Re: Re: Xolair for sinusitis

[Guest guest]

I also suffered from both asthma and sinus troubles--two sinus

surgeries, no sense of smell--similar story to yours. Xolair had

tremendous positive effects on both asthma and sinusitis. I recovered a

sense of smell for the first time in years. After about 9 months on

xolair, the sinus benefits started to wane and I am now back to my old

stuffy self. My lungs continue to be miraculously clear. Like you, I

had always assumed that my reactive airways were all connected and that

the asthma and the sinus problems went hand in hand. My ENT says he has

had other patients for whom Xolair had similarly temporary effects.

pyle456 wrote:

>

>

> Welcome to the group!

>

> I've been in the same boat you're in. Xolair has helped what I call my

> " allergic sinus disease " immensely. I used to get 9-10 episodes a

> year, all of which would require antibiotics and prednisone. I saw

> three different ENTs, all of whom confirmed that my sinus issues were

> allergic,and t hat they couldn't do anything for me.

>

> I've been on Xolair for 5.5 years. Now I " m down to about three major

> episodes a year. The near daily sinus headaches now come about three

> times a month, usually accompanied by weather issues.

>

> I hope you see a lot of improvement with Xolair. Please keep us posted.

>

> Addy

> Group co-owner

>

>

> >

> > I just had my first Xolair shot and would like to hear if it has

> helped any one's sinusitis. It appears that allergic sinusitis is the

> cause of my asthma flaring up. My total IgE level has been over 2,000

> for at least a year and I have lost my sense of smell. My asthma has

> been much better recently but only Prednasone has helped my smell

> return. I don't want to keep taking that. And I'm trying to avoid

> surgery. Any experience or advice would be appreciated.

> >

> > Meri

> >

>

>

[Guest guest]

I have had one sinus/upper respiratory infection in the three years I have been

on xolair and I think it was because I was already under stress when the

allergies started, plus I was out of the nose sprays.  However, even with that

infection, I only had to take an antibiotic and did not have to take prednisone.

 

I went to the doctor today who is monitoring my xolair and I asked him about how

long I would be taking the xolair.  His clinic is a research clinic for xolair

(I am not part of the research group) and he said they are not sure if someone

will have to take it for life as it is still in the early stages.  I am on

xolair once every six weeks and have been doing well with that routine.  He has

one patient who gets the shot once every eight weeks, and is doing fine.  So I

think it probably depends on each individual patient.  He would not say one way

or the other, at least to me.  He said as long as I was doing well with this

routine he would leave me on it.  If I begin to have difficulty, he will put me

back on once every four weeks.

This is my doctor and my particular case.  Each one is different.

 

Have a great weekend all.  Here's hoping for easy breathing.

 

Adah

From: heather <heaven1975@...>

Subject: [ ] Re: Xolair for sinusitis

Date: Thursday, May 21, 2009, 7:23 AM

i have a similar story to you and addy - sinuses, mainly caused by allergies.

i'd pretty much go from one infection to the next. there were times i couldn't

wean off the prednisone before having to be back on it for sinus issues. i've

been on xolair for a while (5.5 years - wow!) and i'm much better. i still get

sinus infections, but not nearly at the rate i had been. overall, even hte

headaches are better

good luck. keep us posted!

--- In , " prankstermeri " <prankstermeri@ ...>

wrote:

>

> I just had my first Xolair shot and would like to hear if it has helped any

one's sinusitis. It appears that allergic sinusitis is the cause of my asthma

flaring up. My total IgE level has been over 2,000 for at least a year and I

have lost my sense of smell. My asthma has been much better recently but only

Prednasone has helped my smell return. I don't want to keep taking that. And I'm

trying to avoid surgery. Any experience or advice would be appreciated.

>

> Meri

>

[Guest guest]

I failed to mention that before xolair I had two or three, sometimes four

sinus/respiratory infections a year--antibiotic/pred each episode.  So xolair

has really helped me in that area, which has also reduced my asthma episodes,

even though I still have sob from time to time.  But I have not had an episode

at all where I could not do anything or had to go to the emergency room.  Praise

God and thanks to xolair!

