inject is 25Gx5/8. You'll probably have to ask.

>

> I don't know about the procedure for changing doctors, if the new doctor

> has to do a new order or what. I suggest you call curascript and ask.

>

> Addy

>

>

>

> > > > >

>

> > > > > From: gigles_1955 <fgigles55gmail (DOT) com>

>

> > > > >

>

> > > > > Subject: [ ] 2nd xoliar and no reaction

>

> > > > >

>

> > > > >

>

> > > > >

>

> > > > > Date: Monday, May 25, 2009, 11:16 PM

>

> > > > >

>

> > > > > Hi and everyone.

>

> > > > >

>

> > > > > My daughter had her 2nd series of xolair shots last Friday. She

> didnt

>

> > > get

>

> > > > > bronchitis or any asthma flares like after the first shots so I

> guess

>

> > > it is

>

> > > > > safe to say it was just a conincidence( yea) Hasnt helped yet but

> it is

>

> > > > > early and I am glad that there were no reactions other than she

> said

>

> > > the

>

> > > > > shots really hurt. Its funny but when I first started the shots

> didnt

>

> > > hurt

>

> > > > > but the last few times it did, it is over very quickly though.

> thanks

>

> > > for

>

> > > > > the help you have given. jean

>

> > > > >

>

> > > > > >

>

> > > > >

>

> > > > > >

>

> > > > >

>

> > > > > > Hi Jean!

>

> > > > >

>

> > > > > >

>

> > > > >

>

> > > > > > Sorry it took so long for me to post a reply but I read your post

>

> > > with

>

> > > > > interest. I personally think it is a bad conincidence. I have had

> my

>

> > > xolair

>

> > > > > and then ended up in ER that NIGHT for an admission. I have been

> taken

>

> > > by

>

> > > > > my xolair nurse from the clinic to ER with a flare. Your daughter

> could

>

> > > have

>

> > > > > been growing a bug she wasnt telling you about if she didn't want

> to

>

> > > mess up

>

> > > > > getting her first injection or she picked something up on site for

> the

>

> > > > > injection or she was stressed about the whole thing. Its spring,

> does

>

> > > she

>

> > > > > normally flare in the spring? The possibilities are endless. What

> MDs

>

> > > are

>

> > > > > really concerned about is anaphylactic reactions, which is not what

> she

>

> > > had.

>

> > > > >

>

> > > > > >

>

> > > > >

>

> > > > > > Its really hard to be a family member and advocate for our loved

> ones

>

> > > (my

>

> > > > > mom has cancer and I do this all the time) because if we advocate

> too

>

> > > hard

>

> > > > > for treatment A and something bad happens we feel beyond horrible.

> It

>

> > > clouds

>

> > > > > our judgment which is why as a nurse I am often told to be the

> daughter

>

> > > and

>

> > > > > let others make the decisions. Hah, easier said that done. Jean

> your

>

> > > > > daughter is so lucky to have you. Do not feel that what happened

> was in

>

> > > any

>

> > > > > way your fault or was due to the xolair. That is up to her

> responsible

>

> > > MDs

>

> > > > > to figure out.

>

> > > > >

>

> > > > > >

>

> > > > >

>

> > > > > >

>

> > > > >

>

> > > > > >

>

> > > > >

>

> > > > > > ps I dont know a single med you can't take while on xolair. I

> have

>

> > > been

>

> > > > > on pred since 2003 and xolair since 2005 and the two go hand in

> hand

>

> > > very

>

> > > > > well. It is such a specific molecule it is difficult for there to

> be an

>

> > > > > interaction.

>

> > > > >

>

> > > > > >

>

> > > > >

>

> > > > > >

>

> > > > >

>

> > > > > >

>

> > > > >

>

> > > > > > my daughter received her first shot(she gets maximum, 3 every two

>

> > > weeks)

>

> > > > > last Monday. Her asthma started flaring a little that night and

>

> > > increasing

>

> > > > > symptoms, but controlled with her nebulizer. Friday night her chest

>

> > > felt

>

> > > > > tight and Sat. the nebi wasnt working that good. Took her to urgent

>

> > > care and

>

> > > > > dr. said she had bronchitis.

>

> > > > >

>

> > > > > >

>

> > > > >

>

> > > > > > is this a possible reaction or just a coincendence?

>

> > > > >

>

> > > > > > is it possible she doesnt have bronchitis but her asthma is worse

>

> > > because

>

> > > > > of the xolair?

>

> > > > >

>

> > > > > > she is really on the xolair more for skin(atopic derm) then

> asthma.

>

> > > > >

>

> > > > > >

>

> > > > >

>

> > > > > > also he put her on prednisone, tapered dose. I am guessing this

> is ok

>

> > > to

>

> > > > > be on while on xolair because I have been on it.

>

> > > > >

>

> > > > > >

>

> > > > >

>

> > > > > > I will call her allergist/asthma dr. Monday but would like your

>

> > > opinion.

>

> > > > >

>

> > > > > >

>

> > > > >

>

> > > > > > I am on low dose xolair and have never had any problems.

>

> > > > >

>

> > > > > > thanks. jean

>

> > > > >

>

> > > > > >

>

> > > > >

>

> > > > > >

>

> > > > >

>

> > > > > >

>

> > > > >

>

> > > > > > ____________ _________ _________ _________ _________ _________ _

>

> > > > >

>

> > > > > > Looking for the perfect gift? Give the gift of Flickr!

>

> > > > >

>

> > > > > >

>

> > > > >

>

> > > > > > http://www.flickr. com/gift/

>

> > > > >

>

> > > > > >

>

> > > > >

>

> > > > > >

[Guest guest]

Dear Sr. :

 

I had not seen an entry from you in a while and wondered how you are doing. 

Good to see your post and know you are doing okay.

Adah

>

> From: gigles_1955 <fgigles55gmail (DOT) com>

>

> Subject: [ ] 2nd xoliar and no reaction

>

>

>

> Date: Monday, May 25, 2009, 11:16 PM

>

> Hi and everyone.

>

> My daughter had her 2nd series of xolair shots last Friday. She didnt get

> bronchitis or any asthma flares like after the first shots so I guess it is

> safe to say it was just a conincidence( yea) Hasnt helped yet but it is

> early and I am glad that there were no reactions other than she said the

> shots really hurt. Its funny but when I first started the shots didnt hurt

> but the last few times it did, it is over very quickly though. thanks for

> the help you have given. jean

>

> >

>

> >

>

> > Hi Jean!

>

> >

>

> > Sorry it took so long for me to post a reply but I read your post with

> interest. I personally think it is a bad conincidence. I have had my xolair

> and then ended up in ER that NIGHT for an admission. I have been taken by

> my xolair nurse from the clinic to ER with a flare. Your daughter could have

> been growing a bug she wasnt telling you about if she didn't want to mess up

> getting her first injection or she picked something up on site for the

> injection or she was stressed about the whole thing. Its spring, does she

> normally flare in the spring? The possibilities are endless. What MDs are

> really concerned about is anaphylactic reactions, which is not what she had.

>

> >

>

> > Its really hard to be a family member and advocate for our loved ones (my

> mom has cancer and I do this all the time) because if we advocate too hard

> for treatment A and something bad happens we feel beyond horrible. It clouds

> our judgment which is why as a nurse I am often told to be the daughter and

> let others make the decisions. Hah, easier said that done. your

> daughter is so lucky to have you. Do not feel that what happened was in any

> way your fault or was due to the xolair. That is up to her responsible MDs

> to figure out.

>

> >

>

> >

>

> >

>

> > ps I dont know a single med you can't take while on xolair. I have been

> on pred since 2003 and xolair since 2005 and the two go hand in hand very

> well. It is such a specific molecule it is difficult for there to be an

> interaction.

>

> >

>

> >

>

> >

>

> > my daughter received her first shot(she gets maximum, 3 every two weeks)

> last Monday. Her asthma started flaring a little that night and increasing

> symptoms, but controlled with her nebulizer. Friday night her chest felt

> tight and Sat. the nebi wasnt working that good. Took her to urgent care and

> dr. said she had bronchitis.

>

> >

>

> > is this a possible reaction or just a coincendence?

>

> > is it possible she doesnt have bronchitis but her asthma is worse because

> of the xolair?

>

> > she is really on the xolair more for skin(atopic derm) then asthma.