 

From: heather <heaven1975 (DOT) com>

Subject: [ ] Re: Xolair for sinusitis

Date: Thursday, May 21, 2009, 7:23 AM

i have a similar story to you and addy - sinuses, mainly caused by allergies.

i'd pretty much go from one infection to the next. there were times i couldn't

wean off the prednisone before having to be back on it for sinus issues. i've

been on xolair for a while (5.5 years - wow!) and i'm much better. i still get

sinus infections, but not nearly at the rate i had been. overall, even hte

headaches are better

good luck. keep us posted!

--- In , " prankstermeri " <prankstermeri@ ...>

wrote:

>

> I just had my first Xolair shot and would like to hear if it has helped any

one's sinusitis. It appears that allergic sinusitis is the cause of my asthma

flaring up. My total IgE level has been over 2,000 for at least a year and I

have lost my sense of smell. My asthma has been much better recently but only

Prednasone has helped my smell return. I don't want to keep taking that. And I'm

trying to avoid surgery. Any experience or advice would be appreciated.

>

> Meri

>

[Guest guest]

My doc almost put on Xolair last year but my asthma is under fair control. I too

have had sinus surgery which relieved my congestion but did not help my nasal

obstruction which prevent my sense of smell. Anyone one out there have any

successes with long term restoration of sense of smell? My sense smell only

returns with courses of prednisone.

It is truly a drag being without...

B

>

>

> Welcome to the group!

>

> I've been in the same boat you're in. Xolair has helped what I call my

> " allergic sinus disease " immensely. I used to get 9-10 episodes a

> year, all of which would require antibiotics and prednisone. I saw

> three different ENTs, all of whom confirmed that my sinus issues were

> allergic,and t hat they couldn't do anything for me.

>

> I've been on Xolair for 5.5 years. Now I " m down to about three major

> episodes a year. The near daily sinus headaches now come about three

> times a month, usually accompanied by weather issues.

>

> I hope you see a lot of improvement with Xolair. Please keep us posted..

>

> Addy

> Group co-owner

>

>

> >

> > I just had my first Xolair shot and would like to hear if it has

> helped any one's sinusitis. It appears that allergic sinusitis is the

> cause of my asthma flaring up. My total IgE level has been over 2,000

> for at least a year and I have lost my sense of smell. My asthma has

> been much better recently but only Prednasone has helped my smell

> return. I don't want to keep taking that. And I'm trying to avoid

> surgery. Any experience or advice would be appreciated.

> >

> > Meri

> >

>

>

[Guest guest]

My ige was just above the minimum required for xolair and I met all of the other

criteria. 

From: prankstermeri <prankstermeri@...>

Subject: [ ] Re: Xolair for sinusitis

Date: Thursday, May 21, 2009, 6:56 PM

I am getting three shots twice a month. Sounds like that is more than anyone

else and I only weigh 108lbs. Does that sound weird to anyone? My total IgE was

just measured at 2,156 which is what they used for deciding how much to give me.

It had been 2,822 last August.

>

>

> From: heather <heaven1975@ ...>

> Subject: [ ] Re: Xolair for sinusitis

>

> Date: Thursday, May 21, 2009, 7:23 AM

>

>

>

>

>

>

>

>

>

> i have a similar story to you and addy - sinuses, mainly caused by allergies.

i'd pretty much go from one infection to the next. there were times i couldn't

wean off the prednisone before having to be back on it for sinus issues. i've

been on xolair for a while (5.5 years - wow!) and i'm much better. i still get

sinus infections, but not nearly at the rate i had been. overall, even hte

headaches are better

>

> good luck. keep us posted!

>

> --- In , " prankstermeri " <prankstermeri@ ...>

wrote:

> >

> > I just had my first Xolair shot and would like to hear if it has helped any

one's sinusitis. It appears that allergic sinusitis is the cause of my asthma

flaring up. My total IgE level has been over 2,000 for at least a year and I

have lost my sense of smell. My asthma has been much better recently but only

Prednasone has helped my smell return. I don't want to keep taking that. And I'm

trying to avoid surgery. Any experience or advice would be appreciated.