>

> >

>

> > also he put her on prednisone, tapered dose. I am guessing this is ok to

> be on while on xolair because I have been on it.

>

> >

>

> > I will call her allergist/asthma dr. Monday but would like your opinion.

>

> >

>

> > I am on low dose xolair and have never had any problems.

>

> > thanks. jean

>

> >

>

> >

>

> >

>

> > ____________ _________ _________ _________ _________ _________ _

>

> > Looking for the perfect gift? Give the gift of Flickr!

>

> >

>

> > http://www.flickr. com/gift/

>

> >

>

> >

[Guest guest]

Thank you Sr. ,

I appreciate your response. It is very encouraging to hear that xolair is

working for so many. I'm hoping my daughter continues as well and will show her

all these encouranging post. jean

-

> Dear

>  

> My name is Sr. Pat.  I have been taking Xolair shots since 2004.  I have

had some pain with the injections and that is when the shot sits to long and

when the doctor tries to inject it to fast.  Or some times I think she goes to

far into the arm.  But it is only hurts for a little and then it is fine or

maybe a bruise.  I hope you daughter continues it has helped me very much.

>  

> As Always,

>  

> Sr. Pat, C.R.

>

>

> >

> > From: gigles_1955 <fgigles55gmail (DOT) com>

> >

> > Subject: [ ] 2nd xoliar and no reaction

> >

> >

> >

> > Date: Monday, May 25, 2009, 11:16 PM

> >

> > Hi and everyone.

> >

> > My daughter had her 2nd series of xolair shots last Friday. She didnt get

> > bronchitis or any asthma flares like after the first shots so I guess it is

> > safe to say it was just a conincidence( yea) Hasnt helped yet but it is

> > early and I am glad that there were no reactions other than she said the

> > shots really hurt. Its funny but when I first started the shots didnt hurt

> > but the last few times it did, it is over very quickly though. thanks for

> > the help you have given. jean

> >

> > >

> >

> > >

> >

> > > Hi Jean!

> >

> > >

> >

> > > Sorry it took so long for me to post a reply but I read your post with

> > interest. I personally think it is a bad conincidence. I have had my xolair

> > and then ended up in ER that NIGHT for an admission. I have been taken by

> > my xolair nurse from the clinic to ER with a flare. Your daughter could have

> > been growing a bug she wasnt telling you about if she didn't want to mess up

> > getting her first injection or she picked something up on site for the

> > injection or she was stressed about the whole thing. Its spring, does she

> > normally flare in the spring? The possibilities are endless. What MDs are

> > really concerned about is anaphylactic reactions, which is not what she had.

> >

> > >

> >

> > > Its really hard to be a family member and advocate for our loved ones (my

> > mom has cancer and I do this all the time) because if we advocate too hard

> > for treatment A and something bad happens we feel beyond horrible. It clouds

> > our judgment which is why as a nurse I am often told to be the daughter and

> > let others make the decisions. Hah, easier said that done. your

> > daughter is so lucky to have you. Do not feel that what happened was in any

> > way your fault or was due to the xolair. That is up to her responsible MDs

> > to figure out.

> >

> > >

> >

> > >

> >

> > >

> >

> > > ps I dont know a single med you can't take while on xolair. I have been

> > on pred since 2003 and xolair since 2005 and the two go hand in hand very

> > well. It is such a specific molecule it is difficult for there to be an

> > interaction.

> >

> > >

> >

> > >

> >

> > >

> >

> > > my daughter received her first shot(she gets maximum, 3 every two weeks)

> > last Monday. Her asthma started flaring a little that night and increasing

> > symptoms, but controlled with her nebulizer. Friday night her chest felt

> > tight and Sat. the nebi wasnt working that good. Took her to urgent care and

> > dr. said she had bronchitis.

> >

> > >

> >

> > > is this a possible reaction or just a coincendence?

> >

> > > is it possible she doesnt have bronchitis but her asthma is worse because

> > of the xolair?

> >

> > > she is really on the xolair more for skin(atopic derm) then asthma.

> >

> > >

> >

> > > also he put her on prednisone, tapered dose. I am guessing this is ok to

> > be on while on xolair because I have been on it.

> >

> > >

> >

> > > I will call her allergist/asthma dr. Monday but would like your opinion.

> >

> > >

> >

> > > I am on low dose xolair and have never had any problems.

> >

> > > thanks. jean

> >

> > >

> >

> > >

> >

> > >

> >

> > > ____________ _________ _________ _________ _________ _________ _

> >

> > > Looking for the perfect gift? Give the gift of Flickr!

> >

> > >

> >

> > > http://www.flickr. com/gift/

> >

> > >

> >

> > >

[Guest guest]

Hi, Adah,

I am doing ok.  My asthma doctor is very impressed with how I respond to the

Xolair.  I have stayed out of the hospital for about six months.  I am good as

long as the perfume isn't around. I have to use a different computer to get on

line.  The regular computers that I use are not working for about 2 weeks.  We

are waiting for some one to come and fix them so I have a limited amount of time

on the computer. 

 

 I am getting ready to participate in another Asthma walk a thone here in

Chicago. It is held in September but I like to start early because of fund

raising and my family and friends are far away.  Thanks for asking about me.

 

Breathing better,

 

Sr. Pat, C.R.  

>

> From: gigles_1955 <fgigles55gmail (DOT) com>

>

> Subject: [ ] 2nd xoliar and no reaction

>

>

>

> Date: Monday, May 25, 2009, 11:16 PM

>

> Hi and everyone.

>

> My daughter had her 2nd series of xolair shots last Friday. She didnt get

> bronchitis or any asthma flares like after the first shots so I guess it is

> safe to say it was just a conincidence( yea) Hasnt helped yet but it is

> early and I am glad that there were no reactions other than she said the

> shots really hurt. Its funny but when I first started the shots didnt hurt

> but the last few times it did, it is over very quickly though. thanks for

> the help you have given. jean

>

> >

>

> >

>

> > Hi Jean!

>

> >

>

> > Sorry it took so long for me to post a reply but I read your post with

> interest. I personally think it is a bad conincidence. I have had my xolair

> and then ended up in ER that NIGHT for an admission. I have been taken by

> my xolair nurse from the clinic to ER with a flare. Your daughter could have

> been growing a bug she wasnt telling you about if she didn't want to mess up

> getting her first injection or she picked something up on site for the

> injection or she was stressed about the whole thing. Its spring, does she

> normally flare in the spring? The possibilities are endless. What MDs are

> really concerned about is anaphylactic reactions, which is not what she had.

>

> >

>

> > Its really hard to be a family member and advocate for our loved ones (my

> mom has cancer and I do this all the time) because if we advocate too hard

> for treatment A and something bad happens we feel beyond horrible. It clouds

> our judgment which is why as a nurse I am often told to be the daughter and

> let others make the decisions. Hah, easier said that done. your

> daughter is so lucky to have you. Do not feel that what happened was in any

> way your fault or was due to the xolair. That is up to her responsible MDs

> to figure out.

>

> >

>

> >

>

> >

>

> > ps I dont know a single med you can't take while on xolair. I have been

> on pred since 2003 and xolair since 2005 and the two go hand in hand very

> well. It is such a specific molecule it is difficult for there to be an

> interaction.

>

> >

>

> >

>

> >

>

> > my daughter received her first shot(she gets maximum, 3 every two weeks)

> last Monday. Her asthma started flaring a little that night and increasing

> symptoms, but controlled with her nebulizer. Friday night her chest felt

> tight and Sat. the nebi wasnt working that good. Took her to urgent care and

> dr. said she had bronchitis.

>

> >

>

> > is this a possible reaction or just a coincendence?

>

> > is it possible she doesnt have bronchitis but her asthma is worse because

> of the xolair?

>

> > she is really on the xolair more for skin(atopic derm) then asthma.

>

> >

>

> > also he put her on prednisone, tapered dose. I am guessing this is ok to

> be on while on xolair because I have been on it.

>

> >

>

> > I will call her allergist/asthma dr. Monday but would like your opinion.

>

> >

>

> > I am on low dose xolair and have never had any problems.

>

> > thanks. jean

>

> >

>

> >

>

> >

>

> > ____________ _________ _________ _________ _________ _________ _

>

> > Looking for the perfect gift? Give the gift of Flickr!

>

> >

>

> > http://www.flickr. com/gift/

>

> >

>

> >