> >

> > Meri

> >

>

>

>

>

>

>

>

>

>

>

>

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>

[Guest guest]

My daughter is 18 and her IgE is 5, 981. She gets 3 shots twice a month

also. She weighs 165 currently. I was told they go by your weight and IgE

levels. jean

On Thu, May 21, 2009 at 9:13 PM, Adah Voigt <asthmatic50@...> wrote:

>

>

> My ige was just above the minimum required for xolair and I met all of the

> other criteria.

>

>

>

> From: prankstermeri <prankstermeri@... <prankstermeri%40>>

> Subject: [ ] Re: Xolair for sinusitis

> < %40>

> Date: Thursday, May 21, 2009, 6:56 PM

>

> I am getting three shots twice a month. Sounds like that is more than

> anyone else and I only weigh 108lbs. Does that sound weird to anyone? My

> total IgE was just measured at 2,156 which is what they used for deciding

> how much to give me. It had been 2,822 last August.

>

>

> >

> >

> > From: heather <heaven1975@ ...>

> > Subject: [ ] Re: Xolair for sinusitis

> >

> > Date: Thursday, May 21, 2009, 7:23 AM

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > i have a similar story to you and addy - sinuses, mainly caused by

> allergies. i'd pretty much go from one infection to the next. there were

> times i couldn't wean off the prednisone before having to be back on it for

> sinus issues. i've been on xolair for a while (5.5 years - wow!) and i'm

> much better. i still get sinus infections, but not nearly at the rate i had

> been. overall, even hte headaches are better

> >

> > good luck. keep us posted!

> >

> > --- In , " prankstermeri " <prankstermeri@...>

wrote:

> > >

> > > I just had my first Xolair shot and would like to hear if it has helped

> any one's sinusitis. It appears that allergic sinusitis is the cause of my

> asthma flaring up. My total IgE level has been over 2,000 for at least a

> year and I have lost my sense of smell. My asthma has been much better

> recently but only Prednasone has helped my smell return. I don't want to

> keep taking that. And I'm trying to avoid surgery. Any experience or advice

> would be appreciated.

> > >

> > > Meri

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi, I get three shots every two weeks - my IgE levels have been as low as 4,500

and as high as a little over 6,000.

________________________________

From: Adah Voigt <asthmatic50@...>

Sent: Thursday, May 21, 2009 9:13:48 PM

Subject: Re: [ ] Re: Xolair for sinusitis

My ige was just above the minimum required for xolair and I met all of the other

criteria.

From: prankstermeri <prankstermeri>

Subject: [ ] Re: Xolair for sinusitis

Date: Thursday, May 21, 2009, 6:56 PM

I am getting three shots twice a month. Sounds like that is more than anyone

else and I only weigh 108lbs. Does that sound weird to anyone? My total IgE was

just measured at 2,156 which is what they used for deciding how much to give me.

It had been 2,822 last August.

>

>

> From: heather <heaven1975@ ...>

> Subject: [ ] Re: Xolair for sinusitis

>

> Date: Thursday, May 21, 2009, 7:23 AM

>

>

>

>

>

>

>

>

>

> i have a similar story to you and addy - sinuses, mainly caused by allergies.

i'd pretty much go from one infection to the next. there were times i couldn't

wean off the prednisone before having to be back on it for sinus issues. i've

been on xolair for a while (5.5 years - wow!) and i'm much better. i still get

sinus infections, but not nearly at the rate i had been. overall, even hte

headaches are better

>

> good luck. keep us posted!

>

> --- In , " prankstermeri " <prankstermeri@ ...>

wrote:

> >

> > I just had my first Xolair shot and would like to hear if it has helped any

one's sinusitis. It appears that allergic sinusitis is the cause of my asthma

flaring up. My total IgE level has been over 2,000 for at least a year and I

have lost my sense of smell. My asthma has been much better recently but only

Prednasone has helped my smell return. I don't want to keep taking that. And I'm

trying to avoid surgery. Any experience or advice would be appreciated.

> >

> > Meri

> >

>

>

>

>

>

>

>

>

>

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